Here are my Enterolab results:
A) Gluten Sensitivity Stool and Gene Panel Complete *Best test/best value
Fecal Antigliadin IgA 116 (Normal Range <10 Units)
Fecal Antitissue Transglutaminase IgA 64 Units (Normal Range <10 Units)
Quantitative Microscopic Fecal Fat Score <300 Units (Normal Range <300 Units)
Fecal anti-casein (cow’s milk) IgA antibody 130 Units (Normal Range <10 Units)
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 06xx
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,6)
C) Egg, Yeast, and Soy Food Sensitivity Stool Panel
Fecal anti-ovalbumin (chicken egg) IgA antibody 22 Units (Normal Range <10 Units)
Fecal Anti-Saccharomyces cerevisiae (dietary yeast) IgA 18 Units (Normal Range <10 Units)
Fecal Anti-Soy IgA 118 Units (Normal Range <10 Units)
I'm stunned. I tested positive for everything but the fecal fat score, which I already knew wasn't a problem because I haven't lost any weight.
I see my GI on Wednesday for a follow-up on the Entocort. I think I'll bring the Enterolab report and see what he says. His nurse told me I don't need to follow a GF diet because I tested negative for Celiac disease. She never heard of Dr. Fine.
Enterolab Results
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Enterolab Results
You never know what you can do until you have to do it.
Hi Gloria,
Wow! Your test results put you in an elite group of only a handful of people here, who are sensitive to such a long list of foods. To answer your question about the reliability of the tests: As far as we can tell, the fecal tests at Enterolab are extremely accurate. Unless your sample somehow got mixed up with someone else's, or somehow became contaminated, it's extremely likely that your results are correct. And, of course, it's highly unlikely that it might have been mixed up with someone else's, or contaminated.
The fact that your nurse has never heard of Dr. Fine, is to be expected. I would be surprised if your doctor ever heard of him, either. Our experience has been that only the most "cutting edge" GI docs are aware of Dr. Fines research, since most of it hasn't yet been published in the mainstream medical journals that most doctors read. The GI docs who are the most successful at treating MC patients, are very familiar with Dr. Fine's work.
Please don't be discouraged. Now that you know exactly what you're up against, you can lay out a treatment program without wondering and worrying whether or not it will work. Most MIs, (Multiply Intolerant MCers), eat meat for breakfast, along with maybe some fruit, or a veggie or two.
There are various GF cereals that will work, also, though casein intolerance makes it a little tougher to use them. I would suggest that you find a HF store, (Health Food store), that sells Hempmilk, (made by Living Harvest). Hempmilk is the best alternative to cows milk, and it's healthier, also. It's aseptically packaged, so it has a great shelf life, (like 9 or 10 months), without refrigeration, (you need to refrigerate it after you open it). You can also order it on-line, by the case, and that's what I do. I especially like the vanilla flavored version. I can tolerate casein these days, but I use Hempmilk instead of cows milk. Most of the other milk alternatives, contain soy. If I recall correctly, even the Almond milks that I looked at contained some soy.
Arrowhead Mills makes an organically certified, gluten free, soy free, and all your other intolerances free, cereal called Organic Sweetened Rice Flakes, and it is my standard choice on the mornings when I eat cereal. Together with Hempmilk, it makes a very tasty, very nutritious, and very satisfying breakfast. There are some GF corn flakes on the market, but I feel obligated to mention that most of the MIs in this group, are also intolerant to corn, so those cereals might not work for you. Be aware that corn is more difficult to avoid than gluten - corn derivatives are in almost every processed food available.
It can be done though, and there are a number of members of this board who have the same intolerances as you, (plus a few more), who lead normal, (other than their diets), lives. One is a doctor, and one now runs marathons, to give a couple of examples of success stories. Neither one of them have ever taken any meds to control the MC - they do it by diet alone. There's nothing wrong with taking Entocort, though, to help to speed up the healing process. In fact, if Entcort works really well for you, it might be possible to continue eating some of your intolerances, without showing any symptoms, though the jury is still out on whether or not that is a good long-term practice.
When you show the test results to your GI doc, be aware that there are quite a few GI docs out there who categorically deny the validity of stool tests, because they are unfamiliar with them, so don't be surprised if your doc tells you that those tests were a waste of money. Ignorance and conceit abound in the medical profession, (just as they do in every other profession).
