I have been back on the Budesonoid for 3 weeks now and although it has slowed down the horrible symptoms and at least I feel comfortable out in public, I still have barely formed stool. I have been back on strict diet since a month before starting back on the B. There is very little for me to eat that I didnt react to on my latest Enterolab & that is all I have been eating. I have a question about Enterolab and food sensitivities. When I first did the Enterolab in 2015 (after diagnosis) the foods to which there was NO significant reaction were: Corn, Rice, Chicken, Pork, Tuna, Almond, Cashew, White potato. Foods with 1+ were: Beef & Walnut and there were no foods at 2+ and 3+ there was Oat. At that time I was eating Paleo (still do) and I was not eating Oats of any kind, no Corn or Rice or Potato's. I quit eating beef about 6 years ago as I would seem to just sit there in my gut. I would munch on Cashews or Almonds as a snack every once in a while. I was GF, Dairy Free, Soy Free at that time as well. After a year of being on Budesonoid (7 being 1 pill only) I was in remission for 5 years. Had an occasional problem but that was like a loose stool in the morning and then fine. Now after this started up again I was tested again at Enterolab and Foods with NO reaction: White Potato only. Foods with 1+ were Pork, Beef, Chicken & Tuna. Foods with 2+ were Rice, Corn, Almond & Cashew and foods with 3+ were Oat & Walnut.
My question is I was eating the correct foods for 5 years and now most of those I am showing a response to. If this keeps happening and changing then what is left to eat if I am reacting to everything? I hope this makes sense.
Thank you in advance!
ENTEROLAB & BUDESONIDE
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
ENTEROLAB & BUDESONIDE
Collagenous Colitis, Benign Cramp Fasciculations in lower legs, Thyroid and High Cholesterol
Re: ENTEROLAB & BUDESONIDE
Here are a few basic facts to consider:
1. Budesonide only masks symptoms; it will not eliminate the problems(the antibodies) that cause the symptoms in the first place.
2. The longer we react, the more sensitive our immune system will probably become, and the more likely we may begin to develop a sensitivity to additional foods.
3. EnteroLab only tests for about 15 or 16 different foods and ingredients. That's because these are the most likely items that will cause us to react, because of food sensitivities associated with microscopic colitis. There are literally hundreds of foods that are not tested by EnteroLab, and these untested foods are generally safe for most of us, unless we're uncommonly sensitive.
4.As a rule, we only become sensitive to certain foods that we commonly encountered in our daily diet.
5.With only one known exception, a fat known as alpha-gal (Galactose-alpha-1,3-galactose), all food sensitivities are proteins.
Regarding your question in your last paragraph, if you were taking any amount of budesonide during all those years, then your immune system was probably producing antibodies to some foods in your diet with every meal, and budesonide was only masking your reaction to those foods. That may be why you have developed so many additional food sensitivities in the interim. My list of facts above describe why you will never run out of foods that are safe to eat.
Tex
1. Budesonide only masks symptoms; it will not eliminate the problems(the antibodies) that cause the symptoms in the first place.
2. The longer we react, the more sensitive our immune system will probably become, and the more likely we may begin to develop a sensitivity to additional foods.
3. EnteroLab only tests for about 15 or 16 different foods and ingredients. That's because these are the most likely items that will cause us to react, because of food sensitivities associated with microscopic colitis. There are literally hundreds of foods that are not tested by EnteroLab, and these untested foods are generally safe for most of us, unless we're uncommonly sensitive.
4.As a rule, we only become sensitive to certain foods that we commonly encountered in our daily diet.
5.With only one known exception, a fat known as alpha-gal (Galactose-alpha-1,3-galactose), all food sensitivities are proteins.
