Hi Tex (and board),
Okay I found out my EnteroLab test results last night and will post them later. I've been dealing with Coll. Colitis for more than 30 years with no remission (or helpful doctors). I have had 4 colonoscopy's, endoscopy's and blood tests. They just keep giving me the same 4 or 5 meds in different amounts and combinations that never work. I would have to take almost 20 lonox tablets throughout the day just to make it through work. I always had a job where you could not run to the bathroom when needed and had to find someone to relieve me from my job. Some pretty close calls!
Never heard the phrase "Microscopic Colitis" until I was looking for help and found their Website. I was curious as to what it was and how it was different from CC and was surprised to learn that it described me to a T. Thank God for he was answering my prayers for help.
I find my immunological reactivity is mainly: Oats, Rice, Tuna and Walnuts.
Fecal fat was 408, Anti Glid IGA was 707U.
Test recommendation says I have malabsorption issues so I need to know which supplements and forms I should be taking and if there are any herbal supplements that I should (or should not) be taking. I have always been a believer in supplementation. I sometimes don't think I could have made it through the day with out them.
I recently had Life Line Screening done which said I was at high risk for osteoporious. I am wonder about calcium supplement and which is the best form.
Any food suggestions also would be helpful. When I cut out most of the foods I was eating I relied a lot on Rice but now find that was wrong.
Thank you and Thank God for you Tex (and forum).
StillSufferingLC
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Just found out results and need help from this board.
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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SufferingLC
- Posts: 2
- Joined: Fri May 25, 2018 8:32 pm
Welcome to the Group. I'm sorry to hear that you've been having to deal with the disease for so long. You're a real warrior. After so many years of reacting, it's a wonder that your fecal fat score wasn't much worse. You must have been doing something right.
The osteoporosis risk is due to the gluten sensitivity that comes with this disease. And it's also caused by taking corticosteroids. Once you get your diet sorted out and start healing, that risk will disappear. Contrary to the misguided views of the medical "experts", you shouldn't need any calcium supplements. Virtually all of us have more than enough calcium in our diets. You need vitamin D in order to enable your digestive system to absorb the calcium already in your food, into your bloodstream. And you need magnesium to enable insulin to transport the calcium from the bloodstream to your cells (especially bone cells) where it's needed by your body. CC/LC/MC deplete both vitamin D and magnesium. And many of the drugs used to treat the disease also deplete vitamin D and magnesium. PPIs deplete magnesium so severely that after using them for about a year of more, the only way to restore magnesium reserves is to stop taking any PPIs (according to the FDA).
But many of the most commonly-available magnesium supplements are better used as laxatives, not as supplements. Magnesium oxide (found in most multi-vitamins) for example, is probably the worst. Humans can only absorb about 3 % of magnesium oxide, leaving the rest in the intestines where it mixes with water to form a laxative. Topical applications of magnesium oils or lotions, or Epsom salt foot soaks can be used. Most of us who take oral magnesium use Doctor's Best Brand of chelated magnesium (magnesium glycinate) with good results. 300–400 mg is a good dose, spread throughout the day (because there is a limit to how much you can absorb and utilize in any given timespan), preferably (but not necessarily) with meals. Some take more.
About 5,000 IU of vitamin D is a good starting dose, unless you have GERD, in which case twice that much vitamin D will be beneficial to stop the GERD. After 30 years of reacting, you almost surely have deficiencies of certain B vitamins also, unless you have been supplementing them. Most of us have methylation issues, so we need to take the active forms of B-12, B-9 and B-5. A good supplement for that is Thorne Laboratories' Methyl-Guard or Methyl-Guard Plus (which is roughly twice as strong).
Again, welcome aboard, and please feel free to ask anything.
Tex
The osteoporosis risk is due to the gluten sensitivity that comes with this disease. And it's also caused by taking corticosteroids. Once you get your diet sorted out and start healing, that risk will disappear. Contrary to the misguided views of the medical "experts", you shouldn't need any calcium supplements. Virtually all of us have more than enough calcium in our diets. You need vitamin D in order to enable your digestive system to absorb the calcium already in your food, into your bloodstream. And you need magnesium to enable insulin to transport the calcium from the bloodstream to your cells (especially bone cells) where it's needed by your body. CC/LC/MC deplete both vitamin D and magnesium. And many of the drugs used to treat the disease also deplete vitamin D and magnesium. PPIs deplete magnesium so severely that after using them for about a year of more, the only way to restore magnesium reserves is to stop taking any PPIs (according to the FDA).
But many of the most commonly-available magnesium supplements are better used as laxatives, not as supplements. Magnesium oxide (found in most multi-vitamins) for example, is probably the worst. Humans can only absorb about 3 % of magnesium oxide, leaving the rest in the intestines where it mixes with water to form a laxative. Topical applications of magnesium oils or lotions, or Epsom salt foot soaks can be used. Most of us who take oral magnesium use Doctor's Best Brand of chelated magnesium (magnesium glycinate) with good results. 300–400 mg is a good dose, spread throughout the day (because there is a limit to how much you can absorb and utilize in any given timespan), preferably (but not necessarily) with meals. Some take more.
About 5,000 IU of vitamin D is a good starting dose, unless you have GERD, in which case twice that much vitamin D will be beneficial to stop the GERD. After 30 years of reacting, you almost surely have deficiencies of certain B vitamins also, unless you have been supplementing them. Most of us have methylation issues, so we need to take the active forms of B-12, B-9 and B-5. A good supplement for that is Thorne Laboratories' Methyl-Guard or Methyl-Guard Plus (which is roughly twice as strong).
Again, welcome aboard, and please feel free to ask anything.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Just want to welcome you also,
That is a mighty long stretch of time to be uncomfortable.....I could barely let my 'bodily differences' go beyond a few years (not realizing inflammation was creeping up on me big time).
I had not ever heard of microscopic colitis either....my mom had diverticulitis a few years ago and that set in motion figuring out for myself if I was headed in that direction or not based on symptoms I was beginning to exhibit. Thankfully (I suppose) I didn't have any surgery, but I do get to live with my diagnosis of LC every day now.
Once we can see your over all results many ought to be able to help with specific food choices ;-)
That is a mighty long stretch of time to be uncomfortable.....I could barely let my 'bodily differences' go beyond a few years (not realizing inflammation was creeping up on me big time).
I had not ever heard of microscopic colitis either....my mom had diverticulitis a few years ago and that set in motion figuring out for myself if I was headed in that direction or not based on symptoms I was beginning to exhibit. Thankfully (I suppose) I didn't have any surgery, but I do get to live with my diagnosis of LC every day now.
Once we can see your over all results many ought to be able to help with specific food choices ;-)
To Succeed you have to Believe in something with such a passion that it becomes a Reality - Anita Roddick
Dx LC April 2012 had symptoms since Aug 2007
Dx LC April 2012 had symptoms since Aug 2007