Ok, given that my recent stool tests came back saying that I wasn't casein intollerant what else might be giving my problems with dairy products?
I'm guessing that the only things left are a whey (protein) or lactose (sugar) intollerance? Anything else? Where can I get (accurately) tested for these things?
Also, how are the folks that are Dairy Intollerant getting their calcium? I noticed I'm pretty deficient.
Thanks,
Mike
Questions about Intollerance to Dairy Products
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
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Marsha
Hi Mike, 
(sorry, I was compelled)
I don't really know, except I've been reading about the sulfite stuff, and dairy products like cheese are fairly heavily sulfited, also sweetened yogurt that has geletin as part of the thickening mechanism. Is it all dairy that does it to you?
Also I wanted to say, this is a pain in the rear
trying to figure things out, but you will get it figured out. I'm convinced there is one unifying theory out there that explains our food issues.
(sorry, I was compelled)I don't really know, except I've been reading about the sulfite stuff, and dairy products like cheese are fairly heavily sulfited, also sweetened yogurt that has geletin as part of the thickening mechanism. Is it all dairy that does it to you?
Also I wanted to say, this is a pain in the rear
trying to figure things out, but you will get it figured out. I'm convinced there is one unifying theory out there that explains our food issues.Well...Marsha wrote:Hi Mike,
I don't really know, except I've been reading about the sulfite stuff, and dairy products like cheese are fairly heavily sulfited, also sweetened yogurt that has geletin as part of the thickening mechanism. Is it all dairy that does it to you?
Also I wanted to say, this is a pain in the rear
right back at you. 
I thought for sure it was casein in cottage cheese that was bugging me but I tested negative for that. I thought it was the cottage cheese because my symptoms seemed to get better when I removed it, but then I removed more than one thing so it could have been something else. ???
So perhaps I'll try some lactose free dairy for a while and see what that does.
What products are lactose free for sure? I had heard about aged cheeses, how old?
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Marsha
Hi there again, 
If you're lactose intolerant to much degree, I don't think you can get away with any milk product, to tell you the truth. There are some sources that say you can have some cheeses (but that doesn't work for me). What I was talking about was sulfites, not lactose. And apparently, if it is the sulfites that bother you, milk itself would be ok, but yogurt, cheese, & cottage cheese would make you feel worse. By "worse", I guess common symptoms are (after a 8-12 hour delay) headache, body aches, D, rashes, just an all-over ick feeling.
I'll go find a helpful link, and edit it in.
10 minutes later . . . Found it! Try reading this:
http://www.readingtarget.com/nosulfites/protein.htm
And to read this very kind man's whole book, which he has given permission to print from the net, click on "Return to Book Index"
I really wonder how many of us who are MI, esp the ones who do better on a low carb diet, are sulphite sensitive. Because, sulfites are used primarily on high carb processed foods, as a preservative.
If you're lactose intolerant to much degree, I don't think you can get away with any milk product, to tell you the truth. There are some sources that say you can have some cheeses (but that doesn't work for me). What I was talking about was sulfites, not lactose. And apparently, if it is the sulfites that bother you, milk itself would be ok, but yogurt, cheese, & cottage cheese would make you feel worse. By "worse", I guess common symptoms are (after a 8-12 hour delay) headache, body aches, D, rashes, just an all-over ick feeling.
I'll go find a helpful link, and edit it in.
10 minutes later . . . Found it! Try reading this:
http://www.readingtarget.com/nosulfites/protein.htm
And to read this very kind man's whole book, which he has given permission to print from the net, click on "Return to Book Index"
I really wonder how many of us who are MI, esp the ones who do better on a low carb diet, are sulphite sensitive. Because, sulfites are used primarily on high carb processed foods, as a preservative.-
moremuscle
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- Posts: 706
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- Location: South Carolina
Hi Mike,
I don't know the answers to your quetions but there are web sites dedicated to milk allergies/intolerances. I believe one is called nomilk - would it be www.nomilk.com ?
There is also the www.gfdfdiet.com - mostly dedicated to parents of autistic children but it has lots of information and links to other sites.
Good luck researching this - and BTW consider yourself lucky that you are not casein intolerant
Love,
Karen
I don't know the answers to your quetions but there are web sites dedicated to milk allergies/intolerances. I believe one is called nomilk - would it be www.nomilk.com ?
There is also the www.gfdfdiet.com - mostly dedicated to parents of autistic children but it has lots of information and links to other sites.
Good luck researching this - and BTW consider yourself lucky that you are not casein intolerant
Love,
Karen
Mike,
If you are not casein intoleratant, you can eat the aged cheeses, (IOW most, but not all, of the hard or firm cheeses). Lactose intolerace is usually due to a deficiency of lactase enzyme, and is not normally caused by an autoimmune reaction.
