Is it safe to buy entocort from India?
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Is it safe to buy entocort from India?
My husband visited the GI yesterday, got prescription for Entocort which is going to cost close to $600 for 1 month supply which he probably isn't going to order. I went on line after reading a post re buying from India which is a whole lot less expensive. When the gi nurse called today after pharmacy called them I asked about ordering online and she said not to buy from India or Canada because they don't have the same safety rules as usa. I feel very comfortable buying from Canada because we lived on the border for many yrs but not sure if that can be done from the usa. Would appreciate any input from those experienced regarding this. My husband is getting very depressed - I am trying to get him to go gf/df/sf to see if that helps but he hasn't gotten that desperate yet I guess. Although this a.m he ate the gluten free horrible bread so maybe am making progress one step at a time.
Hi,
a) there are some great gluten free breads, or you can make your own. Easily, if you can use rice flour and eggs.
There are recipes and sites in Dee's Kitchen, and I like this site
http://glutenfreegoddess.blogspot.com/
My son likes Udi's gluten free bread and other products. There are numerous gluten free bakeries around the country. I don't know where you live or if you have access to one. Many members like Schar's gluten free products.
b)alldaychemist.com is in India and the meds are FINE! Many of us have used them. It's much cheaper, but you have to wait for about 3 weeks to receive them.
Hope that helps.
a) there are some great gluten free breads, or you can make your own. Easily, if you can use rice flour and eggs.
There are recipes and sites in Dee's Kitchen, and I like this site
http://glutenfreegoddess.blogspot.com/
My son likes Udi's gluten free bread and other products. There are numerous gluten free bakeries around the country. I don't know where you live or if you have access to one. Many members like Schar's gluten free products.
b)alldaychemist.com is in India and the meds are FINE! Many of us have used them. It's much cheaper, but you have to wait for about 3 weeks to receive them.
Hope that helps.
I ordered from Canada, and it was no problem. Later on I found out about ordering from India, but by then I wasn't using Entocort any more. Everyone on this board who has ordered from India has found the quality to be fine. It is a little less expensive than what I got from Canada. Can your husband's GI give him some samples? My GI have me almost a month's worth of samples, and that kept me going until I got the stock from Canada. (I didn't tell them I was ordering from Canada; I just asked for samples because I couldn't afford my $600/mo. copay. It sounds like we have similar insurance!)
Udi's bread is quite nice. I like it best of the commercial ones I've found. Pamela's bread mix also is good, if you want to make it yourself.
Love,
Martha
Udi's bread is quite nice. I like it best of the commercial ones I've found. Pamela's bread mix also is good, if you want to make it yourself.
Love,
Martha
Martha
Members who have ordered the generic from both Canada and India have pointed out that they received the same product from both sources - it's made in India, (not Canada), and shipped to Canada, (that's why it costs more in Canada) - many, many generics sold by name-brand manufacturers are made in India.
As far as I'm aware, no one who has actually tried the products, and compared them, has found any difference between the effectiveness of Entocort EC, and the generic product, (Budez CR), from India. Most of the time required to receive an order is spent with the package sitting in Customs, waiting to be sent on for delivery. As I recall, a 3-month supply, (270 capsules) costs a little over $120, plus shipping, from India. U. S. Customs regulations don't allow citizens to order more than a 90-day supply, at one time.
Tex
As far as I'm aware, no one who has actually tried the products, and compared them, has found any difference between the effectiveness of Entocort EC, and the generic product, (Budez CR), from India. Most of the time required to receive an order is spent with the package sitting in Customs, waiting to be sent on for delivery. As I recall, a 3-month supply, (270 capsules) costs a little over $120, plus shipping, from India. U. S. Customs regulations don't allow citizens to order more than a 90-day supply, at one time.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
It would be interesting to figure out if the generic version is also available in Jordan. Medication does not require a doctor's prescribtion here (expect for some sleeping medication, probably some heavy pain killers like morphine and pills that keeps you quiet, anything ending on -am oxazepam etc) and can be bought freely.