Tex
P S After your gut heals, you might be able to reintroduce to your diet, some of the foods that you are currently intolerant to. For example, at one time, I was also intolerant to corn, casein, and most fruits and vegetables, but I can eat them without any problems now.
Wow! Your test results put you in an elite group of only a handful of people here, who are sensitive to such a long list of foods. To answer your question about the reliability of the tests: As far as we can tell, the fecal tests at Enterolab are extremely accurate. Unless your sample somehow got mixed up with someone else's, or somehow became contaminated, it's extremely likely that your results are correct. And, of course, it's highly unlikely that it might have been mixed up with someone else's, or contaminated.
The fact that your nurse has never heard of Dr. Fine, is to be expected. I would be surprised if your doctor ever heard of him, either. Our experience has been that only the most "cutting edge" GI docs are aware of Dr. Fines research, since most of it hasn't yet been published in the mainstream medical journals that most doctors read. The GI docs who are the most successful at treating MC patients, are very familiar with Dr. Fine's work.
Please don't be discouraged. Now that you know exactly what you're up against, you can lay out a treatment program without wondering and worrying whether or not it will work. Most MIs, (Multiply Intolerant MCers), eat meat for breakfast, along with maybe some fruit, or a veggie or two.
There are various GF cereals that will work, also, though casein intolerance makes it a little tougher to use them. I would suggest that you find a HF store, (Health Food store), that sells Hempmilk, (made by Living Harvest). Hempmilk is the best alternative to cows milk, and it's healthier, also. It's aseptically packaged, so it has a great shelf life, (like 9 or 10 months), without refrigeration, (you need to refrigerate it after you open it). You can also order it on-line, by the case, and that's what I do. I especially like the vanilla flavored version. I can tolerate casein these days, but I use Hempmilk instead of cows milk. Most of the other milk alternatives, contain soy. If I recall correctly, even the Almond milks that I looked at contained some soy.
Arrowhead Mills makes an organically certified, gluten free, soy free, and all your other intolerances free, cereal called Organic Sweetened Rice Flakes, and it is my standard choice on the mornings when I eat cereal. Together with Hempmilk, it makes a very tasty, very nutritious, and very satisfying breakfast. There are some GF corn flakes on the market, but I feel obligated to mention that most of the MIs in this group, are also intolerant to corn, so those cereals might not work for you. Be aware that corn is more difficult to avoid than gluten - corn derivatives are in almost every processed food available.
It can be done though, and there are a number of members of this board who have the same intolerances as you, (plus a few more), who lead normal, (other than their diets), lives. One is a doctor, and one now runs marathons, to give a couple of examples of success stories. Neither one of them have ever taken any meds to control the MC - they do it by diet alone. There's nothing wrong with taking Entocort, though, to help to speed up the healing process. In fact, if Entcort works really well for you, it might be possible to continue eating some of your intolerances, without showing any symptoms, though the jury is still out on whether or not that is a good long-term practice.
When you show the test results to your GI doc, be aware that there are quite a few GI docs out there who categorically deny the validity of stool tests, because they are unfamiliar with them, so don't be surprised if your doc tells you that those tests were a waste of money. Ignorance and conceit abound in the medical profession, (just as they do in every other profession).
Tex
P S After your gut heals, you might be able to reintroduce to your diet, some of the foods that you are currently intolerant to. For example, at one time, I was also intolerant to corn, casein, and most fruits and vegetables, but I can eat them without any problems now.
Wayne, I appreciate your persistent willingness to help people understand this problem. I'm amazed that so many people on this site are still encouraging and advising people long after they have become asymptomatic. Thank you for not abandoning newbies.
My plan to use substitutions isn't going to work as well with all these intolerances. I am lucky to live in an area with many grocery store options. I'll investigate your recommendation for Hempmilk. I was just at a store that had an entire wall lined with milk alternatives. I thanked my lucky stars that I didn't need to look at them.
I guess my daily yogurt at lunch is out of the question. I've read other places that sometimes people who are lactose intolerant can digest yogurt, but I don't know if that applies in my case.
I'm also wondering about the eggs. Is it the entire egg that's a problem, or can I consume egg whites?
