Accepting life with chronic illness

Gabes-Apg · Post by **Gabes-Apg** » Sat May 20, 2017 3:34 pm

For some life with MC is life with a chronic illness, for others, having multiple AI issues can be impacting to life... thought this article may be of interest.

https://themighty.com/2017/05/accepting ... rome-cirs/

The day I let go of my life before chronic illness and embraced my life with chronic illness, I gave myself permission to stop merely existing and begin living again.

I’ll let you know how it turns out, but today, I’m happy just being me. Not a temporary version of my previous self – just me.

twirlitgirl · Post by **twirlitgirl** » Sun May 21, 2017 10:22 am

Gabes, what an inspiring article, thanks for sharing. Have a sunny day and cheers to us all accepting ourselves for who we are now...still us.

humbird753 · Post by **humbird753** » Sun May 21, 2017 11:37 am

Thank you for posting this, Gabes. It is very inspiring. Life is different, but we still have worth!

Deb · Post by **Deb** » Sun May 21, 2017 3:13 pm

Great article, Gabes. Thanks. Deb

Marcia K · Post by **Marcia K** » Sun May 21, 2017 4:59 pm

Thanks for sharing, Gabes. I will never be who I was before but I'm okay with who I am now. We're all in this together and I am grateful that through this disease I found all of you.

jlbattin · Post by **jlbattin** » Mon May 22, 2017 7:37 am

Thanks Gabes for sharing this..............what a great article.

Was something I truly needed to read this morning as I've spent all weekend in the bathroom again (half nerves, half chopped nuts that my body revolted against).................it's easy to get into the "Poor me" syndrome and stay home, and I've done just that for the past few months. Need to change that!

Gabes-Apg · Post by **Gabes-Apg** » Mon May 22, 2017 2:30 pm

Jari
sorry that your digestion rebelled against the chopped nuts and nerves etc...

glad the article was timely and helpful

it is a HUGE thing to embrace a new you... adjust our beliefs, values, energy, relationships, expectations etc to life with MC. In a world where food and drinking is backbone of socialisation, it takes a lot of energy to 'integrate' in life with others.

after years of massive fatigue and ongoing symptoms from my multiple AI issues, unsettlement of moving interstate 3 years ago, (being 900kms away from friends that were part of my life for over 15 years) and having to start again - the weekend just gone I went on a day trip with some people that I have not spent much time with, I had a day of fun, doing things I did frequently before the MC Dx. by the end of the day I was tired, a bit sore (from hiking in the bush etc) but for me it was a big milestone of me enjoying being me as I am now. I still have limitations on my energy (physical, mental and emotional) and have to do fair bit of planning and be organised meal wise and chores wise but there is some flow and reduction in intensity.

jlbattin · Post by **jlbattin** » Mon May 22, 2017 2:45 pm

Thanks, Gabe...........this too shall pass! And I think it's all still residual from my eye surgery........takes forever to get the anesthesia all out of your body and to turn things around again............school will be out soon and I have nothing on my plate this summer but a little R & R and water aerobics................

DJ · Post by DJ » Tue May 23, 2017 5:27 am

I like her way of thinking. This is timely for me.
DJ

Post by **tex** » Tue May 23, 2017 12:06 pm

Gabes,

I clicked on your link today. I was amazed that no one else had caught the issue. Her high forehead in the photo grabbed my focus immediately. She's a celiac. That explains being sick all the time. Toxic mold might not be good, but it's probably not her main health problem — her problem is undiagnosed celiac disease.

Tex

brandy · Post by **brandy** » Tue May 23, 2017 12:38 pm

Wow, never heard of the high forehead connection before. That is me, my brother and Mom to a T. Mom is celiac.

twirlitgirl · Post by **twirlitgirl** » Tue May 23, 2017 1:01 pm

Tex, I did not know that high forehead is a classic sign of celiac , Wow. my neice has a high forehead is a Celiac and so do I but I came back negative for celiac 5 yrs ago, when they diagnosed me as M/C..I like to think maybe I headed full blown celiac off before my villi were damaged enough to diagnose Celiac. Of course this is only my thoughts racing now but I am glad I gave up gluten in any case and got my health back through all you amazing people, Gabes, been there so much when I have been down, the voice in the dark, cheering us on with your many comforting posts . and especially you Tex who works tirelessly behind the scenes to keep us all informed with your knowledge and research, it is invaluable to me and have learnt so much , from everyone, in fact I owe you my life as I have now, because having not found this site I would have continued to eat gluten and the other unsafe foods damaging my body. I try not to look back too much as to how or why I got this disease, I really don't know. I like looking forward to how I am living and dealing with it now. It is part of me, sometimes a friend and sometime my worst enemy but accepting how to deal with it has been eye opening and I am so grateful for all the help to keep on being alive and enjoying life on my terms even when society tells me that I am crazy and it is all in my head, I know different. Health is priceless and thankful for the little things everyday.

Post by **tex** » Tue May 23, 2017 2:55 pm

I've forgotten where I picked up that high-forehead tip, but there's a high correlation with cealic disease and I assume there's also a high correlation with non-celiac gluten sensitivity. Knowing this causes you to view people in a crowd, or people you meet, differently. Look at your favorite celebrity's forehead the next time you see her or him and try to guess whether or not she or he is gluten sensitive.

Tex

Erica P-G · Post by **Erica P-G** » Tue May 23, 2017 3:17 pm

Another gem you found Gabes....

It was and has been very hard to give up my old life....still have to work on that part from time to time....

I do feel better than I have in a long time, even if I am not having perfect bathroom days every single day. Being able to finally get out and partake in an ATV Poker Run is huge for me....as this time last year I was feeling I would never get to do anything with my husband ever again, I just couldn't take the chance of not being near a bathroom, I was feeling miserable and the intestines still had tinges of being a spastic from time to time. Two years into some hard core healing and I could cry from a thankful feeling that washes over me that my body is going to allow me to create a New Normal and for that I don't know what the next day brings but I am more relaxed about it now.

Hugs
Erica

Gabes-Apg · Post by **Gabes-Apg** » Tue May 23, 2017 4:25 pm

Erica
via the comments on facebook, I was chuffed to hear of your weekend ATV adventures and that we were both doing similar things at almost the same time even though I am on the opposite side of the world!!

glad the article brought some gem sparkle into your day