Since everything seems to be "made in China" (because it is cheap), I would expect a lot of the medication is coming from the generic India market. Jordan has a sort of medical industry, since many people in the whole region come to Jordan for medical treatment. Quality and standard is good and prices (especially compared the richer countries in Europe and the US) are low.
Only in the area where I live I have two major hospitals within walking distances and pharmacies, you don't want to know, too many...
Since I am talking about Jordan and health. Last week I read an article in where was stated that 30% (!!!!) of the population suffers from diabetic type II. Can you imagine, one/third of the people. Maybe it was 1/3 of the adult population but than still, that would be a medical disaster for the country.
Since everything seems to be "made in China" (because it is cheap), I would expect a lot of the medication is coming from the generic India market. Jordan has a sort of medical industry, since many people in the whole region come to Jordan for medical treatment. Quality and standard is good and prices (especially compared the richer countries in Europe and the US) are low.
Only in the area where I live I have two major hospitals within walking distances and pharmacies, you don't want to know, too many...
Since I am talking about Jordan and health. Last week I read an article in where was stated that 30% (!!!!) of the population suffers from diabetic type II. Can you imagine, one/third of the people. Maybe it was 1/3 of the adult population but than still, that would be a medical disaster for the country.
"As the sense of identity shifts from the imaginary person to your real being as presence awareness, the life of suffering dissolves like mist before the rising sun"
JTA, I ordered Entocort from North Drugstore in Canada, and paid about $200 for a 3-month supply. I just went and looked at the ones I had left over, and they are Budez CR, made in India. So if you can get them for $120 direct from India, that's a better deal for the same product.
So you live in Fort Worth. We are in the little finger of Dallas that sticks down between Duncanville and Cedar Hill, just south of I-20. Comparatively close!
Martha
So you live in Fort Worth. We are in the little finger of Dallas that sticks down between Duncanville and Cedar Hill, just south of I-20. Comparatively close!
Martha
Martha
website for ordering Entocort from India
Could someone post a reliable online company to order Entocort from India? Have googled several but reluctant to order from just any one online. Thank you. I have spent hours reading on this message board in the past few weeks in order to help my husband and will continue to read and learn all I can. We had our first visit to the GI and when we told him what the cost was for the meds he recommended another one which has all kinds of warnings and my husband fits in the category of people that have certain conditions and shouldn't take it. It also has sulfa and my husband is allergic to it. So this GI didn't even read the questionaire that we filled out which specifically stated he was allergic to it. I just don't get it!! What's wrong with these people?
They're making too much money, and they get paid whether they know what they're doing, or not. Most of the rest of us don't get paid unless we know what we're doing, and we actually get results.jta wrote:What's wrong with these people?
Not to defend your doctor, but he probably recommended sulfasalazine, because it's by far the cheapest drug that can be used to treat MC. Of course, the reason it's so cheap is because it's a very old drug, and most people are allergic to it, these days. Here's a link to the pharmacy that most members use to order generic Entocort.
https://www.alldaychemist.com/1447-budez-cr-3mg.html
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Tex. I appreciate all the information that you have spent so many hours researching. You sound like you're pretty knowledgable and know what you're talking about. Wish these gis would spend more time on their homework. They're dealing with people's lives and I wonder if any of them check their files on their patient and try to evaluate what has happened in the past and tie it into what is currently going on. In my line of business ,my clients (and I'm not in the medical field which is certainly more important) get a lot more of my time, research and concern than we get from Drs. I Just don't understand it.
