Go to Home Page
Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery
  Username:    Password:      Remember me       
MICROSCOPIC COLITIS SUPPORT Forum Index

You can get your life back
MICROSCOPIC COLITIS SUPPORT
Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

MICROSCOPIC COLITIS SUPPORT Forum IndexVisit the Microscopic Colitis Foundation Website
 

The first comprehensive book ever written about Microscopic Colitis
Can be ordered at any bookstore or library
 FAQFAQ  RulesRules   SearchSearch   MemberlistMemberlist   UsergroupsUsergroups  ChatChat   RegisterRegister 
 ProfileProfile   Log in to check your private messagesLog in to check your private messages   Log inLog in 
 World Time Clock--Time ZonesPotty People T-ShirtsPrivacy Policy
Google
SearchSearch The Archives of This Discussion Board
Problem Foods Listed By Various Members

 
Post new topic   Reply to topic       MICROSCOPIC COLITIS SUPPORT Forum Index -> Special Information For Those With Multiple Intolerances
 View previous topic :: View next topic  
Author Message
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31091
User's local time:
2018 Feb 17 - 5:45 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Jan 28, 2009 7:50 pm    Post subject: Problem Foods Listed By Various Members Reply with quote

http://www.perskyfarms.com/phpBB2/viewtopic.php?t=255
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
jsstnana@gmail.com

unknown IP

Joined: 21 Jan 2016

Posts: 8
User's local time:
2018 Feb 17 - 6:45 PM


Food Intolerances : GLUTEN DAIRY soy corn oats rice chicken eggs beef tuna pork nightshades nuts

PostPosted: Mon Feb 29, 2016 11:04 am    Post subject: Help! Enterolab results! Reply with quote

Hi All,
I got my lab results back--NOW WHAT! Was diagnosed with Collagenous Colitis in August-tend to have the Constipation issues and since insurance won't cover meds am using miralax. Diet has been a nightmare-so thanks to Wayne Persky, his book and this support group I found Enterolab. Have results (below)-now what? If anyone has had similar results and can tell me where to start I would appreciate any and all suggestions! I have been off gluten for several months and dairy. I don't eat raw veggies and fruit or spicy items. Of course I have been eating almond butter, chicken and rice-now no-nos! Do I go Paleo?

Fecal Anti-gliadin IgA 504 Units (Normal Range is less than 10 Units)
Fecal Anti-casein (cow’s milk) IgA 102 Units (Normal Range is less than 10 Units)
Fecal Anti-ovalbumin (chicken egg) IgA 26 Units (Normal Range is less than 10 Units)
Fecal Anti-soy IgA 68 Units (Normal Range is less than 10 Units)
Mean Value 11 Antigenic Foods 37 Units (Normal Range is less than 10 Units)
While all of the foods tested can be immune-stimulating, the hierarchy of reactions detected were as follows:
www.enterolab.com

Food to which there was no significant immunological reactivity: none
Food to which there was some immunological reactivity (1+): none
Food to which there was moderate immunological reactivity (2+): Corn Oat Rice Chicken Tuna Beef Pork Walnut Cashew White potato
Food to which there was significant and/or the most immunological reactivity (3+): almond

Within each class of foods to which you displayed multiple reactions, the hierarchy of those reactions detected were as follows:
Grains:
Grain toward which you displayed the most immunologic reactivity: Corn
Grain toward which you displayed intermediate immunologic reactivity: Oat
Grain toward which you displayed the least immunologic reactivity: Rice
Meats:
Meat toward which you displayed the most immunologic reactivity: Chicken
Meat toward which you were next most immunologically reactive: Tuna
Meat toward which you displayed intermediate immunologic reactivity: Beef
Meat toward which you displayed the least immunologic reactivity: Pork
Nuts:
Nut toward which you displayed the most immunologic reactivity: Almond
Nut toward which you displayed intermediate immunologic reactivity: Walnut
Nut toward which you displayed the least immunologic reactivity: Cashew

Nightshades:
You displayed immunologic reactivity to white potato, the member of the nightshade family usually consumed most often and in greatest quantities. While this does not necessarily mean you would react to all other nightshade foods (tomatoes, peppers, eggplant), it is possible. In the realm of elimination diets for immunologic disorders, nightshades are usually eliminated as the entire food class (i.e., all four previously mentioned foods in this class). This is especially important to the clinical setting of arthritis.

