I am curious....does anyone else get more headaches since they've been diagnosed?
Love,
Mo
question about headaches...
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question about headaches...
Ever since I was diagnosed with Colitis I've had trouble with Migraines, tension headaches and chronic daily headaches.....
I am curious....does anyone else get more headaches since they've been diagnosed?
Love,
Mo
I am curious....does anyone else get more headaches since they've been diagnosed?
Love,
Mo
-
barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
MO----I wish I could say---YES, I DO---but I dont 
I see U are taking some heavy duty meds. there---vicodin---maybe stronger dosage???
What does your GI/GP have to add to this issue----anything other out there that might help??? How about something from the nature stores--
But then U have to know what U are buying!!!!
ingrediants and stuff~~~~~
for ya MO----
PS. and U arent trecking into the city??? What town are U near in CT??
Like I know Cos Cob---Meridan---and a few other places---
Ever hear of Naugatuck??? Lou had relatives there--
I see U are taking some heavy duty meds. there---vicodin---maybe stronger dosage???
What does your GI/GP have to add to this issue----anything other out there that might help??? How about something from the nature stores--
But then U have to know what U are buying!!!!
ingrediants and stuff~~~~~ for ya MO----
PS. and U arent trecking into the city??? What town are U near in CT??
Like I know Cos Cob---Meridan---and a few other places---
Ever hear of Naugatuck??? Lou had relatives there--
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Mo,
Back when I was reacting often, I used to have persistant headaches regularly, including migraines, (so bad that they would almost always cause nausea and vomiting, unless I stopped them promptly, before they had a chance to develop).
However, now that my symptoms are under control, the only time that I have any symptoms, (including headaches), is if I slip up and eat something that I shouldn't.
Love,
Wayne
Back when I was reacting often, I used to have persistant headaches regularly, including migraines, (so bad that they would almost always cause nausea and vomiting, unless I stopped them promptly, before they had a chance to develop).
However, now that my symptoms are under control, the only time that I have any symptoms, (including headaches), is if I slip up and eat something that I shouldn't.
Love,
Wayne
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
-
annie oakley
- King Penguin
- Posts: 3859
- Joined: Fri May 13, 2011 5:56 pm
Mo....are your currently taking Vicoden? I started getting headaches after I started using Vicoden on a regular basis.. Gave me what My doctor called a hangover headache. It's crazy that a pain pill can make your head ache. It's a mild reaction to Codene. Love Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
Hi,
I am very careful with the Vicodin. I have a presc. for 5/500 hydrocodone/aceteminophen. I split the pill in half so I am only getting 2.5 vicodin and 250 mg. aceteminophen.
I don't like to take strong medications but sometimes it is the only thing that will abort a migraine in progress...
I refuse to take any more than 1/2 pill at a time (per day also) for fear of addiction. I also limit myself to 2 days/week so I don't get rebound.
My neuro. says my nervous system is so sensitive right now that almost anything can trigger a migraine for me.....nausea, vomiting the whole nine yards if I don't take something...
it's a double-edged sword if you know what I mean....
Hey Barb,
I didn't ask the gastro....I'd be lucky to get an answer though...I live about 20 min. southeast of Hartford.......
Love,
Mo
I am very careful with the Vicodin. I have a presc. for 5/500 hydrocodone/aceteminophen. I split the pill in half so I am only getting 2.5 vicodin and 250 mg. aceteminophen.
I don't like to take strong medications but sometimes it is the only thing that will abort a migraine in progress...
I refuse to take any more than 1/2 pill at a time (per day also) for fear of addiction. I also limit myself to 2 days/week so I don't get rebound.
My neuro. says my nervous system is so sensitive right now that almost anything can trigger a migraine for me.....nausea, vomiting the whole nine yards if I don't take something...
it's a double-edged sword if you know what I mean....
Hey Barb,
I didn't ask the gastro....I'd be lucky to get an answer though...I live about 20 min. southeast of Hartford.......
Love,
Mo
Hi Mo,
My earliest recollection of having migraines was in my late 20's, long before I recognized that I had any autoimmune issues, and these would be the very typical throbbing til you toss your cookies type of migraines, sensitive to light and sound, etc.
At that time, I would sometimes work night shift for maybe seven nights in a row, so at the end of those shifts, I would stay awake after I got off work the last morning til as close to the evening as I could, and then get to sleep at night, like normal people. My thinking was that this kept me from losing my Saturday by sleeping it away.
(While trying to keep myself awake after getting off work that last day, I'd do brainless but necessary activities like wash clothes, etc., so that I could use Saturday and most of Sunday to do normal things.)
Since I would be so exhausted by this early evening bedtime after staying awake so long, I would then sleep VERY hard, and by daybreak, I would've slept maybe ten hours straight. This was supposed to be my "normal" weekend day, but often it would be delayed til noon with a migraine at which time I'd throw up, and then things would almost immediately start to get better.
At that time, I had no idea that upsetting the circadian applecart was a trigger for migraines, so I just wondered what kinda luck a person had to have to ONLY get sick on their Saturday off, and never get sick like this on a work day! Eventually, I figured it out, however. I'm not sure that in these early years I even recognized that these were migraines, but I knew there was a pattern to it.
I think that it may have been about the time that I started having all the GI problems that I noticed a change in the migraines. It was as if the starting and ending points weren't quite as sharp, if that makes any sense. I had always had them upon awakening if, in fact, they didn't actually wake me, but the cutoff point after the vomiting was quicker in the early years.
My hunch is that the increase in my immune sensitivity had something to do with worsening the symptoms and dragging them out much longer. In the early days, I just went to bed til I vomited, and then I'd be up and at 'em, good as new, and go about my business.
The latter form these things took was more debilitating, and produced more of a hazy feeling in my brain with all the original symptoms still there.
Also, somewhere along, I began to experience very strange neurological symptoms such as feeling a chill in one specific area on only, say, one leg, but not the other.
Or I could have something like that in two or more areas of my body with no symmetry whatsoever to it, almost seeming random, but the areas were very definite.
I had long ceased working shift work when the symptoms became so debilitating, but I had been having difficulty sleeping restfully for a long time, even though I did "go to sleep" at night.
I have yet to hear a good explanation for how removing my allergens reversed this decades long problem, unless perhaps I had
something like silent celiac all along, and just didn't pick up on it until I got the M.C. diagnosis and found this site.
I did have a premigraine feeling after several days of eating a ham that someone had sent to me for Christmas, about the only thing it could've been was the nitrates that were used as preservatives. I had to eat a little of it for several days before I noticed it, however, so it must accumulate or else the brain builds up irritation to it the longer one eats it.
Although there's no doubt that removing prolamines of some foods was the "off switch" for my migraine condition, I still have to be careful of nitrates which are found in all sorts of sauces and condiments, not just wines which I don't drink, but wine is used in things like some of the PF Chang's sauces, for instance. I believe that nitrates may belong to the group of chemicals commonly known as excitotoxins. Perhaps Polly or someone can correct me if that doesn't apply to nitrates.
I used to have other triggers as well -- the usual ones that you commonly hear about, but they don't seem to bother me anymore which came about rather suddenly and dramatically.
Toward the end, I was using various of the quick dissolving tablets under the tongue to try to head off one of these, and they tended to work very well.
Sure hope that you are not experiencing rebound with the Vicodin,even though you are being rather judicious with it's usage.
Have you ever tried to drink a little orange juice at the beginning of a migraine while you can still get something down? I have absolutely no scientific basis for saying this, but I used to think I felt better by doing this.
One thing for sure, OJ TASTES a heck of a lot better coming back up than does some other stuff! Ha!
Sure wish you could find something that would work for you. I know how miserable those those things can be.
Yours, Luce
My earliest recollection of having migraines was in my late 20's, long before I recognized that I had any autoimmune issues, and these would be the very typical throbbing til you toss your cookies type of migraines, sensitive to light and sound, etc.
At that time, I would sometimes work night shift for maybe seven nights in a row, so at the end of those shifts, I would stay awake after I got off work the last morning til as close to the evening as I could, and then get to sleep at night, like normal people. My thinking was that this kept me from losing my Saturday by sleeping it away.
(While trying to keep myself awake after getting off work that last day, I'd do brainless but necessary activities like wash clothes, etc., so that I could use Saturday and most of Sunday to do normal things.)
Since I would be so exhausted by this early evening bedtime after staying awake so long, I would then sleep VERY hard, and by daybreak, I would've slept maybe ten hours straight. This was supposed to be my "normal" weekend day, but often it would be delayed til noon with a migraine at which time I'd throw up, and then things would almost immediately start to get better.