I am new to this forum and so happy have found it. I have had MC for about 6 yrs. Only thing that works is Entocort. GI had me try PB, Imodiium , Asacol and combos of those but it did NOTHING but Entocort works in 24 hours. First remission was 6 months then almost a yr and then almost 3 years but flared in Nov 2011. I am using 2.5 year old Entocort and so far so good. I hoarded it and checked with the manufacturer and they said the shelf life was three years in a certain temp range so I took the chance and it was fine. I was only able to get the full treatment amount 3 years ago because my hubby had major surgery so after we paid our insurance deductible I could get all meds FREE so I stocked up like crazy. Like most of us I cannot afford the horrendously high US price of this amazing med and under my RX plan the generic is even higher priced than the brand which stunned me. I have found that when I flare I can take just one Entocort a day and it works fine so I stay on that dosage for months. If I could I would stay on one a day for maintenance for life and take my chances with side effects. Have never had any side effects yet.
When I run out and/or the Entocort is no good I am going to get an RX and order from Canada. Thanks for the reference to the pharmacy you used. Its helpful to know whats 'ok'. How do you get the RX to them? Snail mail I presume. I see that you can order on line or fax so THEN you send them the RX before they will fill it? I want to know the process so I will be ready. I also have a friend in Canada but don't know if she can take my RX and get it filled. I don't feel comfortable order all the way from India.
Tx for any info you can offer me
Terri
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When I run out and/or the Entocort is no good I am going to get an RX and order from Canada. Thanks for the reference to the pharmacy you used. Its helpful to know whats 'ok'. How do you get the RX to them? Snail mail I presume. I see that you can order on line or fax so THEN you send them the RX before they will fill it? I want to know the process so I will be ready. I also have a friend in Canada but don't know if she can take my RX and get it filled. I don't feel comfortable order all the way from India.
Tx for any info you can offer me
Terri
-----------------------------
Martha wrote:JTA, I ordered Entocort from North Drugstore in Canada, and paid about $200 for a 3-month supply. I just went and looked at the ones I had left over, and they are Budez CR, made in India. So if you can get them for $120 direct from India, that's a better deal for the same product.
So you live in Fort Worth. We are in the little finger of Dallas that sticks down between Duncanville and Cedar Hill, just south of I-20. Comparatively close!
Martha
Hi Terri,
Welcome to the board. Please be aware that if you intend to use Entocort as your long-term treatment, then you are better off never stopping taking it, (even if you only take one capsule every 3 days), because if you stop taking it, and allow all of the residual budesonide to purge from your body, then start taking it again, and you repeat that cycle over and over, enough times, eventually your body will build up a tolerance for it, and it will stop being effective for you. The experience of numerous members of this board have demonstrated that to be true. Some members can go through more cycles than others, but eventually, it stops working for virtually everyone.
At least the Indian pharmacy is honest enough to recognize that. Canada's policy is an unnecessary PITA. The only restriction to keep in mind is the fact that U. S. Customs will only allow citizens of this country to order up to a 3-month supply of any drug. Larger orders will be assumed to be connected with an illegal resale dealership, and they will be confiscated at the port of entry.
Incidentally, I notice that you list "none" as your food intolerances in your profile. Please be aware that if you did not have any food intolerances, you would not have to take Entocort, to control your MC symptoms. The inflammation associated with MC is generated by autoimmune reactions against certain foods in our diet. When the genes that predispose to MC are triggered, for most of us, the genes that predispose to certain food sensitivities are also triggered. That's why we suddenly become sensitive to gluten, and usually casein, virtually overnight, even though they may have never been a problem, before. Some of us have additional sensitivities, but almost all of us are sensitive to gluten and all dairy products. All but a handfull of GI specialists are unaware of that connection, and most will argue that diet has nothing to do with MC. That's like arguing that breathing polluted air has nothing to do with lung disease, emphysema, asthema, COPD, etc.
If you're happy with your current treatment, I'm not saying that you need to change - I'm just pointing this out, in case the Entocort ever stops working for you, or in case you should decide that you don't want to take a corticosteroid for the rest of your life, (because of the osteoporosis issue, adrenal risks, or various side effects, etc.).
