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Help
Moderators: Rosie, Jean, CAMary, moremuscle, JFR, Dee, xet, Peggy, Matthew, Gabes-Apg, grannyh, Gloria, Mars, starfire, Polly, Joefnh
Help
I was dx with LColitis and have been taking Asacol 2, three times a day since, I have experienced alot of nausea, and when we tried to cut dose to 2 twice a day, the Colitis started again, not to the tune of 12 times a day, but I could tell it was starting up. Recently saw my GI doc and now I am taking Enocort 3mg 3 a day, just started. I have vomiting usually once to twice a week,,,,,,,,had anyone experienced this along with the other "lovely" go now attacks?? Appreciate any help, comments from someone that knows what I am going through.
Thanks :
Thanks :
LWalker
First, welcome to our home and hang in there........ I'm sure lots of people will be "stopping by" to post.
Second, you might have been better off beginning with the Entocort and giving it time to help you heal before maintaining on asacol or one of the other mesalamine drugs.
Your symptoms sound a lot like mine. Originally, explosive D with little to no warning, nausea & vomiting was horrible.
After diagnosis of Lymphocytic Colitis I was prescribed prednisone (won't take that again unless I have no choice). Had some trouble coming off pred so I ended up being on it 3 months. Then I took Entocort for 3 months. I was also taking Asacol the entire 6 months. The pred immediately took away the symptoms. Had no problems on Entocort. Been maintaining on Asacol ever since.
In the time since I started maintaining on Asacol alone, I often have very soft stool, sometimes a little D, have occasionally had nausea. I started with 2 tabs, 3xdaily but cut it down to 2 tabs, 2xdaily.
Unless I take the plunge and decide to control it with diet, I expect to be taking meds for the rest of my life.
Don't know if this helps you or not, but I do belive I know what you are experiencing. Before the diagnosis I was afraid to leave the vicinity of my bathroom.
I hope the Entocort will be very helpful. Please keep posting. It helps to just have someone to talk to. Also, there is a lot of good info on this site and a lot of knowledgeable people.
Shirley
Second, you might have been better off beginning with the Entocort and giving it time to help you heal before maintaining on asacol or one of the other mesalamine drugs.
Your symptoms sound a lot like mine. Originally, explosive D with little to no warning, nausea & vomiting was horrible.
After diagnosis of Lymphocytic Colitis I was prescribed prednisone (won't take that again unless I have no choice). Had some trouble coming off pred so I ended up being on it 3 months. Then I took Entocort for 3 months. I was also taking Asacol the entire 6 months. The pred immediately took away the symptoms. Had no problems on Entocort. Been maintaining on Asacol ever since.
In the time since I started maintaining on Asacol alone, I often have very soft stool, sometimes a little D, have occasionally had nausea. I started with 2 tabs, 3xdaily but cut it down to 2 tabs, 2xdaily.
Unless I take the plunge and decide to control it with diet, I expect to be taking meds for the rest of my life.
Don't know if this helps you or not, but I do belive I know what you are experiencing. Before the diagnosis I was afraid to leave the vicinity of my bathroom.
I hope the Entocort will be very helpful. Please keep posting. It helps to just have someone to talk to. Also, there is a lot of good info on this site and a lot of knowledgeable people.
Shirley
When the eagles are silent, the parrots begin to jabber"
-- Winston Churchill
-- Winston Churchill
Hi,
Welcome to our online family. We've found that most people, (including our docs, and even our real families), don't understand what we go through with this disease. Only someone who actually has MC can truly understand it, but I can assure that virtually everyone here has been where you are now, so we definitely understand what you are going through.
Not everyone who has MC also has nausea and vomiting along with it, but like Shirley, ( and many others), I also had my share of it. Nothing can make your day quite as memorable as sitting on the toilet, while vomiting into a sink, or a trash can, or whatever else is handy.
As Shirley mentioned, we've found that Entocort is the most effective "safe" med that is available to treat MC and the other Inflammatory Bowel Diseases, (IBDs). Many of us here control our symptoms by diet alone, but Entocort will usually get you into remission faster, if it works for you. It seems to be effective in about 65 to 75% of cases.
We are all different, and what works for one, won't necessarily work for another. Most of us here have been able to get our lives back, though, by working out personal treatment programs that fit our lifestyles, and our response to various treatments.
