The other day while teaching kindergarten, I was standing up at the board, showing the students how to make stars. We were going to correct our papers. Suddenly, I felt like I'd better sit down. After correcting our papers, we went onto our science time and brainstormed what we knew about penguins. I recorded their answers. Later, as I reviewed their answers, I couldn't remember writing them. One answer was, "we know that penguins are sad because of global warning" - memorable, but I couldn't recall writing it. I couldn't remember correcting their papers with them either. The whole episode was probably 5 minutes or so and kind of spooked me. I'm curious if anyone else has experienced this. I found some articles with correlations to celiac disease on the internet.
Thanks,
Becky
Seizure activity?
Moderators: Rosie, Stanz, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Seizure activity?
Becky
I think the sad penguin thing is true. I saw a piece on TV that one species of penguin is already declining because their food sources are leaving the area of the ocean where the penquins nest, because of global warming.
Back to the original question--I think we all have had the experience of being somewhere and not knowing how we got there. Like work. You drive there everyday and sometimes unconsciously. (Not recommended, of course!) Maybe you just spaced out a bit, functioned on auto-pilot for a few minutes. Maybe?
Back to the original question--I think we all have had the experience of being somewhere and not knowing how we got there. Like work. You drive there everyday and sometimes unconsciously. (Not recommended, of course!) Maybe you just spaced out a bit, functioned on auto-pilot for a few minutes. Maybe?
kathy
I know what you're talking about... but this time, I knew it was going to happen - I needed to sit down and then I knew it was happening, and I couldn't snap out of it. It's hard to explain. I've read that it could have been a complex partial seizure. There are articles associating it with celiac...so many questions.....
Becky
Hi Becky,
I find your post to be very interesting, because yes, back when I was at the height of my reactions, (or the depths of my reactions, depending on how you look at it), I had a few episodes such as you describe, where I did things, and then couldn't remember doing them. At the time, I was so sick that I was hallucinating sometimes, when trying to sleep, and so I didn't think much of it. I just assumed that it was part of the brain fog and all the other problems. This was before I had any idea of what was causing the problem - gluten, of course.
I don't believe that we have ever discussed this issue before, however. We've previously talked about gluten ataxia, which is another result of the neurotoxin effects of gluten, but we've never discussed the response that you describe, that apparently originates in the occipital portion of the cerebellum.
This stuff is mostly off the radar for typical GI docs, (many of whom still don't even recognize that gluten sensitivity is even possible without a positive result to a classic celiac serum test), though, as you say, there is a moderate amount of literature on the net, describing the condition. Based on the research that has been done so far, it appears to me that there is probably a relatively significant percentage of the general population at risk for this condition, since a high percentage of known cases were/are assymptomatic to CD.
If I remember correctly, you have actually been diagnosed with CD. Right? I don't have a CD diagnosis, but I do have a celiac gene, and I have long suspected that I am indeed a celiac. I'll never know for sure, because my GI doc never looked for it, and I adopted the GF diet without trying to find another GI doc who knew what he was doing. After being so sick for so long, (several years), I'm not about to do a gluten challenge, either, just to get an "official" diagnosis.
Do you by any chance have any Italian genes in your background?
Tex
I find your post to be very interesting, because yes, back when I was at the height of my reactions, (or the depths of my reactions, depending on how you look at it), I had a few episodes such as you describe, where I did things, and then couldn't remember doing them. At the time, I was so sick that I was hallucinating sometimes, when trying to sleep, and so I didn't think much of it. I just assumed that it was part of the brain fog and all the other problems. This was before I had any idea of what was causing the problem - gluten, of course.
I don't believe that we have ever discussed this issue before, however. We've previously talked about gluten ataxia, which is another result of the neurotoxin effects of gluten, but we've never discussed the response that you describe, that apparently originates in the occipital portion of the cerebellum.
This stuff is mostly off the radar for typical GI docs, (many of whom still don't even recognize that gluten sensitivity is even possible without a positive result to a classic celiac serum test), though, as you say, there is a moderate amount of literature on the net, describing the condition. Based on the research that has been done so far, it appears to me that there is probably a relatively significant percentage of the general population at risk for this condition, since a high percentage of known cases were/are assymptomatic to CD.