My plan to use substitutions isn't going to work as well with all these intolerances. I am lucky to live in an area with many grocery store options. I'll investigate your recommendation for Hempmilk. I was just at a store that had an entire wall lined with milk alternatives. I thanked my lucky stars that I didn't need to look at them.
I guess my daily yogurt at lunch is out of the question. I've read other places that sometimes people who are lactose intolerant can digest yogurt, but I don't know if that applies in my case.I'm also wondering about the eggs. Is it the entire egg that's a problem, or can I consume egg whites?
You never know what you can do until you have to do it.
I can't speak for anyone else, but the main reason that I stick around and try to help, is because I will never forget the hopeless feeling that I had, when I was getting sicker and sicker, as the months and years went by, and the doctors couldn't find anything wrong with me, and I couldn't find anyone else who had the same symptoms. When I eventually stumbled across the old board, which then consisted of many of the members here, my first thought was, "Wow! These people are just like me!", and I knew I had finally found a source for the answers that I had been seeking for so long.
Regarding the yogurt: All dairy products contain casein, so cheese, butter, yogurt, and similar products, which can be made low in lactose, or even lactose free, are off limits for those of us who are casein intolerant. It's the proteins in certain foods that cause our problems, (although sugars, such as lactose, are often secondary problems, which may disappear after the gut heals, due to enzyme production deficiencies caused by intestinal damage, that can be attributed to gluten and/or other food intolerances). In fact, on a molecular basis, most of the proteins to which MIs are intolerant, have very similar characteristics. These include gluten, (in wheat), secalin, (in rye), hordein, in (barley), casein, (in dairy products), zein, (in corn), and avenin, (in oats), to name a few. Casein intolerance often leads to what we refer to as "battery acid D". It's not that you can't digest yogurt, but that the casein will trigger an inflammation response in your intestine.
The egg white test only checks for antibodies to the most prevalent protein in egg whites - the reasoning being that if one is intolerant to the most common protein, then that food is probably a lost cause, anyway. Egg yolk contains two proteins, vitellin, which comprises roughly 75 to 80% of the protein content of the yolk, and is a phosphoprotein similar to casein, and livetin. Since it is similar to the structure of casein, that makes it a suspect item. IOW, it's possible that you might be able to tolerate the yolks, (if you can separate them cleanly), but there's a fair chance that you may also be intolerant of one of the proteins in the yolk, particularly the vitellin.
Also, bear in mind that gluten is usually the worst offender, and most likely to cause longer-term intestinal damage, whereas reactions from most other food intolerances will clear up much more quickly, in case you accidentally ingest them. Since your test didn't show any significant residual intestinal damage, (fecal fat score below 300), you may not be as prone to longer-term intestinal damage from gluten, as some of us are. For example, it took me a long time to figure out that gluten was the problem, (at least, the main one), and so I was sick for a couple of years before going GF. Almost three years later, a fecal fat test showed that I still had a little residual intestinal damage, (though I was symptom free, long before that, of course).
Tex
Regarding the yogurt: All dairy products contain casein, so cheese, butter, yogurt, and similar products, which can be made low in lactose, or even lactose free, are off limits for those of us who are casein intolerant. It's the proteins in certain foods that cause our problems, (although sugars, such as lactose, are often secondary problems, which may disappear after the gut heals, due to enzyme production deficiencies caused by intestinal damage, that can be attributed to gluten and/or other food intolerances). In fact, on a molecular basis, most of the proteins to which MIs are intolerant, have very similar characteristics. These include gluten, (in wheat), secalin, (in rye), hordein, in (barley), casein, (in dairy products), zein, (in corn), and avenin, (in oats), to name a few. Casein intolerance often leads to what we refer to as "battery acid D". It's not that you can't digest yogurt, but that the casein will trigger an inflammation response in your intestine.
The egg white test only checks for antibodies to the most prevalent protein in egg whites - the reasoning being that if one is intolerant to the most common protein, then that food is probably a lost cause, anyway. Egg yolk contains two proteins, vitellin, which comprises roughly 75 to 80% of the protein content of the yolk, and is a phosphoprotein similar to casein, and livetin. Since it is similar to the structure of casein, that makes it a suspect item. IOW, it's possible that you might be able to tolerate the yolks, (if you can separate them cleanly), but there's a fair chance that you may also be intolerant of one of the proteins in the yolk, particularly the vitellin.
