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Hi...oh brother, the D is back! I have been having episodes every morning, but today, I had it all afternoon too...had to leave my Painting class Glad I made it! The school nurse gave me some Imodium, but didn't work all that well...the D has continued tonight too. I know part of this is my stress at work, but I may call the doc and see if I can go back to 3 Entocort caps per week...that's still a very low dose, right?
But not a surprise after all of the recent stress. Why don't you start off with the full dosage schedule and then gradually reduce it as you did before? My hunch is that the larger dose may be necessary to quickly quiet down the old immune system. (Did you ever use the Medrol dose-pack for poison ivy? - it socks you with a much larger dose of steroid initially and then quickly reduces it). Geesh.......Norman has left. That CAD!!!!!!!! Feel better soon, kay?
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Hi Jill. Hope things settle down again soon. It probably is all the stress you have been under that is causing you to go off the rail again. Maybe when the job problem is sorted out things will improve as well. Entocort should help I would imagine. Good luck with it.
Love
Liz
A smile is a light in the window of your face that shows that your heart is at home
Remember when we were having all that discussion about zonulin? Then, later, I read something about stress causing the guts of mice to be more permeable. JILL, are you a mouse, by any chance? Sure sounds that way to me! (Just kiddin' ya. Hope ya don't mind. Isn't laughter supposed to be good medicine? Well, if it is, then my jokes better improve or I'll make everyone sicker.)
I hope that somehow you'll be able to relax a little more at work, but easier said than done, I know. How long do you expect this stressful period to continue? Is it some kind of special project with a deadline or something?
You are so smart to think about a solution that will work for you -the Entocort. Wow, try to get a dose that works for you ASAP so you can get back on track.
Love,
Karen
Inspired by the paleolithic diet and lifestyle -
living w/o gluten, dairy, soy, corn, and yeast.
Hi..thanks all...I woke up at 3:30 and it started...many trips to the loo.... I will call GI this morning....Medrol???? Did I miss that discussion? More later...JJ
In my case (and we KNOW how different we can all be) the Entocort gets me back on track when I have a flare, then I immediately drop off it...slowly. I've never taken it for too long a period, although some flares have been a little tougher than others. I've only ever taken one capsule per day. See what your doc says.
I wish there was a way to alleviate your stress! I try to avoid it at all costs because I know it goes right to my colon.
I am new to this forum so I dont know your whole situation. Isnt 9mg the highest dose for Entocort? I am currently on 3mg x 3 tabs a day and I love the stuff.
Stress can definately play a part in how you feel. My first flare was a result of stress and it took me almost 9 months to calm down from all that stress (I also had some help with Ativan- maybe ask your doctor about that drug to help with anxiety and stress... I have not experiences any side effects).
Are you on any kind of special diet ie gluten free, dairy free? Did you take Dr Fine's tests to see what intollerances you have? Maybe if you havent eliminated foods that might help with the episodes of d.
Are you on any probiotics? They really help rebalance your gut with good bacteria... the kind that dies off during flares, after taking antibiotics etc. I use VSL#3 which is rather expensive but there are other good ones on the market.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Hi Dell...I take Wellbutrin and.... Xanax as needed. I can't afford Dr. Fine's test, and have decided not to do dietary changes right now. I have been on the Atkin's diet for some time....Sometimes I go a while without dairy and sometimes a while without wheat...bread, pasta etc. I have never noticed a change, although I had a visit from Norman the morning after I cheated and had pizza...go figure.... I have been weaning of the Entocort since last summer,and have been down to 2 pills twice a week.....that is amazing, right? I mean I take one pill on Mondays and one pill on Thursday! I think with the stress I'm experiencing right now....the dosage is too low...still need to call the doc...thanks....JJ
I'm sorry, but my memory goes late at night when I usually get around to posting. I DID know about THAT job situation and remember posting a reply to that thread. I also know that when something happens to your job, even though intellectually, you know it has nothing to do with you, there's just something about it that plays with your self-esteem. I know that I had too much of my self esteem wrapped up in a job that I held for many years, so when I resigned, it was just awful, [psychologically. In the long run, I can see that it was the right thing to do, AND the right timing, but I'm a "rear view mirror person" as are most people. It's the rare visionary type who can accept something while it's actually happening to them. Can any of you identify with the "rear view mirror" perspective?
Jill, I just have to believe that something good will come out of all this eventually, but right now, ya gotta do whatcha gotta do med wise to be able to function. Hopefully, "this too shall pass" ( and may I add "hopefully soon!")
Thanks you guys...And Luce...you are so right...as much as I know that this will pass, it's a sort of grieving process that I need to go through...as much as I know they cut me because of $, I feel my self esteem suffering a bit. Getting the D under control will help, and thankfully I still have ski school...I have a lot of friends there and up at the ski area....makes me look forward to the weekends. TTFN...JJ
PS I am very afraid of probiotics...I got one at the health food store, and it gave me violent D! I wasted a bunch of $... I am glad it works for some, but I am chicken to try again.....take care...JJ
Glad I made it! The school nurse gave me some Imodium, but didn't work all that well...the D has continued tonight too. 
I know part of this is my stress at work, but I may call the doc and see if I can go back to 3 Entocort caps per week...that's still a very low dose, right?
