Derailed by chicken soup
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Derailed by chicken soup
Everything was going along fine on the Uceris. Have been eating mostly meat, eggs, potatoes and rice cakes. Cutting way back on gluten. I decided to have a can of chicken noodle soup for lunch yesterday. Before I even finished eating I could feel the gurgle, gurgle. No return of the WD, but I am still all bloated, crampy and a little nauseous today.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
You are probably already aware of this, but most commercial chicken soup contains gluten, especially when it contains noodles. There are safe brands of soups and broths available. Look for products by Imagine Foods and Pacific Foods, for example.
As you will discover when you discontinue Uceris, continuing to allow even traces of gluten in your diet will virtually guarantee a relapse, without the prophylactic benefits of an anti-inflammatory medication.
Tex
As you will discover when you discontinue Uceris, continuing to allow even traces of gluten in your diet will virtually guarantee a relapse, without the prophylactic benefits of an anti-inflammatory medication.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Tex,
I am not so sure it is the gluten. When I first started the Uceris March 10th my GI had me on a low residue diet and I was eating bread, angel food cake, etc without problem. I had decided to cut back on gluten and wait for Enterolab results.
Could not believe how quick this soup acted, before I even ate the whole bowl. I am thinking maybe it was one of the other ingredients, many of which I cannot pronounce, and that is why I shouldn't have been eating it in the first place.
I am not so sure it is the gluten. When I first started the Uceris March 10th my GI had me on a low residue diet and I was eating bread, angel food cake, etc without problem. I had decided to cut back on gluten and wait for Enterolab results.
Could not believe how quick this soup acted, before I even ate the whole bowl. I am thinking maybe it was one of the other ingredients, many of which I cannot pronounce, and that is why I shouldn't have been eating it in the first place.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
You're right of course. While the odds that you might not be sensitive to gluten are relatively low, based on the statistics of the members here, that's a moot point as far as your reaction was concerned, because you didn't have time to experience an IgA reaction to gluten.
The fact that your reaction occurred so quickly, implies that it had to be due to an IgE-based reaction, which is more of a classic allergy response, than an IgA response in the gut. I note that MC is not listed among the other syndromes listed under your signature line. Do you by any chance have mastocytic enterocolitis? That could explain the fast reaction.
Whether or not you have ME, your reaction was apparently due to a mast cell degranulation issue. Check the label for one or more high-histamine ingredients in the soup, or an ingredient known to trigger the release of histamine from mast cells.
Did the soup by any chance contain any artificial sweeteners? Most of us can't handle artificial sweeteners.
My best guess is that a high-histamine ingredient (or combination of ingredients) is the most likely smoking gun in this case.
Tex
The fact that your reaction occurred so quickly, implies that it had to be due to an IgE-based reaction, which is more of a classic allergy response, than an IgA response in the gut. I note that MC is not listed among the other syndromes listed under your signature line. Do you by any chance have mastocytic enterocolitis? That could explain the fast reaction.
Whether or not you have ME, your reaction was apparently due to a mast cell degranulation issue. Check the label for one or more high-histamine ingredients in the soup, or an ingredient known to trigger the release of histamine from mast cells.
Did the soup by any chance contain any artificial sweeteners? Most of us can't handle artificial sweeteners.
My best guess is that a high-histamine ingredient (or combination of ingredients) is the most likely smoking gun in this case.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
That was my thought too. Histamines. A great way to find out if you have an issue with histamines is to take some OTC antihistamines and see if your symptoms get a bit better. If they do, then you will have to rethink how you are going to attack this thing. I have this issue, but didn't figure it out until I had already been having success with the diet, but couldn't quite reach "normal". My once a day BM was still soft. Then the whole histamine topic came up on this forum and I decided to try taking an antihistamine and the next day … Norman!…and the next… and so on. I now take a non-drowsy one in the morning and a Benadryl at night. Watching high histamine foods is also part of the plan.
Staying away from processed foods is a good idea for us. it would be best if you made your own soup and froze portions of it for future use. Any food product that has more then a few known ingredients is never a good idea for us. We all live and learn :)
Leah
Staying away from processed foods is a good idea for us. it would be best if you made your own soup and froze portions of it for future use. Any food product that has more then a few known ingredients is never a good idea for us. We all live and learn :)
Leah
Leah, I have taken Zurtec every morning and Benadryl every night for several years to control seasonal allergies. I stop for a couple of months during the coldest part of winter.
Tex, I changed my sig line DX MC by biopsy & UC by blood tests.
During the winter months DH and I share a can of soup almost every weekday. Many afternoons I would feel so sick I would go to bed, didn't get that it might be connected to the soup. I have eaten soup all my life. We love the new Chunky and Progressive flavors and they taste like homemade. This WD started right after Thanksgiving.
Recently I have settled into a high protein/ lower carb routine that has worked well for me while taking the Uceris.
