New Medications?
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh, mbeezie
-
lisa in lj
- Posts: 15
- Joined: Thu Jun 07, 2012 11:49 am
- Location: Texas
New Medications?
I haven't been on in awhile. To summarize my history...I was diagnosed 10 years ago with a biopsy done during a colonoscopy after having experienced symptoms for several years. I first took Cholestyramine, which helped, but degraded the enamel on my teeth and after 6 months, I needed 3 crowns. I tried Budesonide for 3 months with no effect. Since then I've take Colestid/colestipol, which decreased urgency and worked for awhile, but now isn't working as well. I had another Colonoscopy with the same diagnosis, of course. So...I was hoping there was a miracle drug that had come out in the last 5 years, but my doctor says there's nothing. I'll be starting a low FODMAP diet next week, but I'm skeptical because my symptoms don't seem to be tied to anything I eat. Anyone have suggestions? Any amazing new drugs? Anything?
Lisa
Re: New Medications?
Hello Lisa,
You're making the same mistake that I made, many years ago. I couldn't tell what I was reacting to because I seemed to react to anything and everything at random times, without any rhyme or reason. So I assumed that my problem must be something besides food. But then I did some research, and I discovered that gluten reactions dominate everything. In other words when were reacting to gluten, we can't detect other food sensitivities nor can we even detect the gluten sensitivity, because gluten is addictive — the digestion of gluten results in opioid peptides (gluteomorphins, aka gliadorphins) that create a dependency in the brain similar to narcotics. To add insult to injury, most food antibodies only have a half-life of five or six days, whereas gluten antibodies (anti-Gladden antibodies) have a half-life of 120 days. Consequently, we have to get all the gluten out of our system before we can even begin to recognize other food reactions.
So with that knowledge, I cut gluten out of my diet and never touched it again (at least not intentionally). After three or four months, sure enough, I could detect other food sensitivities when I experimented by cutting them out of my diet, and then introducing them again. But this process took me about a year and half, keeping a detailed journal, before I was able to identify all of my food sensitivities. Back in those days, I was unaware of the EnteroLab tests. If I had been aware of them, they could have saved me a year and a half of wasted time. Anyway, once I cut all my food sensitivities out of my diet, within a week or two, I was in remission.
If you would like to control your MC symptoms using only diet changes (no medications are required), either order the EnteroLab A1 + C1 panels of stool tests, to pinpoint your food sensitivities, or follow our stage I recovery diet recommendations, to avoid the most common inflammatory foods.
Recovery by diet changes will not happen overnight. The intestines are slow to heal, but once you start a recovery program, don't give up until you reach remission. It may take weeks, or it may take months, but patience and perseverance will get you to remission, and you'll be able to enjoy life again. MC can't be cured, but it can certainly be controlled.
It's relatively safe to use budesonide or colestipol to mask the symptoms (if they are effective for you), while the diet is healing your intestines. But no medication is necessary, if you prefer to do without. Please don't hesitate to ask, if you have any questions, because it's much better to ask, than to suffer in silence.
I hope this helps.
Tex
You're making the same mistake that I made, many years ago. I couldn't tell what I was reacting to because I seemed to react to anything and everything at random times, without any rhyme or reason. So I assumed that my problem must be something besides food. But then I did some research, and I discovered that gluten reactions dominate everything. In other words when were reacting to gluten, we can't detect other food sensitivities nor can we even detect the gluten sensitivity, because gluten is addictive — the digestion of gluten results in opioid peptides (gluteomorphins, aka gliadorphins) that create a dependency in the brain similar to narcotics. To add insult to injury, most food antibodies only have a half-life of five or six days, whereas gluten antibodies (anti-Gladden antibodies) have a half-life of 120 days. Consequently, we have to get all the gluten out of our system before we can even begin to recognize other food reactions.
So with that knowledge, I cut gluten out of my diet and never touched it again (at least not intentionally). After three or four months, sure enough, I could detect other food sensitivities when I experimented by cutting them out of my diet, and then introducing them again. But this process took me about a year and half, keeping a detailed journal, before I was able to identify all of my food sensitivities. Back in those days, I was unaware of the EnteroLab tests. If I had been aware of them, they could have saved me a year and a half of wasted time. Anyway, once I cut all my food sensitivities out of my diet, within a week or two, I was in remission.
If you would like to control your MC symptoms using only diet changes (no medications are required), either order the EnteroLab A1 + C1 panels of stool tests, to pinpoint your food sensitivities, or follow our stage I recovery diet recommendations, to avoid the most common inflammatory foods.
Recovery by diet changes will not happen overnight. The intestines are slow to heal, but once you start a recovery program, don't give up until you reach remission. It may take weeks, or it may take months, but patience and perseverance will get you to remission, and you'll be able to enjoy life again. MC can't be cured, but it can certainly be controlled.
It's relatively safe to use budesonide or colestipol to mask the symptoms (if they are effective for you), while the diet is healing your intestines. But no medication is necessary, if you prefer to do without. Please don't hesitate to ask, if you have any questions, because it's much better to ask, than to suffer in silence.
I hope this helps.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8330
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Re: New Medications?
sadly there is no quick fix or magic potion.
have you double checked the ingredients of all foods and drinks you are having?
(some tea products have soy)
the other things that commonly cause issues
-bathroom and make up products shampoos, moisterisers etc can have wheatgerm, oats, soy etc
- are you having histamine symptoms?
- stress and sleep quality - are you getting good rest?
- Vit D and magnesium. These are essential to manage inflammation, encourage healing
- contamination - are you sharing the kitchen and using things that have gluten etc?
have you double checked the ingredients of all foods and drinks you are having?
(some tea products have soy)
the other things that commonly cause issues
-bathroom and make up products shampoos, moisterisers etc can have wheatgerm, oats, soy etc
- are you having histamine symptoms?
- stress and sleep quality - are you getting good rest?
- Vit D and magnesium. These are essential to manage inflammation, encourage healing
- contamination - are you sharing the kitchen and using things that have gluten etc?
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama