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Discussion and Support Forum for Collagenous Colitis, Lymphocytic Colitis, Microscopic Colitis, Mastocytic Enterocolitis, and Related Issues

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spontaneous remission

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unknown IP

Joined: 08 Nov 2017
Posts: 1
User's local time:
2018 Feb 20 - 7:14 AM

PostPosted: Wed Nov 08, 2017 8:40 pm    Post subject: spontaneous remission Reply with quote

Diagnosed 2 years ago on the second try with the biopsy. I am a 79 YO retired MD and I hope my story will give hope (and guidance) to others. I responded very favorably to Entocort. Initially 3 mg three times daily. After a year of good control on that regimen, I reduced the dose to twice daily with no ill effects. Several times I tried to stop the medication completely, but the diarrhea returned very promptly each time. This last August I was caught without my medicine for 3 days. I feared the worst, and, much to my surprise, nothing happened. It has now been 3 1/2 months since my last dose. I never really did anything with my diet and did not feel the need for other meds as my response to the Entocort was so good. Incidentally, I bought my Entocort online from Canada at big savings from the US pharmacies. Reach me privately if you want more info on that.
Hoping that a story of spontaneous remission will give heart to some.
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Little Blue Penguin
Little Blue Penguin

Joined: 06 Sep 2017
Posts: 41
User's local time:
2018 Feb 20 - 10:44 PM

Food Intolerances : Nuts, Gluten, Eggs, Lactose, Corn, Coconut, Soy, String Beans, Legumes, Radish, Sugar Cane
Location: Adelaide, Australia

PostPosted: Wed Nov 08, 2017 8:59 pm    Post subject: Reply with quote

Fantastic news. Congratulations. I wonder if other doctors would be more open to hearing your story and the treatment regimes that have been discovered by individuals with these conditions, as they would recognise your qualifications and experience?
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Site Admin
Site Admin

Joined: 24 May 2005

Posts: 31095
User's local time:
2018 Feb 20 - 7:14 AM

Food Intolerances : Gluten, casein, soy, and avenin, (avenin is the prolamin in oats, which is equivalent to the gluten in wheat), beef, grapes, peanuts, cashews, almonds, (but nut butters seem OK except for peanuts), citric acid, chocolate, and agar.
Location: Central Texas

PostPosted: Wed Nov 08, 2017 9:23 pm    Post subject: Reply with quote

Hi jgieske,

Welcome to the forum. Wow! You are indeed one of the lucky ones. I've had MC for about 18 years now, and even had a colectomy (not because of the MC, but because of a massive bleeding problem), and I still react severely to many foods if I accidentally ingest them. Like most here, I'm stuck with a very limited diet, but as long as I stick with it, I'm happy and healthy (and so is what's left of my digestive system). Laughing

Again, welcome aboard, the thanks for sharing your experiences with the disease.


It is suspected that some of the hardest material known to science can be found in the skulls of GI specialists who insist that diet has nothing to do with the treatment of microscopic colitis.
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Rockhopper Penguin
Rockhopper Penguin
unknown IP

Joined: 16 Oct 2011

Posts: 2085
User's local time:
2018 Feb 20 - 7:14 AM

Food Intolerances : gluten, dairy, soy, corn, sugar, quinoa, rasberries, blackberries
Location: Florida

PostPosted: Thu Nov 09, 2017 3:34 pm    Post subject: Reply with quote

Hi Jgieske,

Thank you for your update and welcome to the forum! As you know this is a tough disease and we have some folks that struggle more than others. Your report is extremely uplifting!

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