I'm still gathering info. since being diagnosed in August. A previous post talked about sinusitis, which I've had for years. Right now I'm having some TMJ discomfort (Temporomandibular joint disorder) and wondering if others with MC have it too?
Becky
TMJ anyone?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
TMJ anyone?
Becky
Becky
Many sources feel that their is a connection between TMJ and auto immune problems .
I had some problems early on in my recovery. The TMJ problems have never returned after introducing a gluten free, nightshade free, grain free, soy free diet.
Must admit I had a good deal of help from a little book called -
Taking Control of TMJ , Your Total Wellness Program For Recovering From Temporomandibular Joint Pain by Robert O. Uppgaard, D.D.S.
His approach is many faceted. Anything from past injuries, diet, stress, autoimmune problems and much more . I highly recommend the book if you chose to take your healing into your own hands.
My best
Matthew
Many sources feel that their is a connection between TMJ and auto immune problems .
I had some problems early on in my recovery. The TMJ problems have never returned after introducing a gluten free, nightshade free, grain free, soy free diet.
Must admit I had a good deal of help from a little book called -
Taking Control of TMJ , Your Total Wellness Program For Recovering From Temporomandibular Joint Pain by Robert O. Uppgaard, D.D.S.
His approach is many faceted. Anything from past injuries, diet, stress, autoimmune problems and much more . I highly recommend the book if you chose to take your healing into your own hands.
My best
Matthew
Becky
I hope other members would add to the list but for me the classic book on autoimmune recovery through diet is
Breaking the Vicious Cycle by Elaine Gottschall B.A., M.Sc.
Even if the diet she details was not the best for me it headed me in the right direction .
The first half of the book is worth ten times the price . Just for her analysis of how the digestive system works. A must read for anyone with digestive problems IMHO.
I can never forget Jax Peter Lowell and her light hearted look at diet in her book “Against the Grain”. Check her out
http://jaxlowell.com/docs/welcome.html
To your recovery
Matthew
I hope other members would add to the list but for me the classic book on autoimmune recovery through diet is
Breaking the Vicious Cycle by Elaine Gottschall B.A., M.Sc.
Even if the diet she details was not the best for me it headed me in the right direction .
The first half of the book is worth ten times the price . Just for her analysis of how the digestive system works. A must read for anyone with digestive problems IMHO.
I can never forget Jax Peter Lowell and her light hearted look at diet in her book “Against the Grain”. Check her out
http://jaxlowell.com/docs/welcome.html
To your recovery
Matthew
Becky
Here are two more.
D. Cordains Book “The Paleo Diet” he has great news letters. Find him here
http://www.thepaleodiet.com/
Dogtor J a veterinarian with lot of interesting stuff
http://dogtorj.tripod.com./
You will find good reads in the left hand column
The Answer
Nightshade Intolerance
What In the World do I Eat
Lectins
Food Intolerance's In Animals and Man
Viruses Friend or Foe
Matthew
Here are two more.
D. Cordains Book “The Paleo Diet” he has great news letters. Find him here
http://www.thepaleodiet.com/
Dogtor J a veterinarian with lot of interesting stuff
http://dogtorj.tripod.com./
You will find good reads in the left hand column
The Answer
Nightshade Intolerance
What In the World do I Eat
Lectins
Food Intolerance's In Animals and Man
Viruses Friend or Foe
Matthew
-
kate_ce1995
- Rockhopper Penguin
- Posts: 1321
- Joined: Wed May 25, 2005 5:53 pm
- Location: Vermont
I had major TMJ problems as a teenager. Now only occasionally, but as Matthew said, several here I believe have had problems with it. Mine mostly only flares up now after dental work...all that pressure on a wide open jaw.
I'll have to check that book out, Matthew. I wasn't aware of it before.
The paleo concept is pretty interesting too, Becky. I don't follow it strickly, but the longer I'm gluten free, the more I notice that I feel better without a lot of grain. I just started a new job and at both grocery stores in the town I work in now, they have nice gf sections, so I've been eating more grain based foods lately. Not to mention my gf stuffing for Thanksgiving, and my mom had made me a gf mac and cheese the night before when my sister got into town. And I'm feeling just a bit more bloated and blecky than usual. Of course it could just be because of the shear quantity of food I've eaten in the last 3 or 4 days!
Katy
I'll have to check that book out, Matthew. I wasn't aware of it before.
The paleo concept is pretty interesting too, Becky. I don't follow it strickly, but the longer I'm gluten free, the more I notice that I feel better without a lot of grain. I just started a new job and at both grocery stores in the town I work in now, they have nice gf sections, so I've been eating more grain based foods lately. Not to mention my gf stuffing for Thanksgiving, and my mom had made me a gf mac and cheese the night before when my sister got into town. And I'm feeling just a bit more bloated and blecky than usual. Of course it could just be because of the shear quantity of food I've eaten in the last 3 or 4 days!
