Hi everyone,
I have only taken 4 doses of the Entocort (9 mg. daily- 3 pills) for my CC and I have gone from watery D to being totally constipated. The other side effects that I have noticed are insomnia (my fibromyalgia medication usually helps me sleep and now it doesn't) and my skin is cool to the touch but I feel like I am burning up. Has it effected anyone else that way?
I am slowly removing gluten from my diet, I didn't know where to start, so I bought a book, the g-free diet by Elisabeth Hasselbeck as a guide. I have substituted some foods already and will continue to do so. I have also eliminated eggs, which I had previously been told that I'm allergic to. My husband is prediabetic and has been told to eat whole grains, so it will be a challenge to prepare meals for both of us.
Thank you for all your previous posts.
Susanne
Entocort side effects
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
suzieq
Dear Susanne,
Entocort effects everybody a little different, reading thru some posts will help find some of the answers as far as gluten free diet, and there are recipes posted.
It sounds that in addition to taking ento. you are making many changes to your diet, all this at the same time could cause the body to go a little 'wacky' until it adjusts. And there is a natural amount of stress thrown into the whole mix.
I recently started a second round of entocort, and yes, as the body tries to stop the d, you can feel constipated, but usually within two days you will go and get back to a routine schedule, depending on eating habits of course.
I too have been making many changes with the diet, but trying to not overwhelm myself, I have removed just wheat products for now, and I do look for gf labels when I shop, just easing my way into it, my bloating has subsided and I can go to work without feeling too 'off'
Dont know how you feel about tea, but I like to sip celestial gardens, 'sleepytime' tea, in the evenings, it helps me to relax and get a little better sleep.
Hope some of this is helpful, just my experiences,
Carol
Entocort effects everybody a little different, reading thru some posts will help find some of the answers as far as gluten free diet, and there are recipes posted.
It sounds that in addition to taking ento. you are making many changes to your diet, all this at the same time could cause the body to go a little 'wacky' until it adjusts. And there is a natural amount of stress thrown into the whole mix.
I recently started a second round of entocort, and yes, as the body tries to stop the d, you can feel constipated, but usually within two days you will go and get back to a routine schedule, depending on eating habits of course.
I too have been making many changes with the diet, but trying to not overwhelm myself, I have removed just wheat products for now, and I do look for gf labels when I shop, just easing my way into it, my bloating has subsided and I can go to work without feeling too 'off'
Dont know how you feel about tea, but I like to sip celestial gardens, 'sleepytime' tea, in the evenings, it helps me to relax and get a little better sleep.
Hope some of this is helpful, just my experiences,
Carol
If you want to change the world, you must start at home.
Susanne
In a situation such as that, it's often a good idea to reduce the dosage rate of Entocort. There's no benefit to be gained by taking more than your body needs to control the symptoms, and too much, (as you have found), can lead to problems.
Actually, it may not be as big a challenge as you think. Grains are primarily sources of carbohydrates, and believe it or not, diabetics are better off limiting/avoiding carbs. Whole grains are not nearly as healthy for anyone, as is generally believed. The government promotes the use of grains as food, because it is the cheapest type of food available, and the only type that world agriculture can produce in sufficient quantity, to meet the needs of the world's consumers.
If you will look at anthropological records - back when the neolithic period began, (10 to 20 thousand years ago), humans were tall, strong, and generally healthy. This was before grain and dairy products became a part of their diet. After the development of an agrarian society, human health entered a period of steady decline. Humans became shorter, weaker, and they developed all sorts of new diseases, (many of them apparently related to diet). These days, even though we can afford to buy pretty much any type of food that we choose, as a species, we are weaker, shorter, and far more prone to disease, than our paleolithic ancestors. Not only that, but outside of the fact that our paleo ancestors lived in a very risky environment, which often led to their early demise, (which resulted in an artificially low life expectancy), the fact of the matter is that provided they escaped environmental risks of the day, they were capable of living just as long as us, and in some cases longer.
In view of all that, you might find the thread at the following link, and the references cited there, to be interesting reading:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=13997
Tex
In a situation such as that, it's often a good idea to reduce the dosage rate of Entocort. There's no benefit to be gained by taking more than your body needs to control the symptoms, and too much, (as you have found), can lead to problems.
Susanne wrote:My husband is prediabetic and has been told to eat whole grains, so it will be a challenge to prepare meals for both of us.
Actually, it may not be as big a challenge as you think. Grains are primarily sources of carbohydrates, and believe it or not, diabetics are better off limiting/avoiding carbs. Whole grains are not nearly as healthy for anyone, as is generally believed. The government promotes the use of grains as food, because it is the cheapest type of food available, and the only type that world agriculture can produce in sufficient quantity, to meet the needs of the world's consumers.
