Hi there,
I am new here but I am 42 have been suffering with CC for a few years now. Diagnosed in 2013 after a colonoscopy but was suffering with pain first then WD for much of 2012. Looking back I think I have had a couple of smaller flares even before the big one that had me so sick for months.
My biggest flare and what sent me to the doctor happened the day after I got a flu shot. I swear I will never get another one I will take my chances with the flu!!!! I got so sick not just with the non-stop WD but my sinuses just went crazy at the same time. The stress of not knowing and the testing made things worse I think looking back. Has anyone else experienced a flare after a flu shot? My docs insist that didn't cause it but it's too coincidental for me.
Because of the pain that started months before the D I had an ultrasound and ultimately an MRI that found a benign cyst on my ovary and several benign cysts on my liver. In the meantime I was diagnosed with CC and put on Entocort and a steroid nasal spray for my sinuses which did not work. Back then the pain in my side was really bad, and while the steroids did calm down the WD it took two rounds (3 months each) for the pain to subside. My GI was nice, but didn't have any suggestions about diet or lifestyle. Question 2 - does anyone experience sharp pains (I call them side pains which I still get on occasion but not at all like before).
In the meantime I have also discovered lumps (several) in my breasts. A mammogram revealed they are fluid filled, not to worry just like all the other lumps. Leading me to question 3 - Does anyone else have an inside full of lumps like I do and could they be related?
Currently I am finishing up what I would prefer to be my last round of Entocort. I hate the way I feel on them (especially in the first 4 weeks) my jaw clenches constantly. I have been feeling frustrated because the clinic docs don't really want to suggest anything, just take a listen to the belly and write the prescription and every time I try to clean up the diet I end up worse (because it's taken me this long to figure out that often my healthy stuff was probably just another trigger....ie: raw fruit and veg.) I am getting set to try to really go gluten free and dairy free (I do dairy free often during flares) to start, but this is challenging without being able to eat the raw fruit and veg I feel like I am getting ripped off. I get bored of soup pretty quickly!
I see that some people here describe flu like symptoms sometimes (or fatigue/brain fog) which my doc says are just tension headaches (as she was writing out the script for steroids) and I couldn't make her understand that my legs and arms feel like lead some days and I don't know why! I even get this feeling sometimes on the steroids (but less often) and can't think of what I ate or why it is happening. Not everyday but it's unpredictable which sucks especially when on holiday. My last trip with my daughter I found myself at 2am in the bathroom googling new cures for CC hoping there was something I had missed... I kinda wish it took me here!
Re-reading this just feels like I barfed out all my problems to strangers but I have been so inspired by what I have been reading so far. I still have a lot of reading to do I realize, especially the recipes and diet suggestions. I am also interested in other discussions about magnesium (I have ordered a topical lotion recommended on this board) I have foot and leg cramps all the time and I'm curious if this is a deficiency.
I guess I am here because I am just about done this round of treatment and I have been bloated like a balloon for a week now with no relief and I finally found you in all of my searches! Thank you!!!!!!!
PS I am new to discussion boards all-together so hopefully I haven't committed any faux pas...
New here and I have so many questions!
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Hi Marly,
Welcome to our Internet family. Yes, reports of serious reactions to a flu vaccine go all the way back to our first year of operation on this board (2005). Here are links to a couple of past discussions about this problem. Especially note the second one. Mary Beth is a licensed dietitian who has had serious mast cell issues (mastocytosis) ever since her encounter with a flue vaccine, which she describes in her first post.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=1765
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=9964
Your docs are either ignorant, or simply playing the game that all medical professionals are expected to play these days — promote the flu vaccine at all costs. If the flu shots were really harmless, the U. S. government wouldn't have set up a National Vaccine Injury Compensation Program because they got tired of fighting lawsuits.
http://www.hrsa.gov/vaccinecompensation/
Yes, pain in all sorts of locations were my almost constant companion back when I was still reacting, including occasional sharp, stabbing pains at one or the other of the sides of my abdominal cavity.
Somewhere during the early years when my symptoms began, I noticed a benign cyst on my right forearm. It's appearance might have been a coincidence, but I have a hunch that it was connected with MC. It's still there and hasn't changed much since I've been in remission.
Your docs most likely are not willing to suggest anything because they don't know what to suggest. In a way, that's probably better than what many GI docs in this country do — make suggestions that are contraindicated for MC (such as eat more fiber, take a probiotic, etc.)
Bland diets may be boring, but they are healing, so we don't have much choice if we really want to get our life back. Fear not, you should be able to slowly reintroduce raw fruits and vegetables into your diet after you have been in stable remission for a while (after you have been off the medications for a while).
Leg and foot cramps are usually the most obvious sign of magnesium deficiency. They're extremely common symptoms among the members here.
And incidentally, while we may seem like strangers now, we are in fact, all family. Why? Because no one truly understands this disease unless they have it, and virtually everyone here understands exactly how you feel — our doctors don't have the foggiest idea how we feel because they don't have the disease.
Again, welcome aboard, and please feel free to ask anything.
Tex
Welcome to our Internet family. Yes, reports of serious reactions to a flu vaccine go all the way back to our first year of operation on this board (2005). Here are links to a couple of past discussions about this problem. Especially note the second one. Mary Beth is a licensed dietitian who has had serious mast cell issues (mastocytosis) ever since her encounter with a flue vaccine, which she describes in her first post.
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=1765
http://www.perskyfarms.com/phpBB2/viewtopic.php?t=9964
Your docs are either ignorant, or simply playing the game that all medical professionals are expected to play these days — promote the flu vaccine at all costs. If the flu shots were really harmless, the U. S. government wouldn't have set up a National Vaccine Injury Compensation Program because they got tired of fighting lawsuits.
http://www.hrsa.gov/vaccinecompensation/
Yes, pain in all sorts of locations were my almost constant companion back when I was still reacting, including occasional sharp, stabbing pains at one or the other of the sides of my abdominal cavity.
Somewhere during the early years when my symptoms began, I noticed a benign cyst on my right forearm. It's appearance might have been a coincidence, but I have a hunch that it was connected with MC. It's still there and hasn't changed much since I've been in remission.
Your docs most likely are not willing to suggest anything because they don't know what to suggest. In a way, that's probably better than what many GI docs in this country do — make suggestions that are contraindicated for MC (such as eat more fiber, take a probiotic, etc.)
Bland diets may be boring, but they are healing, so we don't have much choice if we really want to get our life back. Fear not, you should be able to slowly reintroduce raw fruits and vegetables into your diet after you have been in stable remission for a while (after you have been off the medications for a while).
Those symptoms are due to neurological damage to both the enteric nervous system and the central nervous system, caused by a combination of CC (fighting the inflammation requires almost all the energy that the body has available to devote to the immune system), vitamin D deficiency, magnesium deficiency, and damage caused by gluten sensitivity. MC/CC/LC causes deficiencies of vitamin D, magnesium, and eventually vitamin B-12 and some of the other B vitamins. Without adequate supplies of vitamin D and magnesium, the body is unable to heal. Magnesium deficiency also causes migraines, headaches, and various other neurological (aches and pains) and muscular dysfunctions.Marly wrote:I see that some people here describe flu like symptoms sometimes (or fatigue/brain fog) which my doc says are just tension headaches (as she was writing out the script for steroids) and I couldn't make her understand that my legs and arms feel like lead some days and I don't know why!
Leg and foot cramps are usually the most obvious sign of magnesium deficiency. They're extremely common symptoms among the members here.
And incidentally, while we may seem like strangers now, we are in fact, all family. Why? Because no one truly understands this disease unless they have it, and virtually everyone here understands exactly how you feel — our doctors don't have the foggiest idea how we feel because they don't have the disease.
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex!
I'm just screaming "I knew it!" in my head over and over lol when reading your links about the flu shot! Please don't think I am complaining about our healthcare because I am grateful every day for it. I wouldn't have had any of the many tests I did have without it. But up here the doctors are very rushed, very over worked, under paid etc. so I get it but it's frustrating walking in knowing you gotta spit out your concerns very quickly and fight for them to hear your symptoms.
I feel like I have been almost obsessively doing most things wrong for so long and to find you guys and see real people with the same or similar symptoms and discussions on treatments and diet I can't tell you what a relief it is! It is SO hard to commit to real lifestyle changes when your doctor doesn't think it will help and without any guidance so getting set-back every time. I guess you all probably hear that a lot! I was tested for celiac and came back negative so I never went completely gluten free but did try to go wheat free for a long time without success.
I am renewed, and off to the drugstore to re-stock the Vitamin D, the magnesium is on order and will prepare my kitchen and my mind for a GF/DF lifestyle (I realize I might be adding some other things to the things my body needs to be free of but I gotta re-start somewhere right lol?)
Thank you thank you thank you for your reply and also this forum. I'll be around for awhile I think :)
Marly
I'm just screaming "I knew it!" in my head over and over lol when reading your links about the flu shot! Please don't think I am complaining about our healthcare because I am grateful every day for it. I wouldn't have had any of the many tests I did have without it. But up here the doctors are very rushed, very over worked, under paid etc. so I get it but it's frustrating walking in knowing you gotta spit out your concerns very quickly and fight for them to hear your symptoms.
I feel like I have been almost obsessively doing most things wrong for so long and to find you guys and see real people with the same or similar symptoms and discussions on treatments and diet I can't tell you what a relief it is! It is SO hard to commit to real lifestyle changes when your doctor doesn't think it will help and without any guidance so getting set-back every time. I guess you all probably hear that a lot! I was tested for celiac and came back negative so I never went completely gluten free but did try to go wheat free for a long time without success.
I am renewed, and off to the drugstore to re-stock the Vitamin D, the magnesium is on order and will prepare my kitchen and my mind for a GF/DF lifestyle (I realize I might be adding some other things to the things my body needs to be free of but I gotta re-start somewhere right lol?)
Thank you thank you thank you for your reply and also this forum. I'll be around for awhile I think :)
Marly
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twirlitgirl
- Adélie Penguin
- Posts: 181
- Joined: Thu Aug 21, 2014 5:46 am
- Location: Canada
Welcome Marly,
It is important to read the material here that has been so wonderfully put together for everyone to understand.Alot of hours and much care and thought has been put in by many sharing ideas and experiences, something that is so precious to anyone feeling lost and not knowing the steps to getting their lives back. We are all in the same boat and
probably the only people around us that understand what we are going through, I know my family supports me with every lifestyle change I have made and that helps keep my stress levels way down but they do not understand or know exactly what these feelings are for me in my normal enviroment that hasn't changed but I had to change around it. For them things are the same, they still eat whatever they want and no restrictions.
I, like most of us here, feel no food is worth jeopardizing my health and therefore my happiness and fullfulment of life. As I did with my children
if there was a toy that they wanted but was way too out of my price range and couldn't afford for them, I would substitute another item and they were happy , didn't feel like they did not receive anything, they still got something to play with and it was loved just the same. It was understood that we couldn't afford it, they probably were disappointed but they understood and were still happy kids. .
In our MC world, sure we have to give up some of the foods we have loved for years and since we were kids, but we can have something else, many recipes here , that will give us pleasure because we will feel good in our bodies and our energy and zest for life will return , no offending food is worth taking all that away , is it? if you feel miserable for days afterwards..
that is just my opinion , and you can agree or disagree, but I haven't looked back since giving up that which was making me so ill, for my body. I greet each day with " I can do it, I love myself too much, not to" It is all about choice and you sound like you have already started down that road with finding out what path to take, good for you, you can do it... Each person is different so what works for one may not work for another but your journey is yours to find what works for you, with all the help along the way, there is always someone here who can answer your questions, Tex and Gabes are our experts( at least I feel that way) as well as others with their many experiences of trials and errors and have helped more than they will ever know,many people all around the world in this big internet family, just because they care so much ,
and that to me is priceless. cheering you on.
twirlitgirl...
It is important to read the material here that has been so wonderfully put together for everyone to understand.Alot of hours and much care and thought has been put in by many sharing ideas and experiences, something that is so precious to anyone feeling lost and not knowing the steps to getting their lives back. We are all in the same boat and
probably the only people around us that understand what we are going through, I know my family supports me with every lifestyle change I have made and that helps keep my stress levels way down but they do not understand or know exactly what these feelings are for me in my normal enviroment that hasn't changed but I had to change around it. For them things are the same, they still eat whatever they want and no restrictions.
I, like most of us here, feel no food is worth jeopardizing my health and therefore my happiness and fullfulment of life. As I did with my children
if there was a toy that they wanted but was way too out of my price range and couldn't afford for them, I would substitute another item and they were happy , didn't feel like they did not receive anything, they still got something to play with and it was loved just the same. It was understood that we couldn't afford it, they probably were disappointed but they understood and were still happy kids. .
In our MC world, sure we have to give up some of the foods we have loved for years and since we were kids, but we can have something else, many recipes here , that will give us pleasure because we will feel good in our bodies and our energy and zest for life will return , no offending food is worth taking all that away , is it? if you feel miserable for days afterwards..
that is just my opinion , and you can agree or disagree, but I haven't looked back since giving up that which was making me so ill, for my body. I greet each day with " I can do it, I love myself too much, not to" It is all about choice and you sound like you have already started down that road with finding out what path to take, good for you, you can do it... Each person is different so what works for one may not work for another but your journey is yours to find what works for you, with all the help along the way, there is always someone here who can answer your questions, Tex and Gabes are our experts( at least I feel that way) as well as others with their many experiences of trials and errors and have helped more than they will ever know,many people all around the world in this big internet family, just because they care so much ,
and that to me is priceless. cheering you on.
twirlitgirl...diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
Hi Twirlitgirl, thank you so much! You are right of course and I will probably re-read your post when I am considering a cheat! It's funny because I hated veggies when I was a kid and would have preferred to live on meat and potatoes only growing up. Now all I want is to eat a balanced diet. It's difficult to switch to the thought process that salads might not be for me (right now anyway) and that I am better off with more lean meat and potatoes (I have not attempted to make mashed potatoes without milk before but I will find a way...I'm sure I can find it here!)
I'm lucky (in a way) because I have gone through some restrictions with my partner who had bowel re-section surgery shortly after we moved in together. He had diverticulitis that caused so much internal damage that they removed a bunch of his guts. He wore an ileostomy bag for 9 months and I was his cook! He is back to healthy but some foods still bug him. He stays away from nuts and seeds and that sort of thing.
Now he supports me in all of my attempts and the two of us talk poop way more than most couples do lol!
I still have so much of this site to explore and so much to learn but I really appreciate your words of encouragement!
I'm lucky (in a way) because I have gone through some restrictions with my partner who had bowel re-section surgery shortly after we moved in together. He had diverticulitis that caused so much internal damage that they removed a bunch of his guts. He wore an ileostomy bag for 9 months and I was his cook! He is back to healthy but some foods still bug him. He stays away from nuts and seeds and that sort of thing.
Now he supports me in all of my attempts and the two of us talk poop way more than most couples do lol!
I still have so much of this site to explore and so much to learn but I really appreciate your words of encouragement!
Despite the negative impression that many of our posts may give, we definitely appreciate our doctors and our health care system here in the States, too. It's their bad habits (such as the fact that most GI specialists do not understand MC, nor do they know how to properly treat it), and the incredibly ridiculous costs of medications and medical care these days, that get our dander up.Marley wrote: Please don't think I am complaining about our healthcare because I am grateful every day for it.
Otherwise they do a good job.Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I agree with you completely Tex, especially now that I see how much information I was missing before I came here. Seems like I could have at least been turned in the right direction after all that testing!
But I'm here now and it's just a reminder that I am the only one who can really help myself. Just like all other aspects of life!
The more I read, the more empowered I feel!
But I'm here now and it's just a reminder that I am the only one who can really help myself. Just like all other aspects of life!
The more I read, the more empowered I feel!
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twirlitgirl
- Adélie Penguin
- Posts: 181
- Joined: Thu Aug 21, 2014 5:46 am
- Location: Canada
Hi Marly,
You are so welcome, however I will caution you that cheating will really hurt you and you don't want that, no food is worth it, beleive me I have been around many a family meal with so many of my before foods set in front of me, one night my family had regular vanilla ice cream and some incredibly delicious smelling pie so not my friendly food, on the table I think it was a regular bakery blueberry one, I didn't say anything or even think I can have a little peice. I didn't feel like eating even a friendly GF cookie for my dessert that night, but I wasn't going to sit there and watch them eat this pie in front of me, so I left the room and went to the bedroom until I knew they had eaten it and all dishes put in dishwasher and everything cleaned up. Nobody questioned it . and I slept very well that night knowing I did the right thing for me and didn't bend under pressure I could have put on myself.
I know my body very well now but am still learning everyday with all the wonderful people from here and new developements, keep your eyes peeled on here for more and more advice, from people who have walked the walk and want to help. Tell your partner good for him getting his health back, what an inspiration for you getting your life back on track too, I have every confidence you will both help eachother and enjoy life to the fullest doing it your way and what works for you both and individually, I feel so proud to be a part of this group of people. sit back and read all you can, many amazing stories of remission success here, someday you too will be a
remission success story shared with everyone as well. take care and all the best in your journey, I see that Tex has written you , he is awesome and will guide you in this journey..
You are so welcome, however I will caution you that cheating will really hurt you and you don't want that, no food is worth it, beleive me I have been around many a family meal with so many of my before foods set in front of me, one night my family had regular vanilla ice cream and some incredibly delicious smelling pie so not my friendly food, on the table I think it was a regular bakery blueberry one, I didn't say anything or even think I can have a little peice. I didn't feel like eating even a friendly GF cookie for my dessert that night, but I wasn't going to sit there and watch them eat this pie in front of me, so I left the room and went to the bedroom until I knew they had eaten it and all dishes put in dishwasher and everything cleaned up. Nobody questioned it . and I slept very well that night knowing I did the right thing for me and didn't bend under pressure I could have put on myself.
I know my body very well now but am still learning everyday with all the wonderful people from here and new developements, keep your eyes peeled on here for more and more advice, from people who have walked the walk and want to help. Tell your partner good for him getting his health back, what an inspiration for you getting your life back on track too, I have every confidence you will both help eachother and enjoy life to the fullest doing it your way and what works for you both and individually, I feel so proud to be a part of this group of people. sit back and read all you can, many amazing stories of remission success here, someday you too will be a
remission success story shared with everyone as well. take care and all the best in your journey, I see that Tex has written you , he is awesome and will guide you in this journey..
diagnosed with LC by biopsy
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
in May 2013 , supplements B complex, Vit C ,Vit D3 Zinc, with a multivitamin, and magnesium to round out the pack.
Thanks again Twirlitgirl. I hear you and I understand. I think the biggest thing about this change is that I not only have support at home, but the testimonials here like yours to keep me going even on the hard days. The hardest thing about my past attempts at controlling with diet was the fact that it was not working (I was not doing it right), I was sick and tired, and feeling like it was pointless. It's hard to talk yourself into being strong if it feels pointless to start with right?
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Marly
welcome to our group - sympathies that you had to find us.
Tex and TwirlitGirl have provided great answers/suggestions
We have prepared a guidelines to recovery area that may be useful in helping you embrace the changes etc.
yes the diet and getting the right nutrients (like Vit D3 and magnesium) are important, but the mental and emotional aspects of life with condition like MC.
http://www.perskyfarms.com/phpBB2/viewforum.php?f=79
hope this helps
(sorry for the incomplete sections in the guidelines I have been doing a temporary job for the Australian National Census and it has consumed double the amount of expected hours )
welcome to our group - sympathies that you had to find us.
Tex and TwirlitGirl have provided great answers/suggestions
We have prepared a guidelines to recovery area that may be useful in helping you embrace the changes etc.
yes the diet and getting the right nutrients (like Vit D3 and magnesium) are important, but the mental and emotional aspects of life with condition like MC.
http://www.perskyfarms.com/phpBB2/viewforum.php?f=79
hope this helps
(sorry for the incomplete sections in the guidelines I have been doing a temporary job for the Australian National Census and it has consumed double the amount of expected hours )
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Hi Marly,
I had lumps in my breasts before I got my magnesium stores up.....calcification? They even did surgery on one having me scared to death.....but it was nothing. Now that I have gotten a highly absorbed form of magnesium, PMS and sore breasts really don't even exist for me anymore. I'm glad you found us.....ask us anything.
I work at a hospital that requires us by law to get the flu shot. Lets just say (without really saying) that we will just let them think thats happening. A group of us have banded together to "fill out the appropriate paperwork." Its a load of B.S. that is a huge scare tactic and money maker for the drug companies. But that is just my opinion.
I had lumps in my breasts before I got my magnesium stores up.....calcification? They even did surgery on one having me scared to death.....but it was nothing. Now that I have gotten a highly absorbed form of magnesium, PMS and sore breasts really don't even exist for me anymore. I'm glad you found us.....ask us anything.
I work at a hospital that requires us by law to get the flu shot. Lets just say (without really saying) that we will just let them think thats happening. A group of us have banded together to "fill out the appropriate paperwork." Its a load of B.S. that is a huge scare tactic and money maker for the drug companies. But that is just my opinion.
Vanessa
Gabes I really appreciate the links I know I am going to need them! There is so much information on here your links are helpful to get me started! It has been an emotional ride I guess partially being in denial about things and partially obsessed with it at the same time if that makes any sense at all. I feel like it is just such a relief. Biggest relief for me was the flu like symptoms being a part of this because my doctors really separated that into a sinus infection/tension headache that did not exist which I knew then and still know because I'm a grown woman and I know the difference! Better still there is something really real I can do about it!
Vanessa, the clinic docs ask all the time if I want a flu shot while I'm there and all of them laugh at me like I'm crazy when I say no way and why. I am pro vaccinating kids for the biggies don't get me wrong! But I was never ever so sick for so long in my life and I will never risk that again. Either the flu will kill me or it will be over in a week at least!!!! My partner still gets his and no issues for him and I have left it up to my daughter (she's 18) but she hasn't gone since that time.
Vanessa, the clinic docs ask all the time if I want a flu shot while I'm there and all of them laugh at me like I'm crazy when I say no way and why. I am pro vaccinating kids for the biggies don't get me wrong! But I was never ever so sick for so long in my life and I will never risk that again. Either the flu will kill me or it will be over in a week at least!!!! My partner still gets his and no issues for him and I have left it up to my daughter (she's 18) but she hasn't gone since that time.
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Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Makes ALOT of sense, this is a very common reaction.... when we realise that mainstream medicine is letting us down (making us worse not better) and then we find groups like this and we enter a whole new world of people with similar situations, research and information that explains the symptoms, finding the root cause, etc.I guess partially being in denial about things and partially obsessed with it at the same time if that makes any sense at all.
I have mentioned this to others, it is sort of like being Alice in wonderland... we enter a whole different world that at first looks bonkers.. as we embrace things, we realise that this world (MC world) is where things are real, various aspects of life and health start to make sense..
take your time reading and learning.
the success stories area is another good area to read posts, see what others have done to improve wellness and how long it took.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I don't remember who wrote it, but recently, someone wrote ( I'm paraphrasing here) that they treated the foods they aren't able to eat like poison. So that when this person eats a meal with others and food is offered that is not safe, this person explains that it's like ingesting poison and proposes the idea to the friend(s) that they wouldn't intentionally eat poison, would they?
Anyway, that really resonated with me. I mean it made sense and although I haven't had to say that to anyone, yet, I'm keeping that phrase on the tip of my tongue!
Last Sunday, we had a family dinner. When we all received our assignment on what dish to bring, I looked at the menu and there wasn't one item that was safe for me. So, I brought my own dinner. I felt strange eating my safe food while the rest of the group piled gobs of potential heart attack inducing foods on their plates. On the one hand, it was weird to be the "odd man out" but on the other hand, I felt good knowing that I was not going to be sick the following morning . And then dessert: make your own ice cream sunday. They all enjoyed themselves while I was thoroughly disgusted and so happy knowing that I was not going to wake up feeling sick because I gave in. The good news in all of this is that no one said a word to me, one way or another, about why I wasn't eating what they were. While they may not understand MC, and they don't include any safe foods when they plan the meals, no one seemed to care that I brought my own food. Previously, I've eaten what is served but it's just not worth getting sick.
Two things happened for me last April. First, a 3rd colonoscopy with biopsy by a new GI doctor. The test came back positive for MC. I was relived with the results because now I knew what I had to do. The first test in 2009 was positive for MC, the second test, three y later by new doc was negative and I was told it was all in my head. So, you can see why I was relived with the results of the 3rd test. I felt vindicated. Second, I found this support group. Here, I have learned about the proper diet and supplements. I had no idea that VD and Mag played a huge role for us MCers. I read and reread the posts gaining new insight each time.
So, Marly, welcome to our family. You've found a wonderful group of very positive folks. Take your time reading through the posts because it's a lot to process. It's all good information and you're on your way to feeling better.
Anyway, that really resonated with me. I mean it made sense and although I haven't had to say that to anyone, yet, I'm keeping that phrase on the tip of my tongue!
Last Sunday, we had a family dinner. When we all received our assignment on what dish to bring, I looked at the menu and there wasn't one item that was safe for me. So, I brought my own dinner. I felt strange eating my safe food while the rest of the group piled gobs of potential heart attack inducing foods on their plates. On the one hand, it was weird to be the "odd man out" but on the other hand, I felt good knowing that I was not going to be sick the following morning . And then dessert: make your own ice cream sunday. They all enjoyed themselves while I was thoroughly disgusted and so happy knowing that I was not going to wake up feeling sick because I gave in. The good news in all of this is that no one said a word to me, one way or another, about why I wasn't eating what they were. While they may not understand MC, and they don't include any safe foods when they plan the meals, no one seemed to care that I brought my own food. Previously, I've eaten what is served but it's just not worth getting sick.
Two things happened for me last April. First, a 3rd colonoscopy with biopsy by a new GI doctor. The test came back positive for MC. I was relived with the results because now I knew what I had to do. The first test in 2009 was positive for MC, the second test, three y later by new doc was negative and I was told it was all in my head. So, you can see why I was relived with the results of the 3rd test. I felt vindicated. Second, I found this support group. Here, I have learned about the proper diet and supplements. I had no idea that VD and Mag played a huge role for us MCers. I read and reread the posts gaining new insight each time.
So, Marly, welcome to our family. You've found a wonderful group of very positive folks. Take your time reading through the posts because it's a lot to process. It's all good information and you're on your way to feeling better.
Diana