Also, bear in mind that gluten is usually the worst offender, and most likely to cause longer-term intestinal damage, whereas reactions from most other food intolerances will clear up much more quickly, in case you accidentally ingest them. Since your test didn't show any significant residual intestinal damage, (fecal fat score below 300), you may not be as prone to longer-term intestinal damage from gluten, as some of us are. For example, it took me a long time to figure out that gluten was the problem, (at least, the main one), and so I was sick for a couple of years before going GF. Almost three years later, a fecal fat test showed that I still had a little residual intestinal damage, (though I was symptom free, long before that, of course).
Tex
My new GI doctor, actually is was his PA, said they were most concerned with the gluten because it causes damage. The others may give undesirable symptoms but don't actually damage like gluten. We're in this together, Gloria. I have almost the same intolerances as you with the exception of the eggs. But I also have tested intolerant to fructose. I think they think that will resolve when the inflammation is resolved. I hope! And it would be nice if some of the others resolved too! Hope is out there and people like Tex give us hope!!!!! Thanks again, Tex.
Pat
Pat
Hi Gloria!
Welcome to the MI (multiply intolerant) club. Dubious honor, I know.
I believe I have the same genetic pattern as you do, and I was the first one here to have MANY intolerances.
I will be more than happy to listen, share recipes, etc., as you follow the path to wellness. And you WILL get there. I have been in remission now for almost 5 years on diet alone, so please don't give up hope.
If you haven't already, you may want to get Cordain's book on the Paleo Diet. This diet is PERFECT for us MIs (and is probably one of the healthiest ways anyone can eat.).
Hang in there. Better times ahead.
Love,
Polly
Welcome to the MI (multiply intolerant) club. Dubious honor, I know.
I believe I have the same genetic pattern as you do, and I was the first one here to have MANY intolerances.
I will be more than happy to listen, share recipes, etc., as you follow the path to wellness. And you WILL get there. I have been in remission now for almost 5 years on diet alone, so please don't give up hope.
If you haven't already, you may want to get Cordain's book on the Paleo Diet. This diet is PERFECT for us MIs (and is probably one of the healthiest ways anyone can eat.).
Hang in there. Better times ahead.
Love,
Polly
Blessed are they who can laugh at themselves, for they shall never cease to be amused.
Yes, Polly, I suspect we have similar genetic patterns, too. Especially after both reacting to Pepto-Bismol. I checked out the Paleo diet book last week, but just skimmed it. Now that I know I'm MI, I'll check it out again and read it more closely.
I haven't mentioned my daughter's problems. She was diagnosed with IBS ten years ago after returning from living in Brazil for 18 months. I always thought she had a parsite that they never found. But now I'm suspecting that she has MC. She says she notices that she has an instant reaction when she eats pasta with a cheese sauce. Her diet isn't great: lots of pasta and candy - little meat, fresh fruit or vegetables. She also has Polycystic Ovary disease and has had Invitro for both her pregnancies. She's three months pregnant now. She hates rice ever since she lived in Brazil, where she had a steady diet of it. Though she was thin all her childhood, she's probably gained over 75 lbs. in the last 10 years. She says she'll diet after the baby is born. Her sister, her dad and I are all normal weight.
Her 2 1/2 year-old daughter is very thin and has never really registered on the weight charts. Her stools are always loose, though my daughter says she occasionally has a solid one. She's had testing, but they can't find anything unusual. The pediatrician no longer worries about her weight because she's developing normally. Would they have tested for malabsorbtion, or is that unique to Enterolab? She's not a fussy eater, but she doesn't eat a lot. She won't sit still very long. She's developing normally, but she's average in height while her mom is 5'7" and her dad is over 6'.
I think my daughter is suspecting that she and her daughter have MC, too. I've offered to pay for her to be tested, but but she's not interested in eating differently, so she doesn't see the point. She's visiting me this week and thinks I'm crazy to be eating this way. I'm telling her that she could get colon cancer. Her dad has type II diabetes, another potential problem for her. Those with adult children know that they don't take kindly to their parent's advice anymore.
