PP LDN Facebook page?

JLH · Post by **JLH** » Fri Mar 28, 2014 11:52 am

I asked Marcia (MZH) if she can set up a Facebook page for us. I guess I should have asked if anyone would be interested in having such a group to share info and progress etc.

I joined a few LDN groups but they really don't have too much on IBD.

Zizzle · Post by **Zizzle** » Fri Mar 28, 2014 11:58 am

Did you join the IBD and LDN Chat Group?

https://www.facebook.com/groups/IBDLDN/

JLH · Post by **JLH** » Fri Mar 28, 2014 12:52 pm

Yes, I guess I should have said MC.

mzh · Post by **mzh** » Sat Mar 29, 2014 10:49 am

Holy moly. I have brainn fog. I don't remember you asking me to do it.

Setting a FB page is easy enough, I guess. What should it be called?

JLH · Post by **JLH** » Sat Mar 29, 2014 6:02 pm

I sent a private message on facebook through G A. You may not have seen it.

Doesn't seem like there is interest.

mzh · Post by **mzh** » Sat Mar 29, 2014 6:13 pm

Just looked; your message never got to me.

CathyMe. · Post by **CathyMe.** » Mon Mar 31, 2014 7:55 am

Sorry I'm a little bit late to this post but I would enjoy a facebook page.

JLH · Post by **JLH** » Mon Mar 31, 2014 9:57 am

OK, thanks. Anyone else want a PP LDN group to share info and progress. It wouldn't take the place of PP, it's just easier to "chat."

I think Lesley, Marcia, CathyMe and I would be interested. Correct me if that is incorrect.

LindyLou · Post by **LindyLou** » Mon Mar 31, 2014 10:32 am

I would also like that if it were to be a closed group. I don't worry about friends reading this forum and it would be pretty hard to even get here as this disease is so obscure however I keep my medical stuff on private forums that don't make it onto my Facebook profile page. I'm waiting to hear from my doctor regarding LDN. He has done preliminary research on it but needs to check dosing. I have a pretty bad case of Hashi's and the suggested starting dosage is 1.5 when treating for that. I've lowered my antibodies from 4200 to 1300, so I don't want to aggrivate that condition. Very much hoping this will give me some relief. I also read that you need to be candida free so I want to confirm that before I start taking it. I am so encouraged from what I have read so far.

Zizzle · Post by **Zizzle** » Mon Mar 31, 2014 10:45 am

I also read that you need to be candida free so I want to confirm that before I start taking it. I am so encouraged from what I have read so far.

I doubt anyone is candida free, the question is how much overgrowth is too much? I had a test that suggested I have candida overgrowth and I'm starting Nystatin for it in the next week, I think. Some people think the immune activation caused by LDN helps your body to kill off some of the excessive candida. I don't think I buy that, but who knows?

ldubois7 · Post by **ldubois7** » Mon Mar 31, 2014 1:03 pm

Joan,

I'm interested! Let me know!

JLH · Post by **JLH** » Mon Mar 31, 2014 1:37 pm

Sounds like enough for a group.

What's the difference between closed and secret?

ldubois7 · Post by **ldubois7** » Mon Mar 31, 2014 3:22 pm

Most groups I've joined are closed groups that people who are interested ask to join.

LindyLou · Post by **LindyLou** » Mon Mar 31, 2014 4:51 pm

I think secret means you can't even search for it and can only join by invitation only. Closed means you can see it exists and can request to join but until you have been accepted, you cannot read any posts.

Deb · Post by **Deb** » Mon Mar 31, 2014 5:06 pm

I'd be interested. Deb