At that time, I had no idea that upsetting the circadian applecart was a trigger for migraines, so I just wondered what kinda luck a person had to have to ONLY get sick on their Saturday off, and never get sick like this on a work day! Eventually, I figured it out, however. I'm not sure that in these early years I even recognized that these were migraines, but I knew there was a pattern to it.
I think that it may have been about the time that I started having all the GI problems that I noticed a change in the migraines. It was as if the starting and ending points weren't quite as sharp, if that makes any sense. I had always had them upon awakening if, in fact, they didn't actually wake me, but the cutoff point after the vomiting was quicker in the early years.
My hunch is that the increase in my immune sensitivity had something to do with worsening the symptoms and dragging them out much longer. In the early days, I just went to bed til I vomited, and then I'd be up and at 'em, good as new, and go about my business.
The latter form these things took was more debilitating, and produced more of a hazy feeling in my brain with all the original symptoms still there.
Also, somewhere along, I began to experience very strange neurological symptoms such as feeling a chill in one specific area on only, say, one leg, but not the other.
Or I could have something like that in two or more areas of my body with no symmetry whatsoever to it, almost seeming random, but the areas were very definite.
I had long ceased working shift work when the symptoms became so debilitating, but I had been having difficulty sleeping restfully for a long time, even though I did "go to sleep" at night.
I have yet to hear a good explanation for how removing my allergens reversed this decades long problem, unless perhaps I had
something like silent celiac all along, and just didn't pick up on it until I got the M.C. diagnosis and found this site.
I did have a premigraine feeling after several days of eating a ham that someone had sent to me for Christmas, about the only thing it could've been was the nitrates that were used as preservatives. I had to eat a little of it for several days before I noticed it, however, so it must accumulate or else the brain builds up irritation to it the longer one eats it.
Although there's no doubt that removing prolamines of some foods was the "off switch" for my migraine condition, I still have to be careful of nitrates which are found in all sorts of sauces and condiments, not just wines which I don't drink, but wine is used in things like some of the PF Chang's sauces, for instance. I believe that nitrates may belong to the group of chemicals commonly known as excitotoxins. Perhaps Polly or someone can correct me if that doesn't apply to nitrates.
I used to have other triggers as well -- the usual ones that you commonly hear about, but they don't seem to bother me anymore which came about rather suddenly and dramatically.
Toward the end, I was using various of the quick dissolving tablets under the tongue to try to head off one of these, and they tended to work very well.
Sure hope that you are not experiencing rebound with the Vicodin,even though you are being rather judicious with it's usage.
Have you ever tried to drink a little orange juice at the beginning of a migraine while you can still get something down? I have absolutely no scientific basis for saying this, but I used to think I felt better by doing this.
One thing for sure, OJ TASTES a heck of a lot better coming back up than does some other stuff! Ha!
Sure wish you could find something that would work for you. I know how miserable those those things can be.
Yours, Luce
Hi Luce,
I have a strong hunch that I may be rebounding from all the meds I'm taking expecially the Triptan, Amerge. I've been told by one Dr. to only take it a few times a month and that it was ok to take it twice a week by another and yet another Dr. told me I could take it twice a day during my "cycle" because I was having horrible menstrual migraines.
Hormones are definitely a trigger for me as well as approaching storms (or lowering of the barometric pressure) I stay away from nitrates, MSG, peanuts and spicy foods.
I've read that people with Celiacs get migraines more often than people without (maybe due to inflammation?) I don't have Celiacs.
I wonder how much inflammation plays a role.
When I go outside and the humidity is high, I get congested and start to get a headache.
I like your orange juice idea but I can't have any citrus due to acid reflux.
What kind of quick dissolving tablets are you talking about?
I sometimes wonder if there is some kind of autoimmune component to my headache problem....
If I am rebounding, the headache specialist I am going to see June 28th will probably have me stop all meds and go through withdrawal.........................I am so scared.......there is never a good time to try that............I don't want to spoil my summer.....but having chronic pain is just as bad.
Mo
I have a strong hunch that I may be rebounding from all the meds I'm taking expecially the Triptan, Amerge. I've been told by one Dr. to only take it a few times a month and that it was ok to take it twice a week by another and yet another Dr. told me I could take it twice a day during my "cycle" because I was having horrible menstrual migraines.
Hormones are definitely a trigger for me as well as approaching storms (or lowering of the barometric pressure) I stay away from nitrates, MSG, peanuts and spicy foods.
