The Microscopic Colitis Foundation Website
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
The Microscopic Colitis Foundation Website
Hi All,
In case anyone here is still unaware of the existence of the Microscopic Colitis Foundation website, or hasn't checked it out recently, we finally have everything pretty much set up the way we want, and everything seems to be functioning properly.
If anyone wants to subscribe to the quarterly newsletter, (and haven't already done so) now is a good time to sign up, because the newsletter will be emailed on or before October 1. In fact, if preferred, it can already be viewed/downloaded by clicking on the image of the newsletter on the newsletter page of the website. The newsletter page is listed as an option on the "Support" menu.
The other members of the board of directors and I (with Zizzle's help in setting it up initially) sincerely hope that you like the layout of the website, and that you appreciate what it stands for. We're spreading the word on the Internet, and hoping that we can inspire enough donations to get the message about MC to all of the places where it is so urgently needed.
And we're hoping that we will be able to accumulate a research fund that will be sufficient to allow us to promote a research project to prove once and for all, that diet changes are indeed a medically-proven way to treat MC. This is a very ambitious project, but if we can get enough funding support, we should be able to use that as a stepping stone to demonstrate to other medically-oriented organizations that this is a project worthy of their support, also. And after the research is published in a respected, peer-reviewed medical journal, GI specialists will no longer have an excuse not to recommend diet changes as the safest, and most reliable way to treat MC, especially over the long term.
And as always, suggestions and comments are welcome and appreciated.
Tex
In case anyone here is still unaware of the existence of the Microscopic Colitis Foundation website, or hasn't checked it out recently, we finally have everything pretty much set up the way we want, and everything seems to be functioning properly.
If anyone wants to subscribe to the quarterly newsletter, (and haven't already done so) now is a good time to sign up, because the newsletter will be emailed on or before October 1. In fact, if preferred, it can already be viewed/downloaded by clicking on the image of the newsletter on the newsletter page of the website. The newsletter page is listed as an option on the "Support" menu.
The other members of the board of directors and I (with Zizzle's help in setting it up initially) sincerely hope that you like the layout of the website, and that you appreciate what it stands for. We're spreading the word on the Internet, and hoping that we can inspire enough donations to get the message about MC to all of the places where it is so urgently needed.
And we're hoping that we will be able to accumulate a research fund that will be sufficient to allow us to promote a research project to prove once and for all, that diet changes are indeed a medically-proven way to treat MC. This is a very ambitious project, but if we can get enough funding support, we should be able to use that as a stepping stone to demonstrate to other medically-oriented organizations that this is a project worthy of their support, also. And after the research is published in a respected, peer-reviewed medical journal, GI specialists will no longer have an excuse not to recommend diet changes as the safest, and most reliable way to treat MC, especially over the long term.
And as always, suggestions and comments are welcome and appreciated.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Thanks Martha.
Sure Jari,
It's": http://www.microscopiccolitisfoundation.org/
Sorry, I should have included it in my post.
And I might mention — there's a link (in red) in the header of every page on this site, right below the Title of this site.
Tex
Sure Jari,
It's": http://www.microscopiccolitisfoundation.org/
Sorry, I should have included it in my post.
And I might mention — there's a link (in red) in the header of every page on this site, right below the Title of this site.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Been there last week (noticed the red link at the top of the page ;-), and have shared the link on Facebook to all my friends and family and a couple have even liked the page already!
I plan to spread this news far and wide and hopefully someone with deep pockets will come along and have the faith to make a study happen.
You can't (well I'm sure you can) imagine how many people, normal friends neighbors people in general that I visit with and there is a bit of a link about our symptoms that is hard not to point a finger at and say 'Yep, you could be dealing with MC". I direct them to this site (and now the new Website) and encourage them to learn as much as they can, for their sake and their families.
Love everything this site stands for People included
Erica
I plan to spread this news far and wide and hopefully someone with deep pockets will come along and have the faith to make a study happen.
You can't (well I'm sure you can) imagine how many people, normal friends neighbors people in general that I visit with and there is a bit of a link about our symptoms that is hard not to point a finger at and say 'Yep, you could be dealing with MC". I direct them to this site (and now the new Website) and encourage them to learn as much as they can, for their sake and their families.
Love everything this site stands for People included
Erica
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007
- humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
WOW! Very impressive. I've been to the site before while it was still "under construction." I look forward to reading it thoroughly.
Thank you to everyone who was a part of this. I am looking forward to the day when the GI's stop rolling their eyes at the thought that food plays a role in this disease. I was very discouraged at my last visit in June. I am doing very well, and thought the doctor would have asked a lot of questions as to why I am doing so well now. Sorry to say that was not the case, but hopefully one day they'll open their minds up to this fact.
Love,
Paula
Thank you to everyone who was a part of this. I am looking forward to the day when the GI's stop rolling their eyes at the thought that food plays a role in this disease. I was very discouraged at my last visit in June. I am doing very well, and thought the doctor would have asked a lot of questions as to why I am doing so well now. Sorry to say that was not the case, but hopefully one day they'll open their minds up to this fact.
Love,
Paula
Paula
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
"You'll never know how strong you are until being strong is the only choice you have."
"Life is not about waiting for the storm to pass... It's learning to dance in the rain."
- humbird753
- Rockhopper Penguin
- Posts: 1014
- Joined: Mon Nov 28, 2011 4:44 pm
- Location: Wisconsin
Thanks, Tex, I knew I had seen it somewhere, but couldn't remember where and didn't scroll to the top of the page.........did an Internet search and it didn't come up...........it looks wonderful! Thanks for all of your hard work!
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Thanks Erica and Paula. We appreciate the kind words, and we appreciate the help publicizing our cause.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Jari,
Yes, unfortunately it takes a while, and a lot of hits, before the search engines will begin to give us a decent rating.
Thanks,
Tex
Yes, unfortunately it takes a while, and a lot of hits, before the search engines will begin to give us a decent rating.
Thanks,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
So maybe it would be helpful if we all googled "Microscopic Colitis Foundation".Yes, unfortunately it takes a while, and a lot of hits, before the search engines will begin to give us a decent rating.
Edited to add: I didn't find it until I added "persky" to the end. I'm not sure how search engines work but I then clicked on it...not sure if that helps or not.
Deb,
When I get a batch of free time, I intend to work on the search engine optimization possibilities for the site. I haven't had time to do much with that yet.
Connie,
Thank you so much. We all definitely appreciate your help.
Love,
Tex
When I get a batch of free time, I intend to work on the search engine optimization possibilities for the site. I haven't had time to do much with that yet.
Connie,
Thank you so much. We all definitely appreciate your help.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.