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
Welcome to the board. Please be aware that if you intend to use Entocort as your long-term treatment, then you are better off never stopping taking it, (even if you only take one capsule every 3 days), because if you stop taking it, and allow all of the residual budesonide to purge from your body, then start taking it again, and you repeat that cycle over and over, enough times, eventually your body will build up a tolerance for it, and it will stop being effective for you. The experience of numerous members of this board have demonstrated that to be true. Some members can go through more cycles than others, but eventually, it stops working for virtually everyone.
They don't need a prescription. The requirement by Canadian pharmacies for prescriptions for orders sent to the U. S. is just a feel-good gesture. No doctor's prescription is valid across the border of the country in which they are licensed to practice. Prescriptions written by foreign doctors are invalid in this country, and prescriptions written by U. S. doctors are worthless in any other country in the world.Terri wrote:How do you get the RX to them?
At least the Indian pharmacy is honest enough to recognize that. Canada's policy is an unnecessary PITA. The only restriction to keep in mind is the fact that U. S. Customs will only allow citizens of this country to order up to a 3-month supply of any drug. Larger orders will be assumed to be connected with an illegal resale dealership, and they will be confiscated at the port of entry.
Incidentally, I notice that you list "none" as your food intolerances in your profile. Please be aware that if you did not have any food intolerances, you would not have to take Entocort, to control your MC symptoms. The inflammation associated with MC is generated by autoimmune reactions against certain foods in our diet. When the genes that predispose to MC are triggered, for most of us, the genes that predispose to certain food sensitivities are also triggered. That's why we suddenly become sensitive to gluten, and usually casein, virtually overnight, even though they may have never been a problem, before. Some of us have additional sensitivities, but almost all of us are sensitive to gluten and all dairy products. All but a handfull of GI specialists are unaware of that connection, and most will argue that diet has nothing to do with MC. That's like arguing that breathing polluted air has nothing to do with lung disease, emphysema, asthema, COPD, etc.
If you're happy with your current treatment, I'm not saying that you need to change - I'm just pointing this out, in case the Entocort ever stops working for you, or in case you should decide that you don't want to take a corticosteroid for the rest of your life, (because of the osteoporosis issue, adrenal risks, or various side effects, etc.).
Again, welcome aboard, and please feel free to ask anything.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks so much Tex
Thanks for the welcome and I am so glad to be here.
Before I posted I read many of your posts on dietary issues. I can't say that my diet may not be affecting me but my trusted GI took me off wheat and then dairy and there was no change in my bowel habits. He tried so hard to diagnose me with every test in the book as well as the dietary changes. His final method was another colon 'exploratory'. I had my second colonoscopy just months earlier but of course there were no symptoms then so he did not do biopsies. They found the collagen with the biopsies taken during the extra colonoscopy. He hoped that something other than the corticosteroid would work for me but after going up the ladder it turned out Entocort was the only solution. I wish the Asacol had worked...much cheaper. When I found out that even though it is in the steroid family it does go directly to the colon and not into the blood stream like others I was at ease. The only reason I even knew/know when I am on Entocort was/is the improvement in my BMs and I can go out in public without panic. No side effects at all. I am a very young 65 and have a little BP elevation (I used to have familial low BP so any increase is considered an outlier) and slight Cholesterol (I manufacture it as did my Mom) . Thats all I have in the way of medical issues other than the MC and all but the MC are well managed.
When I am in remission I don't make any changes to my diet and then suddenly it comes back. After almost 3 yrs this last time I had almost forgotten I even had MC. I was devastated when I figured out it was not just regular 'D' which I get occasionally. One Imodium will fix that almost immediately. As a few days passed and the output turned into what I call sand and the Imodium did nothing, I knew I was in trouble.
About the RX in Canada....are we 'saying' that I don't have to go to my GI and get a physical prescription? The Canadian sites I have seen so far strongly indicate that the RX needs to be mailed to them after the order is placed. I just want to cover my bases before I order. As for customs I will be quite content with 3 months of the 3>2>1 regimented #of pills. Having said that...will they give me that amount? It is legit for the 3 month course of treatment.
