Well great, now my eye doctor says I've moved from "suspect glaucoma" to "Open angel with borderline findings and high glaucoma risk in both eyes". He wants me to use one drop of Alphagan P in my right eye 2 x day. He says he would like to get the pressure in that eye down a little. I go back in three weeks and have more questions for him. He asked about my family history and to the best of my knowledge, I don't know of a history of glaucoma.....he said my health history shows inflammatory issues....go figure!
I read that you should consult your doctor before starting Budesonide if you have glaucoma. Does anyone have any info on this?
Thanks,
Terre
PS: It seems that almost all OTC drugs list that you should talk to your doc if you have glaucoma.....this is new territory for me.
Glaucoma
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Sheila
- Rockhopper Penguin
- Posts: 1150
- Joined: Wed May 18, 2011 5:10 am
- Location: Palm Beach Gardens, Fl
Hi Terre,
I'm on glaucoma watch as well. When I had 23amdme genetic tests there was found a genetic predisposition to a more rare form of glaucoma. I brought it to my eye doctor and he immediately did a lot more testing. I took budesinide for about 2 years and wonder if it could have triggered a progression of glaucoma. Budesinide worked beautifully for me and don't think I would have done as well without it. Everything seems to come at a cost.
Sheila W
I'm on glaucoma watch as well. When I had 23amdme genetic tests there was found a genetic predisposition to a more rare form of glaucoma. I brought it to my eye doctor and he immediately did a lot more testing. I took budesinide for about 2 years and wonder if it could have triggered a progression of glaucoma. Budesinide worked beautifully for me and don't think I would have done as well without it. Everything seems to come at a cost.
Sheila W
To get something you never had, you have to do something you never did.
A person who never made a mistake never tried something new. Einstein
A person who never made a mistake never tried something new. Einstein
Terre,
If you have increased ocular pressure, then most corticosteroids would definitely be risky. Here's a link to that information on the Glaucoma Foundation website:
https://www.glaucomafoundation.org/info ... 156&cat=11
Here's a possible option though: See what your gastroenterologists thinks about using Uceris rather than Entocort. If he truly understands the various types of corticosteroid products on the market, he will recognize that it might be a safe option for you. That also applies to your optholmologist, for that matter. Theoretically, Uceris should not affect any part of the body other than the lower part of the colon. It's not ideal for MC, because it isn't activated until it gets way down in the colon, but that should prevent it from getting into the bloodstream where it could affect your eyes.
Uceris is primarily sold for treating UC, and UC starts at the bottom end of the colon. The inflammation that causes MC can be found scattered in most MC patients not only in the entire colon, but at least in the terminal ileium and often throughout the small intestine and the stomach. However, most MC patients who have tried Uceris have reported relatively good results. Uceris uses budesonide as the active ingredient, but it's pharmacokinetics are significantly different from other products based on budesonide.
Tex
If you have increased ocular pressure, then most corticosteroids would definitely be risky. Here's a link to that information on the Glaucoma Foundation website:
https://www.glaucomafoundation.org/info ... 156&cat=11
Here's a possible option though: See what your gastroenterologists thinks about using Uceris rather than Entocort. If he truly understands the various types of corticosteroid products on the market, he will recognize that it might be a safe option for you. That also applies to your optholmologist, for that matter. Theoretically, Uceris should not affect any part of the body other than the lower part of the colon. It's not ideal for MC, because it isn't activated until it gets way down in the colon, but that should prevent it from getting into the bloodstream where it could affect your eyes.
Uceris is primarily sold for treating UC, and UC starts at the bottom end of the colon. The inflammation that causes MC can be found scattered in most MC patients not only in the entire colon, but at least in the terminal ileium and often throughout the small intestine and the stomach. However, most MC patients who have tried Uceris have reported relatively good results. Uceris uses budesonide as the active ingredient, but it's pharmacokinetics are significantly different from other products based on budesonide.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I am on my 6th day of Entocort. Two days ago I was looking through the side effects of this drug and I noticed that you should notify your doctor if you have glaucoma or have it in the family. I have had closed angle glaucoma but have had both eyes lasered to allow for fluid to flow through. My mother and grandmother also had glaucoma. So I rang the doctor and he thought that since I have had my eyes lasered it should be fine for me to be on Entocort.
‘I have decided to stick with love. Hate is too great a burden to bear.’ – Martin Luther King Jr
Thank you all for replying.
Sheila, I have read where others wonder the same as you in regard to Budesonide triggering their glaucoma....but you are correct in saying it seems most things have a trade off and you can't know for sure if it was the cause....at least the Budesonide did work for you. We do the best we can with the information we have at the time. I never would have had cervical fusion years ago if I had known what I do now, but that being said, I was in so much pain at the time that they could have cut off my head!
Tex, thanks for the info on Uceris. My doctor prescribed the Cholestyramine, so I'll try that first....I didn't read anything about glaucoma regarding that product. I just need to read up on the vitamins it can deplete before I begin taking it. I would like to supplement what is needed while I am on it.
Linda, good for you that you have been given the green light to continue and I wish you the best of luck. My MIL had laser done on her eyes to help with her glaucoma, but my eye doctor did not mention a thing about that being an option for me at this time. I have many more questions for him at my follow-up appt.
Thanks again!
Terre
Sheila, I have read where others wonder the same as you in regard to Budesonide triggering their glaucoma....but you are correct in saying it seems most things have a trade off and you can't know for sure if it was the cause....at least the Budesonide did work for you. We do the best we can with the information we have at the time. I never would have had cervical fusion years ago if I had known what I do now, but that being said, I was in so much pain at the time that they could have cut off my head!
Tex, thanks for the info on Uceris. My doctor prescribed the Cholestyramine, so I'll try that first....I didn't read anything about glaucoma regarding that product. I just need to read up on the vitamins it can deplete before I begin taking it. I would like to supplement what is needed while I am on it.
Linda, good for you that you have been given the green light to continue and I wish you the best of luck. My MIL had laser done on her eyes to help with her glaucoma, but my eye doctor did not mention a thing about that being an option for me at this time. I have many more questions for him at my follow-up appt.
Thanks again!
Terre