If you will look at anthropological records - back when the neolithic period began, (10 to 20 thousand years ago), humans were tall, strong, and generally healthy. This was before grain and dairy products became a part of their diet. After the development of an agrarian society, human health entered a period of steady decline. Humans became shorter, weaker, and they developed all sorts of new diseases, (many of them apparently related to diet). These days, even though we can afford to buy pretty much any type of food that we choose, as a species, we are weaker, shorter, and far more prone to disease, than our paleolithic ancestors. Not only that, but outside of the fact that our paleo ancestors lived in a very risky environment, which often led to their early demise, (which resulted in an artificially low life expectancy), the fact of the matter is that provided they escaped environmental risks of the day, they were capable of living just as long as us, and in some cases longer.
In view of all that, you might find the thread at the following link, and the references cited there, to be interesting reading:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=13997
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Susanne,
I agree with Tex - you should reduce your Entocort dosage. I never had problems with Entocort and was able to take 3 pills a day. But when I got to the point that I had eliminated many problematic foods, I began to get constipated. Once I reduced the dosage, the constipation went away.
Gloria
I agree with Tex - you should reduce your Entocort dosage. I never had problems with Entocort and was able to take 3 pills a day. But when I got to the point that I had eliminated many problematic foods, I began to get constipated. Once I reduced the dosage, the constipation went away.
Gloria
You never know what you can do until you have to do it.
Susanne
hello again,
I do hope you are feeling a little better, I am finally starting to feel better myself, and the changes to the diet are definately helping me. I like the tea with a little honey.
I notice the entocort dries my skin out, but I make sure to drink lots of fluids throughout the day. Its great when you start to have a little more energy and feel more like facing the world.
The people on here have been great for encouragement and education, That, in itself is healing.
Blessing,
Carol
I do hope you are feeling a little better, I am finally starting to feel better myself, and the changes to the diet are definately helping me. I like the tea with a little honey.
I notice the entocort dries my skin out, but I make sure to drink lots of fluids throughout the day. Its great when you start to have a little more energy and feel more like facing the world.
The people on here have been great for encouragement and education, That, in itself is healing.
Blessing,
Carol
If you want to change the world, you must start at home.
Susanne- I didn't have problems sleeping when I first took Entocort (I also take lunesta, so that could be why), but I had problems with temors and feeling like I was going to jump out of my skin. I also felt hot, but wasn't hot to the touch. I was taking 9 mg. at that time. I am now taking 6 mg without any problems.
I hope things are better for you!
Hugs,
I hope things are better for you!
Hugs,
Denise
"Be the change you want to see in this world."
Mahatma Gandhi
"Be the change you want to see in this world."
Mahatma Gandhi
error, my bad
The tea...its Celestial Seasonings...sleepy time...not celestial gardens...my bad, I have been drinking it for years on and off. Gluten and caffiene free, and honey is also gf.
If you want to change the world, you must start at home.
-
Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
entocort dosage
This is a continuation of the discussion about entocort dosage. I finally got my wish and started entocort 3 days ago. I took 3 pills Wednesday, was feeling very constipated Thursday p.m. and didn't take the 3rd pill. Still very constipated this a.m. and waited to take the entocort until I was able to go. I think I will take just 2 pills a day and see how that works. I'm still on a very strict GF diet awaiting my entero lab results. I'll discuss this when I see my GI doc in 6 weeks but think I need to figure this out myself. Question, is entocort one of those drugs that is not a "one size fits all" drug. Is it dependent upon body weight? Or something else? I weigh 122 lbs and is seems to be common sense that someone who weighs 200 lbs would need more entocort. Then again, maybe not.
Thanks,
Sheila
PS How do you get the emoticons to work? I've tried a few different things but can't make them appear.
Thanks,
Sheila
PS How do you get the emoticons to work? I've tried a few different things but can't make them appear.
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Sheila,
Actually, as far as I am aware, all drugs are weight-dependent. When a vet prescribes a drug for any type of animal, he or she automatically sizes it to fit the weight of the patient. For some strange reason, human doctors almost never do that, (except, of course, for certain critical treatments such as thyroid hormone supplement). I have no idea why, except to guess that this is recommended by the big pharmaceutical companies, so that they don't have to bother to distribute various dosage sizes for every drug. Of course, there is a difference in pediatric doses, but that's because of the huge weight difference between various age categories.
You are quite correct, anyway, that someone who weights 122 pounds should not need to take the same dose as someone who weighs 244, (or whatever). For many drugs, there is such a wide range of suitable efficacy results, that the dosage is not critical. For some individuals, however, that one-size-fits-all policy does not work very well. Some individuals are much more sensitive than others, to some or all drugs. We have at least a couple of members who cannot take more than 3mg of Entocort per day, without significant problems, and 3 mg per day works quite well for them, to resolve their symptoms.
