Greetings all,
Just diagnosed with microscopic collangenous colitis and at a loss for dealing with all this entails. Working with a great gastro guy and am on predisone,lialda, and immodium along with gluten and diary free diet. Just need some advice on how to proceed with both my mental state and of course the physical. Lost quite a bit of weight and am a tiny person to start with so weight is an additional issue. Been very careful with diet but I have to say this came on so quickly and I want to blame it on medications taken for pseudo gout and triggered for colonoscopy prep. Ok you experts out there...what do I do
New diagnosis
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Hi,
Welcome to our internet family of microscopic colitis students. By sharing experiences and information here, we learn together, how to control this disease and get our life back. You're quite correct that certain medications are a very common cause of this disease, and the prep solutions used prior to a colonoscopy exam are definitely capable of triggering MC for some individuals. Another problem is that the doctors seem to prescribe the same dose of clean-out solution regardless of the physical size of the patient. A 100 lb patient gets the same potent dose as someone who weighs 300 lbs. Does that make sense? Not to me it doesn't.
But basically we control our symptoms by avoiding our food sensitivities (and any drugs that are known to trigger the disease) 100 % (even tiny trace amounts, because most of us are hypersensitive to these antigens), and by minimizing fiber and sugar (and in some cases, carbs in general, especially grains), in order to create an optimum environment for healing. While drugs can mask the symptoms to make life much easier during our recovery, please be aware that it's the diet changes that heal the gut — not the drugs. So please take your diet very seriously, because it's your pathway back to health. Research shows that corticosteroids actually retard healing, believe it or not.
Once we get our recovery program mapped out, achieving stable and lasting remission is mostly a matter of time. This disease teaches patience and perseverance, because healing takes much, much longer than most people (including doctors) realize. But it's doable, and it's certainly worth it, to get our life back.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our internet family of microscopic colitis students. By sharing experiences and information here, we learn together, how to control this disease and get our life back. You're quite correct that certain medications are a very common cause of this disease, and the prep solutions used prior to a colonoscopy exam are definitely capable of triggering MC for some individuals. Another problem is that the doctors seem to prescribe the same dose of clean-out solution regardless of the physical size of the patient. A 100 lb patient gets the same potent dose as someone who weighs 300 lbs. Does that make sense? Not to me it doesn't.
You can learn a lot by reading old posts on this board. We've been discussing this disease and related issues for over 8 years now.Ewhiting wrote:what do I do
But basically we control our symptoms by avoiding our food sensitivities (and any drugs that are known to trigger the disease) 100 % (even tiny trace amounts, because most of us are hypersensitive to these antigens), and by minimizing fiber and sugar (and in some cases, carbs in general, especially grains), in order to create an optimum environment for healing. While drugs can mask the symptoms to make life much easier during our recovery, please be aware that it's the diet changes that heal the gut — not the drugs. So please take your diet very seriously, because it's your pathway back to health. Research shows that corticosteroids actually retard healing, believe it or not.
Once we get our recovery program mapped out, achieving stable and lasting remission is mostly a matter of time. This disease teaches patience and perseverance, because healing takes much, much longer than most people (including doctors) realize. But it's doable, and it's certainly worth it, to get our life back.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.