I don't really understand forums...but here goes!
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I don't really understand forums...but here goes!
I was really rather desperate when I found this forum...more desperate than ever after reading some of the horror stories! Over 18 months ago I started having a bad time with diarrea...is that how you spell it? Colonoscopy, biopsy, blood tests, drugs...cutting out all sorts of foods...coffee, milk, wheat, fruit, veg, alcohol...all to no avail. My doc said the biopsy had showed up microscopic lymphocytic colitis...there wasn't much to be done about it if I didn't want to take steroids. I said I would sooner live with it...but it has become an increasing inconvenience...you know what I mean. But, advice from a gluten free friend and reading this forum made me have a go at a totally gluten free diet. I had tried giving up wheat (and wheat products) for a week but without success...now I was trying to exclude all traces of gluten. After a month I was ready to give up...nothing seemed to change at all...but then the change started to happen...a few good days then a relapse. Eventually I was able to explain the relapses...I wasn't being strict enough. For example, I used a butter-knife that my wife had used previously to spread her toast without washing it first...or I prepared food on a surface that had not been thoroughly cleaned of breadcrumbs. Two days of back to square one would follow. I am now pretty much OK. But I had no idea that gluten sensitivity could be triggered by such a tiny amount of the offending foodstuff. I write this to give some hope to anyone who might be tempted to give up, as I was, after the first month. Be strict...really strict and give it time...it might just work for you too.
nick
Hi Nick,
Thank you for sharing your experience with the diet. Your thoughtfulness and kindness in posting this information will surely help many others all over the world, who are struggling with these issues, and we're very grateful for your help.
Avoiding those tiny traces of gluten seems to be the main problem for most people who are unable to control their symptoms with the diet. I'm glad to hear that the diet worked so well for you after you were able to track down those tiny amounts of gluten that were disrupting your recovery. I hope that your remission lasts forever.
Tex
Thank you for sharing your experience with the diet. Your thoughtfulness and kindness in posting this information will surely help many others all over the world, who are struggling with these issues, and we're very grateful for your help.
Avoiding those tiny traces of gluten seems to be the main problem for most people who are unable to control their symptoms with the diet. I'm glad to hear that the diet worked so well for you after you were able to track down those tiny amounts of gluten that were disrupting your recovery. I hope that your remission lasts forever.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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MBombardier
- Rockhopper Penguin
- Posts: 1523
- Joined: Thu Oct 14, 2010 10:44 am
- Location: Vancouver, WA
Hi Nick! 
Welcome!!
Nick,
Welcome! Your point is so importnant. I know so many people who try a GF diet and give up after a week, saying they didn't notice a difference. Then there's all the people "trying to cut back on gluten." It' s all or nothing people!!
Welcome! Your point is so importnant. I know so many people who try a GF diet and give up after a week, saying they didn't notice a difference. Then there's all the people "trying to cut back on gluten." It' s all or nothing people!!
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
2010 GF/DF/SF Diet
2014 Low Dose Naltrexone
Hi Nick,
Sounds like you are learning what you need to learn about gluten free eating. Such a massive amount of food stuffs have gluten or soy in them. I try and steer clear of all processed foods. I used to be so gluten sensitive that whenever I ate an offending food, the resulting flare could last weeks before i got things back under control. Now, since achieving some long lengths of remission, a reaction to some offending foodstuff can mean only a day or two of loose stools. You are on the right track for making improvements in your life!
Cory
Sounds like you are learning what you need to learn about gluten free eating. Such a massive amount of food stuffs have gluten or soy in them. I try and steer clear of all processed foods. I used to be so gluten sensitive that whenever I ate an offending food, the resulting flare could last weeks before i got things back under control. Now, since achieving some long lengths of remission, a reaction to some offending foodstuff can mean only a day or two of loose stools. You are on the right track for making improvements in your life!
Cory
CoryGut
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)
Age 71
Diagnosed with Lymphocytic Colitis Sept. 2010
On and off Entocort(Currently Off)