hello my name is satnam i am diagnosed with microscopic colitis lymphocytes colitis it 25 in 100 and seen chronic inflammation
i am budesonide nothing works
I feel on cramps in stomach
I feel depression
My bowel was three in a day since i remember i am sensitive to gluten and soya
Weight is 50 and height 5.9
What should i do
What i should i do next
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Re: What i should i do next
Hi,
Welcome to the group. If medications don't work, then the only way to reach remission is by following a strict elimination diet. Avoid (100%) all gluten, soya, dairy products, and chicken eggs, and all ingredients that are derived from those foods. Cook all your own meals from whole uncontaminated foods. If possible, eat turkey, lamb, duck, goose, rabbit, venison, or any other wild -type meat fo protein. Each vegetables such as potatoes, sweet potatoes, cassava's, carrots, and cauliflower, and any vegetables with a peel should be peeled before cooking in order to reduce the fiber content. If you eat any rice, eat only white rice, not brown rice (the hull on brown rice contains too much fiber). Minimize sugar. Don't eat and restaurants, because most food at restaurants is cross contaminated with gluten even when they certify that it's gluten-free.
If you have any questions about any of this, please ask.
Tex
Welcome to the group. If medications don't work, then the only way to reach remission is by following a strict elimination diet. Avoid (100%) all gluten, soya, dairy products, and chicken eggs, and all ingredients that are derived from those foods. Cook all your own meals from whole uncontaminated foods. If possible, eat turkey, lamb, duck, goose, rabbit, venison, or any other wild -type meat fo protein. Each vegetables such as potatoes, sweet potatoes, cassava's, carrots, and cauliflower, and any vegetables with a peel should be peeled before cooking in order to reduce the fiber content. If you eat any rice, eat only white rice, not brown rice (the hull on brown rice contains too much fiber). Minimize sugar. Don't eat and restaurants, because most food at restaurants is cross contaminated with gluten even when they certify that it's gluten-free.
If you have any questions about any of this, please ask.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: What i should i do next
Okay sir
Can i know after remission how will be my bowel movement
One in day or not
Can i know after remission how will be my bowel movement
One in day or not
Re: What i should i do next
Many patients have their own opinion of what constitutes remission, but in my definition of remission, bowel movements should be very similar to what they were before MC developed, but they may not be exactly the same, because diet changes alter bowel movements.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: What i should i do next
In case where my bowel movement was disturbed from childhood because of gluten allergy my parents thought i have bad digestion and i got bullied in school that also affect my bowel movement
Re: What i should i do next
Yes, stress definitely makes digestive problems worse, and chronic stress can cause the development of microscopic colitis. And for patients who already have the disease but have it in remission, chronic stress can cause a relapse.
Tex
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Re: What i should i do next
Hi Tex, you said ‘ If medications don't work, then the only way to reach remission is by following a strict elimination diet.’ so if the symptoms are controlled by budesonide does that mean one is in remission? So confused, don’t know to start taking the steroid again or just do the best I can with diet alone. My doctor said just keep taking loperamide and eat the best you can/want.
Re: What i should i do next
Budesonide does not prevent the inflammation. Every time we eat an inflammatory food the inflammation is regenerated. Budesonide only suppresses inflammation after it is created. That means the immune system is constantly being overworked. Published research shows that over 80% of microscopic colitis patients who respond to budesonide relapse after the treatment is stopped. That proves that budesonide does not prevent the inflammation, it merely suppresses the inflammation after it's generated. The only way to stop the information permanently is to totally avoid every trace of the foods that cause our immune system to produce antibodies against them.
If budesonide effectively controlled the symptoms, and we took budesonide every day of our lives, then yes, budesonide would put the disease into remission as far as our clinical symptoms are concerned. But that's not possible, because doctors are afraid to prescribe budesonide for long-term use because of the side effects that it causes, including osteoporosis, cataracts, "moon face", "buffalo hump", skin thinning, and cardiovascular issues.
Tex
If budesonide effectively controlled the symptoms, and we took budesonide every day of our lives, then yes, budesonide would put the disease into remission as far as our clinical symptoms are concerned. But that's not possible, because doctors are afraid to prescribe budesonide for long-term use because of the side effects that it causes, including osteoporosis, cataracts, "moon face", "buffalo hump", skin thinning, and cardiovascular issues.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.