Biofilm
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Biofilm
I've been reading some interesting articles about biofilm and was wondering if anyone has an experience to share? I am always suspicious of sites that promote their products for sale but I was very intrigued with the Restore 3 (not to be confused with Restore). It's target group are those dx with fibro, GI issues, Lymes, and maybe a few others. That rang a bell for me because I am all three of those categories. I am still confused with the fibro though because I've seen a rhuematologist twice over the past ten years and both time was told I do not have the pain markers associated with fibro. Yet, I see it listed as a condition and my PCP references often. I have widespread muscle pain with no good reason so that must be close enough? That could be related to accumulated biofilm?
I've taken four courses of antibiotics since July (3 different kinds) And they either made me feel worse without changing the WD or did nothing at all. Could this be due to biofilm?
I'm toying with the idea of trying out the supplement even though I've wasted literally thousands of dollars trying to track down the one that will work for me. I am going to have a waiting period to receive the UBiome kit for my husband and a wait for the results. Maybe in the meantime I could see if this would make any significant change? I could be grasping at straws but it would be something I could tell my GI about. Not that he will approve but may just roll his eyes and give me a break until after the holidays (in which I hope to make my own progress).
I've postponed my CT scan but only for a couple weeks. I know I really don't feel it's necessary at all and even though it won't cost me a dime (it does cost my insurance quite a bit) I'm not really comfortable pumping my body full of chemical to look into something that may or may not be there. If I was having pain, I would be singing a different tune but my WD and how I feel has not changed in ten years. Although, if I wait until the 1st of the year I will have considerable expenses if I do decide to have it done. I have a month to dwell on that idea. With having a colonoscopy and endoscopy this past October I am confident they would have found something new. Same dx as always- MC with a new addition of a slight narrowing of anal canal with tenderness and firmness in posterior midline (not sure why it wasn't called an anal fissure that he described which still is quite bothersome).
Thinking out loud again.
I've taken four courses of antibiotics since July (3 different kinds) And they either made me feel worse without changing the WD or did nothing at all. Could this be due to biofilm?
I'm toying with the idea of trying out the supplement even though I've wasted literally thousands of dollars trying to track down the one that will work for me. I am going to have a waiting period to receive the UBiome kit for my husband and a wait for the results. Maybe in the meantime I could see if this would make any significant change? I could be grasping at straws but it would be something I could tell my GI about. Not that he will approve but may just roll his eyes and give me a break until after the holidays (in which I hope to make my own progress).
I've postponed my CT scan but only for a couple weeks. I know I really don't feel it's necessary at all and even though it won't cost me a dime (it does cost my insurance quite a bit) I'm not really comfortable pumping my body full of chemical to look into something that may or may not be there. If I was having pain, I would be singing a different tune but my WD and how I feel has not changed in ten years. Although, if I wait until the 1st of the year I will have considerable expenses if I do decide to have it done. I have a month to dwell on that idea. With having a colonoscopy and endoscopy this past October I am confident they would have found something new. Same dx as always- MC with a new addition of a slight narrowing of anal canal with tenderness and firmness in posterior midline (not sure why it wasn't called an anal fissure that he described which still is quite bothersome).
Thinking out loud again.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
- Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
YESCould this be due to biofilm??
biofilms also impact the bodies ability to use Vit D3 for inflammation, as it can impact the Vit D receptor (VDR) function.
so your blood test results will show you have good levels of Vit D3, albeit the body may not be using it effectively for inflammation situations due to biofilm impact on the VDR
a few times over my healing journey I have done processes for clearing biofilms (via functional approach not mainstream medical approach)
we have talked about biofilms previously
(in your lyme post in July)
http://perskyfarms.com/phpBB2/viewtopic ... ht=biofilm
and this discussion with Erica 15 months ago has a good article/link at the bottom
http://perskyfarms.com/phpBB2/viewtopic ... ht=biofilm
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Thanks Gabes.... my memory has become much to be desired. This whole summer to now has been a blur.
My vit D levels are at the high end of the range and I've been told by my PCP to drop the supplement from 4,000 to 2,000 iUs. It's by no mean out of range but it doesn't seem to be doing much for inflammation. Although, I wouldn't want to see how things would feel if I weren't taking it.
