Hi! I was lucky to see Dr. Scot Lewey in Denver after seeing him recommended on this site. He gave me a lot of good background knowledge about microscopic colitis. He is not recommending Enterolab any more, because Dr. Fine has not published any data. So I have hesitated to use the testing and have tried to see if I could sort out my issues using elimination dieting and many of the suggestions on this forum. I am not having success and just can't figure out any patterns.
I am feeling desparate to figure something out, but the Enterolab tests are costly. I am just wondering if people here have had enough ancedotal success after getting tested, that I might be convinced?
Thank you!
Success with Enterolab?
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Re: Success with Enterolab?
Hi,
Sounds as though maybe we should reconsider recommending Scott Lewey, if he's going to dish out bad device like that. Virtually all of us who have used EnteroLab services have considered it to be some of the best money we ever spent on our healthcare. We got much more benefit for our money then we usually get by following most doctors' advice. I haven't checked lately, but the last time I checked for any complaints against the lab on the Texas Board of Medical Examiners website, there weren't any. Why punish yourself because of a doctor's bad advice? That's just my opinion — I'm not trying to speak for anyone else here. Someone else may have had a different experience with their tests.
I thought the tests were priced quite reasonably, compared with most medical tests these days. But if you can't afford the Discounted price of the A1 plus C1 panels, try this:
Eliminate every trace of gluten in your diet and and never, ever take a chance on any product that might be cross contaminated. Never eat anything that contains any gluten, for the rest of your life. This issue is permanent. Do all your own cooking, and never eat out, at least, not while you're still recovering. At least 50% of restaurant meals that are claimed to be gluten-free, are not. After you've totally avoided gluten for 4 to 6 weeks, if you're not in remission, or greatly improved, then remove all dairy products, chicken eggs, and any foods or ingredients that contain soy, or are derived from soy. If you're not significantly improved in five or six days after doing this, you may have to get really serious, and start eliminating beef, pork, and chicken, and eat only turkey and wild-type meats. Shellfish, such as shrimp, mussels, clams, etc. are safe. All vegetables should be peeled, and overcooked. Minimize sugar and fiber. No seasonings except salt. The EnteroLab test results make recovery much easier, because you only have to avoid the foods that cause your immune system to produce antibodies. But without those test results, there's no other way to discover that information.
Please ask if you need more help. It's much better to ask, than to make a bad decision, and suffer in silence.
Tex
Sounds as though maybe we should reconsider recommending Scott Lewey, if he's going to dish out bad device like that. Virtually all of us who have used EnteroLab services have considered it to be some of the best money we ever spent on our healthcare. We got much more benefit for our money then we usually get by following most doctors' advice. I haven't checked lately, but the last time I checked for any complaints against the lab on the Texas Board of Medical Examiners website, there weren't any. Why punish yourself because of a doctor's bad advice? That's just my opinion — I'm not trying to speak for anyone else here. Someone else may have had a different experience with their tests.
I thought the tests were priced quite reasonably, compared with most medical tests these days. But if you can't afford the Discounted price of the A1 plus C1 panels, try this:
Eliminate every trace of gluten in your diet and and never, ever take a chance on any product that might be cross contaminated. Never eat anything that contains any gluten, for the rest of your life. This issue is permanent. Do all your own cooking, and never eat out, at least, not while you're still recovering. At least 50% of restaurant meals that are claimed to be gluten-free, are not. After you've totally avoided gluten for 4 to 6 weeks, if you're not in remission, or greatly improved, then remove all dairy products, chicken eggs, and any foods or ingredients that contain soy, or are derived from soy. If you're not significantly improved in five or six days after doing this, you may have to get really serious, and start eliminating beef, pork, and chicken, and eat only turkey and wild-type meats. Shellfish, such as shrimp, mussels, clams, etc. are safe. All vegetables should be peeled, and overcooked. Minimize sugar and fiber. No seasonings except salt. The EnteroLab test results make recovery much easier, because you only have to avoid the foods that cause your immune system to produce antibodies. But without those test results, there's no other way to discover that information.
Please ask if you need more help. It's much better to ask, than to make a bad decision, and suffer in silence.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
Gabes-Apg
- Emperor Penguin
- Posts: 8330
- Joined: Mon Dec 21, 2009 3:12 pm
- Location: Hunter Valley NSW Australia
Re: Success with Enterolab?
if you can afford the tests - it is worth it. in a short period of time you will get a good baseline of safe ingredients
to do trial and error can take 4-6 months. (and you are slowing the healing process while you do trial and error)
to do trial and error can take 4-6 months. (and you are slowing the healing process while you do trial and error)
Gabes Ryan
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Re: Success with Enterolab?
Thanks to both of you for your replies. I continue to learn more every time I read posts on this forum. Dr. Lewey is really thoughtful and he spent a lot of time explaining the science behind the condition. He was not against me going to Enterolab, he just said he could no longer recommend it because the data has not been published for peer review. But I appreciate your responses, because I really have nothing to lose by getting tested.
Re: Success with Enterolab?
Thanks for adding that explanation, I misunderstood your initial comments about him. I mistakenly assumed that he had recommended that you not get the EnteroLab tests. I'm sure that some of his peers have put pressure on him to stop recommending the lab, because the medical community in general officially hates Dr. Fine's guts. He created one of the first online labs that offered test results directly to patients, and the medical profession has never forgiven Dr. Fine for bypassing them in the process. That was roughly 3 decades ago, so they really know how to hold a grudge.
If Dr. Lewey spent any significant amount of time explaining the medical details about the disease to you, he's got my unconditional support, because most G.I. docs are either unwilling or unable to do that.
The test results will be emailed to you as soon as they are available, and they will include a doctor's remarks and suggestions about them. But if you have any additional questions about them, please feel free to ask here.
Tex
If Dr. Lewey spent any significant amount of time explaining the medical details about the disease to you, he's got my unconditional support, because most G.I. docs are either unwilling or unable to do that.
The test results will be emailed to you as soon as they are available, and they will include a doctor's remarks and suggestions about them. But if you have any additional questions about them, please feel free to ask here.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.