Katy
Becky,
Yes, TMJ is definitely a part of the spectrum of autoimmune issues that often go along with MC. Not everyone with MC is affected, of course, but like many others here, while my symptoms were active, I had major problems with TMJ, (occasionally it was so bad that I could barely open my mouth wide enough to eat soup.
Once I achieved remission, it disappeared, and never returned, even though I've had numerous short-term reactions since then, due to slip-ups, and food tests that didn't work out the way I was hoping. I suspect that TMJ is just one of the many adverse symptoms of gluten sensitivity that are possible, but I suppose it could also be a result of the inflammatory process, regardless of the origin of inflammation.
Tex
Yes, TMJ is definitely a part of the spectrum of autoimmune issues that often go along with MC. Not everyone with MC is affected, of course, but like many others here, while my symptoms were active, I had major problems with TMJ, (occasionally it was so bad that I could barely open my mouth wide enough to eat soup.
Once I achieved remission, it disappeared, and never returned, even though I've had numerous short-term reactions since then, due to slip-ups, and food tests that didn't work out the way I was hoping. I suspect that TMJ is just one of the many adverse symptoms of gluten sensitivity that are possible, but I suppose it could also be a result of the inflammatory process, regardless of the origin of inflammation.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Becky
I hiked up into the foot hills this morning and snuggled into the rocks out of the wind at one of my favorite lunch spots with a thermos of soup and some fruit. Nothing like relaxing to think of one more idea.
Dr. Scot Lewy- The Food Doc.
Here is his Blog
http://www.thefooddoc.com/
Being in recovery has been about putting little bits and pieces together from lots of places. Then doing it again. And again.
So thankful for great past members turning me on to all this info.
In reality I am just bringing the cream to the top with these links that have been posted before.
I love the public library. What a resource. So pleased you found the beginning of some help through their resorces.
To your continued recovery.
Matthew
I hiked up into the foot hills this morning and snuggled into the rocks out of the wind at one of my favorite lunch spots with a thermos of soup and some fruit. Nothing like relaxing to think of one more idea.
Dr. Scot Lewy- The Food Doc.
Here is his Blog
http://www.thefooddoc.com/
Being in recovery has been about putting little bits and pieces together from lots of places. Then doing it again. And again.
So thankful for great past members turning me on to all this info.
In reality I am just bringing the cream to the top with these links that have been posted before.
I love the public library. What a resource. So pleased you found the beginning of some help through their resorces.
To your continued recovery.
Matthew
Hi there,
Nice to meet ya! I had bad TMJ pain before going gf, and other food-free.
Now, I don't have the clamping as hard at night, but I still have a little stiffness in the jaw with weather changes at times. Dental visits don't hurt back there now. I just had a 2 1/2 hour session -- complex fillings on two teeth on that side, one of which was at the very back, so something sure has improved. I still wear a night guard, and occasionally, the arthritis in the morning makes it difficult to open wide enough, even to get the little night guard out, but it loosens up quickly once I begin using the jaws for say, eating or talking.
Back in the 80's, I once had my jaws go "off track" and all I could eat was pasta and ice cream. Now, I would only be able to eat gf pasta, and no ice cream! Ha! Also, I talked funny, being unable to open my jaws very far. This condition went on for days, and one day, I just got into several awkward positions, and managed (with lots of luck) to work the jaws back into coordinating with each other once again. I now try to be really careful not to do anything with my jaws for which they were not designed, like try to make facial contortions like we used to do as children, for example.
My dental guard not only keeps my uppers and lowers off each other during the night, but also, keeps me from cracking the fillings and crown/s (can't remember now how many I have! Ha!)
Wish you the best.
Luce
Nice to meet ya! I had bad TMJ pain before going gf, and other food-free.
Now, I don't have the clamping as hard at night, but I still have a little stiffness in the jaw with weather changes at times. Dental visits don't hurt back there now. I just had a 2 1/2 hour session -- complex fillings on two teeth on that side, one of which was at the very back, so something sure has improved. I still wear a night guard, and occasionally, the arthritis in the morning makes it difficult to open wide enough, even to get the little night guard out, but it loosens up quickly once I begin using the jaws for say, eating or talking.
Back in the 80's, I once had my jaws go "off track" and all I could eat was pasta and ice cream. Now, I would only be able to eat gf pasta, and no ice cream! Ha! Also, I talked funny, being unable to open my jaws very far. This condition went on for days, and one day, I just got into several awkward positions, and managed (with lots of luck) to work the jaws back into coordinating with each other once again. I now try to be really careful not to do anything with my jaws for which they were not designed, like try to make facial contortions like we used to do as children, for example.
My dental guard not only keeps my uppers and lowers off each other during the night, but also, keeps me from cracking the fillings and crown/s (can't remember now how many I have! Ha!)
Wish you the best.
Luce