My story - any advise?

Discussions on the details of treatment programs using either diet, medications, or a combination of the two, can take place here.

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Ala_Bu
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Joined: Thu Jan 26, 2023 2:20 am

My story - any advise?

Post by Ala_Bu »

Hi! I'm a newbe Ala, 33 yo, I live in Switzerland.
My problems started in May last year all of the sudden.
After 4 weeks of watery dirahera after every meal (3-4 times a day) I got a colonoscopy which showed "significantly inceased amount of lymphocyties sometimes enough to diagnose Lymphocytic Colitis". I had gastroscopy which proved that I have the same inflamed Lymphocytic cells in stomach as well and small intestine. Diagnosis: lymphocytic gastritis and possible mild lymphocytic colitis. But my doc is not 100% sure if i actually have LC or if presence of lymphocyties is caused by the inflamed stomach. No Celiac disease.
They don't know the cause of gastritis but as a kid I had very serious infection of stomach caused by yersinia. The doctor said it may be related to what I experience now.

I was prescribed Budesonide to help healing the collon. Stomach didn't cause any problems. It somewhat helped to decrease the amount of BM but I was still feeling bloated and my guts were very active. I was advised to follow low-FODMAP diet. I lost a lot of weight but it helped a lot. I stopped budesonide after 8 weeks. I also take Normacol to help with regulation of BM. D was gone, only rarely I had an episode when I made a diet mistake.

Lately, I feel like again I am experiencing a setback. I was introducing some of higher FODMAP to my diet, incl. nuts and fresh veggies, I felt OK the next day but now all of the sudden I observed that I have red spots on my belly and rush on my neck. The stomach started hurting again, guts are more active. I immediately went again to my safe diet but it seems still that my body is fighting. I even had again episodes of D (but not watery) for the last couple of days...
I think now that I may have actually allergy to some foods. Do you think it would make sense to take the test to exclude it?
Ala
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tex
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Re: My story - any advise?

Post by tex »

Hello Ala,

Welcome to the group. Virtually all skin issues are caused by allergies of some type, including food allergies. If you are referring to the EnteroLab tests, yes, I believe it would be helpful to pinpoint your food sensitivities. But please be aware that you could also be reacting to some medication, supplement, cosmetic, soap, shampoo, or something else in your environment.

Your doctor doesn't appear to understand that microscopic colitis (MC). MC can affect any part of the digestive system from mouth to anus. There's published medical research proving that it's very common for MC patients to experience increased lymphocytic infiltration in their small intestine and their stomach.

Also, your case does not appear to be mild. Your doctor is incorrectly assuming that your case is mild, because your biopsies show scattered patches of inflammation, but there's no medical basis for making that assumption. Scattered patches of inflammation are very typical for MC cases regardless of the severity of symptoms.

I hope this is helpful. Again, welcome aboard, and please feel free to ask anything.

Tex
:cowboy:

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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