I've read that people with Celiacs get migraines more often than people without (maybe due to inflammation?) I don't have Celiacs.
I wonder how much inflammation plays a role.
When I go outside and the humidity is high, I get congested and start to get a headache.
I like your orange juice idea but I can't have any citrus due to acid reflux.
What kind of quick dissolving tablets are you talking about?
I sometimes wonder if there is some kind of autoimmune component to my headache problem....
If I am rebounding, the headache specialist I am going to see June 28th will probably have me stop all meds and go through withdrawal.........................I am so scared.......there is never a good time to try that............I don't want to spoil my summer.....but having chronic pain is just as bad.
Mo
Mo,
Hope my memory is not failing me, but I think that the first one I might've taken was Maxalt-MLT 10 mg "orally disintegrating tablets." Think they have some that are just regular tablets, but I had to have these under-the-tongue kind since I'd wake up with them when it was too late to keep the regular oral ones from coming right back up when I would inevitably vomit. With the dissolving ones, I could usually head off the nausea and therefore, the vomiting in a half hour if I remember correctly. Usually, I could just go straight to sleep, and wake up feeling better than ever, and even hungry.
Think the doc said that Zomig of this same dissolving type worked better for lots of people, but it worked slower for me, or else it was just that my migraines were changing and that was what made the difference that I noticed.
(Reason for changing was that I had samples for the Zomig. Ha! It would eventually work, just not as dramatically.)
Maybe I tried some others, but I can't remember now. I'm sure you've probably been through the formulary as far as most of these common meds, so this is probably not much help to you at this point.
Forgive me for not being able to recall, but have you tried any of the antidepressants that are given as a preventative for migraines on a daily basis? I have heard that that works for some people related to their brain chemistry.
Seems as though you and I experienced all the same triggers -- barometric pressure, excitotoxins, hormones, etc., and don't forget the ever present stress factor. Were yours ever related to a sharp change in your sleep-wake pattern? It's kind of hard to figure this one since this kind of change is often associated with stress, and is in itself stressful enough.
I used to follow the weather reports fairly closely, and I noticed that it wasn't just an ordinary drop in barometric pressure always, so what I, at that time, theorized was that there was rapid shifting of barometric pressures such that the adaptive response in my brain couldn't keep up with the rapidness of the changes up and down.
This was the only way that I could rationalize the fact that barometric pressure was only a trigger some of the time. At that time, I knew lots more about the physiological chances that were happening in the brain at the time of a migraine -- like changes in blood flow, for example. Also,my BPs would always shoot way up during these migraines.
Since you are trying to control your symptoms with meds, perhaps one thing you could try would be finding a specialist who might be an expert in helping to balance your hormones a little better, but make sure they are legit. I'm not sure which speciality would be most likely to have such an expert, however.
Do you have one of those so-called "Centers of Excellence" type medical facilities that deals with migraines anywhere close enough for you to see one of their doctors? These are the university affiliated centers where cutting edge research is ongoing. There are usually only a hand full of these centers around North America for any given condition, but they tend to be fairly well distributed geographically.
If at all possible, try to get enough sleep, but never too much, going to bed at exactly the same time each night, and waking up at the same time each morning. You may rest better if the you can somehow lower the temperature in the room as the sun goes down, and also, gradually decrease the amount of light in your surroundings with the decrease in sunlight outdoors. Our bodies are prepared for sleep by lower temperatures and increasing darkness.
Opposite is true for the daytime wakeful hours.
Try to cut down to zilch on caffeine, but gradually. Still, a little bit of caffeine one time can sometimes relieve an oncoming headache if caught early enough -- very individual thing though, so may not help you.
About the OJ thing, a hairdresser of my mom's told me that a friend told her that when she would feel a migraine coming on, she would put a bunch of table sugar into a glass of OJ, and drink it, and the headache would go away. Hairdresser said she was always able to get rid of hers that way after she tried it. It struck me funny as I had discovered the OJ all by itself before she told me this. I wouldn't throw all that sugar in mine, that's for sure, as OJ already has too much sugar in it. Would think that in a couple of hours, she'd have big time hypoglycemia after ingesting all that sugar!
Speaking of hypoglycemia, after eating lots of carbs/ candy, etc. without protein, do you get all weak and shakey in roughly a couple of hours afterwards? It seems as though hypoglycemia may cause people to have headaches sometimes, but I'm not sure about that for the moment.
