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At yesterday's gluten free dairy free Thanksgiving dinner, the grandmother of the child who was eating gluten and dairy free because of digestive issues and frequent rashes told me that she had been diagnosed several years ago with CC. I mentioned this forum to her but she didn't seem interested and I really didn't want to get into a long discussion about illness with someone I had just met. I did state that I had a similar problem (without the official diagnosis I can never quite say I have MC) and that going gf and df (I didn't go into the details of all the other things I have eliminated) had helped me immensely and I got the advice from an online forum. Apparently she hadn't made connection between her MC and her grandson's issues. She takes Entocort when things flare up but stated that she is much better now and apparently not searching for different answers other than the one's she found. There's a lot of ignorance out there. I might see the mother of the child who is gf and df again and if so maybe I will be able to talk to her more about the probable relationship between her son's issues and her mother's diagnosis. I wouldn't be surprised if the she has digestive issues too. It's a family affair.
Jean
It runs in the family
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Jean,
My son, who is 20, and has type 1 diabetes, will not entertain the notion that he may need to go gluten & dairy free, because he has no symptoms right now. I hope and pray that he sees the light sooner rather than later!
My mother has recently decided to try gluten free and limited dairy due to digestive issues, and I thought that would never happen....so, hopefully something opens the eyes of many, if we can't!
:)
My son, who is 20, and has type 1 diabetes, will not entertain the notion that he may need to go gluten & dairy free, because he has no symptoms right now. I hope and pray that he sees the light sooner rather than later!
My mother has recently decided to try gluten free and limited dairy due to digestive issues, and I thought that would never happen....so, hopefully something opens the eyes of many, if we can't!
:)
Linda :)
LC Oct. 2012
MTHFR gene mutation and many more....
LC Oct. 2012
MTHFR gene mutation and many more....
Linda,ldubois7 wrote:Jean,
My son, who is 20, and has type 1 diabetes, will not entertain the notion that he may need to go gluten & dairy free, because he has no symptoms right now. I hope and pray that he sees the light sooner rather than later!
My mother has recently decided to try gluten free and limited dairy due to digestive issues, and I thought that would never happen....so, hopefully something opens the eyes of many, if we can't!
:)
My mother had digestive issues and even though I had not found this forum yet, I did know at that time that eating a paleo diet helped me. I tried to convince her to try to eliminate grains but she wouldn't even entertain the idea. In fact she got angry at me for trying to convince her and she hardly ever spoke quite that harshly to me so I just quit trying. It really is sad. I hope your son sees the light.
Jean
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MBombardier
- Rockhopper Penguin
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- Joined: Thu Oct 14, 2010 10:44 am
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Linda, show this article to your son: http://www.csaceliacs.info/diabetes_and ... _sheet.jsp
Celiac disease and type 1 diabetes are genetically based disorders sharing similar genes (DQ2 and DQ8). Both diseases are immune-regulated and associated with autoimmune thyroiditis and rheumatoid arthritis. About 3.5 to 10 percent of individuals with celiac disease develop type 1 diabetes and visa versa. Screening for celiac disease or type 1 diabetes is recommended in individuals already diagnosed with either disorder. When individuals have both diseases, type 1 diabetes is usually diagnosed first. It has been speculated that symptoms of type 1 diabetes are more obvious and therefore easier to diagnose than those of celiac disease.
Marliss Bombardier
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
Dum spiro, spero -- While I breathe, I hope
Psoriasis - the dark ages
Hashimoto's Thyroiditis - Dec 2001
Collagenous Colitis - Sept 2010
Granuloma Annulare - June 2011
-
UkuleleLady
- Gentoo Penguin
- Posts: 383
- Joined: Sun Jun 23, 2013 4:45 pm
- Location: Texas
Wow, Jean. Good for you in trying to broach the subject of elimination diets.
My family doesn't get it, either, although both sisters have had GI issues off and on. My dad has asthma and iritis which are both autoimmune. He is very concerned with fiber and whole grains. At 75 I doubt he will ever change. I am going to see him later today and I'm already nervous about the barrage of questions that will ensue regarding my diet.
My family doesn't get it, either, although both sisters have had GI issues off and on. My dad has asthma and iritis which are both autoimmune. He is very concerned with fiber and whole grains. At 75 I doubt he will ever change. I am going to see him later today and I'm already nervous about the barrage of questions that will ensue regarding my diet.
If you want others to be happy, practice compassion. If you want to be happy, practice compassion. ~The Dalai Lama
If my son asks ....the celiac blood test is only effective if you are in advanced stages of the disease but the stool test by Dr. Fine will pinpoint if you have the genetic marker for it as well as test for antibodies, correct?
I only did panels A & C because I really didn't know what I was doing at the time. In hindsight I should have done more testing.
My sister is now gluten free, and my brother has had bowel & digestive issues for as long as I can remember!
It is a family issue!
I only did panels A & C because I really didn't know what I was doing at the time. In hindsight I should have done more testing.
My sister is now gluten free, and my brother has had bowel & digestive issues for as long as I can remember!
It is a family issue!
Linda :)
LC Oct. 2012
MTHFR gene mutation and many more....
LC Oct. 2012
MTHFR gene mutation and many more....
Linda,
Yes, the blood test for celiac screening will virtually always produce negative results until enough damage has accrued to the villi of the small intestine to rate a Marsh 3 level of damage. For most people, that requires years of exposure to gluten in order to accumulate that much damage. In fact, according to diagnostic statistics calculated a couple of years ago, the average length of time between the onset of GI symptoms and an official diagnosis, is approximately 9.7 years (in this country).
By contrast, the EnteroLab test will typically detect antibodies to gluten (anti-gliadin antibodies) before clinical symptoms even present (IOW, at least several years sooner, when compared with the blood tests). And of course, if you're interested in genetics, the DNA test will determine whether or not the patient has one of the 2 most common celiac genes.
The odds of developing celiac disease without having one of the 2 common celiac genes (DQ2 or DQ8) are extremely small. But as we are well aware, not having a celiac gene does not mean that one cannot have non-celiac gluten sensitivity, which typically causes the same clinical symptoms, and carries the same basic health risks.
Tex
Yes, the blood test for celiac screening will virtually always produce negative results until enough damage has accrued to the villi of the small intestine to rate a Marsh 3 level of damage. For most people, that requires years of exposure to gluten in order to accumulate that much damage. In fact, according to diagnostic statistics calculated a couple of years ago, the average length of time between the onset of GI symptoms and an official diagnosis, is approximately 9.7 years (in this country).
By contrast, the EnteroLab test will typically detect antibodies to gluten (anti-gliadin antibodies) before clinical symptoms even present (IOW, at least several years sooner, when compared with the blood tests). And of course, if you're interested in genetics, the DNA test will determine whether or not the patient has one of the 2 most common celiac genes.
The odds of developing celiac disease without having one of the 2 common celiac genes (DQ2 or DQ8) are extremely small. But as we are well aware, not having a celiac gene does not mean that one cannot have non-celiac gluten sensitivity, which typically causes the same clinical symptoms, and carries the same basic health risks.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
The same is true in my family! My grandmother had diverticulitis. She was hospitalized multiple times with it. My father has had acid reflux and other food issues rarely discussed for all of my life. My mother has widespread arthritis and recently (that I'm aware of) GI pain. My daughter has multiple food sensitivities and has improved considerably with diet changes. I'm sure my so sons do as well, but they aren't willing (yet) to discuss it. It is a family affair! Kathy