Entocort
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Entocort
Hi everyone, I haven't posted in a while. I'm still feeling horrible. I've lost more weight and feel more weak than ever. I've drastically changed my diet and it's not helping. I have an appointment with a new doctor in August, but don't want to wait that long. I've found Entocort in India really cheap. They call it Budez. It's from Sun Pharma. Does anyone know if I can order it without a prescription, if Budez is the same thing as Entocort and if Sun Pharma is legitimate? I'm desperate. Thank you for any advice. It's only $89.00 for 100! That doesn't seem possible.
Hi,
Yes, that's exactly where most members here who don't have insurance get their budesonide. It is exactly the same product sold by the Canadian pharmacies at a higher price, and it works just as well as the branded Entocort EC sold in this country. Many members have bought their budesonide there and as far as I am aware, they have been very satisfied with both the product and the service. Of course it can take 2 to 3 weeks for shipment, since it has to go through Customs, but if it isn't held up in Customs, you may get it much sooner.
Actually, the price is $4.50 per 10 capsules, which means that you can order a 3-month supply (270 capsules) for $121.50 plus shipping. Since the shipping cost is probably not much different for any size order, most members order a 3-month supply (since that's the maximum amount per order, that is allowed by Customs regulations, unless the buyer has a drug importer's license).
They do not require a prescription to order. Canadian pharmacies require prescriptions from U. S. customers, but that's only a feel-good requirement, because prescriptions written by U. S. doctors are not valid beyond our borders, anyway. Sun Pharma makes many types of generic drugs for virtually all of the major U. S. drug companies. If we buy those same drugs here, though, after they're packed in domestic drug packaging, they cost us an arm and a leg. The drug companies are ripping us off royally, and our government just looks the other way (probably because the drug companies are paying for many re-election campaigns).
Incidentally, a link to that pharmacy is available in the post at the link below, if you should ever lose track of it:
If You're Having Trouble Paying For Your Medications . . .
I thought I suggested this option to you in an earlier post. If I didn't, I apologize for not doing so, because I try to mention it to anyone who does not have insurance, and who would like to try budesonide.
Tex
Yes, that's exactly where most members here who don't have insurance get their budesonide. It is exactly the same product sold by the Canadian pharmacies at a higher price, and it works just as well as the branded Entocort EC sold in this country. Many members have bought their budesonide there and as far as I am aware, they have been very satisfied with both the product and the service. Of course it can take 2 to 3 weeks for shipment, since it has to go through Customs, but if it isn't held up in Customs, you may get it much sooner.
Actually, the price is $4.50 per 10 capsules, which means that you can order a 3-month supply (270 capsules) for $121.50 plus shipping. Since the shipping cost is probably not much different for any size order, most members order a 3-month supply (since that's the maximum amount per order, that is allowed by Customs regulations, unless the buyer has a drug importer's license).
They do not require a prescription to order. Canadian pharmacies require prescriptions from U. S. customers, but that's only a feel-good requirement, because prescriptions written by U. S. doctors are not valid beyond our borders, anyway. Sun Pharma makes many types of generic drugs for virtually all of the major U. S. drug companies. If we buy those same drugs here, though, after they're packed in domestic drug packaging, they cost us an arm and a leg. The drug companies are ripping us off royally, and our government just looks the other way (probably because the drug companies are paying for many re-election campaigns).
Incidentally, a link to that pharmacy is available in the post at the link below, if you should ever lose track of it:
If You're Having Trouble Paying For Your Medications . . .
I thought I suggested this option to you in an earlier post. If I didn't, I apologize for not doing so, because I try to mention it to anyone who does not have insurance, and who would like to try budesonide.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Paying for Entocort online
I am a first time poster even though I have looked at your sight for some time. I even bought the book Microscopic Colitis. I have been diagnosed with this since 2009 although I probably have had it for a while. It was a nightmare until I found Entocort. Because of no insurance I started off with samples from the doctor, then some friends were bringing it to me from Mexico where it is sold over the counter, then I also ordered from another online pharmacy. I was getting ready to order from the online pharmacy but they are not taking a credit card and you must pay by echeck or money order, etc. I went to the Indian Pharmacy that you suggested and they also require an echeck. This does make me nervous giving out my checking account number. Could anyone help me with these concerns and give me some advice and suggestions. Thank you so much!
Hi,
Welcome to the board. Well, what can I say — you're right. I just checked out their website and it's completely changed from the last time I visited there. It's hard to say what their reasons were. They might have had a falling out with the credit card companies, or they may have just become fed up with the high fees that credit card banks impose on merchants, and those charges are probably much higher for foreign accounts, I would guess. So they may be contesting the fees and trying to work out a better agreement for the future.
Since the entire website appears to have been changed (they even have a list of medical questions now), I wonder if the company might have changed hands.