Breakfast: eggs, rice cake with jam & almond milk
Lunch: canned tuna or chicken, rice cake. kefir
Dinner: meat (various), potatoes (mashed or baked), avocado or canned carrots or green beans
Snacks: smoothie (banana & almond milk) or rice cake with PB
For dinner yesterday KFC: chicken breast with skin removed, potatoes, gravy, green beans & a BISCUIT. No reaction at all. This morning I have a C (pebbles). If I am gluten sensitive it must be a more subtle response.
I had never heard of 'high histamine foods' until I joined this group.
Which of these evil ingredients are most suspect?
Ingredients in Chunky Chicken Noodle soup:
Chicken Stock, Cooked Chicken Meat, Carrots, Water, Enriched Egg Noodles (Wheat Flour, Egg White Solids, Whole Egg Solids, Niacin, Ferrous Sulfate, Thiamine Mononitrate, Riboflavin, Folic Acid), Celery, Modified Wheat Starch, Contains less than 2% of the Following: Salt, Chicken Fat, Monosodium Glutamate, Sugar, Modified Food Starch, Onion Powder, Flavoring, Soy Protein Isolate, Sodium Phosphates, Dehydrated Parsley, Chicken Flavor (Contains Chicken Stock, Chicken Powder, Chicken Fat), Dehydrated Garlic, Spice, Beta Carotene For Color, Spice Extract.
Tex, I changed my sig line DX MC by biopsy & UC by blood tests.
During the winter months DH and I share a can of soup almost every weekday. Many afternoons I would feel so sick I would go to bed, didn't get that it might be connected to the soup. I have eaten soup all my life. We love the new Chunky and Progressive flavors and they taste like homemade. This WD started right after Thanksgiving.
Recently I have settled into a high protein/ lower carb routine that has worked well for me while taking the Uceris.
Breakfast: eggs, rice cake with jam & almond milk
Lunch: canned tuna or chicken, rice cake. kefir
Dinner: meat (various), potatoes (mashed or baked), avocado or canned carrots or green beans
Snacks: smoothie (banana & almond milk) or rice cake with PB
For dinner yesterday KFC: chicken breast with skin removed, potatoes, gravy, green beans & a BISCUIT. No reaction at all. This morning I have a C (pebbles). If I am gluten sensitive it must be a more subtle response.
I had never heard of 'high histamine foods' until I joined this group.
Which of these evil ingredients are most suspect?
Ingredients in Chunky Chicken Noodle soup:
Chicken Stock, Cooked Chicken Meat, Carrots, Water, Enriched Egg Noodles (Wheat Flour, Egg White Solids, Whole Egg Solids, Niacin, Ferrous Sulfate, Thiamine Mononitrate, Riboflavin, Folic Acid), Celery, Modified Wheat Starch, Contains less than 2% of the Following: Salt, Chicken Fat, Monosodium Glutamate, Sugar, Modified Food Starch, Onion Powder, Flavoring, Soy Protein Isolate, Sodium Phosphates, Dehydrated Parsley, Chicken Flavor (Contains Chicken Stock, Chicken Powder, Chicken Fat), Dehydrated Garlic, Spice, Beta Carotene For Color, Spice Extract.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
Good morning!
For me, any ingredient containing the the words "wheat, starch, or soy" is a problem. Also any "generic" word like "flavoring" or "extract".
One of the first food items I had to eliminate after diagnosis was canned soups. Since then I make all of my own soups from scratch.......usually on weekends.
As Tex said, it would be exceedingly unusual for anyone with MC not to have a sensitivity to gluten. I believe I read that you have ordered the Enterolab tests, so you should have a definitive answer soon.
BTW, the KFC gravy would likely have been loaded with gluten. I don't know what your usual BM pattern is, but C (pebbles) could be due to a gluten reaction. Some people get C more than D when they are reacting. And, as Tex indicated, your medication might be masking a full reaction.
Your diet looks reasonable (except for the KFC - LOL). Hopefully soon you will have your lab results to help you tweak your diet.
Polly
For me, any ingredient containing the the words "wheat, starch, or soy" is a problem. Also any "generic" word like "flavoring" or "extract".
One of the first food items I had to eliminate after diagnosis was canned soups. Since then I make all of my own soups from scratch.......usually on weekends.
As Tex said, it would be exceedingly unusual for anyone with MC not to have a sensitivity to gluten. I believe I read that you have ordered the Enterolab tests, so you should have a definitive answer soon.
BTW, the KFC gravy would likely have been loaded with gluten. I don't know what your usual BM pattern is, but C (pebbles) could be due to a gluten reaction. Some people get C more than D when they are reacting. And, as Tex indicated, your medication might be masking a full reaction.
Your diet looks reasonable (except for the KFC - LOL). Hopefully soon you will have your lab results to help you tweak your diet.
