Hi,
Bad night AGAIN multiple BM's.. I do hear all of you this is about foods so here is my question (remember I have been fighting giving up food groups) I ate a meal that was heavy in the dairy area seven hours later the D started. However 24 hours before that I ordered white rice from the chinese restaurant (it was a work lunch thought that would be ok) could that be causing the reaction after so many hours. Sooo confused. I am giving up dairy as of today breads are going to be a challenge since I can't eat most of the gluten free things because of additional additives. OK MC or whatever they are saying is wrong with me this week I give up you win.
Thank you
K
Bad Night - question about reaction times
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Hi Kitty, this can be frustrating....I know the feeling of feeling defeated, it's not easy making these changes in our lives. I think that it helps to change the way we look at this challenge, we each and every day have the opportunity to choose our attitude. Choosing our attitude makes all of the difference. Do we have to have breads or dairy to live...no...we prefer to have them as we are used to eating them.
Accepting what dietary changes we need to make means we win, not MC or UC or whatever. This is just a single step in taking control of the choices we need to make to achieve and maintain health. This is a tough step but an important one and the first of many that get easier each day.
I'm sorry you had a rough night, I know that can be awful, lack of sleep and the discomfort is a bad combination, although its experiences like this that help us along the road to acceptance. I went through a phase like this kitty and even with some of the big gun meds I still have to be careful in what I eat.
This is a lifelong change and I think what helped me most is adopting a new menu and learning how to cook it. There is a great section of this website called Dees kitchen and there is a great book called Paleo Comfort Foods that has lots of great recipes. To be honest Kitty after a few tweaks to the ingredients I use, I don't miss gluten, soy or dairy. Here are a couple of links.
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
http://www.amazon.com/Paleo-Comfort-Foo ... 249&sr=1-1
I'm glad you are learning about what affects you, although right now it's frustrating and tough, it does get easy...MC or UC does have a direct way of reminding us when we eat the wrong things.
I hope you feel better soon
Accepting what dietary changes we need to make means we win, not MC or UC or whatever. This is just a single step in taking control of the choices we need to make to achieve and maintain health. This is a tough step but an important one and the first of many that get easier each day.
I'm sorry you had a rough night, I know that can be awful, lack of sleep and the discomfort is a bad combination, although its experiences like this that help us along the road to acceptance. I went through a phase like this kitty and even with some of the big gun meds I still have to be careful in what I eat.
This is a lifelong change and I think what helped me most is adopting a new menu and learning how to cook it. There is a great section of this website called Dees kitchen and there is a great book called Paleo Comfort Foods that has lots of great recipes. To be honest Kitty after a few tweaks to the ingredients I use, I don't miss gluten, soy or dairy. Here are a couple of links.
http://www.perskyfarms.com/phpBB2/viewforum.php?f=7
http://www.amazon.com/Paleo-Comfort-Foo ... 249&sr=1-1
I'm glad you are learning about what affects you, although right now it's frustrating and tough, it does get easy...MC or UC does have a direct way of reminding us when we eat the wrong things.
I hope you feel better soon
Joe
Thanks Joe,
I feel like Im becoming a full time job for the this board lol I will look at the web sites you provided. I keep a journal of the foods I eat and it never seems to be the same food twice that triggers the extra bad D. (as opposed to the daily D I have) So far all i know is Pizza affects me but is it the cheese, bread, tomato, oils I don't know.
Oh for the old life lol
Hugs and Thanks,
K
I feel like Im becoming a full time job for the this board lol I will look at the web sites you provided. I keep a journal of the foods I eat and it never seems to be the same food twice that triggers the extra bad D. (as opposed to the daily D I have) So far all i know is Pizza affects me but is it the cheese, bread, tomato, oils I don't know.
Oh for the old life lol
Hugs and Thanks,
K
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Joefnh
- Rockhopper Penguin
- Posts: 2478
- Joined: Wed Apr 21, 2010 8:25 pm
- Location: Southern New Hampshire
Kitty, I would forget pizza...that's a real landmine for MC. As far as becoming a full time job...nope...I think most of us at first go through the same process of frustration and acceptance.
What I did to get things settled down was to go back to the basics...I did not eat out or purchase any pre made packaged foods. I purchased whole food simple ingredients and cooked them myself.
This early on, think of feeding a baby, you start it with very simple foods and slowly add one at a time. This is the same thing, we are relearning what we can eat.
