Hello dear friends,
I've been away for a couple of months trying my new therapy with LDN before I'd report back to all those who want to hear about it and those who are considering it.
In the three years since my LC diagnosis, I have not felt any better, any healthier and any more optimistic than I do now.
I WANT TO SAY UNEQUIVOCALLY THAT I WISHED I HAD HEARD OF IT THREE YEARS AGO BEFORE I TRIED ALL THE OTHER DRUGS AND ALL THE OTHER METHODOLOGIES.
LDN has become my stand-alone therapy. I do not need any other drugs to control my debilitating nausea, my diarrhea, the cramps, the depression (from it all) and the feeling of despair and hopelessness I had with LC.
I am healthier, happier and have a sense of well-being I didn't have for more than three years. I AM EATING BETTER. I have more choices in my diet although I am GF, SF and histamine and tyramine conscious.
I recognize that diet is the answer but if I have to take a drug, LDN is the answer. No side effects. Contrary. It lifts my mood and gives me more energy than I ever need. I don't recognize myself. I have more energy than I ever had. I exercise daily -- I swim, I dance daily.
On a personal level this has allowed me to conduct a normal life. I was afraid to commit to anything -- I had my first book signing for Barnes & Noble this last week (something I would have been afraid to commit to) and I am as busy as ever.
So, if you are on the fence make the jump. Read about it on www.lowdosenaltrexone.org. It might be the answer you are looking for.
Love to all. Sorry I haven't been around much (I was busy with the LDN group and other things).
Monique
Love to all of you
To read more about it : www.lowdosenaltrexone.org
There are several Facebook pages: LDN Trust Fund is one
Where to buy it: It needs to be compounded into micro doses since it comes in 50mg pills and the recommended doses for us is maximum 4.5mg. Best pharmacist is Skip's Pharmacy in Boca Raton FL. He is an expert on LDN.
Best if you can find a doctor that will prescribe it for you. My GI went along with me once I presented all the evidence to him. A Functional Medicine doc will do it too.
If you can't find a doc, you can order it online at www.alldaychemist.com. It comes in 50mg pills and you have to dilute it with 50ml water then you can draw what you need out of it.
Buyldn.com sells it online already compounded. Just choose the dose you want. Start with a very low dose and increase as you need it. 0.5mg is best.
There are several FB pages where you can ask questions and get support from others.
https://www.facebook.com/groups/380829732055771/
And also: IBN and LDN https://www.facebook.com/groups/IBDLDN/
There are plenty of other resources online.
Good luck in your journey.
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An update on my LDN therapy: A Miracle? An unequivocal YES!
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wmonique2
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An update on my LDN therapy: A Miracle? An unequivocal YES!
Diagnosed 2011 with LC. Currently on Low Dose Naltrexone (LDN)
Awesome!
I want to add - while I have no experienced the miracle Monique has, I can say that LDN has made a difference for me, in the lifting of my mood and giving me more energy to do more than I have been able for years.
Instead of going out and only being able to do one, or maybe 2 errands, I am managing to do quite a lot before coming home. I am still tired, but have WAY less bouts of extreme exhaustion now. Remember, I am nearly 70 and have lived with auto immune disorders and their effects for many years. Exhaustion was always part of my life, and so the very fact that there is less of it is fantastic.
Also, I am constantly in a lot of pain, for which I take NO painkillers. That is also very tiring. Having a bit more energy is a gift!
As far as MC goes - I have not had bad C for a while now, and have not had to take Dr. S., so have not had the D that follows. My stool is still indicative of severe inflammation - floaty, mucousy, with ribbons. ans sometimes pencil thin. No sign of N. However, there is relief from the constant battle with C.
I have not been able to turn my doctors to my way of thinking, but they do know that I am taking LDN, and that it is helping.
For those of you newbies out there and for the experienced, there is hope for feeling better (even somewhat), even for a hard core veteran like me.
Instead of going out and only being able to do one, or maybe 2 errands, I am managing to do quite a lot before coming home. I am still tired, but have WAY less bouts of extreme exhaustion now. Remember, I am nearly 70 and have lived with auto immune disorders and their effects for many years. Exhaustion was always part of my life, and so the very fact that there is less of it is fantastic.
Also, I am constantly in a lot of pain, for which I take NO painkillers. That is also very tiring. Having a bit more energy is a gift!
As far as MC goes - I have not had bad C for a while now, and have not had to take Dr. S., so have not had the D that follows. My stool is still indicative of severe inflammation - floaty, mucousy, with ribbons. ans sometimes pencil thin. No sign of N. However, there is relief from the constant battle with C.
I have not been able to turn my doctors to my way of thinking, but they do know that I am taking LDN, and that it is helping.
For those of you newbies out there and for the experienced, there is hope for feeling better (even somewhat), even for a hard core veteran like me.
Monique my good friend! I'm so glad I got on here today to read such awesome news!! I'm so happy for you. I had heard about that drug from a FB group I was on...a miracle drug! And you are off the Amitriptyline? Such great news...so happy for you. I especially like the fact that you are back at dancing! Woohoo! Have fun at all your book signings!
Take care....love ya girl.
Terri
Take care....love ya girl.
Terri
Diagnosed with Lymphocytic Colitis in July, 2012 then with Celiac in November, 2012.
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UkuleleLady
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Congrats, Monique. I'm so incredibly happy for you. I am very intrigued by LDN.
Lesley, it's amazing to hear the C has abated. I know that's been a constant battle for you. I hope things continue to improve.
Nancy
Lesley, it's amazing to hear the C has abated. I know that's been a constant battle for you. I hope things continue to improve.
Nancy
If you want others to be happy, practice compassion. If you want to be happy, practice compassion. ~The Dalai Lama
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mzh
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LDN is a wonder drug for me too. It gives me the energy and pain relief I've been searching for without resorting to pred. I've been off it b/c I ran out of it and I feel the same old lack or energy to do anything. When I'm on it, I'm a happy, functioning human being. What a pleasure! 
I have LDN again but can't take it. I had foot surgery and am on pain meds. One can't take both LDN and strong pain meds. Can't wait to resume it!
I have LDN again but can't take it. I had foot surgery and am on pain meds. One can't take both LDN and strong pain meds. Can't wait to resume it!
Also have sleep apnea
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MaggieRedwings
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Great news Monique and I am so happy for you at getting back your life. I am going to give this a hard look since I have a PCP appointment next week and really do want to get some relief after so many years with CC. Maybe it is the thing I need. Glad to hear about the comfort at the book signing and also the dancing.
Love, Maggie
Love, Maggie
Maggie Scarpone
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Resident Birder - I live to bird and enjoy life!
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Resident Birder - I live to bird and enjoy life!