Tx again,
Terri
Before I posted I read many of your posts on dietary issues. I can't say that my diet may not be affecting me but my trusted GI took me off wheat and then dairy and there was no change in my bowel habits. He tried so hard to diagnose me with every test in the book as well as the dietary changes. His final method was another colon 'exploratory'. I had my second colonoscopy just months earlier but of course there were no symptoms then so he did not do biopsies. They found the collagen with the biopsies taken during the extra colonoscopy. He hoped that something other than the corticosteroid would work for me but after going up the ladder it turned out Entocort was the only solution. I wish the Asacol had worked...much cheaper. When I found out that even though it is in the steroid family it does go directly to the colon and not into the blood stream like others I was at ease. The only reason I even knew/know when I am on Entocort was/is the improvement in my BMs and I can go out in public without panic. No side effects at all. I am a very young 65 and have a little BP elevation (I used to have familial low BP so any increase is considered an outlier) and slight Cholesterol (I manufacture it as did my Mom) . Thats all I have in the way of medical issues other than the MC and all but the MC are well managed.
When I am in remission I don't make any changes to my diet and then suddenly it comes back. After almost 3 yrs this last time I had almost forgotten I even had MC. I was devastated when I figured out it was not just regular 'D' which I get occasionally. One Imodium will fix that almost immediately. As a few days passed and the output turned into what I call sand and the Imodium did nothing, I knew I was in trouble.
About the RX in Canada....are we 'saying' that I don't have to go to my GI and get a physical prescription? The Canadian sites I have seen so far strongly indicate that the RX needs to be mailed to them after the order is placed. I just want to cover my bases before I order. As for customs I will be quite content with 3 months of the 3>2>1 regimented #of pills. Having said that...will they give me that amount? It is legit for the 3 month course of treatment.
Tx again,
Terri
Hi Terri,
No, the Canadian pharmacies require a prescription, even though prescriptions written by a U. S. doctor are not valid in Canada. It's a token gesture to the medical industry, on their part. The Indian pharmacy mentioned does not require a prescription. Customs will allow 3 months worth of drugs - no more. That means that you can order 270 capsules of Budez CR, max.
How many months did you remain on the diet? If it was less than 3 or 4, (preferably at least 6 or 8), that may explain why you didn't see any difference. A few people see significant improvement much sooner, but it takes some of us much longer, typically from 6 months to a year. It took me a year and a half, because I had to cut out gluten, dairy, corn, most fruits and vegetables, all but traces of sugar, and all but traces of fiber. Most doctors don't have the foggiest idea how long it takes for the gut to heal from gluten damage. Research shows that after 2 full years on the diet, only a third of people who are gluten-sensitive show full intestinal recovery, and it takes 5 years for two-thirds of them to heal. That means that after 5 years, the intestines of a third of them still have not fully healed.
Also, unless you cut out all of your food-sensitivities, at the same time, you may not see any significant improvement. About half of us are also sensitive to soy, (and all legumes), in addition to gluten and casein. Cutting them out one or two at a time, or cutting them out for a few weeks or so, often has no effect, in many cases. We are all different in that respect. The time required depends on how sensitive we are, how many sensitivities we have, how long we have been sensitive to those foods while continuing to eat them, etc. The longer we eat those foods, the longer it takes our gut to heal, after we stop eating them, because our immune system continues to produce IgA antibodies in our intestines, and it takes a long time for gluten antibodies, (anti-gliadin antibodies, actually), to decline to a level where we will stop reacting to them.
