Newly diagnosed with LC

[Clairbear]

Hello,
I was recently diagnosed with lymphatic colitis, after many tests and 6 months of diarrhea. I found this site while searching the web for some answers and thought it would be nice to talk with people who understand what I am living with. My doctor has prescribed Budesonide for a 3 month course. Has anyone been one this? And if so can you share your experiences with this medicine. I really don't care for steroids. I also have psoriatic arthritis which is an autoimmune disease and I wonder if this could be why the LC came about? Any thoughts or suggestions would be appreciated. Thanks

[tex]

Hello,

Welcome to the group. If you search the database, you can find thousands of previous posts about the use of budesonide. Basically, summarizing the results, budesonide will usually bring remission for most patients, but unless the proper diet changes are made, research shows that about 85% of those who are able to reach remission using budesonide, will relapse in a few weeks after the treatment is ended. It will often bring remission within a week or two, and if it doesn't work by the end of three or four weeks, it will probably never bring remission, at least, not without diet changes.

The digestive system heals slowly, so it usually takes longer for diet changes alone to bring remission, but the proper diet changes will indeed bring remission for the vast majority of patients, without a need for any medications. That said, some patients choose to take budesonide so that they can reach remission sooner, while they give the diet changes time to heal their intestines. This can make it easier to continue to go to work, take care of family duties, or whatever needs to be done.

On the negative side, there are side effect risks, such as possible weight gain, increasing osteoporosis risk, etc. And when the treatment is ended, the dose will need to be tapered significantly longer than most doctors recommend, otherwise, the risk of a relapse due to the rebound effect of mast cell population rebuilding is relatively high.

If you look at our surveys, you'll notice that many of us have additional autoimmune issues. It's pretty obvious that autoimmune diseases are often associated with other autoimmune issues. This is probably due to the fact that if the immune system does not have an adequate supply of vitamin D and magnesium to energize it, it will be unable to function normally, making us vulnerable to additional diseases. Microscopic colitis depletes both vitamin D and magnesium, so unless they are supplemented, additional autoimmune diseases have an increased risk of developing.

I hope this helps.

Tex

[Gabes-Apg]

hi Clair
welcome to the group (and sympathies on the diagnosis and that you had to find us)

My doctor has prescribed Budesonide for a 3 month course. Has anyone been one this? And if so can you share your experiences with this medicine.

Many people here have taken budesonide with success.
I will mention the following
- it doesnt work for everyone
- for many if they dont make diet and lifestyle changes as soon as they stop the medication the symptoms return
(if you start browsing the different sections on the forum you will see various discussions about budesonide)


I also have psoriatic arthritis which is an autoimmune disease and I wonder if this could be why the LC came about?

Many here have multiple auto immune issues and yes they are very related.
Following a low inflammation eating plan, and lifestyle taking the right supplements that support immune system and reduce inflammation can provide remission for lots of people (I have 5 auto immune issues all in reasonable remission at the moment)

Any thoughts or suggestions would be appreciated. Thanks
Read the posts aimed at new members
The questions asked by others and the answers provided will help you

The Guidelines to recovery section has good information for starting the healing/wellness journey of life with MC

if you read the posts in the Success Stories area you will see what others have done, what worked, what didnt and how long it took

the situation with MC is that there is no quick fix and there is no one solution that works for everybody.
Life with MC is figuring out what your main triggers are, and what works best to keep symptoms at a minimum.

hope this helps

[Clairbear]

Thank you for the quick response and suggestions on what to read, any and all help is much appreciated. I am not crazy about the steroids so I will look into diet changes.

[dolson]

I read on the internet that if you had red hair and I did, that you don't need Vit D. Have y'all heard about this? I changed my hair color to blonde.One guy told me that if you did not have red hair, I'd date you. I hate red hair and will never go back.

One guy wrote in my high school annual - "I'd rather be dead than red on the head or you may as well be dead." That hurts.

What say y'all? Dottie

[tex]

People with red hair are able to process sunlight more efficiently than others, so that they need less sun exposure in order to generate the vitamin D that their body needs. But they still have to get a certain amount (albeit a smaller amount) of sun exposure in order to do that.

And regarding that unfortunate high school experience, you're basing your feelings on comments made by immature, apparently mentally challenged adolescents. They had probably tried to date some other redhaired girl, and she turned them down, or insulted them, or otherwise upset them, so they decided to hate all redhaired girls. I can assure you, most men don't share that opinion.

Tex