Update: off Budez (Entocort) for a month

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ant
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Update: off Budez (Entocort) for a month

Post by ant »

Dear MCers

Last March Tex wrote
I have a hunch that if you decide to retire from the consulting business, and devote your efforts to writing (and relaxing), you will have less need for Budez in the future. Wink
Well..... I have been taking things a bit easier and not needed to take Budez for a month now :grin:

I have had about 5 short occurrences of urgent D and/or bloating in the month, but they have only lasted a few hours (unlike the days/weeks when I was first suffering). Now, without any medication (just diet) I quickly return to an ok mix of normans/non-urgent, non-watery loose stools.

Without wanting to tempt fate :xfingers: I feel that after over 4 years of needing to treat myself with diet and Budez/Entocort my gut has sufficiently healed and/or my anti-transglutaminase antibodies have sufficiently reduced to take off the training wheels and go diet only. If this is the case it could give hope to others who feel they will never get off the drug.

As an indication of a slow but steady healing, I noticed about 6 months ago that I only needed to take one capsule to bring down a flare. Whereas before I needed to knock it down with about three consecutive days of three capsules per day before tapering back to a maintenance dose.

I will need to see if this improvement lasts. But for now, unless I go into a long term flare, I will not take the drug.

Perhaps my signature line is coming true? :monkey:

Best wishes to all, ant :antemoticon:
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"Softly, softly catchee monkey".....
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nerdhume
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Post by nerdhume »

Great news! Hope it all works out for you.
Stress is a large part of my problem too, I am trying to eliminate things that cause stress, too.
Theresa

MC and UC 2014
in remission since June 1, 2014

We must all suffer one of two things: the pain of discipline or the pain of regret. ~Jim Rohn
Polly
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Post by Polly »

Hey there, Ant!

What a wonderful update!!! Thanks for sharing, and best wishes for continued success!

Love,

Polly
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aquilegia
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Post by aquilegia »

That is great!
I am reducing my budesonide at present after enduring LC for over five years. Right now I think that most of my symptoms are side effects of the drug. It can be difficult to tell which are side effects and which are LC, like lots of gas and other things.
You are an inspiration to all of us.
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tex
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Post by tex »

Hello Ant,

Excellent! It's great to read such an upbeat post, and it's inspiring to realize that you may finally be catching that monkey. :thumbsup:

Thank you for your uplifting update, and like everyone else, I truly hope that your health continues to improve.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Post by JLH »

Terrific, Ant. Always good to hear from you. :thumbsup:
DISCLAIMER: I am not a doctor and don't play one on TV.

LDN July 18, 2014

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Post by CathyMe. »

Such terrific news to read Ant. Glad to hear you're continuing to do well.
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coryhub
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Post by coryhub »

That's good news to hear Ant. I retire the end of this month and hope to get good results like you once my stress lessens.
:fonkycat:
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Diagnosed with Lymphocytic Colitis Sept. 2010
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Martha
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Post by Martha »

Hi, Ant. It's great to hear such good news from you.
:grin:

Martha
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ant
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Post by ant »

Many thanks for sharing good feelings.

My improvement it is due to the wisdom, care and guidance of PP and especially the inspiration of all those who devote so much time to contribute with knowledge and love.

Best wishes and strength to all the PP :ant5:
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"Softly, softly catchee monkey".....
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Gabes-Apg
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Post by Gabes-Apg »

Wow! great news Ant!!

you are very brave to embrace this approach,
hope life is being kind, and things are progessing in Thailand

are you still enjoying a cheeky shiraz?
Best wishes for ongoing healing and wellness.

take care

PS - along with Vit D, magnesium is fantastic for helping bone strength, gut healing, etc. you can get a good dose of magnesium via sprays/liquids. (and avoid any D issues)
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
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ant
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Post by ant »

Dear Gabes,

You have always encouraged the no drugs approach, if possible, and maybe now I can get there. :smile:

Thailand is progressing and, perhaps significantly, about the time I appear to have got off Entocort the main legal and construction issues were resolved on my condominium purchase. I should take possession in mid-January.

Yes, I still enjoy Shiraz and a few other grapes: 'pray, do not mock me. I am a very foolish fond old man' but I do believe it helps digestion (well that is my story and I am sticking with it :cool:)

If you plan a trip to Thailand let me know. The kitchen will be MC friendly.

best :ant5:
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"Softly, softly catchee monkey".....
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