In terms of hormones, I think it helped once I went on the patch as opposed to oral forms of hormones because they don't have to be put on everyday, and probably give a smoother delivery than the pill form, thus reducing the up and down fluctuations in blood level. This wasn't the cure all, by any means, but back then, any little thing was better than nothing. Of course, if I forget to change the patch on time, that's another story! Ha!
Do you follow the ozone levels in the weather report where you are? We just got one of the high efficiency A/C systems installed in our house, and I think the air purifying system emits a very small amount of ozone as allowed by law. I know that when ozone is unusually high it always has a definite effect on how much labor I can do, particularly outdoors. I wonder if perhaps that might also have set me up for headaches? During elevated ozone, it's always a good idea to stay indoors and take it easy til it passes, anyway.
In terms of stress reduction, I'm sure there's lots of good help available, but a certain amount is inevitable.
I think that the recommendation is that anyone with autoimmunity should probably be monitored for other autoimmune diseases including celiac disease, so maybe doing a repeat blood test for that every year or so might be a good idea.
I've heard that Dr. Fasano at Univ. of Maryland has a new, more sensitive blood test, but I'm not sure when it will be available through labs like Quest, for instance. I think that lots of insurance companies contract with Quest laboratories.
Also, if it takes a while for Dr.Fasano's upgrade to be widely available, Promethius laboratory seems to be the most respected of labs for doing the blood testing. I believe that they are working out the kinks in an arrangement that will allow Quest to draw the blood at their blood draw stations and send them on to Promethius. They will, of cours, be able to charge a small fee for drawing the blood, but not for the test itself, but insurance should take care of it, after deductible, of course.
The only other well respected for their blood tests for this condition is Mayo Clinic's lab.
My sister had to contact Premethius and get the kits directly from them in order to do screening of her patients for celiac disease, but I assume when/if the new arrangement with Quest and that lab occurs, that will make it just like any other patient they send to the lab as far as patient and doc are concerned -- Quest will have the kits at their location.
You know that Quest wouldn't be willing to do this if they weren't anticipating a big upswing in the amount of screening for this condition. It's just been a big blind spot in the USA's medical system as compared to Europe, possibly due to the fact that UC and Crohn's have just had more appeal for young researchers for a number of decades now.
Also, the pharmaceutical companies don't have any reason to pay for research that doesn't involve meds, and that's how so much of our research is funded -- by drug companies, soo..
Anyway, I've run out of soap. Bet you are glad! Yours, Luce
Hope my memory is not failing me, but I think that the first one I might've taken was Maxalt-MLT 10 mg "orally disintegrating tablets." Think they have some that are just regular tablets, but I had to have these under-the-tongue kind since I'd wake up with them when it was too late to keep the regular oral ones from coming right back up when I would inevitably vomit. With the dissolving ones, I could usually head off the nausea and therefore, the vomiting in a half hour if I remember correctly. Usually, I could just go straight to sleep, and wake up feeling better than ever, and even hungry.
Think the doc said that Zomig of this same dissolving type worked better for lots of people, but it worked slower for me, or else it was just that my migraines were changing and that was what made the difference that I noticed.
(Reason for changing was that I had samples for the Zomig. Ha! It would eventually work, just not as dramatically.)
Maybe I tried some others, but I can't remember now. I'm sure you've probably been through the formulary as far as most of these common meds, so this is probably not much help to you at this point.
Forgive me for not being able to recall, but have you tried any of the antidepressants that are given as a preventative for migraines on a daily basis? I have heard that that works for some people related to their brain chemistry.
Seems as though you and I experienced all the same triggers -- barometric pressure, excitotoxins, hormones, etc., and don't forget the ever present stress factor. Were yours ever related to a sharp change in your sleep-wake pattern? It's kind of hard to figure this one since this kind of change is often associated with stress, and is in itself stressful enough.
I used to follow the weather reports fairly closely, and I noticed that it wasn't just an ordinary drop in barometric pressure always, so what I, at that time, theorized was that there was rapid shifting of barometric pressures such that the adaptive response in my brain couldn't keep up with the rapidness of the changes up and down.
This was the only way that I could rationalize the fact that barometric pressure was only a trigger some of the time. At that time, I knew lots more about the physiological chances that were happening in the brain at the time of a migraine -- like changes in blood flow, for example. Also,my BPs would always shoot way up during these migraines.
