Shifting perspective on IBS - ScienceNordic article

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Erica P-G
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Shifting perspective on IBS - ScienceNordic article

Post by Erica P-G »

Oh, very good article....they are starting to get it in the Danish/Sweden world....perhaps some of that perspective will get into the USA pretty soon, we can only hope :-)

They still talk about bacteria, but I think they are finally onto something in the last paragraph, could this site actually be getting out there with our information!!

http://sciencenordic.com/shifting-persp ... -239820761
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Dx LC April 2012 had symptoms since Aug 2007
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Post by TaiaK »

Great article Erica. Thanks for posting-encouraging! Someone needs to figure this IBD stuff out-it's becoming so prevalent.

Taia
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Post by Gabes-Apg »

Someone needs to figure this IBD stuff out-it's becoming so prevalent.
i think we have figured it out, albeit while ever big pharma make profit from the various IBS and IBD drugs, the realities will struggle to get traction in mainstream medicine
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Post by TaiaK »

I haven't figured it out :((

Agreed-huge profit on the drugs!!

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Post by Gabes-Apg »

Taia
in my opinion, IBS, MC, etc are actually symptoms of other issues, they are not necessarily the root cause illness.

this recent article
http://qz.com/689806/a-controversial-th ... allergies/

this article links that excess toxins in the body, is causing the inflammatory reactions to food etc.
this has alot of credibility based on methylation cycle issues, and the bodies ability to clear toxins.
and of course, the key nutrients that are part of clearing toxins, magnesium, molybdenum, Vit C, Vit E etc

as I mentioned in the other post, it has taken me over 2 years of focused supplementation to correct my methlyation cycle, in this time i have also been clearing excess toxins/metals and also I have made lifestyle changes to reduce the exposure levels to various toxins.

my pondering is, i think that is why for some people here, the bland eating plan alone does not bring remission. it is not until the body is in balance, and the cells have the right nutrients can the body heal and improve.
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Post by TaiaK »

Thank you Gabes for the post (and the one in the the VSL thread).

I need to have more patience. I need to let go and relax. I'm usually pretty good about it but the last few days-UGH.

I read the article and it makes sense. My body is certainly no stranger to allergies-my whole life, seasonal, hives, swelling, allergy injections etc.

I will someday fit the puzzle pieces together or just slowly heal with my current protocol.

Tomorrow will be better! Taia
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Post by Vanessa »

Gabes,

I definitely agree with this....now that I've started on ReMag and ReMyte(which has zinc and Molybdenum) my body is finally clearing out the cobwebs. I'm taking a capsule called ReAline also. It has the methylated B's with taurine and some other goodies that Dr. Dean says "takes out the trash". My eyes look alive again.....

I really like this line of thinking. It gives us more power over this disease. It doesn't own us. It is just a visitor and our bodies way of giving us a message.
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Post by hollyweb »

Agree with everyone!! I would love to see MC being accepted into the Crohn's, Celiac, UC and other IBD's worlds where we can ALL help each other, including educating the medical community. It feels like the medical community has to be on board before pharmaceutical companies would even start up the ladder!! And pharmaceutical companies could do SO MUCH with allergen-free foods, "medical foods" (VSL3 probiotics is an example of that) ... there's much more for them to consider marketing if they could think outside the box. MC is like the white elephant in the room right now. How can we change that?

~ Holly
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Post by Polly »

Interesting thread.

I would agree that progress is being made. I believe that many of the GI "diseases" are interrelated, coexist, and can morph into each other at different times. IBS-D has now been approved for treatment with rifaxamin . (I believe they have found that up to 1/3 of IBS-D cases have SIBO, the only previous diagnosis that rifaxamin was approved for). Up to 60% percent of those with lymphocytic colitis may have an associated bile acid diarrhea. (That's ME.....I really think my LC was primarily due to bile acid diarrhea). And I believe that all of these GI conditions promote leaky gut, which is why virtually all GI diagnoses have food sensitivities. If you check out the online support groups for almost any GI condition: IBD (like Crohn's), IBS, SIBO, BAM ((bile acid malabsorption)), MC, etc.) you will see everyone complaining of food sensitivities and discussing the various diets for the gut: SCD, GAPS, A.I.P., low FODMAPS. It is also interesting that, in many cases, as the underlying condition improves, so does the leaky gut. I was amazed by how many more things I was able to eat once I began treating my BAM. And previously, I was the undisputed Queen of Sensitivities....LOL.

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Post by Erica P-G »

HI Polly,
In your opinion how would BAM symptoms be, feel in general if you still have a gallbladder, and have never had any problems with the liver, or gallbladder etc....60% is a pretty high number associated with LC and that is what I have. Lately my D when it strikes has a tendency to be a bit acidic (poor bum).
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Erica :grin:
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Post by hollyweb »

Erica, Polly and all,

Yes, very interesting! I too have LC, and am taking digestive/pancreatin enzymes for fat malabsorption. Researching BAM, I feel I also have this, but my GI doctor will not test for it. Like Erica, I still have my gall bladder, liver, etc. My bum feels the same as yours, Erica (well said, I must say!!), plus I'd add a little "leaky" with what looks like bile. My GI doc's response to my telling him this over and over is that everyone "leaks" ... but before MC, I never leaked like this! Polly, do you have any recommendations for treating BAM? What's worked best for you? (And I'm so happy to hear you've had such success!!)