Also, lactose intolerance is often in degrees, not absolute either/or situations. IOW, even people classified as lactose intolerant, can usually drink an 8 oz glass of milk, for example, without significant problems. And, if you are not casein intolerant, you should be able to drink lactose-free milk, and eat yogurt, (provided you don't have a sulphite problem).
Tex
If you are not casein intoleratant, you can eat the aged cheeses, (IOW most, but not all, of the hard or firm cheeses). Lactose intolerace is usually due to a deficiency of lactase enzyme, and is not normally caused by an autoimmune reaction.
Also, lactose intolerance is often in degrees, not absolute either/or situations. IOW, even people classified as lactose intolerant, can usually drink an 8 oz glass of milk, for example, without significant problems. And, if you are not casein intolerant, you should be able to drink lactose-free milk, and eat yogurt, (provided you don't have a sulphite problem).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Marsha
Hey Hey Hey! Lets not be challenging the doctor here! 
you know I'm joking, right?
You know, though, this is kind of interesting. If it's just the cheeses, but not milk, sulfites are suspect.
If it's all dairy, lactose is suspect, especially if you can eat the hard cheeses (whichever the ones are that are really low in lactose)
Hmmmmmm..
you know I'm joking, right?
You know, though, this is kind of interesting. If it's just the cheeses, but not milk, sulfites are suspect.
If it's all dairy, lactose is suspect, especially if you can eat the hard cheeses (whichever the ones are that are really low in lactose)
Hmmmmmm..
The www.gfdfdiet.com link doesn't work. What is the correct link? Thanks!moremuscle wrote:Hi Mike,
I don't know the answers to your quetions but there are web sites dedicated to milk allergies/intolerances. I believe one is called nomilk - would it be www.nomilk.com ?
There is also the www.gfdfdiet.com - mostly dedicated to parents of autistic children but it has lots of information and links to other sites.
Good luck researching this - and BTW consider yourself lucky that you are not casein intolerant
Love,
Karen
Thanks, I found it now. Problem is most of the site seems to be broken. None of the links on the left seem to work. :(CAMary wrote:Mike -
I believe its GFCFdiet.com I know the products I use refer to the autism diet as GFCF - I think because their line of thinking is that the proteins are the root of the problem so the diet has the name of both proteins to avoid - gluten & casein...
Good luck!
Mary
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Marsha
Hey, Mike,
If you're ever interested in cookbooks that are gfcf, there are a couple really good ones - especially for kids and families put out by those organizations. Remember the lady who asked for cookbooks for her 2 year old on the other site? I sent her references of the books if you want to track it down. They are spiral bound, just awesomely each recipes and kid approved.
If you're ever interested in cookbooks that are gfcf, there are a couple really good ones - especially for kids and families put out by those organizations. Remember the lady who asked for cookbooks for her 2 year old on the other site? I sent her references of the books if you want to track it down. They are spiral bound, just awesomely each recipes and kid approved.
Sure, send the info. I might just have to look them up.Marsha wrote:Hey, Mike,
If you're ever interested in cookbooks that are gfcf, there are a couple really good ones - especially for kids and families put out by those organizations. Remember the lady who asked for cookbooks for her 2 year old on the other site? I sent her references of the books if you want to track it down. They are spiral bound, just awesomely each recipes and kid approved.
Other factors
Mike,
Do you think it could have anything to do with the fat content of the foods that do/don't bother you?
Many of us with small bowel damage pass lots of fat through our stools until we're all healed.
I've been staying away from aged/fermented foods for a long time now, but I'm not exactly sure how I got started doing that -- think it had to do with something I read about possible yeast problems of a different kind from the brewer's/bakers variety, so not sure it would apply to you, or me either, for that matter. At one time, thought I had a problem with balsalmic vinegar (fermented) as nothing else I had that day could've triggered symptoms, so that was what got me avoiding, almost totally, the fermented foods.
Anyway, just thought I'd mention other possibilities though they might seem pretty unlikely. Trying to stay outside the box, I guess.
I would follow your test results, and go with the lactose-free stuff til the gut heals, unless the irritating foods continue to bother you, and you're sure that's what's doing it.
Yours, Luce
Do you think it could have anything to do with the fat content of the foods that do/don't bother you?
Many of us with small bowel damage pass lots of fat through our stools until we're all healed.
I've been staying away from aged/fermented foods for a long time now, but I'm not exactly sure how I got started doing that -- think it had to do with something I read about possible yeast problems of a different kind from the brewer's/bakers variety, so not sure it would apply to you, or me either, for that matter. At one time, thought I had a problem with balsalmic vinegar (fermented) as nothing else I had that day could've triggered symptoms, so that was what got me avoiding, almost totally, the fermented foods.
Anyway, just thought I'd mention other possibilities though they might seem pretty unlikely. Trying to stay outside the box, I guess.
I would follow your test results, and go with the lactose-free stuff til the gut heals, unless the irritating foods continue to bother you, and you're sure that's what's doing it.
Yours, Luce