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Nerdhume, I think most of us have gone into denial initially that it could be gluten. Nobody wants to hear that! When I first found this board I decided to try going off gluten 100% for a month and see what happens. There were some changes for the better. I then decided to test myself and ordered the soba noodles from Noodles and Co. I got violently ill and have never intentionally eaten gluten since. It was enough to convince me. I don't think, as long as you dabble with it, you will be able to figure out for sure what is going on. Good luck on this journey. Deb
We both belong to the VFW and provide a flag folding ceremony at funerals. Yesterday we stood out in the cold, windy, weather at the cemetery from 2 PM when the funeral began at the church until 4 pm when they arrived at the cemetery. After that we were chilled to the bone, tired and hungry from no afternoon snack. We had originally planned chicken breast on the grill and dinner on the patio, neither of us had any interest in that. I chose the least of the evils for takeout and that was KFC.
I have not had C since November when the WD began, so that seemed quite unusual for me. I knew gravy had some gluten due to thickening, and the batter on the chicken, the biscuit should have been loaded with it. Which leads me to think gluten might not be the issue. I will know more when I get the Enterolab results.
I have been lactose intolerant for a while now. I drank soy milk for a while, but found out almond milk agrees with me better so soy may be an issue.
I read up on the "soy protein isolate" here
http://www.ask.com/explore/soy-protein- ... lergy-5287
I had complained before dx that it didn't seem to matter what I ate even soup made me ill.
I checked the pantry and every single can of soup in there had soy protein except the tomato soup.
I don't really like tomato soup but DH does.
I boxed up all the rest of the soups Progresso and Campbell's to give to the county food pantry.
Polly, will do as you suggest and make my own soup from now on! I like to make it in the crock pot with all my own ingredients anyway. Then I can freeze portions for later use.
I have not had C since November when the WD began, so that seemed quite unusual for me. I knew gravy had some gluten due to thickening, and the batter on the chicken, the biscuit should have been loaded with it. Which leads me to think gluten might not be the issue. I will know more when I get the Enterolab results.
I have been lactose intolerant for a while now. I drank soy milk for a while, but found out almond milk agrees with me better so soy may be an issue.
I read up on the "soy protein isolate" here
http://www.ask.com/explore/soy-protein- ... lergy-5287
I had complained before dx that it didn't seem to matter what I ate even soup made me ill.
I checked the pantry and every single can of soup in there had soy protein except the tomato soup.
I don't really like tomato soup but DH does.
I boxed up all the rest of the soups Progresso and Campbell's to give to the county food pantry.
Polly, will do as you suggest and make my own soup from now on! I like to make it in the crock pot with all my own ingredients anyway. Then I can freeze portions for later use.
Theresa
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
MC and UC 2014
in remission since June 1, 2014
We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
KFC is always a no-no for me. Here is a link to their allergen nutrition information. http://www.kfc.com/nutrition/pdf/kfc_allergens.pdf
What got my attention is that their grilled chicken also contain wheat. I do not know if it is because of a coating or because cross contamination from preparation.
What got my attention is that their grilled chicken also contain wheat. I do not know if it is because of a coating or because cross contamination from preparation.
Brenda
I also thought that gluten didn't bother me because when this all first started, I ate "bland" foods (toast, crackers, noodles) and it seemed to help a bit. I knew however that dairy was bothering me. I also am IgA deficient, so I can't produce the antibodies. I didn't understand how I could be reacting if I can't produce the IgA antibodies. After Tex explained how our bodies can react in other ways, I decided to bite the bullet and get rid of it. With the help from Entocort, I got steadily better during the next 6 months when I weaned off the drug. I found I was reacting to peanut butter and GF soy sauce once I was almost off the drug. It was masking the reaction. Soy, peanut butter and legumes ( all related to soy) had to go. Histamines was the last piece to the puzzle.
Since I can't use the Enterolab tests, I still don't really know if I react to gluten, but I do stay away from it. What I do know is that I am not as reactive to small amounts as others here and if I get a little here and there accidentally, I don't react. Yay! That goes for hard cheese also. Sometimes ( after healing), QUANTITY matters more then trace amounts…. but if you can take the Enterolab tests, that will tell you whether you have an IgA reaction, so you will know for sure. Be aware that soy is hidden in weird places ( as is gluten), so read carefully.
Fast food is a tough one, but I find that Taco Bell works best for me in a pinch … corn tortillas, no cheese :)
Leah
Since I can't use the Enterolab tests, I still don't really know if I react to gluten, but I do stay away from it. What I do know is that I am not as reactive to small amounts as others here and if I get a little here and there accidentally, I don't react. Yay! That goes for hard cheese also. Sometimes ( after healing), QUANTITY matters more then trace amounts…. but if you can take the Enterolab tests, that will tell you whether you have an IgA reaction, so you will know for sure. Be aware that soy is hidden in weird places ( as is gluten), so read carefully.
Fast food is a tough one, but I find that Taco Bell works best for me in a pinch … corn tortillas, no cheese :)
Leah