Regarding your question in your last paragraph, if you were taking any amount of budesonide during all those years, then your immune system was probably producing antibodies to some foods in your diet with every meal, and budesonide was only masking your reaction to those foods. That may be why you have developed so many additional food sensitivities in the interim. My list of facts above describe why you will never run out of foods that are safe to eat.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: ENTEROLAB & BUDESONIDE
Tex,
Thank you for your reply. No I did not take Budesonide for all those years. 6 years ago when I was first diagnosed I took 9 mg for 2 weeks, then 6 mg for 3 weeks and then 3 mg for 1 year. After I went totally off it I was good for 5 years and then this. I understand how important the diet part of this is and I am very careful. It just is hard for me to understand that it is just everything with protein that I react to so what to eat? As everyone on this site and you many times have said before, this is the most confusing and frustrating sickness. :o( I did do the Sibo test again because I did have that pretty bad 6 years ago and I do have it pretty bad again. Will do the antibiotics to help with that. My doctor (ND) says that this will just continue to cause inflammation in my gut if this is not corrected.
Thank you for your reply. No I did not take Budesonide for all those years. 6 years ago when I was first diagnosed I took 9 mg for 2 weeks, then 6 mg for 3 weeks and then 3 mg for 1 year. After I went totally off it I was good for 5 years and then this. I understand how important the diet part of this is and I am very careful. It just is hard for me to understand that it is just everything with protein that I react to so what to eat? As everyone on this site and you many times have said before, this is the most confusing and frustrating sickness. :o( I did do the Sibo test again because I did have that pretty bad 6 years ago and I do have it pretty bad again. Will do the antibiotics to help with that. My doctor (ND) says that this will just continue to cause inflammation in my gut if this is not corrected.
Collagenous Colitis, Benign Cramp Fasciculations in lower legs, Thyroid and High Cholesterol
Re: ENTEROLAB & BUDESONIDE
Using the experiences of most of us as a guide, it appears that whenever we have a reaction that lasts a while, we probably have SIBO. And when our MC resolves, the SIBO also resolves, because SIBO is a result of by poor digestion, and MC reactions certainly cause poor digestion. Poor digestion results in fermentation by opportunistic bacteria, And that's given the name SIBO. There's very little point in trying to resolve it, because until your MC symptoms are resolved, The bacteria are going to return, which means you will have SIBO. But as mentioned, the SIBO will resolve automatically, when your MC symptoms have resolved, and your digestion has improved.
You may be allowing other issues to confuse you with regard to reactions. Fiber is very irritating, for example, and it can cause diarrhea. But that's because of the irritation, not because of Inflammation. Too much sugar (or other carbs) can cause diarrhea. But that's because we have problems digesting carbohydrates when our gut is inflamed, so often they're only partially digested, and bacteria fermenting partially digested food can cause diarrhea. So yes, with that one exception, all food sensitivities are caused by certain proteins. I'm referring to food sensitivities, as I always do, as foods that cause our immune systems to produce antibodies. I'm not sure that SIBO causes inflammation. It's more correct to say that it causes irritation, because it's not particularly likely to cause the production of antibodies in most cases.
Some of us develop additional food sensitivities, even though we might be in remission. For example, I developed soy sensitivity about six or seven years after I tested negative to soy sensitivity at EnteroLab, even though I was in remission the entire time.
I hope this helps.
Tex
You may be allowing other issues to confuse you with regard to reactions. Fiber is very irritating, for example, and it can cause diarrhea. But that's because of the irritation, not because of Inflammation. Too much sugar (or other carbs) can cause diarrhea. But that's because we have problems digesting carbohydrates when our gut is inflamed, so often they're only partially digested, and bacteria fermenting partially digested food can cause diarrhea. So yes, with that one exception, all food sensitivities are caused by certain proteins. I'm referring to food sensitivities, as I always do, as foods that cause our immune systems to produce antibodies. I'm not sure that SIBO causes inflammation. It's more correct to say that it causes irritation, because it's not particularly likely to cause the production of antibodies in most cases.
Some of us develop additional food sensitivities, even though we might be in remission. For example, I developed soy sensitivity about six or seven years after I tested negative to soy sensitivity at EnteroLab, even though I was in remission the entire time.
I hope this helps.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.