I cook all of my own foods mostly on the weekends and make enough for all of my lunches and dinners, that's actually what I'm doing right now. I freeze what I don't need for a few days and then have the portions in the freezer ready when I need them.
The menu I follow is pretty simple, a few meats, usually chicken, beef and lamb or a fish like salmon. For veggies I use only well cooked carrots, peas or broccoli and for a starch it's white rice or sweet potato. These ingredients make up 95% of my diet. As time went on, and healing did take place (several months) I was able to occasionally add a new ingredient. You are relearning what you can tolerate. Every now and then have things like my homemade ribs with a homemade BBQ sauce, but I don't make a habit of it.
The goal Kitty is to start simple and slow and then add one ingredient at a time and then over several days see how well you tolerate it. It is important to have a ready supply of safe foods available as there are few safe choices easily available, so I would reccomend having a ready supply in the fridge and freezer that you can grab when you don't feel like cooking and are tempted to eat out. As I have found my energies limited with these autoimmune conditions, I find that doing a major cook up on the weekends is the best way to prepare for a busy week as at the end of the day I often don't have the energy to cook.
I would reccomend for now avoiding restaurants and any pre packaged foods, even "GF" ones as you are still in the early phase of sorting out what you can and cannot eat, like what you found out about the gums. Grab a small notebook and keep a basic food diary, record what you eat each day and how well you tolerated it. This will in short order help you to understand what is safe for you.
To speed the process up some, there are some great tests available from Enterolab or Signet Diagnostics (MRT) testing which will give you a printout of the foods that were tested and how you react to them. This is a helpful tool.
Hang in there it does get better.
What I did to get things settled down was to go back to the basics...I did not eat out or purchase any pre made packaged foods. I purchased whole food simple ingredients and cooked them myself.
This early on, think of feeding a baby, you start it with very simple foods and slowly add one at a time. This is the same thing, we are relearning what we can eat.
I cook all of my own foods mostly on the weekends and make enough for all of my lunches and dinners, that's actually what I'm doing right now. I freeze what I don't need for a few days and then have the portions in the freezer ready when I need them.
The menu I follow is pretty simple, a few meats, usually chicken, beef and lamb or a fish like salmon. For veggies I use only well cooked carrots, peas or broccoli and for a starch it's white rice or sweet potato. These ingredients make up 95% of my diet. As time went on, and healing did take place (several months) I was able to occasionally add a new ingredient. You are relearning what you can tolerate. Every now and then have things like my homemade ribs with a homemade BBQ sauce, but I don't make a habit of it.
The goal Kitty is to start simple and slow and then add one ingredient at a time and then over several days see how well you tolerate it. It is important to have a ready supply of safe foods available as there are few safe choices easily available, so I would reccomend having a ready supply in the fridge and freezer that you can grab when you don't feel like cooking and are tempted to eat out. As I have found my energies limited with these autoimmune conditions, I find that doing a major cook up on the weekends is the best way to prepare for a busy week as at the end of the day I often don't have the energy to cook.
I would reccomend for now avoiding restaurants and any pre packaged foods, even "GF" ones as you are still in the early phase of sorting out what you can and cannot eat, like what you found out about the gums. Grab a small notebook and keep a basic food diary, record what you eat each day and how well you tolerated it. This will in short order help you to understand what is safe for you.
To speed the process up some, there are some great tests available from Enterolab or Signet Diagnostics (MRT) testing which will give you a printout of the foods that were tested and how you react to them. This is a helpful tool.
Hang in there it does get better.
Joe
Ok, I do understand I like the baby analogy and you are the first to suggest I go slow with the GF stuff I was trying so hard to adjust and felt it was making me worse.
I am going to try to stick to rice and chicken those seem to be my safe foods.
I will let everyone know what happens Tuesday at the Gastro. appt.
Thank you again
Hugs,
K
I am going to try to stick to rice and chicken those seem to be my safe foods.
I will let everyone know what happens Tuesday at the Gastro. appt.
Thank you again
Hugs,
K
Kitty,
When this started for me I was MORE than a full time task for the wonderful people here. After I got my enterolab results I got really depressed because I have SO many sensitivities. Take a look for mine in the section with the results. Chicken and rice, on which I had been living, were OUT for me. Even if I stuck to the few ingredients I had left I didn't seem to get any better.
As for night time D? I was up bathing myself to clean up several times per night. I was SO exhausted I couldn't get up off the floor.
