It depends on whether you are sensitive to tuna. Some of us react to tuna and/or salmon. Another problem with tuna is that most of it is packed in soy oil (I believe).
How about shellfish? Unless we were already allergic to shellfish before developing MC, most of us can tolerate clams, mussels, shrimp, prawns, squid, oysters, etc. Also, as far as I know, most of us can tolerate most fresh-water fish (farm-raised catfish, for example). But I'm not sure about that because there hasn't been a lot of discussion about them on the board.
Tex
Discontinuing Budesonide
Moderators: Rosie, JFR, Gabes-Apg, grannyh, Mars, starfire, Polly, Joefnh
Are you only avoiding gluten? Almost all of us have additional food sensitivities that we have to avoid. Dairy products, soy, and/or eggs are common examples.
It's possible that electrolyte drinks might affect colitis. depending on the ingredients.
Tex
It's possible that electrolyte drinks might affect colitis. depending on the ingredients.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Rudi again,
I seem to have lost my last post somewhere, sometimes this site is very frustrating to use.
I am still trying to taper the budedonide, but every time I try I flare, it seems like a viscious cycle. Not eating gluten dairy
I do not have allergic symptons from any food,
My doctor wants me to use bentyl to ease the cramping I get.
Any thoughts are welcome
I seem to have lost my last post somewhere, sometimes this site is very frustrating to use.
I am still trying to taper the budedonide, but every time I try I flare, it seems like a viscious cycle. Not eating gluten dairy
I do not have allergic symptons from any food,
My doctor wants me to use bentyl to ease the cramping I get.
Any thoughts are welcome
Rudi,
What are you eating and are you keeping a diary of what you're eating and drinking? When I'm in a flare, and it hasn't happened often lately (thank goodness), but even some of my safe foods seem to set me off. So, I've found if I write it down plus all supplements I'm taking, I can often figure out what it is that upset me. I will tell you that when I do flare, I go back to my safe chicken and rice and nothing else. I eat that 3-4 times a day and nothing else.
Hope things get better for you soon!
What are you eating and are you keeping a diary of what you're eating and drinking? When I'm in a flare, and it hasn't happened often lately (thank goodness), but even some of my safe foods seem to set me off. So, I've found if I write it down plus all supplements I'm taking, I can often figure out what it is that upset me. I will tell you that when I do flare, I go back to my safe chicken and rice and nothing else. I eat that 3-4 times a day and nothing else.
Hope things get better for you soon!
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Paul here: Charlene had an appointment with her GI doc this morning for follow-up. He asked about her stool and I told him she no longer has "accidents" and her stool is regularly a 3 or 4 on the Bristol Stool Chart. She has been on Budesonide for 4 weeks. The GI doc said to start tapering her off of the Bud now. I concerned that this is too soon to begin tapering her off. He said to go to 2 caps once a day for a week, then one cap a day for a week. Seems to quick to me. Any advice?
I've got her gluten free, dairy free, caffeine free, soy free, spicy free now for a month.
BTW: Re: cross contamination. I grill most of our protein (beef, pork, chicken, salmon) on the outdoor grill. I use a paper towel soaked in vegetable oil to season the grate after cleaning. Could this be a source of cross contamination?
I've got her gluten free, dairy free, caffeine free, soy free, spicy free now for a month.
BTW: Re: cross contamination. I grill most of our protein (beef, pork, chicken, salmon) on the outdoor grill. I use a paper towel soaked in vegetable oil to season the grate after cleaning. Could this be a source of cross contamination?
This is a fact (proven by published research).
85 % of MC patients relapse after discontinuing Budesonide.
This is our opinion:
Reducing that relapse rate requires that the patient must have been on an elimination diet long enough that their digestive system has healed sufficiently, so that they no longer need the budesonide.
So I agree with you. Unless she is having constipation symptoms, there's no reason to be in a rush to reduce the budesonide dose (yet). She could probably get by at this point on two capsules per day if she had to, but one week before another dose reduction will surely be inadequate. I would say that his schedule is a formula for failure. It's exactly the reason for that 85 % relapse rate.
