Kaits Surgery!!!!!! AGAIN______

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barbaranoela
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Kaits Surgery!!!!!! AGAIN______

Post by barbaranoela »

OK----the surgery was a long one----Lynn is in awful shape--

This is what they did----and I no doubt will make an error along the way,so bear with me---(terminology wise)

First of all the shaved her head in patches??? For gods sake just shave it all off---

They ran a shunt from the ventricle in her head(which HarTer said they cant go there anymore) and then another shunt inside the lining of the brain---bringing the 2 to form the letter *Y*--then(put your hands @ the back of your neck---feel that bone there??? well they CUT out a chunk of the bone to attach the 2 shunts---thus Y----and the shunt runs down alongside the heart(my mistake) not in the heart---
Kait is in severe pain---cannot move her head--is on Dylautin,Oxycondon and something else---
Lynn is hysterical and she cant bear to see Kait in this condition ---this is no life and she really wishes she would pass on----and be relieved of all the misery that Kait has been thru these past 3 years~~~~
Neuros-----*we have to control Kaits pain* NO kidding!!!
They have a cath. in her so she can *P*

Lou is depressed---nasty and anything that goes wrong ITS my fault---
Right---right---understand!!! he is going thru a bad time in his own situation but Ill be damned if I will be blamed for ANYTHING that I didnt have a damn thing to do with~~~~~

Im a very angry person---as I am sure U can READ---I hate HarTer---and I dont know what to say to Lynn to comfort her!!!!

I cant focus on one thing---I misplace a dishtowel and I am hysterical--
I have reached the end----if the *MAN-upstairs* has a method for all this madness, I really would like to hear what it is!!!!!

And I know there are others WORSE off than my family but ya know what---I really dont give a crap!!!!!

with luv,
Barbara
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Post by Mars »

Aww Barb - I'm so sorry. Wish I could give you a big hug and take all your heartache away!

I will pray for Kait and Lynn. I can only imagine what your family is experiencing right now. My heart aches for you.

Take care of yourself! Louie is just taking his frustration out on you because you are THERE! Hug each other and have a good stomp your feet, cry!

Love ya Babe!
:pulsinghearts: :hug:
Mars
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Post by harvest_table »

Barbara,

We have big shoulders so rant, rave and dump all you want. We can take it - are here for you. Of coarse we are helpless to change the situation but can offer you love and support. Hope it helps.

So, how did the surgeons think the surgery went and what is her prognosis for recovery time? You sounded optomistic in an earlier post about this procedure. I hope you have been given positive news.

Must be awful trying to deal with Lynn and Louie on top of your own heartache. You sound pretty angry. Here's a hug.

Love,
Joanna
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tex
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Post by tex »

Hi Barbara,

That was some pretty serious surgery, alright, no question about it, but we all knew that Kait needed something drastic to bring her some long-term relief. Time will tell, but hopefully this will be a turning point. I'm sure that she'll have to endure a lot of painful days, before she sees some benefits, but she's a fighter, and she'll be ok.

It's very hard on everyone involved, but the toughest part is over. Now she just needs to heal. You all need to heal. Hopefully we can help you with that.

:grouphug:

We love ya, Barbara,

Tex
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Post by starfire »

Oh, Barbara

I think you know that if any of us could help relieve the pain you and your family are going through - we would do it in a heartbeat.

We are all :cry: with you, and certainly understand your anger. :hissyfit:

Much :pulsinghearts: and Many :hug:
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TendrTummy
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Oh Barbara...

Post by TendrTummy »

Oh Barbara, I'm so sorry you have to endure this.. I really hope this is the last time..

I've walked my son (now 6) into surgery 2 times in my life, and there is no more barren feeling than the helplessness you feel when watching them be wheeled away.. your only comfort is that they won't remember because of the sedation.. There are really no words that would comfort at a time like this.. usually it's a relief to SEE them and be near them afterward.. I hope she wakes up soon and you can see that she's going to make it.. and get *better*.. all the tubes and bandages look pretty intimidating, but it will get better..

Anyway, it's no comfort, but noone else can empathize, so I'll tell you that *now* I get that "barren feeling" whenEVER the kids get hurt.. He came up to me 2 weeks ago and started wiggling his front tooth, and I got those pangs all thru my body..... *yeeeesh*...

Anyway, hugs to you.. we're hoping for the best!!!!!

Love,
Christine
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Post by Umber »

I am so sorry that your family has had so much to deal with. I am keeping you in my prayers. God bless you all!

Love,

Lori
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Post by Babci »

Oh Barb

I am so very sorry. They probably can't keep her too sedated so they can monitor her mental state. They are probably walking a fine line with the pain meds. She's probably scared too which will make the pain worse. I would be so angry too if I were you. You are a great mom & grandmon & wife & evryone is lucky to have you. When wil they know more? Hang in there honey. You are all in my thoughts & continue to send especially Kait healing light. Love & light, Rita
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Post by JJ »

((((((((((Barbara))))))))))))) hugs and prayers are on the way...Love, JJ
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Post by MaggieRedwings »

Barbara,

Lou only takes it out on you because you are there but you know he loves you so.

I truely hope this is the turning point and I still want to see Harter get his due - he has bungled this for so long. Kait can't give up and Lynn has to be there in a positive fashion to support her.

My and Frank's prayers are with you always and you know we love and care so much for all of you.

Love, Maggie
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Post by Polly »

(((((Sisbarb)))))

How I wish that could be a REAL hug. The last few years have just been hell for you and your family. You have every right to feel the way you do. It HAS to get better........ For one family to cope with this kind of stress for years on end without any relief in sight is incredible. I honestly don't know how you've held it all together the way you have. You are one special person, dear friend, and I am hurting with you.

Love,

Polly
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Post by jenilake »

Barbara,

I really wish there was something I could do to help you with all of this. I have been praying and will continue to. This is just more tnen one family should have to go through. I think the stress is getting to all of you.

I'm hoping this operation has worked and when healed, the pain will stop.
I would be very angry too!

I hope you and Lou will get past the anger and give each other a hug.

I don't know what to say except, you can rant here all you want, we are all here for you!! I hope this is over for you soon!!

Love, KathyP :grouphug:
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Post by Alice »

Barbs,

I'll add my prayers and good wishes for everyone.....this is a horrific time for you. I'm so sorry you have to endure it. I know what it's like to feel helpless in your loved one's suffering.

Love,
Alice
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