And I seemed to be cooking, shopping and cleaning up, but there never seemed to be anything to eat!
I am still struggling, and have added sensitivities after I did the MRT. I was eating salmon until I got those results and saw I am sensitive to that as well as all the other stuff.
I keep getting flares, but I am better than I was. I don't have firehose WD at all any more.
I am not shedding weight every day (in fact I have to be careful not to put on too much!)
I am able to get out and do my own shopping. I have some days where I can go out and walk a bit, or go to the pool for exercise.
A friend asked me yesterday why I didn't eat everything since I am "not getting better". My answer? "look where we are (pool) and how long we have been here (2 hours). I couldn't have done that in the beginning"
It does get better Kitty, faster for some, slower for others.
The first step is acceptance.
When this started for me I was MORE than a full time task for the wonderful people here. After I got my enterolab results I got really depressed because I have SO many sensitivities. Take a look for mine in the section with the results. Chicken and rice, on which I had been living, were OUT for me. Even if I stuck to the few ingredients I had left I didn't seem to get any better.
As for night time D? I was up bathing myself to clean up several times per night. I was SO exhausted I couldn't get up off the floor.
And I seemed to be cooking, shopping and cleaning up, but there never seemed to be anything to eat!
I am still struggling, and have added sensitivities after I did the MRT. I was eating salmon until I got those results and saw I am sensitive to that as well as all the other stuff.
I keep getting flares, but I am better than I was. I don't have firehose WD at all any more.
I am not shedding weight every day (in fact I have to be careful not to put on too much!)
I am able to get out and do my own shopping. I have some days where I can go out and walk a bit, or go to the pool for exercise.
A friend asked me yesterday why I didn't eat everything since I am "not getting better". My answer? "look where we are (pool) and how long we have been here (2 hours). I couldn't have done that in the beginning"
It does get better Kitty, faster for some, slower for others.
The first step is acceptance.
HI Kitty,
When I had the questions of "is it this?" or 'what do I eliminate next" I just looked at the statistics of this group. If 90% of people on this site with MC are sensitive to gluten, odds are I'm not going to be any different. Next is dairy-- something like 50-60% of the people here are sensitive to dairy (it may be more-I'm typing this off the top of my head) but again if the odds are that high, I'm probably in there too. Rice on the other hand is more individual and is generally a grain that many can eat.... so considering that I'd put my money that the dairy was the cause of the your rotten night. Your plan to back up to the basics and eat simply will get you right again.
I'm afraid that pizza is not your friend-- I agree with Joe. It contains numerous foods and chemicals that none of us could tolerate. Look elsewhere for a favorite food.
and speaking of favorite foods I have to run. I have some ribeyes on the grill (trying to cook them before the rain gets here
). At least beef is something I can still eat and I intend to enjoy the ribeyes and roasted potatoes.
take care,
Carol
When I had the questions of "is it this?" or 'what do I eliminate next" I just looked at the statistics of this group. If 90% of people on this site with MC are sensitive to gluten, odds are I'm not going to be any different. Next is dairy-- something like 50-60% of the people here are sensitive to dairy (it may be more-I'm typing this off the top of my head) but again if the odds are that high, I'm probably in there too. Rice on the other hand is more individual and is generally a grain that many can eat.... so considering that I'd put my money that the dairy was the cause of the your rotten night. Your plan to back up to the basics and eat simply will get you right again.
I'm afraid that pizza is not your friend-- I agree with Joe. It contains numerous foods and chemicals that none of us could tolerate. Look elsewhere for a favorite food.
and speaking of favorite foods I have to run. I have some ribeyes on the grill (trying to cook them before the rain gets here
). At least beef is something I can still eat and I intend to enjoy the ribeyes and roasted potatoes. take care,
Carol
“.... people will forget what you said, people will forget what you did, but people will never forget how you made them feel.” Maya Angelou
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draperygoddess
- Rockhopper Penguin
- Posts: 558
- Joined: Mon Aug 29, 2011 6:49 am
- Location: Tennessee
Kitty,
We all have those days when we're just too exhausted from fighting this disease to be cheery. A good cry always helps me! In the first few months I spent a lot of time here, learning and asking questions and getting some much-needed support. My husband thought I was becoming obsessed, but the truth was that this was the only place where I felt understood. Some things you can't talk about with other people, because they haven't experienced it. Here, you can. Don't let this beat you--you can gain control over it, it just takes time and patience (and a lot of trial and error).
