MC article

[ldubois7]

Maybe we are finally getting some attention....

https://scdlifestyle.com/2017/11/micros ... sting-list

[tex]

That's certainly a step in the right direction. It's a shame that the title implies that MC is always a diarrhea-dominant disease, but it will surely point a lot of misdiagnosed sufferers in the right direction.

Thanks for posting the link.

Tex

[ldubois7]

That's certainly true....and exposure is important! Yay!

I was both C and D in my journey so far....it's a crazy life!

[Maximus74]

That's certainly a step in the right direction. It's a shame that the title implies that MC is always a diarrhea-dominant disease, but it will surely point a lot of misdiagnosed sufferers in the right direction.

Thanks for posting the link.

Tex

Yes. I've gone to a 2nd specialist to get a second opinion as after 6 months I'm not in remission. The GI immediately wanted to rule out MC because I don't suffer chronic D. If anything I suffer C. We'll wait and see where this path leads but I cringed when he said it might just be IBS. They should just get rid of IBS and call it a virus. Thanks to your good coaching Tex, I didn't jump across the desk and strangle him

[tex]

Good for you for showing such constraint.

Tex

[Polly]

Definitely a step in the right direction! I was pleased to see that they noted the prominence of BAM (bile acid malabsorption) in MC. I believe that this is often overlooked in treating MC. Probably because we don't have any readily-available tests in the U.S. to test for BAM. In the U.K. where they do, BAM is frequently diagnosed in cases that were previously labelled "IBS".

Polly

[ldubois7]

I recently read this article....

https://www.crohnsandcolitis.org.uk/abo ... ic-colitis

I was surprised that they didn't mention gluten as an inflammation source, only dairy, as well as other dietary changes....
This was their reply when I questioned that....

We are assuming that the article you are referring to is our information sheet ‘Microscopic Colitis’ which is the first link that is generated when you search our website for ‘Microscopic Colitis’. The details in this information sheet would have been based on the evidence that was available at the time of publication review; as such there was no indication that Gluten is a factor that can cause inflammation, rather that coeliac disease (an allergy to Gluten) may need to be ruled out. Furthermore the information sheet explains that ‘people with Microscopic Colitis are 50 times more likely to have coeliac disease than the general population information’.

[JFR]

I recently read this article....

https://www.crohnsandcolitis.org.uk/abo ... ic-colitis

I was surprised that they didn't mention gluten as an inflammation source, only dairy, as well as other dietary changes....
This was their reply when I questioned that....

We are assuming that the article you are referring to is our information sheet ‘Microscopic Colitis’ which is the first link that is generated when you search our website for ‘Microscopic Colitis’. The details in this information sheet would have been based on the evidence that was available at the time of publication review; as such there was no indication that Gluten is a factor that can cause inflammation, rather that coeliac disease (an allergy to Gluten) may need to be ruled out. Furthermore the information sheet explains that ‘people with Microscopic Colitis are 50 times more likely to have coeliac disease than the general population information’.

I guess they hadn't heard that gluten is inflammatory. Since inflammation is being shown to be the root cause of many or most or maybe all of the chronic health conditions plaguing people perhaps it would be prudent to advise people, whatever their diagnosis, or even without any diagnosis, to just avoid gluten. Seems to me to be a good place to start if health is your object. No study needed.

Jean

[ldubois7]

The article was from Nov. 2016 (not that long ago).... we've known that gluten is a huge inflammatory and in any autoimmune condition it's contrary to healing.

I feel sorry for the people who haven't found this group and are led on a journey of not improving their health through misinformation.

[Erica P-G]

So glad to see movement on this subject .... We live it every day, they should interview us