Am open to all helpful suggestions as the Doctors in and around Asheville, NC, are clueless about this disease.
Thank you and bless you, Barbara
_________________
BARB
Back to top
Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7379
User's local time:
2018 Feb 18 - 9:45 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Mon Feb 29, 2016 1:27 pm    Post subject: Reply with quote

Barb
the high values are an indicator of high levels of inflammation,
have you been taking Vit D3 and magnesium?

my suggestion is to stick to a bland diet of Rice, Pork, (maybe other game meats if they are available in your area) and 1-2 vegetables Sweet potato, or Carrot, or Corgette.
all peeled and well cooked (the rice is your safest grain)

the main aim is to get the inflammation levels down so you are not so reactive to foods.

Quote:
have been off gluten for several months and dairy.


With your soy result, and the high numbers you need to check every aspect of your house/workplace etc and avoid all gluten, dairy, soy, egg products.
soy and gluten can be in shampoos, make up, lipsticks, moisterising products (anything with Vit E will have soy)

Are you sharing a kitchen with others? do you have new cookware and utensils? I would be diligent about avoiding cross contamination from cookware, chopping boards, utensils, etc.

There are many with this type of result - it is a shock at first, but once you remove major triggers, fix major nutrient deficiencies, follow low inflammation gut healing eating plan, things will improve....

Other peoples test results are located here: http://www.perskyfarms.com/phpBB2/viewforum.php?f=56

Hope this helps
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31091
User's local time:
2018 Feb 17 - 5:45 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Mon Feb 29, 2016 5:27 pm    Post subject: Reply with quote

Hi Barbara,

Welcome to our Internet family. As Gabes said, those are tough results, but many others here have similar lists of food sensitivities. It might be helpful to download the Diet Guidelines at the link below, to get some other tips and food substitution suggestions. For example, rather than pork, I would choose turkey or lamb, because so far virtually none of us here seem to react to those 2 options. Most wild game meats are also safe, and that includes domestic ducks and geese and rabbits, for example.

http://www.microscopiccolitisfoundation.org/downloads.html

Again, welcome aboard, and please feel free to ask anything.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
jsstnana@gmail.com

unknown IP

Joined: 21 Jan 2016

Posts: 8
User's local time:
2018 Feb 17 - 6:45 PM


Food Intolerances : GLUTEN DAIRY soy corn oats rice chicken eggs beef tuna pork nightshades nuts

PostPosted: Tue Mar 01, 2016 12:52 pm    Post subject: Reply with quote

Tex and Gabes,

You both have been most helpful - I just got an e-mail from Enterolab stating: "Considering that your gluten sensitivity stool test value was abnormally high, there is a greater possibility that you may have intestinal malabsorption, which can be caused by gluten sensitivity. It is particularly important to establish the fecal fat value at the outset of testing and treatment in case any future testing requires comparison to baseline values, and to be sure that if it is high now, that it becomes normal in the future (usually determined about one year later).
We at EnteroLab would like to offer you the opportunity to order the intestinal fat malabsorption stool test at a special discounted price of $89.00 (the normal price is $129.00) to determine whether small intestinal malabsorption may be present at this time. If present and untreated, this can cause on-going mineral, vitamin, and other nutrient malabsorption which can lead to osteoporosis and other nutritional deficiency syndromes.
If you act now, this test will not require you to collect another stool specimen as we still have the specimen you recently submitted, but this specimen will be discarded in 4 days."

Do you recommend acting on this? I already have osteopenia. In October I had a parathyroid gland removed. I have hypothyroidism and gerd. I am on medications for hypothyroidism, depression, and migraines. I take 5000 IUs of D3 and will start taking magnesium.

Is Olive Oil ok for me to use? It has vitamin E and Gabes mentioned to avoid Vitamin E?

Thanks,
Barbara
_________________
BARB
Back to top
Gabes-Apg
Emperor Penguin
Emperor Penguin


Joined: 21 Dec 2009

Posts: 7379
User's local time:
2018 Feb 18 - 9:45 AM


Food Intolerances : Gluten, Yeast, Caesin, Soy, salad/raw veges and fruit
Location: Hunter Valley NSW Australia

PostPosted: Tue Mar 01, 2016 1:15 pm    Post subject: Reply with quote

Quote:
Is Olive Oil ok for me to use? It has vitamin E and Gabes mentioned to avoid Vitamin E?


