Just wanted to post an update on my healing journey thus far.....
I was diagnosed in Feb. 2014 with CC but looking back had symptoms that came and went many years before that. I truly believe that stress was a major factor in triggering my MC to come full force. By the time the diagnosis came, making the necessary lifestyle changes had a major impact on my already haywire nervous system. Looking back at my first post brings a dark feeling because I remember how lost, hopeless, and sick I felt. My world closed in on me. However, with the gentle guiding hands of our amazing family on this board I was able to integrate the necessary changes.
One thing I've learned in dealing with a disease like this, you really learn a lot about yourself. I knew that I needed to quit having this picture of myself in my mind of being sick. I also knew I could not do a full elimination diet. For me, it would be too stressful only to add one item or ingredient every three days keeping a journal. I cut out all of the major triggers (gluten, dairy, soy, and egg or the 4 horseman) and let go of everything else. I turned inward and did A LOT of work there talking to my other self and being my own best friend. A turning point did come when I detached myself from my symptoms. I felt so sick most days, I had to get real comfortable with the idea of death. I know this sounds dramatic but hey, I'm speaking from the heart......
So after 2 years of doing everything in my power to eliminate as much stress, toxicity, and god knows what from my world it looked like this was as good as it was gonna get. I still had WD around hormonal times off and on. I had fatigue, insomnia, menstrual irregularities, heart palpitations when resting at night, muscle weakness, skipped heartbeats throughout most days, hair loss, burning behind my breast plate when starting to eat, swollen lymph nodes, times when I couldn't take a full breath ( not anxiety but a sort of "air hunger" ), waking up in the night gasping for breath, eczema, throat swelling, burning stomach at night, numbness and tingling in left outer thigh (on face and toes as well), a feeling of "if I go to sleep I'm not going to wake up." Again, Not Anxiety, as I was always very relaxed when these things came and went. I just had a slew of weird symptoms that were present. I did a lot of accepting of them, welcoming them in for a cup of tea and crumpets (GF of course).
So I just moved along most days knowing something bizarre was going to pop up, deal with it and move on. I did all of the suggestions here with Vit D, Mag, and B Vits. Zantac and Allegra never helped me but I tried them. I kept learning new things when my brain was working. With the help of this board, my attention came back to magnesium deficiency. I just couldn't understand how that could be. I was taking 500 mg in chelated glycinate/malate a day, along with lotion, oil, and epsom salts. I finally found a liquid form that is highly absorbable. By this time I didn't put much faith in anything. I was actually afraid because I have tried so many things that sometimes they had an ill effect. Boy am I glad I tried this! ALL of the symptoms above have faded away. It took a good 2 months to start noticing real changes. I'm starting to feel like my old self again. If you would have told me a year ago that all of these symptoms were due to mag deficiency I would have said hmmmm okay your crazy! I still struggle with occasional WD off and on in my cycle but I have confidence that will improve with a little more time.
This is not a sad story. This story is for that person who has tried everything and still feels ill with little hope. Your answer could be just around that corner. Go easy and pull back when you need to but NEVER GIVE UP. And I wouldn't change these events for anything. I needed to use some new tools (and a new tool box) to be able to cope when things got rough. I wouldn't have learned them without this struggle.
P.S. There is a funny post somewhere about how we try everything to heal including glasses that light up to change your brain waves. I own them, Deepak Chopra sells them as the Dream Weaver. I seriously have tried it all....