Another interesting, slightly off topic but close, is something Tex brings up in his book. As a former Bengal and Savannah cat breeder for over 15 years, I had a lot of cats, plus feedback from my customers who were actually all over the world. Food allergies came up relatively frequently among our discussion groups, and as Tex points out, veterinarians know all about this! They get it instantly! The animal that develops classic diarrhea, or in some cases vomiting, or both, is brought into the vet, who then puts them on the same elimination type of eating program that we are using to treat ourselves!! Vets put these pets on special "scientifically based", translate expensive, often with prescription) no grain foods, usually with only one protein (which has often been lamb, duck or turkey ... sound familiar??) After a trial period, if symptoms persist, they go to a different single protein food, etc. Vets also get the concept of stress more often than not being the trigger for the food allergies to start with the pet. They ask if the family has had any recent changes, such as moving, having a baby, adding another member to the family dynamics (person or another pet), etc.

Why is it so difficult for GI doctors to make these same connections? How can we open their eyes to the truth, without antagonizing them?

~ Holly
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis

"I strive to live in my heart, not in my head!"
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Post by Gabes-Apg »

Holly
Polly, do you have any recommendations for treating BAM? What's worked best for you?
The treatment for BAM is cholestryamine, which is also one of the recommended treatment protocols for MC
Interestingly, the other use for cholestryamine is for clearing toxins for those with biotoxin based conditions (ie excess toxins)

as you may have seen via discussions here, like some of the other treatment approaches, cholestryamine does not work for everybody.
some recent discussions that may be useful

http://www.perskyfarms.com/phpBB2/viewt ... hlight=bam
http://www.perskyfarms.com/phpBB2/viewt ... =biotoxins
http://www.perskyfarms.com/phpBB2/viewt ... =biotoxins
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Post by hollyweb »

Thank you, Gabes! All those threads are very interesting, and it's so helpful to hear from different people about their experiences, especially over a period of time.

I notice you mention clearing toxins a LOT and that this has been one of the biggest challenges for you. You've probably answered this a million times, but is there a link or is there any info you could share about how one would go about finding out if they also have a biotoxin based condition? Are there tests? Are the supplements and amounts you take geared specifically for specific toxins/biotoxins?

At age 60, obviously I've been exposed to many toxins, including developing walking pneumonia from living about 18 hours/day in closed room with a black mold condition (wasn't detected for months; doctor thought I had worse than usual allergies, and the water damage to wall from leaking roof was covered up by a large chest of drawers!) Add on years of medications, vaccinations, exposure to heavy metals et al ... "life" before and after we knew so much more about this ... it adds up.

I'm so grateful to you and everyone for all your help!

~ Holly
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis

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Post by Gabes-Apg »

Holly
most of what i have been learning about toxins/biotoxins like mould i have been learning via forums/groups about mould and biotoxins.
Additionally listening to podcasts by Dave Asprey, bulletproof. Dave himself has recovered from chronic mould illness.
it is also linked to methylation and the bodies ability to clear toxins.

the combo of the high toxin type lifestyle we are subjected to, along with the gradual nutrient deficiencies, means the increase of inflammation, increase of toxins, etc. which further degrades nutrient levels.
some recent studies proved that EMF (wifi, cell phones, etc) make mould 600 times worse! if you have mould in the house, and have any tablet devices or phones in bed with you, while you are sleeping you are breathing in mould spores etc and a much higher rate
this would also apply to any environment, work place, other peoples houses etc.
mould is just one toxin, there are chemicals, fertilisers, pollution, pollen, metals, etc
Gabes Ryan

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Post by hollyweb »

Thank you, Gabes! I'll take a look around and see what I can find out. My black mold situation was actually not too long after the Internet was just unfolding; I had a desktop computer but no cell phone or devices. Decades earlier than that, I was a manufacturer's rep for wholesale garden supplies which included fertilizers, soil amendments, pesticides, etc. (I am OLD, hehehe!) Plenty of opportunity for a cumulative effect from many sources of potential toxins. I was just trying to find out if one could test to see if, in fact, one *did* have toxic levels in their system *currently* that could be contributing to MC issues, plus whether there were certain supplements or protocols that were geared to a specific toxin, or whether the idea was primarily to "de-tox" for anything your body is trying to be rid of.

Thank you again,
~ Holly
2015 Hashimoto's, MTHFR
2016 LMC, Malabsorption
2017 Lymphocytic Dermatologic Vasculitis

"I strive to live in my heart, not in my head!"
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