Here is my story:
I have been doing very well lately (last 6 weeks). I find I don't have to be too careful with what I eat provided I stay away from overindulgence in the fiber category. I was pretty dumb the other night and thought a couple pieces of celery would be ok dipped in hummus. WRONG! But even with paying the price with D several times in the morning the next day, I'm pretty well back on track a couple of days later eating chicken and rice and gluten free cereal. I am not really even finding any difficulties with bread or pasta. I am however on 9mg of Entocort a day and now want to think about weaning myself.
Since I am able to eat most anything being on the Entocort, my food diaries are not too helpful at this point. I have an appointment with a nutritionist next week to get my MRT testing done (thank you Mary Beth for sending me the name of someone in my area).
My question is, does your diet before MRT testing matter? Should I just keep taking the Entocort until I get my MRT results back and then avoid the highly reactive foods and start to taper my Entocort? Does Entocort interfere with the testing? Is there anything I should be thinking about that I'm missing here? Thank you all in advance. I have so appreciated your support so far. This group is amazing!
foxnhound
MRT testing, Flares and Entocort...
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
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Foxnhound8
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Foxhound,
These are some good questions to ask before MRT. I can tell you are really thinking ahead. Diet before MRT doesn't affect the test, so don't worry about that. Entocort will most likely have an affect on results, so this is difficult to answer. It is never recommended to stop necessary drugs. MRT is a snapshot of intolerances for the current circumstances. You can test on Entocort and it will be accurate for what you body is doing in the present moment, meaning on Entocort. It is not a good idea to start or stop meds early in the LEAP/MRT process or you won't know what working, diet or drugs. You should discuss this with your dietitian. Stopping entocort right before testing could also skew things - I have read on her that it can take several weeks for the effects of entocort to wear off.
You indicate that you are able to eat pretty much anything on Entocort. That will not be the case with MRT. As Polly has indicated, the first few weeks are tough if the program is done as intended. If entocort makes it easy for you to eat what you want, then you should assess if you want to take entocort and eat or go through the difficult early phases of MRT. I guess what I am saying is that of entocort works so well for you, it might be hard to commit to the diet. Just something to think about and decide how you want to approach your treatment.
Good luck with the test. I look forward to reading about your results and progress.
Take care,
Mary Beth
These are some good questions to ask before MRT. I can tell you are really thinking ahead. Diet before MRT doesn't affect the test, so don't worry about that. Entocort will most likely have an affect on results, so this is difficult to answer. It is never recommended to stop necessary drugs. MRT is a snapshot of intolerances for the current circumstances. You can test on Entocort and it will be accurate for what you body is doing in the present moment, meaning on Entocort. It is not a good idea to start or stop meds early in the LEAP/MRT process or you won't know what working, diet or drugs. You should discuss this with your dietitian. Stopping entocort right before testing could also skew things - I have read on her that it can take several weeks for the effects of entocort to wear off.
You indicate that you are able to eat pretty much anything on Entocort. That will not be the case with MRT. As Polly has indicated, the first few weeks are tough if the program is done as intended. If entocort makes it easy for you to eat what you want, then you should assess if you want to take entocort and eat or go through the difficult early phases of MRT. I guess what I am saying is that of entocort works so well for you, it might be hard to commit to the diet. Just something to think about and decide how you want to approach your treatment.
Good luck with the test. I look forward to reading about your results and progress.
Take care,
Mary Beth
"If you believe it will work out, you'll see opportunities. If you believe it won't you will see obstacles." - Dr. Wayne Dyer
This is an interesting question.
I checked to see what dosage of Entocort I was on when I took the MRT test. I had been taking 3 mg. per day for about 6 weeks, and increased to 9 mg. per day 12 days prior to the test. I never considered whether Entocort would have any impact on my results, but it makes sense that it could. Perhaps that's why my green, or non-reactive results are not as reliable as others' results.
Foxnhound,
I agree with Mary Beth that you perhaps aren't ready to commit to the LEAP diet. Most of us have done the MRT testing after we've done the Enterolab testing and have had D in spite of making major changes in our diet. We are usually pretty desperate and are willing to do almost anything in order to achieve remission.
Perhaps you should wait until you begin to reduce Entocort and see if you have deterioration in your BMs. It's possible that you may not need to do extra testing.
Gloria
I checked to see what dosage of Entocort I was on when I took the MRT test. I had been taking 3 mg. per day for about 6 weeks, and increased to 9 mg. per day 12 days prior to the test. I never considered whether Entocort would have any impact on my results, but it makes sense that it could. Perhaps that's why my green, or non-reactive results are not as reliable as others' results.
Foxnhound,
I agree with Mary Beth that you perhaps aren't ready to commit to the LEAP diet. Most of us have done the MRT testing after we've done the Enterolab testing and have had D in spite of making major changes in our diet. We are usually pretty desperate and are willing to do almost anything in order to achieve remission.
Perhaps you should wait until you begin to reduce Entocort and see if you have deterioration in your BMs. It's possible that you may not need to do extra testing.
Gloria
You never know what you can do until you have to do it.
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Foxnhound8
- Adélie Penguin
- Posts: 84
- Joined: Thu Dec 30, 2010 7:34 am
Thanks for your responses Mary Beth and Gloria. I am very committed to getting off the Entocort as it is the only drug I am on and I would like to be back to ZERO drugs in my system, again. You are probably right that I may have some difficulties doing the diet when I am doing so well on Entocort, but I do want to try. I'll let you know what the nutritionist says at my appointment next week.
foxnhound
foxnhound