Does anyone else have adult children that you suspect have MC? Have you been able to get them to change their diets?
I haven't mentioned my daughter's problems. She was diagnosed with IBS ten years ago after returning from living in Brazil for 18 months. I always thought she had a parsite that they never found. But now I'm suspecting that she has MC. She says she notices that she has an instant reaction when she eats pasta with a cheese sauce. Her diet isn't great: lots of pasta and candy - little meat, fresh fruit or vegetables. She also has Polycystic Ovary disease and has had Invitro for both her pregnancies. She's three months pregnant now. She hates rice ever since she lived in Brazil, where she had a steady diet of it. Though she was thin all her childhood, she's probably gained over 75 lbs. in the last 10 years. She says she'll diet after the baby is born. Her sister, her dad and I are all normal weight.
Her 2 1/2 year-old daughter is very thin and has never really registered on the weight charts. Her stools are always loose, though my daughter says she occasionally has a solid one. She's had testing, but they can't find anything unusual. The pediatrician no longer worries about her weight because she's developing normally. Would they have tested for malabsorbtion, or is that unique to Enterolab? She's not a fussy eater, but she doesn't eat a lot. She won't sit still very long. She's developing normally, but she's average in height while her mom is 5'7" and her dad is over 6'.
I think my daughter is suspecting that she and her daughter have MC, too. I've offered to pay for her to be tested, but but she's not interested in eating differently, so she doesn't see the point. She's visiting me this week and thinks I'm crazy to be eating this way. I'm telling her that she could get colon cancer. Her dad has type II diabetes, another potential problem for her. Those with adult children know that they don't take kindly to their parent's advice anymore.
Does anyone else have adult children that you suspect have MC? Have you been able to get them to change their diets?
Hi Gloria and welcome to our family!
I have two girls who seem to have bowel problems, very similar to mine. My grandmother and mother both had problems and both of my sisters do too. I firmly believe that it runs in the family.
On another note, I don't believe that MC can lead to Colon Cancer but polyps (which I have had removed) can. I hope others can back up that thought.
Good luck on your progress to better health. We have so many here that are in recovery so there is hope!
Love,
Mars
I have two girls who seem to have bowel problems, very similar to mine. My grandmother and mother both had problems and both of my sisters do too. I firmly believe that it runs in the family.
On another note, I don't believe that MC can lead to Colon Cancer but polyps (which I have had removed) can. I hope others can back up that thought.
Good luck on your progress to better health. We have so many here that are in recovery so there is hope!
Love,
Mars
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
I had an inflammatory polyp removed at my last colonoscopy. They were not concerned with it. It was not the same thing as a regular polyp that leads to colon cancer.
So far our children don't seem to have symptoms but we may some day have them tested if they want to, they are grown also. Can't make 'em! Know what you mean, Gloria, about them not taking kindly to our advice. It's natural, I didn't either.
Pat
So far our children don't seem to have symptoms but we may some day have them tested if they want to, they are grown also. Can't make 'em! Know what you mean, Gloria, about them not taking kindly to our advice. It's natural, I didn't either.
Pat
[quote="tex"]Hi Gloria,
There are various GF cereals that will work, also, though casein intolerance makes it a little tougher to use them. I would suggest that you find a HF store, (Health Food store), that sells Hempmilk, (made by Living Harvest). Hempmilk is the best alternative to cows milk, and it's healthier, also. It's aseptically packaged, so it has a great shelf life, (like 9 or 10 months), without refrigeration, (you need to refrigerate it after you open it). You can also order it on-line, by the case, and that's what I do. I especially like the vanilla flavored version. I can tolerate casein these days, but I use Hempmilk instead of cows milk. Most of the other milk alternatives, contain soy. If I recall correctly, even the Almond milks that I looked at contained some soy.
Arrowhead Mills makes an organically certified, gluten free, soy free, and all your other intolerances free, cereal called Organic Sweetened Rice Flakes, and it is my standard choice on the mornings when I eat cereal. Together with Hempmilk, it makes a very tasty, very nutritious, and very satisfying breakfast. There are some GF corn flakes on the market, but I feel obligated to mention that most of the MIs in this group, are also intolerant to corn, so those cereals might not work for you. Be aware that corn is more difficult to avoid than gluten - corn derivatives are in almost every processed food available.