I'm not aware of any complaints by members here who have ordered from them in the past, but I'm not sure if anyone has ordered there since the credit cards were removed as a payment option. I did a search for information, and found that there is indeed an issue with their credit card merchant's account. Supposedly this will be resolved and they will be accepting credit cards again in the future. Here's a link if you're interested in reading about it:
http://www.rxlogs.net/alldaychemist-rev ... eputation/
All in all, I get the impression that someone might have hacked their site and was stealing credit card information on a somewhat regular basis, because of a fault in their security arrangements. AllDayChemist may have completely revised their website in order to incorporate additional or improved security features, in order to satisfy the credit card banks. That could certainly explain why payment by credit card is currently on hold, and why it may be back after the credit card banks approve the new setup.
You could avoid sending any bank account information by paying with an international money order from the post office (at least I think that's an option). Your bank could also send a wire transfer, but that will cost you a transaction fee (my bank charges 15 bucks, either inbound or outbound).
Again, welcome aboard and thank you for pointing out this problem.
Tex
Welcome to the board. Well, what can I say — you're right. I just checked out their website and it's completely changed from the last time I visited there. It's hard to say what their reasons were. They might have had a falling out with the credit card companies, or they may have just become fed up with the high fees that credit card banks impose on merchants, and those charges are probably much higher for foreign accounts, I would guess. So they may be contesting the fees and trying to work out a better agreement for the future.
Since the entire website appears to have been changed (they even have a list of medical questions now), I wonder if the company might have changed hands.
I'm not aware of any complaints by members here who have ordered from them in the past, but I'm not sure if anyone has ordered there since the credit cards were removed as a payment option. I did a search for information, and found that there is indeed an issue with their credit card merchant's account. Supposedly this will be resolved and they will be accepting credit cards again in the future. Here's a link if you're interested in reading about it:
http://www.rxlogs.net/alldaychemist-rev ... eputation/
All in all, I get the impression that someone might have hacked their site and was stealing credit card information on a somewhat regular basis, because of a fault in their security arrangements. AllDayChemist may have completely revised their website in order to incorporate additional or improved security features, in order to satisfy the credit card banks. That could certainly explain why payment by credit card is currently on hold, and why it may be back after the credit card banks approve the new setup.
You could avoid sending any bank account information by paying with an international money order from the post office (at least I think that's an option). Your bank could also send a wire transfer, but that will cost you a transaction fee (my bank charges 15 bucks, either inbound or outbound).
Again, welcome aboard and thank you for pointing out this problem.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thank you so much for your reply and I am glad that you also looked into it. Now I am trying to figure out what to do. My contact in Mexico may be a while in getting Entocort to me since he is not going to be there for a while. The other site that I ordered from in the past is not taking credit cards because of some issues and you may have clarified why. I really only feel safe using the credit card. Isn't it interesting that Entocort can be sold over the counter in Mexico (still made by Astra Zeneca) and that it is thousands of dollars here with a prescription?
Something is wrong somewhere.
Something is wrong somewhere.
We're being ripped off royally, and the FDA does a much better job of looking out for the interests (profits) of the pharmaceutical companies than it does looking out for the interests of consumers in this country.Squamish wrote:Something is wrong somewhere.
It's usually possible to order the same product (Budez-CR) from online Canadian pharmacies, except that it's a bit more expensive there. IOW, they apparently buy the product from the Indian pharmacy, mark it up 40 % and then resell it to American customers. The other difference besides the price, is that Canadian pharmacies require a valid prescription (even though prescriptions written by U. S. doctors are worthless outside of this county's borders). That's apparently a feel-good requirement, rather than a legal obligation.
You're very welcome.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi!
I too have been shocked by the price of Entocort (Budesonide) I did purchase Budesonide from an on-line Canadian pharmacy, with an Rx from my Doc, and received Budez. It's supposed to be the same drug as Entocort. I have just started on Budez (5 days in) and I am having terrible side effects. I'm freezing one minute...sweating the next. ALL day long. I also am feeling very depressed. I don't remember having these side effects when I was on the Entocort. (That was my first experience with CC and on meds)
So tomorrow I am going to take the expensive brand name and see if I have the same side effects as I had today on the Budez. I can report back and let you know how it goes. My Gastro. said the only other thing to try is Prednisone...which is worse, or the immunological meds like Imuran etc.
I'm so sorry we all are in this situation! I am seriously thinking about trying the Pepto-Bismol and Imodium regime if my side effects keep up.
Good luck to you!
~Trish
I too have been shocked by the price of Entocort (Budesonide) I did purchase Budesonide from an on-line Canadian pharmacy, with an Rx from my Doc, and received Budez. It's supposed to be the same drug as Entocort. I have just started on Budez (5 days in) and I am having terrible side effects. I'm freezing one minute...sweating the next. ALL day long. I also am feeling very depressed. I don't remember having these side effects when I was on the Entocort. (That was my first experience with CC and on meds)
So tomorrow I am going to take the expensive brand name and see if I have the same side effects as I had today on the Budez. I can report back and let you know how it goes. My Gastro. said the only other thing to try is Prednisone...which is worse, or the immunological meds like Imuran etc.
I'm so sorry we all are in this situation! I am seriously thinking about trying the Pepto-Bismol and Imodium regime if my side effects keep up.
