Newbie...misdiagnosis?

[ollyfromlondon]

Hi everyone. Your board is great and so positive reading some of the posts. A nice community.

I’m new and have a question - sorry if it’s a stupid one / covered elsewhere.

I was diagnosed with symptoms “suggestive of Crohn’s” by my gastroenterologist following a colonoscopy in October. This showed inflammation in all biopsies taken (colon and terminal ileum) but only one small aphthous ulcer in the terminal ileum (I think aphthous means not very deep). No other visible inflammation or ulcers at all.

Reading about Crohn’s online, my colonoscopy results would seem to be quite an unusual / mild finding. I have also had an MRI (waiting results) to see if there is anything elsewhere in my small intestine. My faecal calprotectin level which is used a lot here in the UK was 91 - so well below what would normally be found for Crohn’s, particularly active Crohn’s - but bang in the normal level for active microscopic colitis from some of the stuff I’ve read.

Do you guys think the colonoscopy result could be suggestive at all of microscopic colitis? I think I may raise with the doc, because Crohn’s obviously can have a different trajectory to MC. 33 year old male here.

[tex]

Hi,

Welcome to the group. Do you have a copy of the pathologist's report from your colonoscopy (not your GI doc's interpretation of the pathology report, but the actual report from the pathology lab)? I can read doctorspeak well enough to be able to interpret pathology reports, and I can offer my (strictly unprofessional — I'm not a doctor) opinion of the findings in the report, if you care to post the report or PM it to me. You're correct — MC is often missed or incorrectly diagnosed. And your calprotectin level doesn't appear to be consistent with Crohn's disease.

Again, welcome aboard, and please feel free to ask anything.

Tex