I need some advice, please!

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ldubois7
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I need some advice, please!

Post by ldubois7 »

Hi all!

I'm having trouble getting to full remission, even with all the fine tuning I've done, so I wanted your input.

I have not been having norms yet, some days it's close, though. I have had less fatigue & aches. I make all my own food, and haven't eaten out since last year.

I have stopped all supplements and am grain free. I am eating according to Enterolab results and MRT. I am eating low salicylic/histamine. I take Allegra daily.

My daily menu is as follows:

Morning: nut bar (walnut/pecan butter, egg replacer, baking powder, soda, 1 TB maple syrup, salt, vanilla-all g/f) and turkey cutlet, green tea.

Lunch/dinner: cod/haddock, turkey, venison, carrots, celery, green beans and twice a week a small red potato. I only use salt & a little pepper for seasoning.

Snack: cookie made with nut butter baking soda, vanilla, TB honey, 1TB coconut milk (homemade) Enjoy life mini choc chips & decaf organic coffee.

Sometimes if I'm really hungry in the middle of the day I'll have a handful of nuts.

So, why do you think I can't get to full remission yet? Any thoughts and suggestions would be much appreciated! :)
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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JFR
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Post by JFR »

Linda,

What's in the egg replacer?

Jean
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Post by JeanIrene »

Linda, other than the egg replacer as Jean suggested (I use ground flax seed and water), are you cooking your vegetables long enough? And I wonder if whole nuts need to be delayed until you're healed?

Seems like putting a puzzle together, doesn't it? Hope you achieve remission soon.

Jean
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ldubois7
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Post by ldubois7 »

Ener-G egg replacer: Potato Starch, tapioca starch flour, leavening (calcium lactate (not derived from dairy) , calcium carbonate, citric acid ), Sodium Carboxymethycellulose, Methylcellulose.
I looked up the last two ingredients and they are gums, but are gluten free.....so maybe it's a combo of that and the tapioca?

I stayed away from chia & flax eggs due to the fiber, but maybe they are safer than Ener-G?

I do cook my veggies to death! And, you're probably right about eating whole nuts, even though I chew them a lot. I soak the nuts over night, too.

Thank you for the suggestions....I'll cut out the egg replacer. Since I can eat potato sometimes, it was a 1+ on my Enterolab, I thought it would be OK to use, but maybe it's the tapioca starch???

It is frustrating, but friends like you all, make it so much easier! :)
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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Post by MaggieRedwings »

Being a vegan for oh so many years I always used Ener-G egg replacer. Once I developed this disease I could no longer use it - I definitely react to the tapioca starch.

Maggie
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tex
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Post by tex »

Linda,

I agree that many of us can't handle tapioca. But many of us also can't handle citric acid (while we're still recovering), nor any gums, and also remember that Ener-G egg replacer is a highly processed food, which automatically places it in the "risky foods" category.

I hope this is the last piece of the puzzle.

Tex
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It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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ldubois7
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Post by ldubois7 »

Thank you, thank you! I will keep you posted!

:bigbighug:
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
JLH
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Post by JLH »

Chocolate is a possibility. :sad:
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

Joan
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ldubois7
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Post by ldubois7 »

I know.. I am trying not to think about that possibility! I eat about a tablespoon of the mini chips. On my MRT test, cocoa was mid range green, so I was hoping it wasn't the issue.

Tapioca was my shortest green line, though.
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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Gabes-Apg
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Post by Gabes-Apg »

I agree with what the others have suggested about egg replacer/nuts/chocolate.

Keep in mind that chocolate is high histamine....

My other suggestion,
keep expectations of 'full remission' realistic.....
Progress... Not perfection...
Things don't have to be totally perfect for it to be remission....
And give your body time to heal.......

Breathe, relax, enjoy the journey....
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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ldubois7
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Post by ldubois7 »

Thanks, Gabes. I'll cut out the egg replacer first, and eat only nut butter. If that fails....even my minuscule amount of chocolate will go! :hissyfit:

And, I do need to look at the bright side...my energy level is returning slowly, at least I don't feel like a zombie anymore!

:flowersmiley:
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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mcnomore
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Post by mcnomore »

I'm finally normal, but I only eat homemade gf bread, meat and bananas and this diet.
MC diagnosed 2007
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Post by mcnomore »

Sorry didn't finish the sentence in my last post. meant to say that this diet is working for me, but I get scared because it's so unhealthy.
MC diagnosed 2007
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Post by Zizzle »

Linda,
I do not tolerate walnuts. Turns out they are the highest in histamine by far. Consider trying cashew or almond butter instead, and pecans instead of walnuts.

Green beans are a legume and can be tough to digest. They are frequently cited as a food intolerance/trigger among people with Crohn's disease. Not sure why. I do better with well-steamed broccoli, cauliflower, carrots, etc. I seem to have mild issues with celery too, not sure why. But I can eat nearly all forms of cooked greens (kale, spinach, chard, beet leaves, buk choy, etc)

Try switching to sweet potato from white potato maybe? To avoid nightshades?

I love food for life chocolate chips!!
1987 Mononucleosis (EBV)
2004 Hypomyopathic Dermatomyositis
2009 Lymphocytic Colitis
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ldubois7
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Post by ldubois7 »

Hi Zizzle!

I'm trying to balance histamine & salicylic acid issues, and choose foods that were green on my MRT testing, and eliminate the foods I reacted to on Enterolab testing (which really is all 11).
My 1+ foods were potato, walnuts & cashews.

It doesn't leave much for me!

I do eat pecan butter, but usually mix in some walnuts when I make it. I reacted the least to walnuts on MRT and Enterolab testing. You're right about walnuts being high in histamines, I guess I should go to cashews and pecans. I can't eat almonds.

I can't eat sweet potato either, so I do a little red potato when I'm really hungry. I can't do rice products. I've been eating green beans, carrots & parsnips & celery (all low salicylic), but maybe I should remove the beans and see how do. I have never had good luck with cruciferous foods. I do cook the veggies well.

I got some great ideas today! THANK YOU!!!!!
Linda :)

LC Oct. 2012
MTHFR gene mutation and many more....
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