It's obviously great that your GI specialists tried so hard to diagnose you, and I'll certainly give him credit for trying to be helpful, (unfortunately, may GI docs who don't understand the disease are not very helpful, and not even willing to try), but the fact that he did a second colonoscopy in less than 5 years after the first, is clear evidence that he is very unfamiliar with the disease, and he's trying to learn, (using you as a guinea pig, so to speak). From the patient's perspective, once a diagnosis of MC is in place, a second cononoscopy, (so soon after the first), is virtually always an unnecessary expense, inconvenience, risk, and waste of time. When a GI doc tries to second-guess a previous diagnosis, simply because he or she is unable to resolve the symptoms, that means that he or she is lost, unfortunately. But I will certainly give him credit for trying to learn. There are better places to learn than by experimenting on patients, though.
He should do what we do, and get on the internet, to keep up with research, and to learn what actually works, and what doesn't work.
Entocort is a very effective drug for many people. You're very fortunate to not have any side effects from it. Many members here would love to be able to take it, but can't, because of the side effects that it causes for them.
You're most welcome,
Tex
No, the Canadian pharmacies require a prescription, even though prescriptions written by a U. S. doctor are not valid in Canada. It's a token gesture to the medical industry, on their part. The Indian pharmacy mentioned does not require a prescription. Customs will allow 3 months worth of drugs - no more. That means that you can order 270 capsules of Budez CR, max.
How many months did you remain on the diet? If it was less than 3 or 4, (preferably at least 6 or 8), that may explain why you didn't see any difference. A few people see significant improvement much sooner, but it takes some of us much longer, typically from 6 months to a year. It took me a year and a half, because I had to cut out gluten, dairy, corn, most fruits and vegetables, all but traces of sugar, and all but traces of fiber. Most doctors don't have the foggiest idea how long it takes for the gut to heal from gluten damage. Research shows that after 2 full years on the diet, only a third of people who are gluten-sensitive show full intestinal recovery, and it takes 5 years for two-thirds of them to heal. That means that after 5 years, the intestines of a third of them still have not fully healed.
Also, unless you cut out all of your food-sensitivities, at the same time, you may not see any significant improvement. About half of us are also sensitive to soy, (and all legumes), in addition to gluten and casein. Cutting them out one or two at a time, or cutting them out for a few weeks or so, often has no effect, in many cases. We are all different in that respect. The time required depends on how sensitive we are, how many sensitivities we have, how long we have been sensitive to those foods while continuing to eat them, etc. The longer we eat those foods, the longer it takes our gut to heal, after we stop eating them, because our immune system continues to produce IgA antibodies in our intestines, and it takes a long time for gluten antibodies, (anti-gliadin antibodies, actually), to decline to a level where we will stop reacting to them.
It's obviously great that your GI specialists tried so hard to diagnose you, and I'll certainly give him credit for trying to be helpful, (unfortunately, may GI docs who don't understand the disease are not very helpful, and not even willing to try), but the fact that he did a second colonoscopy in less than 5 years after the first, is clear evidence that he is very unfamiliar with the disease, and he's trying to learn, (using you as a guinea pig, so to speak). From the patient's perspective, once a diagnosis of MC is in place, a second cononoscopy, (so soon after the first), is virtually always an unnecessary expense, inconvenience, risk, and waste of time. When a GI doc tries to second-guess a previous diagnosis, simply because he or she is unable to resolve the symptoms, that means that he or she is lost, unfortunately. But I will certainly give him credit for trying to learn. There are better places to learn than by experimenting on patients, though.
He should do what we do, and get on the internet, to keep up with research, and to learn what actually works, and what doesn't work.Entocort is a very effective drug for many people. You're very fortunate to not have any side effects from it. Many members here would love to be able to take it, but can't, because of the side effects that it causes for them.
You're most welcome,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Ok I've got it now...give them the RX as a gesture. 270 capsules would work just fine.
