Entocort

[JLH]

The Welchol isn't working, not that i really thought it would.

Entocort says tell your doctor if you have ever had any of the following conditions:
•Any condition that suppresses the immune system
•Cataracts
•Diabetes (or a family history)
•Glaucoma (or a family history)
•High blood pressure
•Liver disease
•Osteoporosis
•Tuberculosis
•Ulcers

Yes, to cataracts. I have osteopenia but I may have had osteroporosis in the past....I can't remember.

I am really in bad shape mentally and physically right now.

[tex]

Joan,

I doubt that your doctor will be concerned about the cataract or osteoporosis risks, because those are long-term risks, and not a significant factor for short-term use of a corticosteroid.

The primary consideration will be whether or not you want to try it.

Tex

[UkuleleLady]

I don't know, Joan. It seems like a real quality of life thing for you right now. It is overall, a very small dose of a steroid even at 9mg. And it does target just the colon. I hope you will consider it, maybe a few months could get you back to a better place.

[DebE13]

Joan, I know where you are at and it sucks. I spent forever tapering off entocort and made it about 32 days before I couldnt tolerate it anymore. I wanted to make the eight week mark so bad and am now taking 6mg/day. I have some other issues going on and I couldnt deal with it all so I am back on. I still feel awful due to possibly thyroid/pituitary issues but at least the gurgling and constant feeling that I had to go is better. I have to wait until September to get answers and needed some relief. I have been on entocort since February of 2012- it is much longer than I have wanted but my body isnt cooperating. Dont feel bad if you need to take something- it may help keep you sane!

[Leah]

Give it a try. It worked so fast and so well for me.... and only on it for 6 months.

Leah

[Kari]

Joan - so sorry you're having a rough time. I'm with the others, it might be time for you to give entocort a try. Sending a few hugs your way, hoping that better health is around the corner.



Love,
Kari

[JLH]

Thanks all y'all.

My DOC doesn't seem like she will let me be on it very long. What's the point of going on it under that circumstance?

[UkuleleLady]

My DOC doesn't seem like she will let me be on it very long. What's the point of going on it under that circumstance?

I heartily agree. I HATE to say this, but perhaps find another doctor who will go for it and who wants you to succeed in feeling better.

But TBH, I myself haven't taken that advice yet, I'm just so sick of healthcare providers/appointments, etc..

e.g, I have a prescription for three months of EC, but I'm planning to purchase more from pharmacies abroad to extend to 6 months if I don't feel like 3 has done it. My doc gave me virtually no tapering plan, and I'm not to see him until February? I guess I'm supposed to figure out how to taper by myself, so I am looking here for advice on tapering.

But I'm nowhere near ready to taper yet.

I am thinking of you and I hope you get this sorted out so you feel better soon.

[nancyl]

Joan,
I agree with the others, Entocort was a life saver and I was on it about 9 months including weaning off time. It was so worth it. Oh, I had cataracts, no issues with that.

Nancy

[JLH]

I tried to go to another doctor in the beginning when my doc gave me a hard time about getting tested with EnteroLab. She didn't want to write an order for EL tests.

I had told DH not to go to her and he found another GI who told me I was already being treated and wouldn't take me.

Then my Doc started listening to me about gluten and MC. I even hugged her at one appointment!

[Gloria]

Hi Joan,

I'm so sorry that the Welchol isn't working.

After five years of trying, it's time you had a reprieve from your symptoms. I vote for the Entocort.

If your doctor doesn't prescribe additional Entocort, you can always order it from overseas. I'm considering doing that if my GI doesn't give me a new prescription, or if he insists on another colonoscopy first.

Good luck!

Gloria

[JLH]

Holy cow! I just realized that my yummy GF Enjoy Life cookies are made with rice flour. I never looked since getting my new EL results!

Sunbutter bars, too.

[JLH]

I took my first 3 generic Entocort pills. I hope no side effects so I can have a happy face soon.