In May/June this year when I had chronic acid reflux, very painful piles, discomfort and pain from C, issues with my teeth, and felt impact of some hormone medication changes, then I had to go and have upper and lower scopes to investigate the GERD and treat Piles (2nd lot of scopes in under 2 years) I got quite down and questioned ‘is all that I have done and what I do every week with my meals and lifestyle worth it?’ and ‘will I make it through the next 15 years of working and living life with MC?’ At that time i was a bit quiet on the forum, i found it hard to be upbeat about living with MC.
Like the rainbow after the storm things changed....
Just before the scopes I started having 5000iu of Vit D a day and the GERD improved amazingly, (thanks Tex)
After the scopes I started taking a children’s paraffin liquid and the C improved and most of the discomfort went away, and I started taking pure calcium carbonate powder and this also helped the GERD
There was a set back with the infected moler and the oral surgery,
I learnt that my body does not like infection or anaesthetic of any kind
I then started back on my supplement regime and 2 weeks post the surgery the oral surgeon asked me what i had done, as he had not seen any patient heal as well as I did. He thought me with MC that the wound healing would take longer. (All i did was low inflammation foods and have apple and blackcurrent juice for the Vit C, and 5ml of zinc per day)
At the time i didn’t fully appreciate that my diligent eating plan of low inflammation type foods was a key contributor to the good healing results.
2 months after the scopes i had the visit with the GI specialist (this was last week)
She asked me how the PPI meds were going for the GERD and i replied that i wasn’t taking them because I was having good outcomes from using high dose Vit D3 etc
She replied fair enough, and went on to say that the meds would not necessarily work that well given my symptoms (mmm so why did she prescribe them......any wonder I am skeptical of these medical unprofessionals)
now to the lower part of things, she did take quite a few biopsies and none of them showed a lymphocyte level to be MC, based on that in her opinion the MC is in remission.
It was also confirmed that the C issues are not MC related, there is a physical reason why that is occurring. at this stage i was hesitant to trust the MC is in remission statement.
Discussing the results with some of our wise original MC'ers – I know that the status of remission can be ‘fragile’ and can revert to a flare at any time.
There is still immune/adrenal/leaky gut/gerd issues that do cause some stress on my body, albeit the recovery after the oral surgery and the 'apparent' MC in remission status answered my question, yes it is worth it
Looking back to where i was mentally and emotionally 5 months ago
Is all that i have done and what i do every week with my meals and lifestyle worth it – Damn right it was/is worth it..
with diligent attention to my eating plan, changing jobs to one that doesnt require travel, moving from a 2.1 million city to a rural hub that is a 150,000 person city where life is less stressful, i have gained good control on the MC, and the eating plan and supplements are keeping the acid reflux at bay
Admittedly my life now is quite different to the one pre MC Dx, but that is not a bad thing, like how we repogramme our brain and tastebuds for the diet changes, it takes time (via a grieving process) to let go of some of the elements that were pre MC dx and to appreciate what is important in my life now.
Will I make it through the next 15 years – who knows??? Does any of us know where we will be in 2 years time or even in 2 months time. The important thing is to live in the now and appreciate what is around me, I am reasonable well, if i can trust the biopsy results then i have managed to reduce the inflammation and lymphocyte numbers considerably to what they were 22 months ago and that is something worth celebrating.....
I have pretty good quality of life, I enjoy my work, I like where I live and the lifestyle it gives me, I have enough money for my foods, supplements, treatments (acupuncture/BIA/massage) and treats like coconut icecream and rice milk chocolate.
I was very blessed, the journey to find what works for me was not too arduous,
- firstly the wonderful people on this site, the wealth of information, the laughs and the hugs that made the journey alot easier.
- I had been avoiding gluten, lactose and yeast for about 10 years before Dx so the adjustment to a 'pure' GF/SF/DF/YF lifestyle was not totally foreign.
- I have beautiful friends who are naturopaths who give me valuable advice and good quality supplements at cost
- access to great practitioners like Shauno acupuncturist extraordinaire and Helen for the BIA (which was like a blend of MRT testing and Acupuncture treatments) who have help me to support and nurture my body to all that is going on
next to the tag line of 'there is no right way or wrong way there is your way' - i think there is another ' you get what you give'
Hang in there, if you give your everything into finding what works for you, you support and nuture your body, things will improve, it is worth it and you will get your life back.
Me working in France, with a GF, DF, SF cake....
to the club for MCers who now have negative biopsy results. There aren't many of us here yet, but I know the numbers will be growing. You achieved "clean" microscopic results much faster than I did - remember, my biopsies were still positive after 5 years of MC and diet. 
. I LOVE your attitude - you listen to your body, take your own advise and don't hesitate to explore all possible ways of helping the healing process along. You are a true inspiration.