Regarding oil on grills: vegetable oils are almost surely soy oil. Some of us react to soy oils, contrary to the claims of the "experts". Grilling temperatures are normally not high enough to destroy all proteins. Whether they might be causing problems or not, just to be on the safe side, I use anything other than vegetable oil to wipe grills.
But these are just my opinions (except for the 85 % relapse rate on ending budesonide treatments).
Tex
85 % of MC patients relapse after discontinuing Budesonide.
This is our opinion:
Reducing that relapse rate requires that the patient must have been on an elimination diet long enough that their digestive system has healed sufficiently, so that they no longer need the budesonide.
So I agree with you. Unless she is having constipation symptoms, there's no reason to be in a rush to reduce the budesonide dose (yet). She could probably get by at this point on two capsules per day if she had to, but one week before another dose reduction will surely be inadequate. I would say that his schedule is a formula for failure. It's exactly the reason for that 85 % relapse rate.
Regarding oil on grills: vegetable oils are almost surely soy oil. Some of us react to soy oils, contrary to the claims of the "experts". Grilling temperatures are normally not high enough to destroy all proteins. Whether they might be causing problems or not, just to be on the safe side, I use anything other than vegetable oil to wipe grills.
But these are just my opinions (except for the 85 % relapse rate on ending budesonide treatments).
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
I could not do any spices at all when I was first healing. I can add some things now, but back when I was healing it was a little salt and pepper and that was it for almost a year and a half!
Jari
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
Diagnosed with Collagenous Colitis, June 29th, 2015
Gluten free, Dairy free, and Soy free since July 3rd, 2015
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greenorest
- Posts: 4
- Joined: Thu May 07, 2020 11:50 am
Hello,
how quick do you react to the Budesonide?
When I first started the Budesonide (9mg) 6 weeks ago, my diarrhea was gone within hours. I did not have any problems till I tried to reduce to 6 mg. On the third day with 6 mg, the diarrhea was back as bad as before. I then asked the doctor what to do, went back to 9 mg - three hours later, the diarrhea was gone again. While on 9mg, calprotectin test was negative. When symptoms came back, it was positive as it was before the diagnosis.
On 9 mg, I never had the slightest signs of constipation... I still have 2-4 bowel movements a day, but nicely formed and not urgent.
I did eat gluten till now as I was advised to do so by my doctor (I should eat "normally"). Moreover, it did not seem to make any difference (I tried a rice and potato-diet before my diagnosis, which did not help at all). I will now go gluten free and see if I have more luck reducing the Budesonide in the future.
My background: w, 36, otherwise healthy, fit, doing a lot of sport, no other meds.
Best regards, Tina
how quick do you react to the Budesonide?
When I first started the Budesonide (9mg) 6 weeks ago, my diarrhea was gone within hours. I did not have any problems till I tried to reduce to 6 mg. On the third day with 6 mg, the diarrhea was back as bad as before. I then asked the doctor what to do, went back to 9 mg - three hours later, the diarrhea was gone again. While on 9mg, calprotectin test was negative. When symptoms came back, it was positive as it was before the diagnosis.
On 9 mg, I never had the slightest signs of constipation... I still have 2-4 bowel movements a day, but nicely formed and not urgent.
I did eat gluten till now as I was advised to do so by my doctor (I should eat "normally"). Moreover, it did not seem to make any difference (I tried a rice and potato-diet before my diagnosis, which did not help at all). I will now go gluten free and see if I have more luck reducing the Budesonide in the future.
My background: w, 36, otherwise healthy, fit, doing a lot of sport, no other meds.
Best regards, Tina
Hi Tina,
You will probably find it necessary to also avoid all dairy and soy products if you want to control your symptoms without budesonide. Otherwise, published research shows that at least 85 % of MC patients relapse after a budesonide treatment is ended. Your doctor will pretend to be mystified when you relapse, but that's because he or she donesn't understand how to treat MC.
Tex
You will probably find it necessary to also avoid all dairy and soy products if you want to control your symptoms without budesonide. Otherwise, published research shows that at least 85 % of MC patients relapse after a budesonide treatment is ended. Your doctor will pretend to be mystified when you relapse, but that's because he or she donesn't understand how to treat MC.
Tex
It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.