Please feel free to ask anything. There's nothing we haven't experienced with MC, that we don't discuss here. MC is a very humbling disease, to say the least.
Again, welcome aboard.
Tex (Wayne)
Welcome to our online family. We've found that most people, (including our docs, and even our real families), don't understand what we go through with this disease. Only someone who actually has MC can truly understand it, but I can assure that virtually everyone here has been where you are now, so we definitely understand what you are going through.
Not everyone who has MC also has nausea and vomiting along with it, but like Shirley, ( and many others), I also had my share of it. Nothing can make your day quite as memorable as sitting on the toilet, while vomiting into a sink, or a trash can, or whatever else is handy.
As Shirley mentioned, we've found that Entocort is the most effective "safe" med that is available to treat MC and the other Inflammatory Bowel Diseases, (IBDs). Many of us here control our symptoms by diet alone, but Entocort will usually get you into remission faster, if it works for you. It seems to be effective in about 65 to 75% of cases.
We are all different, and what works for one, won't necessarily work for another. Most of us here have been able to get our lives back, though, by working out personal treatment programs that fit our lifestyles, and our response to various treatments.
Please feel free to ask anything. There's nothing we haven't experienced with MC, that we don't discuss here. MC is a very humbling disease, to say the least.
Again, welcome aboard.
Tex (Wayne)
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I very glad you found us. You will get the best information and support right here.I am using diet and no meds to control my LC.
Please read as much as you can here and at www.enterolab.com
DISCLAIMER: I am not a doctor and don't play one on TV.
LDN July 18, 2014
Joan
LDN July 18, 2014
Joan
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MaggieRedwings
- King Penguin
- Posts: 3865
- Joined: Tue May 31, 2005 3:16 am
- Location: SE Pennsylvania
Hi and welcome to the board and sorry for the reason you are here. I am among those with the symptoms you described but that goes back aways for me. I am still trying to hit the remission stage but after this long haul am getting pretty close. None of the prescribed drugs did it for me until Entocort but I had side effects from it and had to stop using it. I am now on the diet alone route.
Feel free to ask away since we have all been their and humbled beyond belief.
Maggie
Feel free to ask away since we have all been their and humbled beyond belief.
Maggie
Maggie Scarpone
___________________
Resident Birder - I live to bird and enjoy life!
___________________
Resident Birder - I live to bird and enjoy life!
Welcome to the group. I just joined not too long ago and have learned so much from these remarkable people.
I have cc, with explosive d up to 27 times a day, fecal incontinence, nausea, cramps, gas, you name it (although not the vomiting). I was on Asacol and Lomotil and neither worked for me. My GI just prescribed Entocort last week, but I took myself off of it because of the side effects. Lets just say I would rather live in the bathroom than take that stuff. On the plus side there are a lot of people here that have taken it w/o any side effects and have gotten results. I am going the diet route and hope that it will get me in remission.
You have truly found a loving family here.
Rose
I have cc, with explosive d up to 27 times a day, fecal incontinence, nausea, cramps, gas, you name it (although not the vomiting). I was on Asacol and Lomotil and neither worked for me. My GI just prescribed Entocort last week, but I took myself off of it because of the side effects. Lets just say I would rather live in the bathroom than take that stuff. On the plus side there are a lot of people here that have taken it w/o any side effects and have gotten results. I am going the diet route and hope that it will get me in remission.
You have truly found a loving family here.
Rose
Hi and welcome! As others have said, no one really can understand MC unless they have it, and at the very least it's an extremely humbling disease. I truly don't know where I would be right now if I hadn't found this loving family. (Very confused and very scared about why I'm not better yet, that's for sure.) As it is, I can learn from others and share my experiences.
I have never experienced vomiting with MC, but I have had severe nausea from time to time, and an almost constant low-grade nausea. Which isn't that odd, when you consider how much trauma our digestive systems go through.
Welcome aboard.
Courtney
I have never experienced vomiting with MC, but I have had severe nausea from time to time, and an almost constant low-grade nausea. Which isn't that odd, when you consider how much trauma our digestive systems go through.
Welcome aboard.
Courtney
Hypothyroid 05/05
LC/CC 07/08
Celiac 07/08
LC/CC 07/08
Celiac 07/08