It was a nice review of the conversations. I was never officially tested for Lyme's due to the huge bulls eye rash on my shoulder and horrible flu-like symptoms that knocked me on my butt for a couple days. I've been fortunate to not have any further complications. Everything I'm experiencing now is same old same old. knock on wo
The article from one of the threads about ridding toxins using Questran said "Some people cannot tolerate Questran at the doses he prescribes. However, I must defer to Dr Shoemaker on the dosing. He indicated that to be effective it needs to be taken 1 scoop 4 times daily. " I wouldn't be able to fit in that dosing unless it could be doubled up (which I doubt). I take Armour at 7 AM and 1 PM and LDN at 9 PM. Fitting it in with disrupting my other meds would be a challenge. Even at a low dose, I've always had an uncomfortable stomach ache while taking it. It's good news, though, that it works for some people.
I am looking forward to when I hopefully don't feel in such a fog. It's kind of like Groundhog's Day in a not-so-funny way.
My vit D levels are at the high end of the range and I've been told by my PCP to drop the supplement from 4,000 to 2,000 iUs. It's by no mean out of range but it doesn't seem to be doing much for inflammation. Although, I wouldn't want to see how things would feel if I weren't taking it.
It was a nice review of the conversations. I was never officially tested for Lyme's due to the huge bulls eye rash on my shoulder and horrible flu-like symptoms that knocked me on my butt for a couple days. I've been fortunate to not have any further complications. Everything I'm experiencing now is same old same old. knock on wo
The article from one of the threads about ridding toxins using Questran said "Some people cannot tolerate Questran at the doses he prescribes. However, I must defer to Dr Shoemaker on the dosing. He indicated that to be effective it needs to be taken 1 scoop 4 times daily. " I wouldn't be able to fit in that dosing unless it could be doubled up (which I doubt). I take Armour at 7 AM and 1 PM and LDN at 9 PM. Fitting it in with disrupting my other meds would be a challenge. Even at a low dose, I've always had an uncomfortable stomach ache while taking it. It's good news, though, that it works for some people.
I am looking forward to when I hopefully don't feel in such a fog. It's kind of like Groundhog's Day in a not-so-funny way.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
- Gabes-Apg
- Emperor Penguin
- Posts: 8332
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Deb
there are non cholestraymine/questran type biofilm busting products available.
if you think biofilms are part of the issue, do some more reading research.
things like Diatomaceuas earth work the same as questran and you dont have to have such a large gap between taking it and having meals/supps/medications.
the other products that i am aware of are Australian based, so no point recommending them to you.
My suggestion - do some reading on the USA based mould/lyme forums, these will have USA available products and maybe investigate a nearby functional practitioner that is knowledgeable in this area.
there are non cholestraymine/questran type biofilm busting products available.
if you think biofilms are part of the issue, do some more reading research.
things like Diatomaceuas earth work the same as questran and you dont have to have such a large gap between taking it and having meals/supps/medications.
the other products that i am aware of are Australian based, so no point recommending them to you.
My suggestion - do some reading on the USA based mould/lyme forums, these will have USA available products and maybe investigate a nearby functional practitioner that is knowledgeable in this area.
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
I forgot about diatomceous earth. I actually have some in my closet. Will have to brush up on that again.
I looked into the Restore 3 supplement and thought I'd give that a try. I'm almost through an entire bottle. No change. I will keep at it since I have it. I thought I'd give it a try while I'm waiting for my husband's Ubiome tests to get finished. Disappointing but not surprising.
I do take 400 mg of magnesium a day. I used to use the topical spray but it made my skin peel.
I looked into the Restore 3 supplement and thought I'd give that a try. I'm almost through an entire bottle. No change. I will keep at it since I have it. I thought I'd give it a try while I'm waiting for my husband's Ubiome tests to get finished. Disappointing but not surprising.
I do take 400 mg of magnesium a day. I used to use the topical spray but it made my skin peel.
Deb
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease
"Do not follow where the path may lead. Go instead, where there is no path, and leave a trail.
-Ralph Waldo Emerson
2007 CC
2013 thyroid cancer- total thyroidectomy
2013 Hashimoto's - numbers always "normal"
2017 Lyme's Disease