For most browsers, all you have to do, when you get to a place in your message where you want to place an emoticon, is to click on the emoticon that you want, and the system will automatically place it in your message. Once they are in your message, you can cut, copy, and paste them, any way you wish. If you copy them, always be sure that you leave at least one blank space ahead of the first colon, (the code for most emoticons consists of a colon, followed by a name, and ended by another colon), so that everyone's browser can interpret the code correctly.
In order to see many more emoticons, click on the link below the emoticons that says, "View more Emoticons", and expand the window that pops up, so that it will be easier to find the ones you want. If you still have problems with them, (or anything else on the board), please don't hesitate to bring it up, so that we can find a way to resolve the problem.
Tex
Actually, as far as I am aware, all drugs are weight-dependent. When a vet prescribes a drug for any type of animal, he or she automatically sizes it to fit the weight of the patient. For some strange reason, human doctors almost never do that, (except, of course, for certain critical treatments such as thyroid hormone supplement). I have no idea why, except to guess that this is recommended by the big pharmaceutical companies, so that they don't have to bother to distribute various dosage sizes for every drug. Of course, there is a difference in pediatric doses, but that's because of the huge weight difference between various age categories.
You are quite correct, anyway, that someone who weights 122 pounds should not need to take the same dose as someone who weighs 244, (or whatever). For many drugs, there is such a wide range of suitable efficacy results, that the dosage is not critical. For some individuals, however, that one-size-fits-all policy does not work very well. Some individuals are much more sensitive than others, to some or all drugs. We have at least a couple of members who cannot take more than 3mg of Entocort per day, without significant problems, and 3 mg per day works quite well for them, to resolve their symptoms.
For most browsers, all you have to do, when you get to a place in your message where you want to place an emoticon, is to click on the emoticon that you want, and the system will automatically place it in your message. Once they are in your message, you can cut, copy, and paste them, any way you wish. If you copy them, always be sure that you leave at least one blank space ahead of the first colon, (the code for most emoticons consists of a colon, followed by a name, and ended by another colon), so that everyone's browser can interpret the code correctly.
In order to see many more emoticons, click on the link below the emoticons that says, "View more Emoticons", and expand the window that pops up, so that it will be easier to find the ones you want. If you still have problems with them, (or anything else on the board), please don't hesitate to bring it up, so that we can find a way to resolve the problem.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Sheila,
I don't believe Entocort is dependent upon body weight. When I was taking 3 pills a day, my weight was as low as 91 lbs. and I didn't get constipated at that dose until I removed many of the problematic foods from my diet. You've made the correct decision to reduce the dosage to 2 pills per day. If you continue to be constipated, reduce it further. Some of us have taken 2 pills one day, 1 pill the next, etc. You can change your dosage to meet your own requirements.
To use the emoticons, click on the one you'd like and it should appear where your cursor is in the body of your message. If you want to see additional emoticons, click on the "View more Emoticons" link and a new window will open. Once again, click on the emoticon you want, and it will appear where the cursor is.
If you still can't get them to work, Tex will be along to give further instructions.
Gloria
I don't believe Entocort is dependent upon body weight. When I was taking 3 pills a day, my weight was as low as 91 lbs. and I didn't get constipated at that dose until I removed many of the problematic foods from my diet. You've made the correct decision to reduce the dosage to 2 pills per day. If you continue to be constipated, reduce it further. Some of us have taken 2 pills one day, 1 pill the next, etc. You can change your dosage to meet your own requirements.
To use the emoticons, click on the one you'd like and it should appear where your cursor is in the body of your message. If you want to see additional emoticons, click on the "View more Emoticons" link and a new window will open. Once again, click on the emoticon you want, and it will appear where the cursor is.
If you still can't get them to work, Tex will be along to give further instructions.
Gloria
You never know what you can do until you have to do it.
-
Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Thanks for the help with enticort dosage. I didn't think it would make a difference as long as it worked for me. I'm going to go with 2 a day and see if that works, if not, I'll go to 1 a day. Fortunately, my insurance covers the cost or I would be importing it from Canada or wherever. I'm sticking to a strict GF diet until I get back the results from Entero Lab. I don't want to stop the other foods unless I really have to.
When I click on the emoticon it does not appear in the body of the message. What appears is the word describing the emoticon. Weird.
See?? Maybe the emoticon only shows up after the ms. has been sent?
Thanks again, Sheila
When I click on the emoticon it does not appear in the body of the message. What appears is the word describing the emoticon. Weird.
See?? Maybe the emoticon only shows up after the ms. has been sent? Thanks again, Sheila
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Sheila,
Right. The system only adds the code, (bulletin board code, actually), for the emoticon, and it remains in code form until after the post is submitted. Once someone's browser opens your post, the php interpreter in the browser will properly present the emotion in the message, so that it will function normally.
Tex
Right. The system only adds the code, (bulletin board code, actually), for the emoticon, and it remains in code form until after the post is submitted. Once someone's browser opens your post, the php interpreter in the browser will properly present the emotion in the message, so that it will function normally.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.