Olive oil is high risk for soy

your best option is to use Coconut oil -
I use it for cooking and as my face and body moisteriser!
(different containers of course)
_________________
Gabes Ryan

"Anything that contradicts experience and logic should be abandoned"
Dalai Lama
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31091
User's local time:
2018 Feb 17 - 5:45 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Mar 01, 2016 1:31 pm    Post subject: Reply with quote

Barbara wrote:
Do you recommend acting on this?


Yes I do. I had that test and it was most helpful. And it's a genuine bargain at that price. Your relatively high antibody results for gluten and casein suggest that you have been reacting to those 2 for a long time, meaning that you may have accrued a lot of small intestinal damage from gluten by now. The test result won't give you an exact percentage of damage, but it can tell you whether the damage is minor, moderate, or severe, and that information can be very useful for making decisions about supplements. If the test result is very high it would suggest that with that level of damage you may also have celiac disease, (rather than non-celiac gluten sensitivity).

If you choose to use olive oil, California-grown olive oil is safest, because it's pure. A high percentage of imported olive oil is adultrated with soy oil and other oils, and because of that it's risky for many of us to use it. As Gabes pointed out, coconut oil is another option, and it's safe for almost all of us.

The depression and migraines should slowly fade away after you get your magnesium reserves back up to where they should be.

You're very welcome,
Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
jsstnana@gmail.com

unknown IP

Joined: 21 Jan 2016

Posts: 8
User's local time:
2018 Feb 17 - 6:45 PM


Food Intolerances : GLUTEN DAIRY soy corn oats rice chicken eggs beef tuna pork nightshades nuts

PostPosted: Tue Mar 01, 2016 4:19 pm    Post subject: Reply with quote

HI Tex and Gabe,,,

Thanks again....How much magnesium do you recommend to start and I assume since coconut oil is ok that other coconut products (milk etc.) are as well. Do you recommend contacting a nutritionist for advice on supplementation since my diet will be so limited?
_________________
BARB
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31091
User's local time:
2018 Feb 17 - 5:45 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Tue Mar 01, 2016 4:41 pm    Post subject: Reply with quote

That's a tough question because if we overdo oral magnesium supplements it can turn into a laxative. Avoid magnesium oxide. Magnesium citrate is usually OK in doses of up to around 300 mg. Chelated magnesium (magnesium glycinate) seems to be the safest form, but it's also the most expensive. I take 200 mg of magnesium citrate and 300 mg of magnesium glycinate daily, scattered throughout the day after meals. It get rid of a magnesium deficiency sooner, it helps to use magnesium oil or lotion applied to the skin, or Epsom salts foot soaks, or adding Epsom salts to bathwater. Topically-applied magnesium cannot act as a laxative.

Yes, coconut milk should be safe for almost anyone.

It would seem that a nutritionist's advice would be helpful, but unfortunately everyone here who has hired a dietitian or nutritionist has been disappointed because virtually none of them understand MC. The advice they offer for IBDs is based on Crohn's or UC, and it simply will not work for MC. If you happen to be located in San Francisco, we have a member there who is a nutritionist, so she understands the disease.

Nutrition is sort of irrelevant anyway until we reach remission, because until our digestive system heals enough that we are able to do a better job of digesting foods, much of our nutrition is lost anyway, and there's no way to know how much or which nutrients are lost. It's more practical to just do whatever is necessary to stop the inflammation and allow our digestive system to begin to heal, and then the nutrition problem will usually resolve itself.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
jsstnana@gmail.com

unknown IP

Joined: 21 Jan 2016

Posts: 8
User's local time:
2018 Feb 17 - 6:45 PM


Food Intolerances : GLUTEN DAIRY soy corn oats rice chicken eggs beef tuna pork nightshades nuts

PostPosted: Sat Mar 05, 2016 9:17 pm    Post subject: Reply with quote

Hi Tex---I'm back --more results and questions! Enterolab results from Quantitative Microscopic Fecal Fat Score TEST = 557 Units (Normal Range is less than 300 Units) So, yes,,, I have accrued a lot of small intestinal damage as well. I am thankful for you advice to get the test as it gives a better ideas of what I am dealing with.