Since you are trying to control your symptoms with meds, perhaps one thing you could try would be finding a specialist who might be an expert in helping to balance your hormones a little better, but make sure they are legit. I'm not sure which speciality would be most likely to have such an expert, however.
Do you have one of those so-called "Centers of Excellence" type medical facilities that deals with migraines anywhere close enough for you to see one of their doctors? These are the university affiliated centers where cutting edge research is ongoing. There are usually only a hand full of these centers around North America for any given condition, but they tend to be fairly well distributed geographically.
If at all possible, try to get enough sleep, but never too much, going to bed at exactly the same time each night, and waking up at the same time each morning. You may rest better if the you can somehow lower the temperature in the room as the sun goes down, and also, gradually decrease the amount of light in your surroundings with the decrease in sunlight outdoors. Our bodies are prepared for sleep by lower temperatures and increasing darkness.
Opposite is true for the daytime wakeful hours.
Try to cut down to zilch on caffeine, but gradually. Still, a little bit of caffeine one time can sometimes relieve an oncoming headache if caught early enough -- very individual thing though, so may not help you.
About the OJ thing, a hairdresser of my mom's told me that a friend told her that when she would feel a migraine coming on, she would put a bunch of table sugar into a glass of OJ, and drink it, and the headache would go away. Hairdresser said she was always able to get rid of hers that way after she tried it. It struck me funny as I had discovered the OJ all by itself before she told me this. I wouldn't throw all that sugar in mine, that's for sure, as OJ already has too much sugar in it. Would think that in a couple of hours, she'd have big time hypoglycemia after ingesting all that sugar!
Speaking of hypoglycemia, after eating lots of carbs/ candy, etc. without protein, do you get all weak and shakey in roughly a couple of hours afterwards? It seems as though hypoglycemia may cause people to have headaches sometimes, but I'm not sure about that for the moment.
In terms of hormones, I think it helped once I went on the patch as opposed to oral forms of hormones because they don't have to be put on everyday, and probably give a smoother delivery than the pill form, thus reducing the up and down fluctuations in blood level. This wasn't the cure all, by any means, but back then, any little thing was better than nothing. Of course, if I forget to change the patch on time, that's another story! Ha!
Do you follow the ozone levels in the weather report where you are? We just got one of the high efficiency A/C systems installed in our house, and I think the air purifying system emits a very small amount of ozone as allowed by law. I know that when ozone is unusually high it always has a definite effect on how much labor I can do, particularly outdoors. I wonder if perhaps that might also have set me up for headaches? During elevated ozone, it's always a good idea to stay indoors and take it easy til it passes, anyway.
In terms of stress reduction, I'm sure there's lots of good help available, but a certain amount is inevitable.
I think that the recommendation is that anyone with autoimmunity should probably be monitored for other autoimmune diseases including celiac disease, so maybe doing a repeat blood test for that every year or so might be a good idea.
I've heard that Dr. Fasano at Univ. of Maryland has a new, more sensitive blood test, but I'm not sure when it will be available through labs like Quest, for instance. I think that lots of insurance companies contract with Quest laboratories.
Also, if it takes a while for Dr.Fasano's upgrade to be widely available, Promethius laboratory seems to be the most respected of labs for doing the blood testing. I believe that they are working out the kinks in an arrangement that will allow Quest to draw the blood at their blood draw stations and send them on to Promethius. They will, of cours, be able to charge a small fee for drawing the blood, but not for the test itself, but insurance should take care of it, after deductible, of course.
The only other well respected for their blood tests for this condition is Mayo Clinic's lab.
My sister had to contact Premethius and get the kits directly from them in order to do screening of her patients for celiac disease, but I assume when/if the new arrangement with Quest and that lab occurs, that will make it just like any other patient they send to the lab as far as patient and doc are concerned -- Quest will have the kits at their location.
You know that Quest wouldn't be willing to do this if they weren't anticipating a big upswing in the amount of screening for this condition. It's just been a big blind spot in the USA's medical system as compared to Europe, possibly due to the fact that UC and Crohn's have just had more appeal for young researchers for a number of decades now.
Also, the pharmaceutical companies don't have any reason to pay for research that doesn't involve meds, and that's how so much of our research is funded -- by drug companies, soo..
Anyway, I've run out of soap. Bet you are glad! Yours, Luce
-
artteacher
- Rockhopper Penguin
- Posts: 731
- Joined: Wed Aug 24, 2005 11:13 pm
.
Hi Maureen,
I was wondering if you have ever noticed any food triggers? I just ask because my son-in-law gets severe puking debilitating migraines triggered by MSG. It took him a long time to figure it out, but he's cut out campbell's soups, ice creams, and all other kinds of things that contain it, and the headaches are pretty rare now.
Love, Marsha
I was wondering if you have ever noticed any food triggers? I just ask because my son-in-law gets severe puking debilitating migraines triggered by MSG. It took him a long time to figure it out, but he's cut out campbell's soups, ice creams, and all other kinds of things that contain it, and the headaches are pretty rare now.
Love, Marsha
Marsha and Mo,
Marsha just reminded me that I read somewhere that not all MSG has to be reported on labels in food. This is because that some occurs "naturally." I forget how this happens, but I feel as though the producers know exactly what they are doing by setting up a system in which MSG will occur in food without them adding directly.
Seems to me like it has something to do with bacteria producing it in the product or something like that. Maybe I'm all wet, but I'll bet that Tex will remember how this happens.
My point is that it's possible to be getting MSG, even when you think your are getting something without it. Notice how sometimes you'll see a label that says, No ADDED MSG, instead of no msg, but I wouldn't even trust the ones that said, "no msg." It's just a sort of legal loophole, is all I really know.
Also, some Chinese chefs think a little won't hurt and will keep their food from tasting bland, so they'll sneak in a little, even though you've requested it without it. A Chinese chef friend of mine told me that MOST Chinese chefs think this way. Travel at your own perile!
Yours, Luce
Marsha just reminded me that I read somewhere that not all MSG has to be reported on labels in food. This is because that some occurs "naturally." I forget how this happens, but I feel as though the producers know exactly what they are doing by setting up a system in which MSG will occur in food without them adding directly.
Seems to me like it has something to do with bacteria producing it in the product or something like that. Maybe I'm all wet, but I'll bet that Tex will remember how this happens.
My point is that it's possible to be getting MSG, even when you think your are getting something without it. Notice how sometimes you'll see a label that says, No ADDED MSG, instead of no msg, but I wouldn't even trust the ones that said, "no msg." It's just a sort of legal loophole, is all I really know.
Also, some Chinese chefs think a little won't hurt and will keep their food from tasting bland, so they'll sneak in a little, even though you've requested it without it. A Chinese chef friend of mine told me that MOST Chinese chefs think this way. Travel at your own perile!
Yours, Luce
Wow, my fuzzy little brain is being overloaded......I guess I need to check with the board more often.
MSG in foods without knowing it scares me.....we have a garden and I like eating fresh veggies....
Icecream has MSG in it? I got a horrible migraine 2 weeks ago after eating an icecream sundae.....hmmmm
Maxalt: tried it, liked it but it became less effective over time.....
antidepressants: tried Elavil, Pamelor,Zoloft Prozac...had bad side effects
Tried:
Neurontin, Botox, Tenormin, Calan, Fiorcet, Maxalt, Relpax, Topamax, Zomig NS, Ultram, Lamictal, Zonegran, Percocet, Frova, Stadol NS, Amerge, Percocet, Vicodin.....
Had an MRI
Hypoglycemia? I actuall am very close to being pre-diabetic. My sugars are a little high: 100 (should be between 65-99) that was after being retested after being 149
Hormones? I am not a candidate because I had a couple "mini-strokes" when I was on birth control in my early 20's
Centers of Excellence? I've never heard of it....I'll have to see if there is one nearby.
Caffeine: I don't have any except for chocolate.....I get huge cravings right before a migraine is coming on....very strange.....I tried giving up chocolate but it didn't effect my headaches any so I added back into my little pleasures.
Thanks for all the advice!
Love,
Mo
MSG in foods without knowing it scares me.....we have a garden and I like eating fresh veggies....
Icecream has MSG in it? I got a horrible migraine 2 weeks ago after eating an icecream sundae.....hmmmm
Maxalt: tried it, liked it but it became less effective over time.....
antidepressants: tried Elavil, Pamelor,Zoloft Prozac...had bad side effects
Tried:
Neurontin, Botox, Tenormin, Calan, Fiorcet, Maxalt, Relpax, Topamax, Zomig NS, Ultram, Lamictal, Zonegran, Percocet, Frova, Stadol NS, Amerge, Percocet, Vicodin.....
