Gluten Sensitivity Testing
Fecal Antigliadin IgA 171 Units (Normal
Range <10 Units)
Fecal Antitissue Transglutaminase IgA 26
Units (Normal Range <10 Units)
Microscopic Fecal Fat Score: 26 Units
(Normal Range < 300 Units)
HLA-DQ Gene Molecular analysis: HLA-DQB1*0301,
0502
Food Sensitivity Testing
Fecal anti-casein (cow's milk) IgA antibody
30 Units (Normal Range
<10 Units)
Fecal anti-ovalbumin (chicken egg) IgA antibody
36 Units (Normal
Range <10 Units)
Fecal Anti-Saccharomyces cerevisiae (dietary
yeast) IgA 28
Units (Normal Range <10 Units)
Fecal Anti-Soy IgA 78 Units (Normal Range
<10 Units)
She's allergic to everything. Surprising that her malabsorption score was only 26 out of 300. Do you think they made a mistake?
Maybe she hasn't had enough time to do permanent damage. I wonder about her ostiopenia. I was expecting her to have a much Higher score.
Roni
Emily's Result's
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Oh Roni
I know how you feel. Other than the yeast which I was borderline on, we tested the same. How is she taking it. I was really sad initially, then I at least felt validated. My fat was ok too. My take on that is that you must be getting some good stuff into her & she's absorbing ok. Hugs to you both. Love & light, Rita
I know how you feel. Other than the yeast which I was borderline on, we tested the same. How is she taking it. I was really sad initially, then I at least felt validated. My fat was ok too. My take on that is that you must be getting some good stuff into her & she's absorbing ok. Hugs to you both. Love & light, Rita
Gluten, Dairy, Eggs, Soy & borderline yeast
About the fecal fat
Roni,
Does she eat a VERY low fat diet..few fatty foods? I don't really know how to answer, nor about the bones, but this would be a good question for Dr. Fine. Better e-mail him, and let us know what he says. More recently, he's having an R.N. do the actual handling of e-questions, but it seems as though she's going directly to him for the answers. Probably, unless it's an unusual question, she'll soon know the answers without having to ask him what he thinks first. Also, I expect that if a question is VERY common, that the answer will become part of the lab report.
You may be onto something, about not having enough time to damage the small intestine yet. Can't remember -- how long has Emily had symptoms of M.C.?
Glad you finally have verification. Emily and I have the same sensitivities then, only I've not verified the soy part yet. I've eliminated it though, and now NO other foods produce symptoms..yeah!
Wish that Emily will quickly get to this point. Can't remember whether she's already off of soy or not???
Yours, Luce
Does she eat a VERY low fat diet..few fatty foods? I don't really know how to answer, nor about the bones, but this would be a good question for Dr. Fine. Better e-mail him, and let us know what he says. More recently, he's having an R.N. do the actual handling of e-questions, but it seems as though she's going directly to him for the answers. Probably, unless it's an unusual question, she'll soon know the answers without having to ask him what he thinks first. Also, I expect that if a question is VERY common, that the answer will become part of the lab report.
You may be onto something, about not having enough time to damage the small intestine yet. Can't remember -- how long has Emily had symptoms of M.C.?
Glad you finally have verification. Emily and I have the same sensitivities then, only I've not verified the soy part yet. I've eliminated it though, and now NO other foods produce symptoms..yeah!
Wish that Emily will quickly get to this point. Can't remember whether she's already off of soy or not???
Yours, Luce
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kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
Well that range can explain why meat is the only thing she feels good eating! I'm sure the fat content is a indicator, not a 100% answer. My understanding is that the villi absorb things at different levels. For example the tips of the villi are responsible for things like lactose, which is why when we have stomach bugs docs recommend no dairy...its the first part upset (per my doc who knew nothing about MC). So perhaps the level of the villi damage is such in Emily that she doesn't absorb certain nutients (calcium) but has not had a big issue with fat malabsorbtion. Maybe that is an indicator that she is not celiac.
I don't really know...just throwing out some ideas from my understanding of the gut. OThers know much more about it than me.
katy
I don't really know...just throwing out some ideas from my understanding of the gut. OThers know much more about it than me.
katy
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TendrTummy
- Gentoo Penguin
- Posts: 466
- Joined: Thu May 26, 2005 5:51 am
- Location: Waconia, MN, USA
- Contact:
ick
I'm SSOOOOOOO sorry to read these results :( POOR POOR Emily!!!! I have all the same allergies except for yeast.. yeast isn't much good without egg and milk, so might as well be yeast.. still haven't figured out HOW to eat yet but I did visit a dietician yesterday - I'll post a new thread about that visit.. I have a few sites for you all :)
Anyway.. sounds like you guys will be cooking nothing but fresh foods for the rest of your life.. I'm so sorry it can't be easier on you guys.. the poor girl... I guess I feel lucky that my allergies didn't strike until "lately".. at least I had a few years of yummy, sinful foods..
Does she like bananas? I like to just cut up a banana and pour a little Hershey Syrup over it.. might make her feel better..
Love,
Christine
Anyway.. sounds like you guys will be cooking nothing but fresh foods for the rest of your life.. I'm so sorry it can't be easier on you guys.. the poor girl... I guess I feel lucky that my allergies didn't strike until "lately".. at least I had a few years of yummy, sinful foods..
Does she like bananas? I like to just cut up a banana and pour a little Hershey Syrup over it.. might make her feel better..
Love,
Christine
Hi Roni!
Well, we're not surprised, are we? What does Emily say about the results?
At least you now have some additional verication of what you have been finding by trial and error.
I am intolerant to many foods (like Emily) and my fecal fat was normal too. My take on this is that the disease was caught before too much damage could be done. I had my colonoscopy about 5 months after the constant, watery D started.
There may be other factors involved in the osteopenia than just absorption of calcium. For example, it may be that enough calcium is being absorbed, but that it is not working properly at the CELLULAR level where it is needed. This is the case in diabetes II - the body produces enough insulin, but it just doesn't seem to be able to get into the cell where it's needed. Also, Dr. Fine told me that some researchers think ospeoporosis is an autoimmune disease. We do know that there are cases where osteo reverses on the GF diet.
Knowledge is power............just keep thinking that.
Love,
Polly
Well, we're not surprised, are we? What does Emily say about the results?
At least you now have some additional verication of what you have been finding by trial and error.
I am intolerant to many foods (like Emily) and my fecal fat was normal too. My take on this is that the disease was caught before too much damage could be done. I had my colonoscopy about 5 months after the constant, watery D started.
There may be other factors involved in the osteopenia than just absorption of calcium. For example, it may be that enough calcium is being absorbed, but that it is not working properly at the CELLULAR level where it is needed. This is the case in diabetes II - the body produces enough insulin, but it just doesn't seem to be able to get into the cell where it's needed. Also, Dr. Fine told me that some researchers think ospeoporosis is an autoimmune disease. We do know that there are cases where osteo reverses on the GF diet.
Knowledge is power............just keep thinking that.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
-
moremuscle
- Rockhopper Penguin
- Posts: 706
- Joined: Wed May 25, 2005 6:16 am
- Location: South Carolina
Good Morning, Roni
It's good to see that you've received the test results - I remember when mine came I had this feeling of dread when I saw the results black and white on a piece of paper in front of me. I read it and then read it again thinking oh, no this is not a game; it's for real now. I had already eliminated gluten and casein at the time so I didn't make any other changes - those were the two only things I was tested for at the time. It is smart of you to have tested for all the things at once. And of course, you have already basically eliminated all those offenders, haven't you? Now you can become even more thorough in your process of elimination as you KNOW it needs to be done. There is nothing like knowing.
One of the things that are still questionable in Emily's case is whether or not corn is an issue. Corn is not a problem for most of the people here but as you know some of us have problems with it too. That just gives you a pointer in case Emily still doesn't get rid of her symptoms after a period of not getting all the known offenders.
You are awesome, Roni - you have come a long way with Emily's diet already.
Love,
Karen
It's good to see that you've received the test results - I remember when mine came I had this feeling of dread when I saw the results black and white on a piece of paper in front of me. I read it and then read it again thinking oh, no this is not a game; it's for real now. I had already eliminated gluten and casein at the time so I didn't make any other changes - those were the two only things I was tested for at the time. It is smart of you to have tested for all the things at once. And of course, you have already basically eliminated all those offenders, haven't you? Now you can become even more thorough in your process of elimination as you KNOW it needs to be done. There is nothing like knowing.
One of the things that are still questionable in Emily's case is whether or not corn is an issue. Corn is not a problem for most of the people here but as you know some of us have problems with it too. That just gives you a pointer in case Emily still doesn't get rid of her symptoms after a period of not getting all the known offenders.
You are awesome, Roni - you have come a long way with Emily's diet already.
Love,
Karen
Boy, but nice to know now huh?
I am the same on the number for casein intolerance. My fecal count for fat was higher score though. I am going to repost this even though I did this last year too.
Gluten Sensitivity Stool Test
Fecal Antigliadin IgA 89 Units (Normal Range <10 Units)
Stool Test for Autoimmune Reaction to Tissue Transglutaminase
Fecal Antitissue Transglutaminase IgA 48 Units (Normal Range <10
Units)
Stool Test for Small Intestinal Malabsorption
Microscopic Fecal Fat Score: 181 Units (Normal Range < 300
Units)
Stool Test for Milk Sensitivity
Fecal anti-casein IgA antibody 30 Units (Normal Range <10
Units)
Gene Test for Gluten Sensitivity
Molecular analysis: HLA-DQB1*0201, 0301
Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7)
> Stool Test for Dietary Yeast Sensitivity
> Fecal Anti-Saccharomyces cerevisiae IgA 64 Units (Normal <10
Units)
>
> Stool Test for Egg Sensitivity
> Fecal anti-ovalbumin IgA antibody 50 Units (Normal <10
Units)
I am thinking about the York assay food intolerance panel too. I am suspecting soy and maybe corn derivatives as problems.