Hey Tex-
Do you feel comfortable buying Arrowhead Mills GF products? I know that they make flours with gluten in them. Do they have different facilities for their GF products? I thought we had a discusion one day about how you used to work in a mill and you had soemthing do with corn. Anyways you would run the blue corn through first and then clean it well and then run the yellow corn. You said that you would still see a some of the blue corn mixed in with the yellow. Now if that happens to corn and corn is much larger than a grain of wheat how would arrowhead mills know their products are GF? I am assuming that they test their products the same way Bobs Red Mill does... which if it contains less than 100 parts per million then it is tabbed GF.
Anyone had any trouble with arrowhead mills products?
Gloria-
Wow you are oneof the "lucky" few. Polly comes to mind as another lucky one and their is a young woman who eats paleolithic as well (I think she is the runner)- her oh yeah Ceclia?????
So you know what you are up against and it is not like it was even close! You were 100 points higher than the threshold in gluten and milk... wow! Mine were not as drastic as your results were but whatever you score does not mean you have "more" or "less" of the disease... either you have it or not. But the score certainly shows how sick you are.
Both of my GI docs shot down Dr Fine after I mentioned stool tests... well they werent able to find out what was wrong with me!!
It all started for me in 2005 (last semster in college) when I started to have mad D, cramps, etc etc DRs told me it was stress and stop stressing. Well I tried breathing, more activity etc, and while stress might have been magnifying the problem it was not the underlying cause. So finally after 4 months I got in for a C scope which found nothing at first. Then the biopsies showed ever so slight inflammation so my GI tabbed me with Ulcerative Colitis. Tried Asacol, enemas, colazal and none worked. Finally I got my GI to give me some Entocort and that helped the most besides the diet.
I finally found this website and wonderful people, and heard of Dr Fine. Took the tests (while on Entocort and asacol) and my results were positive for gluten and casein... gluten was like 40 and casien was like 18. Soy, yeast, eggs were all negative.
The diet will take some time to work so dont give up after a few months. While I noticed differences in the first few months they werent drastic until 8 or 9 months and still after one years and some change on the diet I still dont feel 100% but close (85%) and I will take that over the way I felt before. Since I think I hav ehad this since a child it will probably take a full 2 years to heal (much like Tex).
But because of this diet I am now riding a motorcycle, doing some hiking, playing competative baseball again in an adult league, eating more varities of foods- and overall enjoying life more.
But I still have ups and downs probably because I push myself into eating some things that I am probably not ready for.
There are various GF cereals that will work, also, though casein intolerance makes it a little tougher to use them. I would suggest that you find a HF store, (Health Food store), that sells Hempmilk, (made by Living Harvest). Hempmilk is the best alternative to cows milk, and it's healthier, also. It's aseptically packaged, so it has a great shelf life, (like 9 or 10 months), without refrigeration, (you need to refrigerate it after you open it). You can also order it on-line, by the case, and that's what I do. I especially like the vanilla flavored version. I can tolerate casein these days, but I use Hempmilk instead of cows milk. Most of the other milk alternatives, contain soy. If I recall correctly, even the Almond milks that I looked at contained some soy.
Arrowhead Mills makes an organically certified, gluten free, soy free, and all your other intolerances free, cereal called Organic Sweetened Rice Flakes, and it is my standard choice on the mornings when I eat cereal. Together with Hempmilk, it makes a very tasty, very nutritious, and very satisfying breakfast. There are some GF corn flakes on the market, but I feel obligated to mention that most of the MIs in this group, are also intolerant to corn, so those cereals might not work for you. Be aware that corn is more difficult to avoid than gluten - corn derivatives are in almost every processed food available.
Hey Tex-
Do you feel comfortable buying Arrowhead Mills GF products? I know that they make flours with gluten in them. Do they have different facilities for their GF products? I thought we had a discusion one day about how you used to work in a mill and you had soemthing do with corn. Anyways you would run the blue corn through first and then clean it well and then run the yellow corn. You said that you would still see a some of the blue corn mixed in with the yellow. Now if that happens to corn and corn is much larger than a grain of wheat how would arrowhead mills know their products are GF? I am assuming that they test their products the same way Bobs Red Mill does... which if it contains less than 100 parts per million then it is tabbed GF.
