Hi,
One of our most popular sports journalists, Carina Olset, working for Norway's biggest tv-channel, NRK, tells us openly about her disease in this article. She held a speech at The National Foundation for People With Intestine Diseases, LMF, yesterday about how it is to wear a diaper wearing a ball gown, that she has pooped her pants several times while on air, and that she is not embarrased at all.
Her tv-crew all know about her disease, and when she shouts "STOP!" while filming, everybody knows that she has to run to the toilet. "I will have this disease for life, and must learn to be open. This disease shall not stop my career. The most important struggle takes place in my head", she says. Her employer makes special arrangements for her, like when she reported from Football World Championship, they set up a special toilet for her private use only. Her doctors honor her for being open; "never in my 16 year old career have I experienced this kind of openness", says one of them.
We want more of these brave people. Thank you, Carina.
http://www.kjendis.no/2015/05/20/kjendi ... /39260581/
Although most of you don't speak Norwegian, I enclose a link to the interview & video.
Carina was diagnozed with UC in April, 2011.
Lilia
Thank you, Carina Olset!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Thank you, Carina Olset!
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
I used to be a member of LMF, but discovered soon that they only talk about medication as possible ways of getting better.
Carina says in her speech: "After having been on chemotherapy, which made me very sick, I'm currently on a third trial of a biological medication whose name I'm not allowed to reveal, and I feel much better".
It's discouraging that an interest organization for sick people a) is so lazy and only concentrate on heavy medications, and b) have made her not reveal what finally seems to have helped.
Not a single link with update on scientific information or diet discussions.
Are they in the pocket of the pharmaceutical industry? A rhetorically question...
Lilia
Carina says in her speech: "After having been on chemotherapy, which made me very sick, I'm currently on a third trial of a biological medication whose name I'm not allowed to reveal, and I feel much better".
It's discouraging that an interest organization for sick people a) is so lazy and only concentrate on heavy medications, and b) have made her not reveal what finally seems to have helped.
Not a single link with update on scientific information or diet discussions.
Are they in the pocket of the pharmaceutical industry? A rhetorically question...
Lilia
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Hi Lilia,
Thank you for the link - she is very courageous indeed. I listened to her speech since I grew up in Norway and speak Norwegian, but was very disappointed that there was no mention of food sensitivities.
I lived with LC for 10 years before I finally figured out that it was the food that was wreaking havoc in my body. After 3+ years on a restricted diet, I had another colonoscopy done, which showed no markers for LC in my colon. However, I was then diagnosed with ME, which I'm dealing with now. Although I don't have Normans, my stool is somewhat formed and I usually go 2-3 times a day. That's a vast improvement from the urgent, multiple WD's I used to live with. I have done this with diet alone, and only take Imodium occasionally to slow down motility.
I wish someone would get a message to Carina that she should check for food sensitivities, or perhaps send her a copy of Tex's book:). I know that UC is more serious than CC and LC, but I believe people with UC can also experience vast improvements with proper diet.
Wishing you all the best,
Kari
Thank you for the link - she is very courageous indeed. I listened to her speech since I grew up in Norway and speak Norwegian, but was very disappointed that there was no mention of food sensitivities.
I lived with LC for 10 years before I finally figured out that it was the food that was wreaking havoc in my body. After 3+ years on a restricted diet, I had another colonoscopy done, which showed no markers for LC in my colon. However, I was then diagnosed with ME, which I'm dealing with now. Although I don't have Normans, my stool is somewhat formed and I usually go 2-3 times a day. That's a vast improvement from the urgent, multiple WD's I used to live with. I have done this with diet alone, and only take Imodium occasionally to slow down motility.
I wish someone would get a message to Carina that she should check for food sensitivities, or perhaps send her a copy of Tex's book:). I know that UC is more serious than CC and LC, but I believe people with UC can also experience vast improvements with proper diet.
Wishing you all the best,
Kari
"My mouth waters whenever I pass a bakery shop and sniff the aroma of fresh bread, but I am also grateful simply to be alive and sniffing." Dr. Bernstein
Kari,Kari wrote:Hi Lilia,
I wish someone would get a message to Carina that she should check for food sensitivities, or perhaps send her a copy of Tex's book:). I know that UC is more serious than CC and LC, but I believe people with UC can also experience vast improvements with proper diet.
Wishing you all the best,
Kari
Thank you, Kari, that's a good idea! I have sent her a personal message on Facebook. I sent her a link to this board, and offered to send her a copy of Tex' book. I hope she will answer my message.
Lilia
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
.