Gluten Sensitivity Stool Test
Fecal Antigliadin IgA 89 Units (Normal Range <10 Units)
Stool Test for Autoimmune Reaction to Tissue Transglutaminase
Fecal Antitissue Transglutaminase IgA 48 Units (Normal Range <10
Units)
Stool Test for Small Intestinal Malabsorption
Microscopic Fecal Fat Score: 181 Units (Normal Range < 300
Units)
Stool Test for Milk Sensitivity
Fecal anti-casein IgA antibody 30 Units (Normal Range <10
Units)
Gene Test for Gluten Sensitivity
Molecular analysis: HLA-DQB1*0201, 0301
Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7)
> Stool Test for Dietary Yeast Sensitivity
> Fecal Anti-Saccharomyces cerevisiae IgA 64 Units (Normal <10
Units)
>
> Stool Test for Egg Sensitivity
> Fecal anti-ovalbumin IgA antibody 50 Units (Normal <10
Units)
I am thinking about the York assay food intolerance panel too. I am suspecting soy and maybe corn derivatives as problems.
I Am Someone Special
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Marsha
Hi Roni, Aren't you glad to have found out!? No more guessing YAY! 
Although things she was hoping to eat are out of the question now. How does she feel about that? It's probably esp hard when you're a teenager, when your friends are eating pizza - a lot revolves around food.
Can I ask, how much did the testing cost (sorry for being lazy, I could go to the site) If I remember, it will be about $300? I need to start saving. Even though I'm pretty sure I have things nailed down now, I'd sure love to have the paper in my hands.
Love, Marsha
Although things she was hoping to eat are out of the question now. How does she feel about that? It's probably esp hard when you're a teenager, when your friends are eating pizza - a lot revolves around food.
Can I ask, how much did the testing cost (sorry for being lazy, I could go to the site) If I remember, it will be about $300? I need to start saving. Even though I'm pretty sure I have things nailed down now, I'd sure love to have the paper in my hands.
Love, Marsha
-
TendrTummy
- Gentoo Penguin
- Posts: 466
- Joined: Thu May 26, 2005 5:51 am
- Location: Waconia, MN, USA
- Contact:
costs
Marsha,
it's about $300 for the soy, yeast, egg, and milk products combined. (you get the yeast, egg and milk in a package and soy is added to that, after the fact), but the gluten is an extra $99.. I dunno if they have a package that includes absolutely ALL of them at once.. perhaps that's what Roni got..
Christine
it's about $300 for the soy, yeast, egg, and milk products combined. (you get the yeast, egg and milk in a package and soy is added to that, after the fact), but the gluten is an extra $99.. I dunno if they have a package that includes absolutely ALL of them at once.. perhaps that's what Roni got..
Christine
Hi everyone,
Emily is depressed just like me. The hard reality is setting in. I did the whole panel and the final bill was $567.00. It was a lot of money but cheaper that the colonoscopy and endoscopy.
We are leaving in a few days for our Buffalo trip, but, don't really feel like going.
Thanks so much for listening, and trying to keep our chins up.
Roni
Emily is depressed just like me. The hard reality is setting in. I did the whole panel and the final bill was $567.00. It was a lot of money but cheaper that the colonoscopy and endoscopy.
We are leaving in a few days for our Buffalo trip, but, don't really feel like going.
Thanks so much for listening, and trying to keep our chins up.
Roni
Roni
Please don't cry sweetie, enjoy your trip! Be careful and take lots of GF treats or snacks along with you. Cape Cod chips (regular ones for sure) are totally GF. Rice crackers or some fruit would even be dandier.
It does get better cuz I felt the same way a lot last year. My own family eats everything but I can't.
Remember : You are special, very special too! So there! yay
hugs
MJ
It does get better cuz I felt the same way a lot last year. My own family eats everything but I can't.
Remember : You are special, very special too! So there! yay
hugs
MJ
I Am Someone Special
Hi Roni,
Well at least she doesn't seem to have any celiac genes. I agree with the others, that intestinal damage may be low because not much damage acrued before starting the diet.
I had symptoms for several years before starting the diet, and after almost three years on the diet, my score is still 294--not outrageous, but still surprisingly high.
Tex
Well at least she doesn't seem to have any celiac genes. I agree with the others, that intestinal damage may be low because not much damage acrued before starting the diet.
I had symptoms for several years before starting the diet, and after almost three years on the diet, my score is still 294--not outrageous, but still surprisingly high.
Tex