Sheila W
Bone density after 2 yrs of Entocort
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Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Bone density after 2 yrs of Entocort
I was dreading the results of my bone density test and was very pleasantly surprised to be told it was normal. In 2006 I had the same test and was told that there was concern about osteopenia. Since then I had a spinal fusion, diagnosed with celiac, collagenous colitis, Sjogrens, rosacea and spent two years on Entocort. In 2011 my diet became GF/SF/DF and I gradually began a modified paleo diet. I'm small boned and have lost 1 inch in height over the past few years. I'm thinking that the change in diet and careful intake of very specific vitamins and minerals made all the difference. I've never broken a bone despite numerous slips, falls and splats over the years and that leads to an assumptionn of pretty strong bones to start with. However, considering the loss of minerals caused by untreated celiac, a year of WD and 2 years of Entocort, I am very fortunate to still have good bone strength, especially at my age.
Sheila W
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Sheila,
Great update! I agree with you that gluten sensitivity is the primary cause of loss of bone density, and that means that most IBD patients who take Entocort (and who don't eliminate gluten from their diet) can only accelerate their osteoporosis problem. Doctors who advise MC patients to continue to eat gluten are doing their patients a grave disservice, by encouraging them to cause additional unnecessary damage to their bone density.
Most members here who use Entocort don't seem to have any significant problems with increasing bone loss, and IMO that is because they have eliminated gluten (and other food sensitivities) from their diet. In many cases, if they followed their doctor's advice (IOW if they didn't change their diet), the outcome would be much worse, IMO.
Thanks for the update and the helpful information.
Tex
Great update! I agree with you that gluten sensitivity is the primary cause of loss of bone density, and that means that most IBD patients who take Entocort (and who don't eliminate gluten from their diet) can only accelerate their osteoporosis problem. Doctors who advise MC patients to continue to eat gluten are doing their patients a grave disservice, by encouraging them to cause additional unnecessary damage to their bone density.
Most members here who use Entocort don't seem to have any significant problems with increasing bone loss, and IMO that is because they have eliminated gluten (and other food sensitivities) from their diet. In many cases, if they followed their doctor's advice (IOW if they didn't change their diet), the outcome would be much worse, IMO.
Thanks for the update and the helpful information.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Sheila,
Thanks for reporting in. Yes, I'm curious like Donna. Are you taking any D3? calcium? magnesium? that strontium that Gloria was taking?
PS. It was 28 degrees last night in North Florida. Hopefully you are getting more Florida weather in Palm Beach Gardens? I think I have to go to Key West to get Florida weather in Florida.
Brandy
Thanks for reporting in. Yes, I'm curious like Donna. Are you taking any D3? calcium? magnesium? that strontium that Gloria was taking?
PS. It was 28 degrees last night in North Florida. Hopefully you are getting more Florida weather in Palm Beach Gardens? I think I have to go to Key West to get Florida weather in Florida.
Brandy
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Great news Sheila. You've worked hard and it's paying off.
Brandy - In southern Vermont today the temperature reached a balmy 27 degrees. It felt like a heat wave. Weather is a funny thing. It's all in what you're used to or what your body has adjusted to. The -10F Tuesday morning was a little too cold for me but it can get even worse than that.
Brandy - In southern Vermont today the temperature reached a balmy 27 degrees. It felt like a heat wave. Weather is a funny thing. It's all in what you're used to or what your body has adjusted to. The -10F Tuesday morning was a little too cold for me but it can get even worse than that.
Sheila,
Have you maintained good vitamin D levels throughout those 2 years? If so, that may have had the most impact. Vitamin D is thought to be more important than calcium in bone health.
Congrats on the great news,
Polly
Have you maintained good vitamin D levels throughout those 2 years? If so, that may have had the most impact. Vitamin D is thought to be more important than calcium in bone health.
Congrats on the great news,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
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Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
We had a cold spell, low in the upper 50's, high 73 a few days ago. It was 79 degrees today. We have had warmer temperatures than usual and I am looking forward to some cooler weather. Not cold, cool is good.
I've taken a multi with vitamin D and extra D3 for the past couple of years. I don't take extra calcium but do take Epsom salt baths plus magnesium cream. (Thanks to Gabes) Living in South Florida, I'm outside in the sun every day walking the dog, working in my garden etc. Do you think the additional sunlight could be a factor in bone density? I think heredity is also a factor in bone density and I'm lucky there, for a change. My rheumatologist said he sees many Irish/Anglo-Saxons with autoimmune disorders.
I went to a neighborhood party this evening and ate 3 shrimp. The buffet was filled with wonderful food that I cannot eat and I wasn't the least upset. It takes a long time to reach this point and Oh, What a relief it is!! No more food envy.
Sheila W
I've taken a multi with vitamin D and extra D3 for the past couple of years. I don't take extra calcium but do take Epsom salt baths plus magnesium cream. (Thanks to Gabes) Living in South Florida, I'm outside in the sun every day walking the dog, working in my garden etc. Do you think the additional sunlight could be a factor in bone density? I think heredity is also a factor in bone density and I'm lucky there, for a change. My rheumatologist said he sees many Irish/Anglo-Saxons with autoimmune disorders.
I went to a neighborhood party this evening and ate 3 shrimp. The buffet was filled with wonderful food that I cannot eat and I wasn't the least upset. It takes a long time to reach this point and Oh, What a relief it is!! No more food envy.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
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UkuleleLady
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Gabes-Apg
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Sheila,
Another awesome milestone, when you can be near a buffet full of foods that you can't eat and be ok with it!!!, well done!,
Glad the magnesium has helped, based on my research thus far, it is important for bone health and cell health, more so than calcium.
Another awesome milestone, when you can be near a buffet full of foods that you can't eat and be ok with it!!!, well done!,
Glad the magnesium has helped, based on my research thus far, it is important for bone health and cell health, more so than calcium.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