I am sure I was not on the diets long enough to have my gut react the way you say it should. With no other symptoms there is no way I could stay on them for as long as you suggest without the Entocort so that would defeat the purpose. Judging by the weight I lost in the months while they were trying to diagnose me I would have totally wasted away in 4-6 months while not having certain things in my diet and no meds. I just am not grasping that I could have all those food sensitivities but never had any symptoms in 59 years and then all of a sudden I got severe 'D' and it was due to food sensitivity. Also would I be sensitivity symptom free while in MC remission for more than 2 years? It is obvious you have taken the time to be well versed in this area and your research and experience has taught you well . Its wonderful that you take the time to share and coach members of this forum but it just does not seem plausible to me that food sensitivity is a widespread root cause of MC or the GI community would surely know about it. I know two people with Celiac and one who is lactose intolerant and they have many symptoms I have never had. All I had was terrible 'D' and was almost housebound. Didn't even have cramping or much gas; just pooped all the time like I was preparing for a colonoscopy. It only took 5-10 minutes for anything I ate to leave my bod so there was very little digestion activity.
You sure are sensitive to a lot of food categories. What else can you eat besides protein? Your diet must really be almost all low carb. Bottom line is that we have do what works for us.
I need to clarify about the colonoscopy timing scenario. I had my first routine and had 3 polyps. I had my second routine 5 years later and all was well. I only had the third one because my GI ( he is one of the best in the Wash DC area) had exhausted diagnostic testing to find the reason for my debilitating 'D'. He wanted/needed biopsies of my colon and only one way to get them. He did not want to 'intrude' again so soon but had no choice and I am so grateful he did. I did not go to him blindly. I am very thorough in vetting any specialist I go to. My PCP and two nurse friend highly recommended him for all things gastric and then I researched him and his practice. I had been to him long before the MC for symptoms that felt like like strangulation just under the breast cage and were extremely painful. Had endoscope and all sorts of other tests and all negative. Turned out to be all about stress in those days and I learned how to manage that.
Entocort has been good to me and I would take it for life if I can find it at a reasonable price.
Thank you once again for sharing with me and be well,
Terri
I am sure I was not on the diets long enough to have my gut react the way you say it should. With no other symptoms there is no way I could stay on them for as long as you suggest without the Entocort so that would defeat the purpose. Judging by the weight I lost in the months while they were trying to diagnose me I would have totally wasted away in 4-6 months while not having certain things in my diet and no meds. I just am not grasping that I could have all those food sensitivities but never had any symptoms in 59 years and then all of a sudden I got severe 'D' and it was due to food sensitivity. Also would I be sensitivity symptom free while in MC remission for more than 2 years? It is obvious you have taken the time to be well versed in this area and your research and experience has taught you well . Its wonderful that you take the time to share and coach members of this forum but it just does not seem plausible to me that food sensitivity is a widespread root cause of MC or the GI community would surely know about it. I know two people with Celiac and one who is lactose intolerant and they have many symptoms I have never had. All I had was terrible 'D' and was almost housebound. Didn't even have cramping or much gas; just pooped all the time like I was preparing for a colonoscopy. It only took 5-10 minutes for anything I ate to leave my bod so there was very little digestion activity.
You sure are sensitive to a lot of food categories. What else can you eat besides protein? Your diet must really be almost all low carb. Bottom line is that we have do what works for us.
I need to clarify about the colonoscopy timing scenario. I had my first routine and had 3 polyps. I had my second routine 5 years later and all was well. I only had the third one because my GI ( he is one of the best in the Wash DC area) had exhausted diagnostic testing to find the reason for my debilitating 'D'. He wanted/needed biopsies of my colon and only one way to get them. He did not want to 'intrude' again so soon but had no choice and I am so grateful he did. I did not go to him blindly. I am very thorough in vetting any specialist I go to. My PCP and two nurse friend highly recommended him for all things gastric and then I researched him and his practice. I had been to him long before the MC for symptoms that felt like like strangulation just under the breast cage and were extremely painful. Had endoscope and all sorts of other tests and all negative. Turned out to be all about stress in those days and I learned how to manage that.
Entocort has been good to me and I would take it for life if I can find it at a reasonable price.
Thank you once again for sharing with me and be well,
Terri