Did you have arhralgia and myalgia with your IBD, what was the turning point?
Seem like some of us still have problems with fatique, arhralgia, myalgia. Even after we are in remission.
If you no longer have that problem what was the turning point for you? Or what did you do to keep those symptoms at a minimum?
Did you have arhralgia and myalgia with your IBD?
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Hi Jonas,
My experience may not be like yours, but I had a short onset of what I consider to be both arthralgia and myalgia symptoms after I took some very high potency probiotics that I bought at Whole Foods. This occured a few months after my diagnosis of MC. It caused such intense pain throughout most of my body that I was brought to tears, and I usually have a pretty high tolerance of pain. I immediately dropped the probiotics and actually took no pills of any kind from that point for several weeks. I was back to normal (meaning no severe joint or muscle aches/pains) after about 3 days. The experience truly scared me, it was so intense.
After that, I noted some general myalgia and also leg cramps that I attibuted to my continuing WD (loss of electrolytes) so I began taking magnesium citrate, which has really helped with the muscle pain and cramps and especially my energy levels. I was also very low in D3 and started supplementing that as well.
Now, I'm a year from diagnosis, and seeing improvement in every way, eating a GF diet, supplementing with D3, magnesium and multi-vit/min and taking NO probiotics, and severely limit my dairy, soy as best I can. I continue to eat organic, range free eggs from a local farm which feeds their hens good stuff (and no soy or GMO corn.)
I hope your symptoms improve - as I now know how debilitating the pain of myalgia can be.
My experience may not be like yours, but I had a short onset of what I consider to be both arthralgia and myalgia symptoms after I took some very high potency probiotics that I bought at Whole Foods. This occured a few months after my diagnosis of MC. It caused such intense pain throughout most of my body that I was brought to tears, and I usually have a pretty high tolerance of pain. I immediately dropped the probiotics and actually took no pills of any kind from that point for several weeks. I was back to normal (meaning no severe joint or muscle aches/pains) after about 3 days. The experience truly scared me, it was so intense.
After that, I noted some general myalgia and also leg cramps that I attibuted to my continuing WD (loss of electrolytes) so I began taking magnesium citrate, which has really helped with the muscle pain and cramps and especially my energy levels. I was also very low in D3 and started supplementing that as well.
Now, I'm a year from diagnosis, and seeing improvement in every way, eating a GF diet, supplementing with D3, magnesium and multi-vit/min and taking NO probiotics, and severely limit my dairy, soy as best I can. I continue to eat organic, range free eggs from a local farm which feeds their hens good stuff (and no soy or GMO corn.)
I hope your symptoms improve - as I now know how debilitating the pain of myalgia can be.
“Nothing will ever be attempted if all possible objections must first be overcome.” - Samuel Johnson
"When making your choices in life, do not forget to live." - Samuel Johnson
MC/LC dx October 2014
"When making your choices in life, do not forget to live." - Samuel Johnson
MC/LC dx October 2014
Re: Did you have arhralgia and myalgia with your IBD?
Jonas,Jonas wrote:Did you have arhralgia and myalgia with your IBD, what was the turning point?
Seem like some of us still have problems with fatique, arhralgia, myalgia. Even after we are in remission.
If you no longer have that problem what was the turning point for you? Or what did you do to keep those symptoms at a minimum?
I had a lot of arhralgia while on Entocort. The pain lasted long after I was off Entocort. In fact now, 4 months after I quit Entocort, I can say that the pains are about to stop.
But, whether it is the corticosteroids that give me the pains, or the fact that corticosteroids supress the uptake of nutrition, and therefore my body aches because of lack of nutrients... I don't know.
Lilia
Collagenous Colitis diagnosis in 2010
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Psoriasis in 1973, symptom free in 2014
GF, CF and SF free since April, 2013
Hi Jonas,
Prior to my M/C diagnosis two and a half years ago, I had many years of fibromyalgia-type pain and migraines. Once I was diagnosed, I went on Entocort and eliminated gluten and other things. When I eliminated gluten the pain mostly disappeared and the migraines became less frequent and less severe. I was afraid that the improvement was caused by the Entocort. Well, I've been off Entocort for a year and a half now and the horrible pain never came back! Just recently I got into some food that was "contaminated" with gluten. I had watery diarrhea and I had body pain to the degree that I was limping. About four weeks later, I'm returning to formed BMs and a low pain level. Some of us REALLY can't tolerate gluten at all. If you are not 100% GF, give it a try and see if your pain improves. We are not all the same but being GF is critical to my health.
Prior to my M/C diagnosis two and a half years ago, I had many years of fibromyalgia-type pain and migraines. Once I was diagnosed, I went on Entocort and eliminated gluten and other things. When I eliminated gluten the pain mostly disappeared and the migraines became less frequent and less severe. I was afraid that the improvement was caused by the Entocort. Well, I've been off Entocort for a year and a half now and the horrible pain never came back! Just recently I got into some food that was "contaminated" with gluten. I had watery diarrhea and I had body pain to the degree that I was limping. About four weeks later, I'm returning to formed BMs and a low pain level. Some of us REALLY can't tolerate gluten at all. If you are not 100% GF, give it a try and see if your pain improves. We are not all the same but being GF is critical to my health.