Good luck to you!
~Trish
Thank you for posting this. I have never had these side effects from Entocort (I had been getting it from Mexico through some friends and also had ordered from another out of country site and received Entocort from a German pharmacy. They have since changed their ordering and I was going to order from that Indian pharmacy but because of the ordering issues I did not. Please keep us posted regarding all of this and if you still have the same side effects from the $$$$$$Entocort. Thank you and God bless you.
Trish,
If Entocort doesn't cause those side effects, then obviously you must be reacting to one of the inactive ingredients. That's a heck of a note, but it's a major problem with most medications, especially for people who have food sensitivities. Thanks for sharing that information.
Tex
If Entocort doesn't cause those side effects, then obviously you must be reacting to one of the inactive ingredients. That's a heck of a note, but it's a major problem with most medications, especially for people who have food sensitivities. Thanks for sharing that information.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I was just diagnosed with LC in May 2013 after begging multiple doctors for a colonoscopy because I was only 27. (I could have done without the endoscopy though. Worse than I thought it would be!) The GI put me on an 8-week run of Entocort. It was awesome! I felt like a NEW person. So wonderful! Living the life! Not worrying about the nearest public bathroom! Then, the eight weeks ended. Symptoms returned within 4 days. They are not as bad as before the course of Entocort, but quality of life definitely has definitely been downgraded.
Have those who have done multiple courses of Entocort feel that their symptoms lessen after each course of it? Or is that just because I'm so recently off of it?
I do not have another appointment set up yet, but when I do, I'd like to be prepared with ideas for a more long-term solution. I need to figure out my intolerances. Since I was so convinced I just had IBS, I have not done this seriously yet and feel like I need guidance. I just have hunches about what my intolerances are. Can someone link me to a great post/thread on this site for eliminating specific foods?
Thanks!
~Leah
Have those who have done multiple courses of Entocort feel that their symptoms lessen after each course of it? Or is that just because I'm so recently off of it?
I do not have another appointment set up yet, but when I do, I'd like to be prepared with ideas for a more long-term solution. I need to figure out my intolerances. Since I was so convinced I just had IBS, I have not done this seriously yet and feel like I need guidance. I just have hunches about what my intolerances are. Can someone link me to a great post/thread on this site for eliminating specific foods?
Thanks!
~Leah
WELCOME, LEAH!! 
Diet is key to achieving remission. Entocort doesn't heal the gut; it simply suppresses the symptoms. Once it is out of our system, the symptoms return with a vengence, unless we have successfully eliminated all of the foods that are irritating our gut.
You might consider ordering Tex's book which answers many of the questions we MCers have. A link to it is in the upper-right corner of the page.
Gloria
I've done multiple courses of Entocort and my symptoms have definitely NOT lessoned after each course. Rather, I have had to eliminate more foods each time I've gone off of it.Leah wrote:Have those who have done multiple courses of Entocort feel that their symptoms lessen after each course of it? Or is that just because I'm so recently off of it?
Diet is key to achieving remission. Entocort doesn't heal the gut; it simply suppresses the symptoms. Once it is out of our system, the symptoms return with a vengence, unless we have successfully eliminated all of the foods that are irritating our gut.
If you've been reading this website, you'll notice that almost all of us need to eliminate gluten. The next most common problem is casien, which is the protein in dairy. Soy is also a common offender. Many of us have had stool testing at Enterolab to help sort out our food intolerances.Can someone link me to a great post/thread on this site for eliminating specific foods?
You might consider ordering Tex's book which answers many of the questions we MCers have. A link to it is in the upper-right corner of the page.
Gloria
You never know what you can do until you have to do it.
Update on All Day Chemist orders
Hi, all,
I just went to order from alldaychemist.com, and it looks like they've upped the price and the shipping a bit. Now they're offering 90 pills for $45 (and change) and adding a $25 flat rate shipping fee. You can purchase up to 5 packages of 90 pills, which I did so that it's more cost effective than reordering every few months and paying an additional $25. Just wanted you to know that there are some changes afoot.
Thanks,
Elizabeth
I just went to order from alldaychemist.com, and it looks like they've upped the price and the shipping a bit. Now they're offering 90 pills for $45 (and change) and adding a $25 flat rate shipping fee. You can purchase up to 5 packages of 90 pills, which I did so that it's more cost effective than reordering every few months and paying an additional $25. Just wanted you to know that there are some changes afoot.
Thanks,
Elizabeth
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Susy d'Hont
- Posts: 2
- Joined: Wed Sep 18, 2013 1:43 pm
Entocort purchase
I just purchased 270 capsules (my first time to try it) at Walmart. The price was $1050.00. Give me a break. I am glad to have found this thread. If it works, I'll definitely try the India source. I hope that people keep reporting their recent experiences. This is only my second day taking it, but so far, my D stopped in its tracks. I also suspect that my joint pain is associated with my CC, and my lower spine pain is lessened. This is too brief a time to really draw any conclusions. More later.
Generic Entocort
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan