UPDATE ON KAIT~~~~

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barbaranoela
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UPDATE ON KAIT~~~~

Post by barbaranoela »

This is quite interesting---
A few times,speaking with Kait, she would say to me---*U know Grams, I have these AURA's/etc*~~~~
Now I know an AURA is something we all have around us BUT I didnt know that the word AURA is related to a signal of a pending seizure!!! Which she is starting to go into again :sad:

Spoke with Lynn, last night, and she and Kait have been to see Dr.Kutcher,her pediatric neuro., and this AURA was discussed-

Years back when Kait would seize,she was caught in a staring issue and then seize--on meds. and gradually the seizures lessened and lessened--

Now she has been Xperiencing this AURA for a few months and I found out that many people that are going into a seizure wil have a warning sign--such as even smelling an odd odor/etc.

And here I am thinking Kait is talking about the aura that surronds us all--DUH!!!

Anyway--pain management has Kait on Dylantan(spelling) a pain+seizure meds. and Kutcher was pleased cus this has (un-knowingly been controlling her going into a full blown seizure)
He wants her to increase up to 2500 mgs.

Once again we are hoping that she doesnt have any gran-mal's/or smaller
ones--- :sad:

AND NO DRIVING-----naturally this would be Xpected--

Comes Feb. the ped. neuro will do a brain wave test(cant think of the letters for it) to see how things are running---cus we do know that the brain waves on the right side have been damaged--slightly--

In a few weeks the *titanium* plate will be inserted--the injections have been stretching the *skin* so as they can get in--- :sad:


XAMPLE of her warning AURAS----teacher talking and telling the class to start filling in a paper---Kait couldnt take her eyes off the teacher --and just froze---then snapped outta it--
This really made me laugh---she then started staring @ one of her boy classmates and then he yells @ her *YO--whatta ya staring at*-- :lol:
I would guess that maybe he shocked her out of going deeper--

Actually (as I am writing this) I am recalling that this was just what would send her into a seizure----she would say---*I'm staring*---

So issues continue for Kait---dratzzzz!!!!-----but she sure is something else--continues with school---and enjoying life!!!

And I feel so *stupid* just learning that an *aura* is related to someone having a message that a seize is starting-- :???:

Thats it--
Have a good day---we are kinda FREE now----and relaxing--
luve U all
Barbara----

PS. Galahad---icons still not fully loading---bah-humbug!!! :lol:
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
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Post by starfire »

Barbara,
Don't feel bad at all. I've learned several things that I never would have unless I came into contact with a person or situation related to the "new knowledge".

I only know about auras because they are sometimes a warning that a migraine headache is coming. My sister has those. There are apparently several conditions that can produce an aura. I have them myself sometimes. I apparently have what is called painless migraines and the only symptom is an aura. Mine are normally visual but I used to smell new mown grass or watermelon when there was absolutely no reason for the scents. I'm glad they were pleasant scents. :grin:

I am so sorry Kait is still having problems and I hope they don't develop into anything more before the insertion of the plate. I hope then, that she will be on the road to complete recovery. She has withstood so much already. She really is a "heroine".

My love and prayers for all of you,

Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
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barbaranoela
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THANKS SHIRLEY~~~~~~

Post by barbaranoela »

Hiya Shirl------thanks so much for the info----

I had no idea this happened to people---nor the term *aura* applied to a medical issue---

I guess in a way its a good warning device---

Yup learn something new each and every day--

I feel badly that I never discussed this with Kait--just letting her assume I UNDERSTOOD the terminology---

Well @ least,when I speak with her now, I can relate to her aura's!!!

Hope U R doing good Shirley--

Today is the first day I feel *human* :lol:
Last wash running and my DEW is growing--- :lol: :lol: :lol:

C-U later Shirley--take care and have a good day--

luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
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