Had an MRI
Hypoglycemia? I actuall am very close to being pre-diabetic. My sugars are a little high: 100 (should be between 65-99) that was after being retested after being 149
Hormones? I am not a candidate because I had a couple "mini-strokes" when I was on birth control in my early 20's
Centers of Excellence? I've never heard of it....I'll have to see if there is one nearby.
Caffeine: I don't have any except for chocolate.....I get huge cravings right before a migraine is coming on....very strange.....I tried giving up chocolate but it didn't effect my headaches any so I added back into my little pleasures.
Thanks for all the advice!
Love,
Mo
Mo,
Check this site for information on hidden sources of MSG:
http://www.truthinlabeling.org/hiddensources.html
Polly,
Maybe this is why you have problems with carrageenan.
Love,
Tex
Check this site for information on hidden sources of MSG:
http://www.truthinlabeling.org/hiddensources.html
Polly,
Maybe this is why you have problems with carrageenan.
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Wow, Wayne, this list certainly looks like a keeper! Wonder what's on the VERY sensitive list??
I did know that fermented things were a source -- including soy/tamari/fish/oyster/and I think, Worcheshire sauce. Probably left out something common, but would be suspicious of anything like these things, for sure. Oh yeah, I believe that Balsalmic vinegar could be a problem.
A garden would certainly be a good way to avoid some of this unneeded flavor enhancement. I envy you have fresh veggies within walking distance, Mo. I LOVE fresh veggies!
I'm sorry to hear that all the current meds aren't working for you. I'm assuming that you are still going through female cycles, so the hormones can still be triggers, as you well know. I never had the cravings for chocolate that you describe, but I've always heard that that was related to Serotonin levels. It might be interesting to take note of when those cravings occur in relation to your cycles.
I went a long time, like years, without any medication up until I was having these things at work all day, because I couldn't afford to wait them out. Dumb, I know, but I think that's why I was still able to get some benefit from medications when I would wake up with one at home until Dec. of '03 when I quit having them. These were the worst toward the end because I couldn't get relief after a few hours when I would finally vomit, and that would be that. Talk about being foggy all day -- yipes!
Also, if one started at work, I wouldn't have any of the quick-acting stuff on hand, and even if I had, I couldn't just go lie down somewhere and sleep it off. Eventually, I couldn't work any longer, and that was about the time that I was needed at home full time, soo..
I'm going to try to google "Centers of Excellence" with "migraines" and see if a list will come up. This isn't the name of a corporation, but rather academic centers where the primary research is done, and probably with lots of fed dollars invested as well.
Yours, Luce
I did know that fermented things were a source -- including soy/tamari/fish/oyster/and I think, Worcheshire sauce. Probably left out something common, but would be suspicious of anything like these things, for sure. Oh yeah, I believe that Balsalmic vinegar could be a problem.
A garden would certainly be a good way to avoid some of this unneeded flavor enhancement. I envy you have fresh veggies within walking distance, Mo. I LOVE fresh veggies!
I'm sorry to hear that all the current meds aren't working for you. I'm assuming that you are still going through female cycles, so the hormones can still be triggers, as you well know. I never had the cravings for chocolate that you describe, but I've always heard that that was related to Serotonin levels. It might be interesting to take note of when those cravings occur in relation to your cycles.
I went a long time, like years, without any medication up until I was having these things at work all day, because I couldn't afford to wait them out. Dumb, I know, but I think that's why I was still able to get some benefit from medications when I would wake up with one at home until Dec. of '03 when I quit having them. These were the worst toward the end because I couldn't get relief after a few hours when I would finally vomit, and that would be that. Talk about being foggy all day -- yipes!
Also, if one started at work, I wouldn't have any of the quick-acting stuff on hand, and even if I had, I couldn't just go lie down somewhere and sleep it off. Eventually, I couldn't work any longer, and that was about the time that I was needed at home full time, soo..
I'm going to try to google "Centers of Excellence" with "migraines" and see if a list will come up. This isn't the name of a corporation, but rather academic centers where the primary research is done, and probably with lots of fed dollars invested as well.
Yours, Luce
Hi Mo,
Luce asked me to post this link for her:
http://www.newtownbee.com/Health.asp?s= ... 5-30p1.htm
Love,
Tex
Luce asked me to post this link for her:
http://www.newtownbee.com/Health.asp?s= ... 5-30p1.htm
Love,
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