Anyone had any trouble with arrowhead mills products?
Gloria-
Wow you are oneof the "lucky" few. Polly comes to mind as another lucky one and their is a young woman who eats paleolithic as well (I think she is the runner)- her oh yeah Ceclia?????
So you know what you are up against and it is not like it was even close! You were 100 points higher than the threshold in gluten and milk... wow! Mine were not as drastic as your results were but whatever you score does not mean you have "more" or "less" of the disease... either you have it or not. But the score certainly shows how sick you are.
Both of my GI docs shot down Dr Fine after I mentioned stool tests... well they werent able to find out what was wrong with me!!
It all started for me in 2005 (last semster in college) when I started to have mad D, cramps, etc etc DRs told me it was stress and stop stressing. Well I tried breathing, more activity etc, and while stress might have been magnifying the problem it was not the underlying cause. So finally after 4 months I got in for a C scope which found nothing at first. Then the biopsies showed ever so slight inflammation so my GI tabbed me with Ulcerative Colitis. Tried Asacol, enemas, colazal and none worked. Finally I got my GI to give me some Entocort and that helped the most besides the diet.
I finally found this website and wonderful people, and heard of Dr Fine. Took the tests (while on Entocort and asacol) and my results were positive for gluten and casein... gluten was like 40 and casien was like 18. Soy, yeast, eggs were all negative.
The diet will take some time to work so dont give up after a few months. While I noticed differences in the first few months they werent drastic until 8 or 9 months and still after one years and some change on the diet I still dont feel 100% but close (85%) and I will take that over the way I felt before. Since I think I hav ehad this since a child it will probably take a full 2 years to heal (much like Tex).
But because of this diet I am now riding a motorcycle, doing some hiking, playing competative baseball again in an adult league, eating more varities of foods- and overall enjoying life more.
But I still have ups and downs probably because I push myself into eating some things that I am probably not ready for.
Dr Fine test shows positive for gluten and casien but negative for soy, eggs, and yeast
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Maybe its UC maybe its MC? Who knows at this point, but at least I know my intollerances now... so heres to the road to healing!
Andrew,
Well, I guess I have to say that yes, I'm comfortable buying Arrowhead Mills GF products. To be honest, I have no idea whether or not they use dedicated lines for various products. I suspect that some of the larger mills that process GF products, (such as Arrowhead Mills), are much more likely to use dedicated lines for certain products, than the smaller mills, but that's just a guess, and every company does things in what they consider to be the best way to go about it, (whatever that might be). I've never had any problems with their products, nor have I heard of anyone else who has had problems with their products. That doesn't mean that it can't happen tomorrow, though.
The safest plan would be to not use any products that contain any grain of any kind. Doing that cuts out a lot of variety in our diets, however. If I were aware of a line of grain-based products that I could be absolutely certain were 100% GF, I would buy them only - but in the imperfect world we live in, I think that is simply wishful thinking. If we're going to use grain-based products, the best we can do is to buy products with minimal amounts of gluten, that are regularly tested, and found to be within "safe" levels.
I suspect that the member you are thinking of, who does all the competitive running, is Karen, (username, moremuscle).
Tex
Well, I guess I have to say that yes, I'm comfortable buying Arrowhead Mills GF products. To be honest, I have no idea whether or not they use dedicated lines for various products. I suspect that some of the larger mills that process GF products, (such as Arrowhead Mills), are much more likely to use dedicated lines for certain products, than the smaller mills, but that's just a guess, and every company does things in what they consider to be the best way to go about it, (whatever that might be). I've never had any problems with their products, nor have I heard of anyone else who has had problems with their products. That doesn't mean that it can't happen tomorrow, though.
The safest plan would be to not use any products that contain any grain of any kind. Doing that cuts out a lot of variety in our diets, however. If I were aware of a line of grain-based products that I could be absolutely certain were 100% GF, I would buy them only - but in the imperfect world we live in, I think that is simply wishful thinking. If we're going to use grain-based products, the best we can do is to buy products with minimal amounts of gluten, that are regularly tested, and found to be within "safe" levels.
I suspect that the member you are thinking of, who does all the competitive running, is Karen, (username, moremuscle).
Tex