If I remember correctly, you have actually been diagnosed with CD. Right? I don't have a CD diagnosis, but I do have a celiac gene, and I have long suspected that I am indeed a celiac. I'll never know for sure, because my GI doc never looked for it, and I adopted the GF diet without trying to find another GI doc who knew what he was doing. After being so sick for so long, (several years), I'm not about to do a gluten challenge, either, just to get an "official" diagnosis.
Do you by any chance have any Italian genes in your background?
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Hi Tex,
I haven't been diagnosed with CD yet, just MC. I actually had the serum test drawn yesterday so it will be interesting to see what they say. But as you put it, regardless, I'm pretty sure I can add it to MC. I know my back-up is the lab in Florida but I figure either way, I need to get off glutten.
Curious, I'm almost sure lactose is an enemy as well. I tried the Paleo diet for a week and felt the best I have in months. As I'm gearing up mentally to go gf, I'm wondering if I should stop lactose at the same time or just glutten and see how it goes? I'd like your opinion.
I'm thinking there's probably a bigger population here that have had similar "episodes" but didn't know to consider them a type of seizure. Most people equate seizures with the person with epilepsy on the floor. With my special ed. training, I was pretty sure right away that I was experiencing some type of seizure. The good news about the seizure activity and CD (from what I've read) is that once you stop the glutten, the seizures stop.
I don't know of any Italian genes. I'll ask.
Becky
I haven't been diagnosed with CD yet, just MC. I actually had the serum test drawn yesterday so it will be interesting to see what they say. But as you put it, regardless, I'm pretty sure I can add it to MC. I know my back-up is the lab in Florida but I figure either way, I need to get off glutten.
Curious, I'm almost sure lactose is an enemy as well. I tried the Paleo diet for a week and felt the best I have in months. As I'm gearing up mentally to go gf, I'm wondering if I should stop lactose at the same time or just glutten and see how it goes? I'd like your opinion.
I'm thinking there's probably a bigger population here that have had similar "episodes" but didn't know to consider them a type of seizure. Most people equate seizures with the person with epilepsy on the floor. With my special ed. training, I was pretty sure right away that I was experiencing some type of seizure. The good news about the seizure activity and CD (from what I've read) is that once you stop the glutten, the seizures stop.
I don't know of any Italian genes. I'll ask.
Becky
Becky
Not quite the same, but recently I have been having a lot more episodes like this. I'll think of something I need in the garage to get from the pantry to eat, walk into the garage and forget why I came in. I would know that I had to get something, but I couldn't remember what. I'd spend some time thinking about it and in most cases I'd recall what I was there to get, sometimes I wouldn't remember. :( I'm thinking it's related to getting my amalgams removed recently and thus mercury, but I wouldn't put it past die off or toxins from my bacterial overgrowth.
Though it only really seems to be affecting short term rather than longer term.
Mike
Though it only really seems to be affecting short term rather than longer term.
Mike
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barbaranoela
- Emperor Penguin
- Posts: 5394
- Joined: Wed May 25, 2005 6:11 pm
- Location: New York
Becky---my grandaughter Kait *knows* when a seizure is about to occur--
As she words it----(I get these aurors ) indicating somethings going on!!!!
I betcha it scared the heck otta U---and I hope U can find the answer to this issue--
luve Barbara
As she words it----(I get these aurors ) indicating somethings going on!!!!
I betcha it scared the heck otta U---and I hope U can find the answer to this issue--
luve Barbara
the fruit of the spirit is love, joy, peace, patience, kindness, goodness, faithfulness and self-control
Becky,
Apparently I was thinking of someone else with a CD diagnosis. Sorry for the mistake.
Many of us have found that we make much better progress with our recovery, if we stop eating all dairy products, when we adopt the GF diet. There are several reasons. The enteritis caused by the MC inflammation often/usually results in reduced enzyme production in the small intestine, and the first enzyme to go is always lactase, which means that lactose cannot be digested properly. In addition, many of us are casein intolerant, (casein is the protein in milk). Also, some authorities claim that the large amounts of betacellulin, (a heat-stable hormone), that is found in large concentrations in cow’s milk, can actually be detrimental to healing within the GI tract.
I was on the GF diet for almost a year and a half before I achieved remission - probably because I did not cut dairy products completely out of my diet until I had been GF for almost a year and a half. That was back before I found all the knowledgeable people who hang out here, (and my GI doc didn't have the foggiest idea what was wrong with me), so I had to fine tune my treatment program by trial and error.
I suspect you're probably correct about others here possibly having "mini" seizures that they didn't even recognize, or assign any significance to. Also, some members only check the board occasionally, and thereby overlook many posts that might pertain to them. I can recall one or two posts mentioning "siezure-like" episodes, in the past, but I don't recall enough of the details to be sure I could accurately relay them, and they were made by members who only occasionally log in, these days.
The only reason I mentioned the Italian background, is because one of the research articles that I read, which discussed the condition, mentioned that the incidence seems to be highest in Italy. And yes, I haven't had a recurrence since I've been in remission, so cutting gluten out of the diet is definitely the key.
Tex
Apparently I was thinking of someone else with a CD diagnosis. Sorry for the mistake.
Many of us have found that we make much better progress with our recovery, if we stop eating all dairy products, when we adopt the GF diet. There are several reasons. The enteritis caused by the MC inflammation often/usually results in reduced enzyme production in the small intestine, and the first enzyme to go is always lactase, which means that lactose cannot be digested properly. In addition, many of us are casein intolerant, (casein is the protein in milk). Also, some authorities claim that the large amounts of betacellulin, (a heat-stable hormone), that is found in large concentrations in cow’s milk, can actually be detrimental to healing within the GI tract.
I was on the GF diet for almost a year and a half before I achieved remission - probably because I did not cut dairy products completely out of my diet until I had been GF for almost a year and a half. That was back before I found all the knowledgeable people who hang out here, (and my GI doc didn't have the foggiest idea what was wrong with me), so I had to fine tune my treatment program by trial and error.
I suspect you're probably correct about others here possibly having "mini" seizures that they didn't even recognize, or assign any significance to. Also, some members only check the board occasionally, and thereby overlook many posts that might pertain to them. I can recall one or two posts mentioning "siezure-like" episodes, in the past, but I don't recall enough of the details to be sure I could accurately relay them, and they were made by members who only occasionally log in, these days.
The only reason I mentioned the Italian background, is because one of the research articles that I read, which discussed the condition, mentioned that the incidence seems to be highest in Italy. And yes, I haven't had a recurrence since I've been in remission, so cutting gluten out of the diet is definitely the key.
Tex
Mike,
I thought the issue of going to get something, and then either forgetting the reason for going there, or getting sidetracked and then forgetting, etc., is generally attributed to old age. It happens to me all the time. Hahahahaha.
You're too young for that category, though, so maybe my theory about gluten, (and MC), accelerating the aging process, has some merit. My tendency to do things of that sort originated about the time that my symptoms began to be evident, but remission doesn't seem to have changed the status much - I still forget. LOL.
Tex
I thought the issue of going to get something, and then either forgetting the reason for going there, or getting sidetracked and then forgetting, etc., is generally attributed to old age. It happens to me all the time. Hahahahaha.
You're too young for that category, though, so maybe my theory about gluten, (and MC), accelerating the aging process, has some merit. My tendency to do things of that sort originated about the time that my symptoms began to be evident, but remission doesn't seem to have changed the status much - I still forget. LOL.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Well, when I was young, I was given the choice of either being good at sex or have a FANTASTIC memory!!!!!!!!!!!! Oh crap, I forgot the point I was trying to make......................... 
Had to share that "funny"!!!!! Hope I didn't offend anyone!
Seriously Becky, I have had episodes like Mike (always forgetting and having to go thru the alphabet to remember a name, place, whatever) but not what you describe. Interesting to know what it is and what is causing it. Hopefully it will be as simple as elimination of the culprit causing it.
Best of luck,
Mars
Had to share that "funny"!!!!! Hope I didn't offend anyone!
Seriously Becky, I have had episodes like Mike (always forgetting and having to go thru the alphabet to remember a name, place, whatever) but not what you describe. Interesting to know what it is and what is causing it. Hopefully it will be as simple as elimination of the culprit causing it.
Best of luck,
Mars
"Let us rise up and be thankful, for if we didn't learn a lot today, at least we learned a little, and if we didn't learn a little, at least we didn't get sick, and if we got sick, at least we didn't die; so, let us all be thankful." -- Buddha
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annie oakley
- King Penguin
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I also have had episodes like Mars and Mike. It's a bit perplexing at times. And once I had the same reaction that you spoke about and felt I needed to sit somewhere then could not remember people talking to me about it. It is a bit scarey. We never really have discussed this before that I know of.....but I am curious of how many of us may have this. Love Oma
May I be more compassionate and loving than yeterday*and be able to spot the idiots in advance
