I was given diagnosis in February 2022 of CC during routine colonosopy. I had been having WD but without any other major symptoms. Was advised by doctor to be GF, DF, etc and 4-6 meals a day and not fiber, fruits or vegetables. I have followed that since February. After receiving Enterolab test results, I had 4 safe foods (Rice, Walnuts, Potatoes, and Almonds) and since last of May my diet consists of Rice Chex, Almond Butter, Walnuts, Lays potato chips, shrimp, turkey and banana. I am doing Dr. Fine's recommended pre and proviotics. I tried a week of Benefiber as a recommendation of my Gastro doc which didn't seem to effect my WD and now trying the Colestipol tablets for a week and NOTHING has changed the WD I experience.
My Gastro recommend bedesonide but I wanted to tried diet for at least 6 months. What recommendation do any of you have? I have been reading and understand importance of a "clean diet" which I have been doing without any cheating for over 4 months now but need encouragement or recommendations. Planning a 2 week trip to Yosemite next May after my granddaughter graduates from college and need to decide soon if I can afford 2 weeks of "hotel" food.
hello and help!
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Re: hello and help!
Hi,
Welcome to the group. It sounds as though you're on the right track, but something is tripping you up. Usually in cases such as that the problem turns out to be something that we eat or drink every day, that we just assumed to be safe, so we've never even considered it to be a possible problem. If you haven't already done so, please read a couple of newsletters published within the last year by the Microscopic Colitis Foundation. For your convenience, here are links where you can read or download copies of those newsletters:
https://www.microscopiccolitisfoundatio ... 479987.pdf
https://www.microscopiccolitisfoundatio ... d91296.pdf
Please be aware that many of us react to the Chex cereals while we are still initially trying to recover, and some of us even react to them after we're in remission, because they contain too many ingredients. When processed foods contain more than four or five ingredients, the probability is relatively high that one or more of the added ingredients, or the combination of those ingredients, will cause us to react. It's best to avoid processed foods with more than five ingredients, and for difficult cases, all processed foods should be avoided until remission is achieved, at least that's my opinion. Some of us just require more time than others for our intestines to heal, after we begin following the diet. Some of us require more than a year on the diet before we're able to reach remission.
If I were taking a trip of that length, I would plan on taking my own food, and doing my own cooking.
I hope this helps.
Tex
Welcome to the group. It sounds as though you're on the right track, but something is tripping you up. Usually in cases such as that the problem turns out to be something that we eat or drink every day, that we just assumed to be safe, so we've never even considered it to be a possible problem. If you haven't already done so, please read a couple of newsletters published within the last year by the Microscopic Colitis Foundation. For your convenience, here are links where you can read or download copies of those newsletters:
https://www.microscopiccolitisfoundatio ... 479987.pdf
https://www.microscopiccolitisfoundatio ... d91296.pdf
Please be aware that many of us react to the Chex cereals while we are still initially trying to recover, and some of us even react to them after we're in remission, because they contain too many ingredients. When processed foods contain more than four or five ingredients, the probability is relatively high that one or more of the added ingredients, or the combination of those ingredients, will cause us to react. It's best to avoid processed foods with more than five ingredients, and for difficult cases, all processed foods should be avoided until remission is achieved, at least that's my opinion. Some of us just require more time than others for our intestines to heal, after we begin following the diet. Some of us require more than a year on the diet before we're able to reach remission.
If I were taking a trip of that length, I would plan on taking my own food, and doing my own cooking.
I hope this helps.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: hello and help!
Thanks Tex for the reply.
How long does it take to see if removing Rice Chex from my diet helps? Is 5 days enough?
Does remission mean no WD or discomfort in digestive system? Still trying to understand what "flare up" and "remission" and "healing" feels like?
I assumed that if Chicken was in my +3 reactive test that the homemade chicken bone broth should also be removed.
How long does it take to see if removing Rice Chex from my diet helps? Is 5 days enough?
Does remission mean no WD or discomfort in digestive system? Still trying to understand what "flare up" and "remission" and "healing" feels like?
I assumed that if Chicken was in my +3 reactive test that the homemade chicken bone broth should also be removed.
Re: hello and help!
Yes, five days should be sufficient, if the problem is any ingredient except gluten if traces of gluten are causing the problem, it may take six weeks or more, to get it all out of your system.
Apparently, many people have a different opinion of the definition of remission. My definition of remission requires resolution of all clinical symptoms, and a return to the same general bowel movement pattern that you had before you developed the disease.
Tex
Apparently, many people have a different opinion of the definition of remission. My definition of remission requires resolution of all clinical symptoms, and a return to the same general bowel movement pattern that you had before you developed the disease.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: hello and help!
2 years later-stomach discomfort, urgency and nocturnal issues are not an issue now. My stool is applesauce consistency. I have been introducing other foods and assume if bowel consistency doesn’t change and no stomach discomfort - should be safe foods. I am gaining weight. Started out over 160 couple years ago - got down to 115 a year ago and heading up almost weekly last couple of months and up to over 140 today. Don’t understand weight gain. Anyone else have this response?
Re: hello and help!
Apparently, your intestines must be healing, because we don't normally regain weight unless the inflammation is mostly subsided and the intestines have done a significant amount of healing. That said, some people taking budesonide gain weight despite their Inflammation, but for most of us the ability to regain weight means that our intestines are healing.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.