What's your thoughts
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What's your thoughts
Was diagnosed with MC in July. Having quite a bit of pain went to GI last month. Had gastroscopy and blood work. Results of biopsy were positive for Celiac however my blood work was negative. Her comment was that she wasn't sure how to interpret results. Can blood work be unreliable as a test for celiac?
Hi Mitzi,
Yes, those blood tests are notorious for false negative results. I really don't know why doctors pretend that those tests are even worth the effort that it takes to do them. Some day the GI docs will wise up, and use stool tests, (instead of blood tests), to screen for celiac disease.
I don't understand why your doc would have a problem interpreting those results - it seems quite clear to me. If your small intestinal biopsies show signs of villous atrophy, then you clearly have celiac sprue, regardless of what the blood tests show. She is apparently confused because she thinks those blood tests are accurate. Most of us here on this board, test negative to those blood tests, (except for those members who are actually "fully-developed" celiacs), but most of us are just as sensitive to gluten as the average celiac, and some of us are even more sensitive than many celiacs.
We have quite a few members who have diagnoses for both MC and celiac disease. The same treatment will control the symptoms of both diseases, of course, except that a diagnosis of MC means that dairy products, and probably soy, also, will very likely have to be excluded from the diet, (in addition to gluten), in order to achieve remission. For some individuals, other foods may have to be avoided, at least until the gut is able to heal.
Good luck with your treatment, and please feel free to ask any questions. As I mentioned, we have several other members with both diseases.
Tex
Yes, those blood tests are notorious for false negative results. I really don't know why doctors pretend that those tests are even worth the effort that it takes to do them. Some day the GI docs will wise up, and use stool tests, (instead of blood tests), to screen for celiac disease.
I don't understand why your doc would have a problem interpreting those results - it seems quite clear to me. If your small intestinal biopsies show signs of villous atrophy, then you clearly have celiac sprue, regardless of what the blood tests show. She is apparently confused because she thinks those blood tests are accurate. Most of us here on this board, test negative to those blood tests, (except for those members who are actually "fully-developed" celiacs), but most of us are just as sensitive to gluten as the average celiac, and some of us are even more sensitive than many celiacs.
We have quite a few members who have diagnoses for both MC and celiac disease. The same treatment will control the symptoms of both diseases, of course, except that a diagnosis of MC means that dairy products, and probably soy, also, will very likely have to be excluded from the diet, (in addition to gluten), in order to achieve remission. For some individuals, other foods may have to be avoided, at least until the gut is able to heal.
Good luck with your treatment, and please feel free to ask any questions. As I mentioned, we have several other members with both diseases.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Mitzi,
I too was diagnosed with MC last June and was tested for celiac 5 years ago which turned out negative (even had an endoscopy). Before I found this group I was going to the bathroom 20+ times a day with explosive watery d. I did not respond to any of the medications my GI put me on for the MC. I had already eleminiated gluten and lactose 5 years ago. When I joined this group about 3 weeks ago found out that soy was also a trigger and eleminated that. Now I am going about 5 times a day with solid bm.
Love,
Rose
I too was diagnosed with MC last June and was tested for celiac 5 years ago which turned out negative (even had an endoscopy). Before I found this group I was going to the bathroom 20+ times a day with explosive watery d. I did not respond to any of the medications my GI put me on for the MC. I had already eleminiated gluten and lactose 5 years ago. When I joined this group about 3 weeks ago found out that soy was also a trigger and eleminated that. Now I am going about 5 times a day with solid bm.
Love,
Rose
Mitzi im srry your feeling bad...I was dx with cc last june and had d symtoms for 9 months prior to dx...Like tex said..
good luck..
i got so much better when i eliminated gluten from my diet...also i had to keep a food diary to see which foods affected the mc as well as gluten foods.We have quite a few members who have diagnoses for both MC and celiac disease. The same treatment will control the symptoms of both diseases, of course, except that a diagnosis of MC means that dairy products, and probably soy, also, will very likely have to be excluded from the diet, (in addition to gluten), in order to achieve remission. For some individuals, other foods may have to be avoided, at least until the gut is able to heal.
good luck..
Angy ;)