Does anyone know anything about the GAPS diet program - Gut and Psychology Syndrome ?

Thanks and Blessings,
_________________
BARB
Back to top
tex
Site Admin
Site Admin


Joined: 24 May 2005

Posts: 31091
User's local time:
2018 Feb 17 - 5:45 PM


Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Sat Mar 05, 2016 11:24 pm    Post subject: Reply with quote

Hi Barb,

Yes, that confirms a lot of small intestinal damage, so healing will take a while. I'm not very familiar with the GAPS diet, mostly because virtually no one here has ever had any real success using any of the specialized diets that are widely promoted as "healing" diets.

We find that we are much more likely to be able to achieve remission, and do it in the least amount of time, if we simply avoid the foods that cause our immune system to produce antibodies, minimize fiber and sugar in our diet, and stick to a simple, bland diet of safe foods long enough to allow our gut to recover from all the damage. We use our EnteroLab test results as a guide to help us in selecting safe foods for our recovery diet. Those who try to make their diet more complicated than this typically have a lot of problems achieving remission. In general, the simpler our diet, the faster we are able to recover.

Tex
_________________
cowboy

It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
Back to top
Display posts from previous:   
Post new topic      Reply to topic    MICROSCOPIC COLITIS SUPPORT Forum Index -> Special Information For Those With Multiple Intolerances All times are GMT - 6 Hours
Page 1 of 1

 
Jump to:  
You cannot post new topics in this forum
You cannot reply to topics in this forum
You cannot edit your posts in this forum
You cannot delete your posts in this forum
You cannot vote in polls in this forum

Remove cookies set by this forum

Search online dictionaries
(Powered by OneLook® Dictionary Search)
Enter word or phrase:
Enter a word to search for dictionary web sites that include that word.
Enter a pattern consisting of letters and wildcards to search for words.
Valid wildcards are * (matches multiple letters) and ? (matches one letter).
Locations of visitors to this page


Powered by phpBB © 2001, 2005 phpBB Group
IP Country Flag 2.9.6b © 2005, 2008 - 3Di (aka 3D)

Copyright © 2005–2017 perskyfarms.com, All Rights Reserved

Copyright Notice: The material on this site is copyrighted by perskyfarms.com, and it is protected from unauthorized copying and dissemination by United States copyright law, trademark law, international conventions, and other intellectual property laws. This copyright protection also extends to any and all images, found on any and all pages of this site.

Please contact us at this address for permission, if you wish to use any material on this website for any commercial or public purpose.

We have made a good faith effort not to violate any copyright. If we have unknowingly done so, please contact the site administrator, at this address, and the issue will be promptly corrected.

Disclaimer: The information contained within this site is intended solely for general educational purposes, and is not intended, nor implied, to be a substitute for professional medical advice relative to your specific medical condition or question. Anyone who chooses to use any information found here, does so at his or her own risk. Always seek the advice of your physician or other health care provider for any questions you may have regarding your medical condition. Only your physician can provide specific diagnoses and therapies. By using this site you agree to the following terms and conditions:

Certain members of this discussion board are practicing medical professionals. They are not here to offer medial advice, they are here because they have been diagnosed with microsopic colitis, and they are interested in sharing their own personal experiences concerning the disease, and learning from others in all walks of life, who also have to deal with these issues. If you have any questions or concerns regarding your health, you should consult with your own doctor, or medial professional.

If you think you may have a medical emergency, call your doctor, or 911, immediately. The members of this board, regardless of whether or not they are medical professionals, cannot respond to issues requiring urgent medical attention. Please note that no legal action can be taken by any user of this site, as a result of any information found here, and that none of the parties involved, neither individually, nor collectively, nor the owner of this site, can be held responsible for any information offered in the course of discussions, regardless of circumstances, whether those discussions are in a public or private form, and regardless of whether of not any of the parties involved are professionals. Remember that this discussion board is not intended to be a replacement for a consultation with your doctor or other medical professonal, it is intended as a sharing of knowledge and information from the research and personal experience of the members of this discussion board.

This site does not recommend or endorse any specific tests, products, procedures, opinions, or other information that may be mentioned anywhere on this site. Reliance on any information provided here is solely at your own risk.

Main Message Board | Treatment Discussions | Polls | MC FAQs | Recipes | Information Sites | Medication Info | Diet Info | Jokes | Photo Gallery