We all have those days when we're just too exhausted from fighting this disease to be cheery. A good cry always helps me! In the first few months I spent a lot of time here, learning and asking questions and getting some much-needed support. My husband thought I was becoming obsessed, but the truth was that this was the only place where I felt understood. Some things you can't talk about with other people, because they haven't experienced it. Here, you can. Don't let this beat you--you can gain control over it, it just takes time and patience (and a lot of trial and error).
Cynthia
"Can we fix it? YES WE CAN!" -Bob the Builder
"Can we fix it? YES WE CAN!" -Bob the Builder
Kitty, You must be so tired of all of us telling you that it gets easier... but it does. I have only had this now for 5 months. It took me a month to accept it. Another month to give up all dairy. I enjoyed bread for that month before I could wrap my head around giving up gluten- and then I did. Fresh fruits and veggies had to go fast because it was obvious that they were bothering me. But by giving up these things, I am healing slowly. I can tell. I actually had one pork tamale yesterday and am okay :). Baby steps. I am going to try half an ear of corn soon.
You are somewhat correct when you say that it seems like a full time job. It is for now, but once you get use to the things you CAN eat, it becomes less of a job.
Some quick things to eat : rice cakes spread with a nut butter. Deviled egg salad with tortilla chips or rice crackers to eat it with. apple sauce. Canned peaches. Like Joe, I also do sweet potatoes and rice with meat and cooked veggies.
Another big factor for me is the AMOUNT of food I eat at once. I seems much better to eat small amounts throughout the day.
Okay, keep us posted.
Leah
You are somewhat correct when you say that it seems like a full time job. It is for now, but once you get use to the things you CAN eat, it becomes less of a job.
Some quick things to eat : rice cakes spread with a nut butter. Deviled egg salad with tortilla chips or rice crackers to eat it with. apple sauce. Canned peaches. Like Joe, I also do sweet potatoes and rice with meat and cooked veggies.
Another big factor for me is the AMOUNT of food I eat at once. I seems much better to eat small amounts throughout the day.
Okay, keep us posted.
Leah
Thank you for the food tips, Leah. For some reason I thought rice cakes would not agree with me maybe because they look like pop corn and that is a no no. I was surprised when you and Joe both said sweet potato because that is also something I think I re-act to possibly because of the fiber to much fiber is also a no no in my life. very stupid question aren't eggs considered dairy??? Are you seeing a pattern here of ignorance concerning the food groups lol.
Thank you for you patience
Hugs,
K
Thank you for you patience
Hugs,
K
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Kitty,
It's confusing because of the way that the government regulates these products, and the way that grocery stores display them (eggs are displayed beside dairy products).
USDA, state departments of agriculture and state health departments regulate eggs, dairy products, meat, fish, poultry, fresh produce, unprocessed whole grains, etc., whereas the FDA regulates every thing else.
If you haven't already read them, you may find the discussions at the following links to be of interest:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=15638
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=13501
Tex
It's confusing because of the way that the government regulates these products, and the way that grocery stores display them (eggs are displayed beside dairy products).
USDA, state departments of agriculture and state health departments regulate eggs, dairy products, meat, fish, poultry, fresh produce, unprocessed whole grains, etc., whereas the FDA regulates every thing else.
If you haven't already read them, you may find the discussions at the following links to be of interest:
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=15638
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=13501
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Kitty. You are not the only one who has said that to me ( I'm a fitness trainer, so I discuss food a lot). As Tex has said, since the stores sell them side by side, people tend to think it is all dairy. If you can tolerate them, eggs are a quick great source of protein. When it comes to sweet potatoes, the lighter colored ones have less fiber and are very yummy :) Try one, but if you think you react to them, they may be something you can't do until your gut heals a bit.
And Tex is right about the Honey Nut Chex. I eat them straight out of the box when I want a sweet treat. Have you tried the Cinnamon Chex Tex? They are now my favorite with almond milk.
Just remember Kitty - Baby steps. Patience.
And Tex is right about the Honey Nut Chex. I eat them straight out of the box when I want a sweet treat. Have you tried the Cinnamon Chex Tex? They are now my favorite with almond milk.
Just remember Kitty - Baby steps. Patience.
Not yet. I've been looking for them, but so far, they haven't showed up in stores in any of the one-horse towns around here.Leah wrote:Have you tried the Cinnamon Chex Tex? They are now my favorite with almond milk.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.